JARDIN Joint Action
@jardinjointaction.bsky.social
To improve the accessibility of the ERNs for patients across Europe, the EU has funded a pioneering 3-year project involving all member states (MS) plus Norway and Ukraine, the Joint Action on Integration of ERNs into National Healthcare Systems (‘JARDIN’)
📅🌷 Day 14 of #JARDIN's Advent Calendar
✨ ERN-LUNG is the ERN for rare respiratory diseases. It brings together expert centres and patient organisations across Europe to reduce mortality, improve care, support research, and strengthen education and knowledge-sharing.
🔗 https://ern-lung.eu
✨ ERN-LUNG is the ERN for rare respiratory diseases. It brings together expert centres and patient organisations across Europe to reduce mortality, improve care, support research, and strengthen education and knowledge-sharing.
🔗 https://ern-lung.eu
December 14, 2025 at 12:02 PM
📅🌷 Day 14 of #JARDIN's Advent Calendar
✨ ERN-LUNG is the ERN for rare respiratory diseases. It brings together expert centres and patient organisations across Europe to reduce mortality, improve care, support research, and strengthen education and knowledge-sharing.
🔗 https://ern-lung.eu
✨ ERN-LUNG is the ERN for rare respiratory diseases. It brings together expert centres and patient organisations across Europe to reduce mortality, improve care, support research, and strengthen education and knowledge-sharing.
🔗 https://ern-lung.eu
📅🎠 Day 13 of #JARDIN's Advent Calendar
✨ ITHACA is the ERN for rare malformative conditions, intellectual disabilities and neurodevelopmental disorders. With 70 centres and 47 EPAGs, it shares expertise to improve care, advance research, and enhance access to information.
🔗 https://ern-ithaca.eu
✨ ITHACA is the ERN for rare malformative conditions, intellectual disabilities and neurodevelopmental disorders. With 70 centres and 47 EPAGs, it shares expertise to improve care, advance research, and enhance access to information.
🔗 https://ern-ithaca.eu
December 13, 2025 at 6:15 PM
📅🎠 Day 13 of #JARDIN's Advent Calendar
✨ ITHACA is the ERN for rare malformative conditions, intellectual disabilities and neurodevelopmental disorders. With 70 centres and 47 EPAGs, it shares expertise to improve care, advance research, and enhance access to information.
🔗 https://ern-ithaca.eu
✨ ITHACA is the ERN for rare malformative conditions, intellectual disabilities and neurodevelopmental disorders. With 70 centres and 47 EPAGs, it shares expertise to improve care, advance research, and enhance access to information.
🔗 https://ern-ithaca.eu
📅💗 Day 12 of #JARDIN's Advent Calendar
✨ ERN GUARD-Heart is the ERN for rare heart diseases, with a focus on genetically transmitted and specialised paediatric procedures. It brings together 43 expert centres in 16 MS to improve diagnosis, treatment and patient care.
🔗https://guardheart.ern-net.eu
✨ ERN GUARD-Heart is the ERN for rare heart diseases, with a focus on genetically transmitted and specialised paediatric procedures. It brings together 43 expert centres in 16 MS to improve diagnosis, treatment and patient care.
🔗https://guardheart.ern-net.eu
December 12, 2025 at 8:15 AM
📅💗 Day 12 of #JARDIN's Advent Calendar
✨ ERN GUARD-Heart is the ERN for rare heart diseases, with a focus on genetically transmitted and specialised paediatric procedures. It brings together 43 expert centres in 16 MS to improve diagnosis, treatment and patient care.
🔗https://guardheart.ern-net.eu
✨ ERN GUARD-Heart is the ERN for rare heart diseases, with a focus on genetically transmitted and specialised paediatric procedures. It brings together 43 expert centres in 16 MS to improve diagnosis, treatment and patient care.
🔗https://guardheart.ern-net.eu
📅⛸️ Day 11 of #JARDIN's Advent Calendar
✨ ERN GENTURIS is the ERN for rare and/or complex genetic tumour risk syndromes (genturis). It works to improve identification, minimise variation in clinical outcomes, develop EU-guidelines, support research, and empower patients.
🔗 https://www.genturis.eu
✨ ERN GENTURIS is the ERN for rare and/or complex genetic tumour risk syndromes (genturis). It works to improve identification, minimise variation in clinical outcomes, develop EU-guidelines, support research, and empower patients.
🔗 https://www.genturis.eu
December 11, 2025 at 6:30 PM
📅⛸️ Day 11 of #JARDIN's Advent Calendar
✨ ERN GENTURIS is the ERN for rare and/or complex genetic tumour risk syndromes (genturis). It works to improve identification, minimise variation in clinical outcomes, develop EU-guidelines, support research, and empower patients.
🔗 https://www.genturis.eu
✨ ERN GENTURIS is the ERN for rare and/or complex genetic tumour risk syndromes (genturis). It works to improve identification, minimise variation in clinical outcomes, develop EU-guidelines, support research, and empower patients.
🔗 https://www.genturis.eu
📅🎀 Day #10 of #JARDIN's Advent Calendar
✨ ERN EURO-NMD is the ERN for rare neuromuscular diseases (NMDs), uniting 82 of Europe’s leading NMD clinical and research centres in 25 Member States and working closely with highly active patient organisations.
🔗 https://ern-euro-nmd.eu
✨ ERN EURO-NMD is the ERN for rare neuromuscular diseases (NMDs), uniting 82 of Europe’s leading NMD clinical and research centres in 25 Member States and working closely with highly active patient organisations.
🔗 https://ern-euro-nmd.eu
December 10, 2025 at 3:40 PM
📅🎀 Day #10 of #JARDIN's Advent Calendar
✨ ERN EURO-NMD is the ERN for rare neuromuscular diseases (NMDs), uniting 82 of Europe’s leading NMD clinical and research centres in 25 Member States and working closely with highly active patient organisations.
🔗 https://ern-euro-nmd.eu
✨ ERN EURO-NMD is the ERN for rare neuromuscular diseases (NMDs), uniting 82 of Europe’s leading NMD clinical and research centres in 25 Member States and working closely with highly active patient organisations.
🔗 https://ern-euro-nmd.eu
📅🦉 Day 9 of #JARDIN's Advent Calendar
✨ ERN-EYE is the ERN dedicated to rare eye diseases. It covers 24 EU countries, brings together 51 full members, 8 affiliated partners and 11 ePAGs to provide the best possible care and expertise for more than 900 rare eye conditions.
🔗 https://www.ern-eye.eu
✨ ERN-EYE is the ERN dedicated to rare eye diseases. It covers 24 EU countries, brings together 51 full members, 8 affiliated partners and 11 ePAGs to provide the best possible care and expertise for more than 900 rare eye conditions.
🔗 https://www.ern-eye.eu
December 9, 2025 at 3:16 PM
📅🦉 Day 9 of #JARDIN's Advent Calendar
✨ ERN-EYE is the ERN dedicated to rare eye diseases. It covers 24 EU countries, brings together 51 full members, 8 affiliated partners and 11 ePAGs to provide the best possible care and expertise for more than 900 rare eye conditions.
🔗 https://www.ern-eye.eu
✨ ERN-EYE is the ERN dedicated to rare eye diseases. It covers 24 EU countries, brings together 51 full members, 8 affiliated partners and 11 ePAGs to provide the best possible care and expertise for more than 900 rare eye conditions.
🔗 https://www.ern-eye.eu
📅🐧 Day 8 of #JARDIN's Advent Calendar
✨ @erneurogen.bsky.social is the ERN for rare uro-recto-genital diseases and complex conditions. It unites experts to improve diagnosis, treatment and outcomes, drive innovation, and ensure equitable access for patients across Europe.
🔗 https://eurogen-ern.eu
✨ @erneurogen.bsky.social is the ERN for rare uro-recto-genital diseases and complex conditions. It unites experts to improve diagnosis, treatment and outcomes, drive innovation, and ensure equitable access for patients across Europe.
🔗 https://eurogen-ern.eu
December 8, 2025 at 9:02 AM
📅🐧 Day 8 of #JARDIN's Advent Calendar
✨ @erneurogen.bsky.social is the ERN for rare uro-recto-genital diseases and complex conditions. It unites experts to improve diagnosis, treatment and outcomes, drive innovation, and ensure equitable access for patients across Europe.
🔗 https://eurogen-ern.eu
✨ @erneurogen.bsky.social is the ERN for rare uro-recto-genital diseases and complex conditions. It unites experts to improve diagnosis, treatment and outcomes, drive innovation, and ensure equitable access for patients across Europe.
🔗 https://eurogen-ern.eu
📅❄️ Day 7 of #JARDIN's Advent Calendar
✨@erneurobloodnet.bsky.social improves care for rare and complex hematological diseases across Europe. It covers 450+ rare hematological disorders, uniting 90 members across 18 Member States, 7 affiliated partners in 6 MS and 11 ePAGs.
🔗https://eurobloodnet.eu
✨@erneurobloodnet.bsky.social improves care for rare and complex hematological diseases across Europe. It covers 450+ rare hematological disorders, uniting 90 members across 18 Member States, 7 affiliated partners in 6 MS and 11 ePAGs.
🔗https://eurobloodnet.eu
December 7, 2025 at 8:30 AM
📅❄️ Day 7 of #JARDIN's Advent Calendar
✨@erneurobloodnet.bsky.social improves care for rare and complex hematological diseases across Europe. It covers 450+ rare hematological disorders, uniting 90 members across 18 Member States, 7 affiliated partners in 6 MS and 11 ePAGs.
🔗https://eurobloodnet.eu
✨@erneurobloodnet.bsky.social improves care for rare and complex hematological diseases across Europe. It covers 450+ rare hematological disorders, uniting 90 members across 18 Member States, 7 affiliated partners in 6 MS and 11 ePAGs.
🔗https://eurobloodnet.eu
📅🌟 Day 6 of #JARDIN's Advent Calendar
✨ EURACAN is the ERN for rare adult solid cancers, connecting patients to expert centres across Europe. With 102 centres and ePAGs, it works to improve diagnosis, treatment, knowledge sharing, and multidisciplinary collaboration.
🔗 https://www.euracan.eu
✨ EURACAN is the ERN for rare adult solid cancers, connecting patients to expert centres across Europe. With 102 centres and ePAGs, it works to improve diagnosis, treatment, knowledge sharing, and multidisciplinary collaboration.
🔗 https://www.euracan.eu
December 6, 2025 at 12:30 PM
📅🌟 Day 6 of #JARDIN's Advent Calendar
✨ EURACAN is the ERN for rare adult solid cancers, connecting patients to expert centres across Europe. With 102 centres and ePAGs, it works to improve diagnosis, treatment, knowledge sharing, and multidisciplinary collaboration.
🔗 https://www.euracan.eu
✨ EURACAN is the ERN for rare adult solid cancers, connecting patients to expert centres across Europe. With 102 centres and ePAGs, it works to improve diagnosis, treatment, knowledge sharing, and multidisciplinary collaboration.
🔗 https://www.euracan.eu
📅☃️ Day 5 of #JARDIN's Advent Calendar
✨ EpiCARE is the ERN for rare and complex epilepsies, bringing together highly specialised health centres (38 full members and 12 affiliated partners) in 24/27 EU countries and in Norway with expertise in rare and complex epilepsies.
🔗 https://epi-care.eu
✨ EpiCARE is the ERN for rare and complex epilepsies, bringing together highly specialised health centres (38 full members and 12 affiliated partners) in 24/27 EU countries and in Norway with expertise in rare and complex epilepsies.
🔗 https://epi-care.eu
December 5, 2025 at 2:31 PM
📅☃️ Day 5 of #JARDIN's Advent Calendar
✨ EpiCARE is the ERN for rare and complex epilepsies, bringing together highly specialised health centres (38 full members and 12 affiliated partners) in 24/27 EU countries and in Norway with expertise in rare and complex epilepsies.
🔗 https://epi-care.eu
✨ EpiCARE is the ERN for rare and complex epilepsies, bringing together highly specialised health centres (38 full members and 12 affiliated partners) in 24/27 EU countries and in Norway with expertise in rare and complex epilepsies.
🔗 https://epi-care.eu
📅🧣 Day 4 of #JARDIN's Advent Calendar
✨ ERN CRANIO is the ERN for rare craniofacial anomalies and ENT disorders. It brings together expertise across four groups: craniosynostosis and craniofacial anomalies, cleft lip and palate, orodental anomalies and ENT disorders.
🔗 https://www.ern-cranio.eu
✨ ERN CRANIO is the ERN for rare craniofacial anomalies and ENT disorders. It brings together expertise across four groups: craniosynostosis and craniofacial anomalies, cleft lip and palate, orodental anomalies and ENT disorders.
🔗 https://www.ern-cranio.eu
December 4, 2025 at 8:15 AM
📅🧣 Day 4 of #JARDIN's Advent Calendar
✨ ERN CRANIO is the ERN for rare craniofacial anomalies and ENT disorders. It brings together expertise across four groups: craniosynostosis and craniofacial anomalies, cleft lip and palate, orodental anomalies and ENT disorders.
🔗 https://www.ern-cranio.eu
✨ ERN CRANIO is the ERN for rare craniofacial anomalies and ENT disorders. It brings together expertise across four groups: craniosynostosis and craniofacial anomalies, cleft lip and palate, orodental anomalies and ENT disorders.
🔗 https://www.ern-cranio.eu
📅🦌 Day 3 of #JARDIN's Advent Calendar
✨ ERN BOND gathers all rare diseases affecting cartilage, bone and dentine, mainly congenital, chronic or genetic. Its mission is to ensure multidisciplinary, holistic and patient-centred care for people living with rare bone diseases.
🔗 https://ernbond.eu
✨ ERN BOND gathers all rare diseases affecting cartilage, bone and dentine, mainly congenital, chronic or genetic. Its mission is to ensure multidisciplinary, holistic and patient-centred care for people living with rare bone diseases.
🔗 https://ernbond.eu
December 3, 2025 at 6:02 PM
📅🦌 Day 3 of #JARDIN's Advent Calendar
✨ ERN BOND gathers all rare diseases affecting cartilage, bone and dentine, mainly congenital, chronic or genetic. Its mission is to ensure multidisciplinary, holistic and patient-centred care for people living with rare bone diseases.
🔗 https://ernbond.eu
✨ ERN BOND gathers all rare diseases affecting cartilage, bone and dentine, mainly congenital, chronic or genetic. Its mission is to ensure multidisciplinary, holistic and patient-centred care for people living with rare bone diseases.
🔗 https://ernbond.eu
📅🎁 Day 2 of #JARDIN's Advent Calendar
✨ ERKNet is the ERN for Rare Kidney Diseases, a consortium of 72 expert pediatric and adult nephrology centres in 24 European countries providing healthcare to more than 70,000 patients with rare disorders of the kidneys.
🔗 https://www.erknet.org
✨ ERKNet is the ERN for Rare Kidney Diseases, a consortium of 72 expert pediatric and adult nephrology centres in 24 European countries providing healthcare to more than 70,000 patients with rare disorders of the kidneys.
🔗 https://www.erknet.org
December 2, 2025 at 2:11 PM
📅🎁 Day 2 of #JARDIN's Advent Calendar
✨ ERKNet is the ERN for Rare Kidney Diseases, a consortium of 72 expert pediatric and adult nephrology centres in 24 European countries providing healthcare to more than 70,000 patients with rare disorders of the kidneys.
🔗 https://www.erknet.org
✨ ERKNet is the ERN for Rare Kidney Diseases, a consortium of 72 expert pediatric and adult nephrology centres in 24 European countries providing healthcare to more than 70,000 patients with rare disorders of the kidneys.
🔗 https://www.erknet.org
🚀 Today we launch #JARDIN’s Advent Calendar, spotlighting one European Reference Network (ERN) each day throughout December.
Join us in the run-up to the festive season and learn about the 24 existing #ERNs, the #RareDiseases and complex conditions each one covers, and how you can get involved.
Join us in the run-up to the festive season and learn about the 24 existing #ERNs, the #RareDiseases and complex conditions each one covers, and how you can get involved.
December 1, 2025 at 6:30 PM
🚀 Today we launch #JARDIN’s Advent Calendar, spotlighting one European Reference Network (ERN) each day throughout December.
Join us in the run-up to the festive season and learn about the 24 existing #ERNs, the #RareDiseases and complex conditions each one covers, and how you can get involved.
Join us in the run-up to the festive season and learn about the 24 existing #ERNs, the #RareDiseases and complex conditions each one covers, and how you can get involved.
Reposted by JARDIN Joint Action
💻 Upcoming #webinar on “Fluid Biomarkers in Frontotemporal Dementia”
📅 2nd December, 3:00 CET
🗣️ Domenico Plantone, AOU - University Hospital Siena, Italy
Sign up 👉https://t1p.de/9hsbc
Joint with the @euronmd.bsky.social and @ean.org
📅 2nd December, 3:00 CET
🗣️ Domenico Plantone, AOU - University Hospital Siena, Italy
Sign up 👉https://t1p.de/9hsbc
Joint with the @euronmd.bsky.social and @ean.org
December 1, 2025 at 9:01 AM
💻 Upcoming #webinar on “Fluid Biomarkers in Frontotemporal Dementia”
📅 2nd December, 3:00 CET
🗣️ Domenico Plantone, AOU - University Hospital Siena, Italy
Sign up 👉https://t1p.de/9hsbc
Joint with the @euronmd.bsky.social and @ean.org
📅 2nd December, 3:00 CET
🗣️ Domenico Plantone, AOU - University Hospital Siena, Italy
Sign up 👉https://t1p.de/9hsbc
Joint with the @euronmd.bsky.social and @ean.org
Reposted by JARDIN Joint Action
📢Register now for the next edition of the ERN-EuroBloodNet Thursdays Webinar!
The #ThursdaysWebinars series is an accredited European online educational program, certified by EBAH.
🎙️Speaker: Olivier Hermine
👉Don’t miss it, secure your spot today! eurobloodnet.eu/education/th...
The #ThursdaysWebinars series is an accredited European online educational program, certified by EBAH.
🎙️Speaker: Olivier Hermine
👉Don’t miss it, secure your spot today! eurobloodnet.eu/education/th...
December 1, 2025 at 11:23 AM
📢Register now for the next edition of the ERN-EuroBloodNet Thursdays Webinar!
The #ThursdaysWebinars series is an accredited European online educational program, certified by EBAH.
🎙️Speaker: Olivier Hermine
👉Don’t miss it, secure your spot today! eurobloodnet.eu/education/th...
The #ThursdaysWebinars series is an accredited European online educational program, certified by EBAH.
🎙️Speaker: Olivier Hermine
👉Don’t miss it, secure your spot today! eurobloodnet.eu/education/th...
🤔 🗺️ How can #ERNs integration help shorten the diagnostic odyssey for patients with #RareDiseases?
👩⚕️ They link specialists across Europe to review complex cases remotely, giving expert support to your doctor without you needing to travel.
More ➡️ https://jardin-ern.eu/home/countries
#EU4Health
👩⚕️ They link specialists across Europe to review complex cases remotely, giving expert support to your doctor without you needing to travel.
More ➡️ https://jardin-ern.eu/home/countries
#EU4Health
November 27, 2025 at 2:10 PM
🤔 🗺️ How can #ERNs integration help shorten the diagnostic odyssey for patients with #RareDiseases?
👩⚕️ They link specialists across Europe to review complex cases remotely, giving expert support to your doctor without you needing to travel.
More ➡️ https://jardin-ern.eu/home/countries
#EU4Health
👩⚕️ They link specialists across Europe to review complex cases remotely, giving expert support to your doctor without you needing to travel.
More ➡️ https://jardin-ern.eu/home/countries
#EU4Health
📣📘 ERNs monitoring report is out!
The @ec.europa.eu has published the first Monitoring report of the 24 European Reference Networks (ERNs), highlighting their growing impact on #RareDiseases across Europe.
➡️ Access the full report: https://jardin-ern.eu/new/first-ern-monitoring-report
#EU4Health
The @ec.europa.eu has published the first Monitoring report of the 24 European Reference Networks (ERNs), highlighting their growing impact on #RareDiseases across Europe.
➡️ Access the full report: https://jardin-ern.eu/new/first-ern-monitoring-report
#EU4Health
November 26, 2025 at 11:20 AM
📣📘 ERNs monitoring report is out!
The @ec.europa.eu has published the first Monitoring report of the 24 European Reference Networks (ERNs), highlighting their growing impact on #RareDiseases across Europe.
➡️ Access the full report: https://jardin-ern.eu/new/first-ern-monitoring-report
#EU4Health
The @ec.europa.eu has published the first Monitoring report of the 24 European Reference Networks (ERNs), highlighting their growing impact on #RareDiseases across Europe.
➡️ Access the full report: https://jardin-ern.eu/new/first-ern-monitoring-report
#EU4Health
🩺 🥼 How does integrating the #ERNs into National Healthcare Systems support healthcare professionals?
By engaging with ERNs, they can:
💡 Access virtual consultations
🎓 Join continuous training
📊 Contribute to research, guidelines & registries
🤝 Enhance care coordination & collaboration
By engaging with ERNs, they can:
💡 Access virtual consultations
🎓 Join continuous training
📊 Contribute to research, guidelines & registries
🤝 Enhance care coordination & collaboration
November 25, 2025 at 2:02 PM
🩺 🥼 How does integrating the #ERNs into National Healthcare Systems support healthcare professionals?
By engaging with ERNs, they can:
💡 Access virtual consultations
🎓 Join continuous training
📊 Contribute to research, guidelines & registries
🤝 Enhance care coordination & collaboration
By engaging with ERNs, they can:
💡 Access virtual consultations
🎓 Join continuous training
📊 Contribute to research, guidelines & registries
🤝 Enhance care coordination & collaboration
📅 The #RareDiseaseDay 2026 countdown is on!
📺 Watch the official video below, explore the available materials, and join the global movement raising awareness for 300 million people living with a #RareDisease. 💜🌍 www.rarediseaseday.org
📩 Let us know your #JARDIN or national plans! jardin-ern.eu
📺 Watch the official video below, explore the available materials, and join the global movement raising awareness for 300 million people living with a #RareDisease. 💜🌍 www.rarediseaseday.org
📩 Let us know your #JARDIN or national plans! jardin-ern.eu
The 100-day countdown to #RareDiseaseDay begins!
Meet Mak, Linges, Micah, Ayça & Burak, our heroes showing what life is like for the 300M people living with a rare disease.
Full video 🎥 youtu.be/7J1oTfoIOGw
Let’s bring about equity in more ways than even we can imagine!
#ShareYourColours
Meet Mak, Linges, Micah, Ayça & Burak, our heroes showing what life is like for the 300M people living with a rare disease.
Full video 🎥 youtu.be/7J1oTfoIOGw
Let’s bring about equity in more ways than even we can imagine!
#ShareYourColours
November 20, 2025 at 1:08 PM
📅 The #RareDiseaseDay 2026 countdown is on!
📺 Watch the official video below, explore the available materials, and join the global movement raising awareness for 300 million people living with a #RareDisease. 💜🌍 www.rarediseaseday.org
📩 Let us know your #JARDIN or national plans! jardin-ern.eu
📺 Watch the official video below, explore the available materials, and join the global movement raising awareness for 300 million people living with a #RareDisease. 💜🌍 www.rarediseaseday.org
📩 Let us know your #JARDIN or national plans! jardin-ern.eu
🏥 Why integrate #ERNs into National Healthcare Systems?
👩⚕️ Because it helps ensure faster access to expertise and high-quality care for people with #RareDiseases across Europe.
🔗 Integration strengthens links, improves diagnosis and care pathways, and makes better use of resources.
#EU4Health
👩⚕️ Because it helps ensure faster access to expertise and high-quality care for people with #RareDiseases across Europe.
🔗 Integration strengthens links, improves diagnosis and care pathways, and makes better use of resources.
#EU4Health
November 20, 2025 at 8:37 AM
🏥 Why integrate #ERNs into National Healthcare Systems?
👩⚕️ Because it helps ensure faster access to expertise and high-quality care for people with #RareDiseases across Europe.
🔗 Integration strengthens links, improves diagnosis and care pathways, and makes better use of resources.
#EU4Health
👩⚕️ Because it helps ensure faster access to expertise and high-quality care for people with #RareDiseases across Europe.
🔗 Integration strengthens links, improves diagnosis and care pathways, and makes better use of resources.
#EU4Health
🏢 Last week, #JARDIN WP7 colleagues from Latvia, Romania and Austria visited the Center for Rare Diseases in Würzburg for a twinning exercise.
Hosted by Prof. Helge Hebestreit, the group learned about the centre’s work, including its Undiagnosed Disease Program, and exchanged insights.
#EU4Health
Hosted by Prof. Helge Hebestreit, the group learned about the centre’s work, including its Undiagnosed Disease Program, and exchanged insights.
#EU4Health
November 18, 2025 at 1:45 PM
🏢 Last week, #JARDIN WP7 colleagues from Latvia, Romania and Austria visited the Center for Rare Diseases in Würzburg for a twinning exercise.
Hosted by Prof. Helge Hebestreit, the group learned about the centre’s work, including its Undiagnosed Disease Program, and exchanged insights.
#EU4Health
Hosted by Prof. Helge Hebestreit, the group learned about the centre’s work, including its Undiagnosed Disease Program, and exchanged insights.
#EU4Health
📚💻 #JARDIN Online Workshop
WP8 invites anyone interested to an online workshop on the European Health Data Space (EHDS) and its implications for data sharing in the context of rare diseases. 📊🏥
📅 17/11
🕘 9:00 – 12:00 CET
👉 Register here: jardin-ern.eu/event/wp8-ra...
#RareDiseases #EU4Health
WP8 invites anyone interested to an online workshop on the European Health Data Space (EHDS) and its implications for data sharing in the context of rare diseases. 📊🏥
📅 17/11
🕘 9:00 – 12:00 CET
👉 Register here: jardin-ern.eu/event/wp8-ra...
#RareDiseases #EU4Health
November 14, 2025 at 1:32 PM
📚💻 #JARDIN Online Workshop
WP8 invites anyone interested to an online workshop on the European Health Data Space (EHDS) and its implications for data sharing in the context of rare diseases. 📊🏥
📅 17/11
🕘 9:00 – 12:00 CET
👉 Register here: jardin-ern.eu/event/wp8-ra...
#RareDiseases #EU4Health
WP8 invites anyone interested to an online workshop on the European Health Data Space (EHDS) and its implications for data sharing in the context of rare diseases. 📊🏥
📅 17/11
🕘 9:00 – 12:00 CET
👉 Register here: jardin-ern.eu/event/wp8-ra...
#RareDiseases #EU4Health
🧬 Around 6,000–8,000 rare diseases affect people across Europe.
To strengthen care and collaboration, the EU created the European Reference Networks #ERNs, linking +1,600 expert centres in 27 countries to improve diagnosis, research, and treatment.
Learn more ➡️ health.ec.europa.eu/document/dow...
To strengthen care and collaboration, the EU created the European Reference Networks #ERNs, linking +1,600 expert centres in 27 countries to improve diagnosis, research, and treatment.
Learn more ➡️ health.ec.europa.eu/document/dow...
November 13, 2025 at 8:35 AM
🧬 Around 6,000–8,000 rare diseases affect people across Europe.
To strengthen care and collaboration, the EU created the European Reference Networks #ERNs, linking +1,600 expert centres in 27 countries to improve diagnosis, research, and treatment.
Learn more ➡️ health.ec.europa.eu/document/dow...
To strengthen care and collaboration, the EU created the European Reference Networks #ERNs, linking +1,600 expert centres in 27 countries to improve diagnosis, research, and treatment.
Learn more ➡️ health.ec.europa.eu/document/dow...
The European Reference Networks (#ERNs) connect experts across Europe so people living with #RareDiseases can access the care they need.
24 ERNs help share knowledge, improve diagnosis & treatment, and strengthen healthcare systems.
Learn more jardin-ern.eu/european-ref...
#EU4Health #HealthUnion
24 ERNs help share knowledge, improve diagnosis & treatment, and strengthen healthcare systems.
Learn more jardin-ern.eu/european-ref...
#EU4Health #HealthUnion
November 6, 2025 at 11:25 AM
The European Reference Networks (#ERNs) connect experts across Europe so people living with #RareDiseases can access the care they need.
24 ERNs help share knowledge, improve diagnosis & treatment, and strengthen healthcare systems.
Learn more jardin-ern.eu/european-ref...
#EU4Health #HealthUnion
24 ERNs help share knowledge, improve diagnosis & treatment, and strengthen healthcare systems.
Learn more jardin-ern.eu/european-ref...
#EU4Health #HealthUnion