✨ERN-RND supports people living with rare neurological diseases. It connects 64 centres and partners in 24 countries, and addresses the needs of over 500,000 patients in EU by improving diagnosis, care and coordination across all ages.
🔗https://www.ern-rnd.eu
✨ERN-RND supports people living with rare neurological diseases. It connects 64 centres and partners in 24 countries, and addresses the needs of over 500,000 patients in EU by improving diagnosis, care and coordination across all ages.
🔗https://www.ern-rnd.eu
✨ERNICA is the ERN for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies. It brings together expertise to support patients with these conditions and improve outcomes beyond what a single country can achieve.
🔗https://www.ern-ernica.eu
✨ERNICA is the ERN for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies. It brings together expertise to support patients with these conditions and improve outcomes beyond what a single country can achieve.
🔗https://www.ern-ernica.eu
✨TransplantChild is the ERN on paediatric transplantation, covering all solid organ and stem cell transplants. It focuses on immunosuppression, vaccines, infections, & transition, improving long-term care for patients and families.
🔗https://transplantchild.eu
✨TransplantChild is the ERN on paediatric transplantation, covering all solid organ and stem cell transplants. It focuses on immunosuppression, vaccines, infections, & transition, improving long-term care for patients and families.
🔗https://transplantchild.eu
✨ERN Skin is the ERN for rare, complex and undiagnosed skin disorders in children and adults. It provides highly specialised care and supports daily management while enabling patients to remain in their home environment whenever possible.
🔗https://ern-skin.eu
✨ERN Skin is the ERN for rare, complex and undiagnosed skin disorders in children and adults. It provides highly specialised care and supports daily management while enabling patients to remain in their home environment whenever possible.
🔗https://ern-skin.eu
✨RITA is the ERN for rare immunological disorders. It brings together experts to improve diagnosis, provide guidelines, and ensure access to therapies like biologics, immunoglobulin replacement, stem cell & gene therapy for all patients.
🔗https://ern-rita.org
✨RITA is the ERN for rare immunological disorders. It brings together experts to improve diagnosis, provide guidelines, and ensure access to therapies like biologics, immunoglobulin replacement, stem cell & gene therapy for all patients.
🔗https://ern-rita.org
✨ ERN ReCONNET is the ERN for Connective Tissue and Musculoskeletal Diseases. It involves a total of 65 Healthcare Providers: 54 Full Members (FMs) and 9 Affiliated Partners (APs) from over 23 EU countries.
🔗 https://reconnet.ern-net.eu
✨ ERN ReCONNET is the ERN for Connective Tissue and Musculoskeletal Diseases. It involves a total of 65 Healthcare Providers: 54 Full Members (FMs) and 9 Affiliated Partners (APs) from over 23 EU countries.
🔗 https://reconnet.ern-net.eu
✨ ERN RARE-LIVER is the ERN for hepatological diseases, uniting expert centres to improve care for adults and children. It focuses on autoimmune, vascular, biliary and structural liver diseases and develops clinical practice guidelines.
🔗https://rare-liver.eu
✨ ERN RARE-LIVER is the ERN for hepatological diseases, uniting expert centres to improve care for adults and children. It focuses on autoimmune, vascular, biliary and structural liver diseases and develops clinical practice guidelines.
🔗https://rare-liver.eu
✨ ERN PaedCan is the ERN on Paediatric Cancer working to reduce inequalities in childhood cancer survival by providing high-quality, accessible cross-border healthcare for children and adolescents across Europe.
🔗 https://paedcan.ern-net.eu
✨ ERN PaedCan is the ERN on Paediatric Cancer working to reduce inequalities in childhood cancer survival by providing high-quality, accessible cross-border healthcare for children and adolescents across Europe.
🔗 https://paedcan.ern-net.eu
✨ ERN-LUNG is the ERN for rare respiratory diseases. It brings together expert centres and patient organisations across Europe to reduce mortality, improve care, support research, and strengthen education and knowledge-sharing.
🔗 https://ern-lung.eu
✨ ERN-LUNG is the ERN for rare respiratory diseases. It brings together expert centres and patient organisations across Europe to reduce mortality, improve care, support research, and strengthen education and knowledge-sharing.
🔗 https://ern-lung.eu
✨ ITHACA is the ERN for rare malformative conditions, intellectual disabilities and neurodevelopmental disorders. With 70 centres and 47 EPAGs, it shares expertise to improve care, advance research, and enhance access to information.
🔗 https://ern-ithaca.eu
✨ ITHACA is the ERN for rare malformative conditions, intellectual disabilities and neurodevelopmental disorders. With 70 centres and 47 EPAGs, it shares expertise to improve care, advance research, and enhance access to information.
🔗 https://ern-ithaca.eu
✨ ERN GUARD-Heart is the ERN for rare heart diseases, with a focus on genetically transmitted and specialised paediatric procedures. It brings together 43 expert centres in 16 MS to improve diagnosis, treatment and patient care.
🔗https://guardheart.ern-net.eu
✨ ERN GUARD-Heart is the ERN for rare heart diseases, with a focus on genetically transmitted and specialised paediatric procedures. It brings together 43 expert centres in 16 MS to improve diagnosis, treatment and patient care.
🔗https://guardheart.ern-net.eu
✨ ERN GENTURIS is the ERN for rare and/or complex genetic tumour risk syndromes (genturis). It works to improve identification, minimise variation in clinical outcomes, develop EU-guidelines, support research, and empower patients.
🔗 https://www.genturis.eu
✨ ERN GENTURIS is the ERN for rare and/or complex genetic tumour risk syndromes (genturis). It works to improve identification, minimise variation in clinical outcomes, develop EU-guidelines, support research, and empower patients.
🔗 https://www.genturis.eu
✨ ERN EURO-NMD is the ERN for rare neuromuscular diseases (NMDs), uniting 82 of Europe’s leading NMD clinical and research centres in 25 Member States and working closely with highly active patient organisations.
🔗 https://ern-euro-nmd.eu
✨ ERN EURO-NMD is the ERN for rare neuromuscular diseases (NMDs), uniting 82 of Europe’s leading NMD clinical and research centres in 25 Member States and working closely with highly active patient organisations.
🔗 https://ern-euro-nmd.eu
✨ ERN-EYE is the ERN dedicated to rare eye diseases. It covers 24 EU countries, brings together 51 full members, 8 affiliated partners and 11 ePAGs to provide the best possible care and expertise for more than 900 rare eye conditions.
🔗 https://www.ern-eye.eu
✨ ERN-EYE is the ERN dedicated to rare eye diseases. It covers 24 EU countries, brings together 51 full members, 8 affiliated partners and 11 ePAGs to provide the best possible care and expertise for more than 900 rare eye conditions.
🔗 https://www.ern-eye.eu
✨ @erneurogen.bsky.social is the ERN for rare uro-recto-genital diseases and complex conditions. It unites experts to improve diagnosis, treatment and outcomes, drive innovation, and ensure equitable access for patients across Europe.
🔗 https://eurogen-ern.eu
✨ @erneurogen.bsky.social is the ERN for rare uro-recto-genital diseases and complex conditions. It unites experts to improve diagnosis, treatment and outcomes, drive innovation, and ensure equitable access for patients across Europe.
🔗 https://eurogen-ern.eu
✨@erneurobloodnet.bsky.social improves care for rare and complex hematological diseases across Europe. It covers 450+ rare hematological disorders, uniting 90 members across 18 Member States, 7 affiliated partners in 6 MS and 11 ePAGs.
🔗https://eurobloodnet.eu
✨@erneurobloodnet.bsky.social improves care for rare and complex hematological diseases across Europe. It covers 450+ rare hematological disorders, uniting 90 members across 18 Member States, 7 affiliated partners in 6 MS and 11 ePAGs.
🔗https://eurobloodnet.eu
✨ EURACAN is the ERN for rare adult solid cancers, connecting patients to expert centres across Europe. With 102 centres and ePAGs, it works to improve diagnosis, treatment, knowledge sharing, and multidisciplinary collaboration.
🔗 https://www.euracan.eu
✨ EURACAN is the ERN for rare adult solid cancers, connecting patients to expert centres across Europe. With 102 centres and ePAGs, it works to improve diagnosis, treatment, knowledge sharing, and multidisciplinary collaboration.
🔗 https://www.euracan.eu
✨ EpiCARE is the ERN for rare and complex epilepsies, bringing together highly specialised health centres (38 full members and 12 affiliated partners) in 24/27 EU countries and in Norway with expertise in rare and complex epilepsies.
🔗 https://epi-care.eu
✨ EpiCARE is the ERN for rare and complex epilepsies, bringing together highly specialised health centres (38 full members and 12 affiliated partners) in 24/27 EU countries and in Norway with expertise in rare and complex epilepsies.
🔗 https://epi-care.eu
✨ ERN CRANIO is the ERN for rare craniofacial anomalies and ENT disorders. It brings together expertise across four groups: craniosynostosis and craniofacial anomalies, cleft lip and palate, orodental anomalies and ENT disorders.
🔗 https://www.ern-cranio.eu
✨ ERN CRANIO is the ERN for rare craniofacial anomalies and ENT disorders. It brings together expertise across four groups: craniosynostosis and craniofacial anomalies, cleft lip and palate, orodental anomalies and ENT disorders.
🔗 https://www.ern-cranio.eu
✨ ERN BOND gathers all rare diseases affecting cartilage, bone and dentine, mainly congenital, chronic or genetic. Its mission is to ensure multidisciplinary, holistic and patient-centred care for people living with rare bone diseases.
🔗 https://ernbond.eu
✨ ERN BOND gathers all rare diseases affecting cartilage, bone and dentine, mainly congenital, chronic or genetic. Its mission is to ensure multidisciplinary, holistic and patient-centred care for people living with rare bone diseases.
🔗 https://ernbond.eu
✨ ERKNet is the ERN for Rare Kidney Diseases, a consortium of 72 expert pediatric and adult nephrology centres in 24 European countries providing healthcare to more than 70,000 patients with rare disorders of the kidneys.
🔗 https://www.erknet.org
✨ ERKNet is the ERN for Rare Kidney Diseases, a consortium of 72 expert pediatric and adult nephrology centres in 24 European countries providing healthcare to more than 70,000 patients with rare disorders of the kidneys.
🔗 https://www.erknet.org
Join us in the run-up to the festive season and learn about the 24 existing #ERNs, the #RareDiseases and complex conditions each one covers, and how you can get involved.
Join us in the run-up to the festive season and learn about the 24 existing #ERNs, the #RareDiseases and complex conditions each one covers, and how you can get involved.
📅 2nd December, 3:00 CET
🗣️ Domenico Plantone, AOU - University Hospital Siena, Italy
Sign up 👉https://t1p.de/9hsbc
Joint with the @euronmd.bsky.social and @ean.org
📅 2nd December, 3:00 CET
🗣️ Domenico Plantone, AOU - University Hospital Siena, Italy
Sign up 👉https://t1p.de/9hsbc
Joint with the @euronmd.bsky.social and @ean.org
The #ThursdaysWebinars series is an accredited European online educational program, certified by EBAH.
🎙️Speaker: Olivier Hermine
👉Don’t miss it, secure your spot today! eurobloodnet.eu/education/th...
The #ThursdaysWebinars series is an accredited European online educational program, certified by EBAH.
🎙️Speaker: Olivier Hermine
👉Don’t miss it, secure your spot today! eurobloodnet.eu/education/th...
👩⚕️ They link specialists across Europe to review complex cases remotely, giving expert support to your doctor without you needing to travel.
More ➡️ https://jardin-ern.eu/home/countries
#EU4Health
👩⚕️ They link specialists across Europe to review complex cases remotely, giving expert support to your doctor without you needing to travel.
More ➡️ https://jardin-ern.eu/home/countries
#EU4Health