FND Portal
@fndportal.bsky.social
A person with Functional Neurological Disorder. News and musings on FND, disability, and brain science. Contributing to projects at AAN, FNDS, UCL, NHNN. When we work together we can change it for the better. He/him.
Reposted by FND Portal
Thank you to @harvardmed.bsky.social (Harvard Medicine Magazine) for this recent article on #FND. This evidence-based view highlights real brain connectivity differences and supports multidisciplinary approaches for recovery.
November 25, 2025 at 4:14 PM
Thank you to @harvardmed.bsky.social (Harvard Medicine Magazine) for this recent article on #FND. This evidence-based view highlights real brain connectivity differences and supports multidisciplinary approaches for recovery.
Reposted by FND Portal
“It is easy to think #pacing only applies to chores or #stressful tasks, but #joy takes energy too. Decorating, catching up with loved ones, wrapping gifts, or preparing meals can be draining in ways others do not notice.”: buff.ly/06Z7X6k
by @thethrivingspoonie.com
#ChronicPain #HolidaySeason
by @thethrivingspoonie.com
#ChronicPain #HolidaySeason
Chronic Illness Survival Tips: How I Learned to Celebrate the Holidays Without Burning Out
Learn chronic illness holiday survival tips that help you protect your energy, adapt traditions, and move through the season with more ease.
buff.ly
November 25, 2025 at 2:30 PM
“It is easy to think #pacing only applies to chores or #stressful tasks, but #joy takes energy too. Decorating, catching up with loved ones, wrapping gifts, or preparing meals can be draining in ways others do not notice.”: buff.ly/06Z7X6k
by @thethrivingspoonie.com
#ChronicPain #HolidaySeason
by @thethrivingspoonie.com
#ChronicPain #HolidaySeason
What an incredible piece of work. So cool to read about Charcot in this vivid detail - who had such a huge effect on FND, but also ... most other neurological conditions you've heard of. And the fields of neurology and psychology. And popular culture. And...
"Charcot Redux" - @ajlees.bsky.social has written a magisterial article on Charcot, which gives you something of the man and his context.
Essential for anyone needing an introduction
doi.org/10.1093/brai...
Essential for anyone needing an introduction
doi.org/10.1093/brai...
November 25, 2025 at 1:32 PM
What an incredible piece of work. So cool to read about Charcot in this vivid detail - who had such a huge effect on FND, but also ... most other neurological conditions you've heard of. And the fields of neurology and psychology. And popular culture. And...
Reposted by FND Portal
Just published my "Programming for Psychologists" course! 👩💻 github.com/Naubody/prog...
Designed for Psychology & Cognitive Neuroscience Master's students starting their programming journey at @vuamsterdam.bsky.social.
Feel free to share! Feedback welcome!
Designed for Psychology & Cognitive Neuroscience Master's students starting their programming journey at @vuamsterdam.bsky.social.
Feel free to share! Feedback welcome!
November 24, 2025 at 1:14 PM
Just published my "Programming for Psychologists" course! 👩💻 github.com/Naubody/prog...
Designed for Psychology & Cognitive Neuroscience Master's students starting their programming journey at @vuamsterdam.bsky.social.
Feel free to share! Feedback welcome!
Designed for Psychology & Cognitive Neuroscience Master's students starting their programming journey at @vuamsterdam.bsky.social.
Feel free to share! Feedback welcome!
Reposted by FND Portal
Thanks for the post @alancarson15.bsky.social - grateful that the Harvard Medical School magazine put together this spotlight on functional neurological disorder.
November 22, 2025 at 8:14 PM
Thanks for the post @alancarson15.bsky.social - grateful that the Harvard Medical School magazine put together this spotlight on functional neurological disorder.
I would still like to know what was up with Biden's Parkinson-esque appearance in 2024, by the way. We never got great answers to that one
November 22, 2025 at 3:17 PM
I would still like to know what was up with Biden's Parkinson-esque appearance in 2024, by the way. We never got great answers to that one
Reposted by FND Portal
In case this wasn't.... matchlessly clear... RFK Jr. told the New York Times he's personally responsible for the new CDC website page claiming that vaccines may cause autism. This is a lie and Kennedy employed tortured logic to try to justify it to the paper. www.motherjones.com/politics/202...
RFK Jr. wants you to know he’s personally responsible for anti-vax misinformation on CDC website
He told the New York Times there’s no proof that vaccines don’t cause autism, which is a lie.
www.motherjones.com
November 22, 2025 at 3:12 PM
In case this wasn't.... matchlessly clear... RFK Jr. told the New York Times he's personally responsible for the new CDC website page claiming that vaccines may cause autism. This is a lie and Kennedy employed tortured logic to try to justify it to the paper. www.motherjones.com/politics/202...
Reposted by FND Portal
On November 26 our @SpringerNature book in commemoration of Bud (A.D.) Craig's legacy is out. See TOC with 14 contributions on the insular cortex, bodily self, emotion, psychiatric disorders, epilepsy, pain, mindfulness, touch, music, and subjective time. link.springer.com/book/10.1007...
The Bodily Self, Emotion, and Subjective Time
This book provides a comprehensive exploration of the interplay between the bodily self, emotion, and subjective time perception and consciousness.
link.springer.com
October 28, 2025 at 7:42 AM
On November 26 our @SpringerNature book in commemoration of Bud (A.D.) Craig's legacy is out. See TOC with 14 contributions on the insular cortex, bodily self, emotion, psychiatric disorders, epilepsy, pain, mindfulness, touch, music, and subjective time. link.springer.com/book/10.1007...
One of the best articles I’ve seen on FND - and from Harvard Med, no less! Bravo 👏
What’s happening around Harvard in global health this week?
1) Habits in your 20s shape your heart for life
2) Functional Neurological Disorder
3) USAID shutdown led to hundreds of thousands of deaths
4) Single prime editing system potentially treats multiple genetic diseases
bit.ly/m/HarvardGH_...
1) Habits in your 20s shape your heart for life
2) Functional Neurological Disorder
3) USAID shutdown led to hundreds of thousands of deaths
4) Single prime editing system potentially treats multiple genetic diseases
bit.ly/m/HarvardGH_...
November 21, 2025 at 8:16 PM
One of the best articles I’ve seen on FND - and from Harvard Med, no less! Bravo 👏
Reposted by FND Portal
🧠 Could psychedelics help rewire the brain–body disconnect?
💊 + 🧍♀️A new pilot study explores this question by investigating psilocybin-assisted therapy in Motor Functional Neurological Disorder (FND), pairing pharmacological and rehabilitative approaches.
💊 + 🧍♀️A new pilot study explores this question by investigating psilocybin-assisted therapy in Motor Functional Neurological Disorder (FND), pairing pharmacological and rehabilitative approaches.
November 21, 2025 at 2:49 PM
🧠 Could psychedelics help rewire the brain–body disconnect?
💊 + 🧍♀️A new pilot study explores this question by investigating psilocybin-assisted therapy in Motor Functional Neurological Disorder (FND), pairing pharmacological and rehabilitative approaches.
💊 + 🧍♀️A new pilot study explores this question by investigating psilocybin-assisted therapy in Motor Functional Neurological Disorder (FND), pairing pharmacological and rehabilitative approaches.
Reposted by FND Portal
The President called for the murder of Congressional Democrats.
Congressional Democrats should call for his immediate removal or resignation.
Congressional Republicans should condemn his statements and call for him to recant them.
It's the very least they should be doing!
Congressional Democrats should call for his immediate removal or resignation.
Congressional Republicans should condemn his statements and call for him to recant them.
It's the very least they should be doing!
November 20, 2025 at 6:00 PM
The President called for the murder of Congressional Democrats.
Congressional Democrats should call for his immediate removal or resignation.
Congressional Republicans should condemn his statements and call for him to recant them.
It's the very least they should be doing!
Congressional Democrats should call for his immediate removal or resignation.
Congressional Republicans should condemn his statements and call for him to recant them.
It's the very least they should be doing!
Reposted by FND Portal
We had our #FNDIreland peer support meeting in Dublin at the weekend. A big THANK YOU to all those who attended and shared their experience of living with #FND.
Thanks to @fingalcoco.bsky.social for providing our meeting space. Our final meeting of the year will be on December 13th. 💚🧡
Thanks to @fingalcoco.bsky.social for providing our meeting space. Our final meeting of the year will be on December 13th. 💚🧡
November 19, 2025 at 8:58 AM
We had our #FNDIreland peer support meeting in Dublin at the weekend. A big THANK YOU to all those who attended and shared their experience of living with #FND.
Thanks to @fingalcoco.bsky.social for providing our meeting space. Our final meeting of the year will be on December 13th. 💚🧡
Thanks to @fingalcoco.bsky.social for providing our meeting space. Our final meeting of the year will be on December 13th. 💚🧡
Reposted by FND Portal
“All I can say is ‘Wake up, America. This administration wants to take your vaccines away from you. And they’re on a path to do that,’” Michael Osterholm, director of @cidrap.bsky.social
www.statnews.com/2025/11/20/c...
www.statnews.com/2025/11/20/c...
Under RFK Jr., CDC reverses course on stance that vaccines don’t cause autism
A CDC website now promotes the debunked idea of a link between vaccines and autism.
www.statnews.com
November 20, 2025 at 5:06 PM
“All I can say is ‘Wake up, America. This administration wants to take your vaccines away from you. And they’re on a path to do that,’” Michael Osterholm, director of @cidrap.bsky.social
www.statnews.com/2025/11/20/c...
www.statnews.com/2025/11/20/c...
Reposted by FND Portal
Living with a dynamic disability feels like being gaslit my own body.
Every day, often every hour is a mystery to what version of myself will show up: the me whose body cooperates, or the who can’t trust her own legs.
#ChronicallyIll #DynamicDisability #Disability #InvisibleIllness
Every day, often every hour is a mystery to what version of myself will show up: the me whose body cooperates, or the who can’t trust her own legs.
#ChronicallyIll #DynamicDisability #Disability #InvisibleIllness
November 19, 2025 at 5:47 PM
Living with a dynamic disability feels like being gaslit my own body.
Every day, often every hour is a mystery to what version of myself will show up: the me whose body cooperates, or the who can’t trust her own legs.
#ChronicallyIll #DynamicDisability #Disability #InvisibleIllness
Every day, often every hour is a mystery to what version of myself will show up: the me whose body cooperates, or the who can’t trust her own legs.
#ChronicallyIll #DynamicDisability #Disability #InvisibleIllness
Not loving this
Scientists are increasingly concerned that the planet is headed for massive, irreversible changes due to global warming. In some cases, those changes have already begun. n.pr/48nQMqI
3 massive changes you'll see as the climate careens toward tipping points
Scientists are increasingly concerned that the planet is headed for massive, irreversible changes due to global warming. In some cases, those changes have already begun.
n.pr
November 19, 2025 at 3:52 PM
Not loving this
Will be following this with interest!
Very excited to introduce InteroMap, a new bodily mapping tool designed to measure how we subjectively experience our bodily sensations, what we call interoceptive phenomenology 🧵👇
November 19, 2025 at 2:42 PM
Will be following this with interest!
Reposted by FND Portal
Reposted by FND Portal
Rumors of something like this have circulated all year. Immigrant communities in Brooklyn speak of bounty hunters (loosely defined; I respect Joseph’s distinction below) as a certainty.
New from 404 Media: a contractor is paying random people $300 to physically track immigrants for ICE. Spoke to people briefed on plans. This isn't licensed PIs/bounty hunters. These are just former police/military; members of public
"Something doesn't sound right"
www.404media.co/contractor-p...
"Something doesn't sound right"
www.404media.co/contractor-p...
Contractor Paying Random People $300 to Physically Track Immigrants for ICE
“The more I listened to it, the more I’m like, something doesn’t sound right,” a person who was briefed on the pilot plans told 404 Media.
www.404media.co
November 18, 2025 at 4:02 PM
Rumors of something like this have circulated all year. Immigrant communities in Brooklyn speak of bounty hunters (loosely defined; I respect Joseph’s distinction below) as a certainty.
Reposted by FND Portal
Migraine Ireland is delighted to be joined by FND Ireland - Functional Neurological Disorder for this joint event to highlight the overlapping symptoms and treatments of Functional Neurological Disorder and Migraine
The FND/ talk is on December 9th at 5.30. Link here lnkd.in/ehKWeUfT
#jointforces
The FND/ talk is on December 9th at 5.30. Link here lnkd.in/ehKWeUfT
#jointforces
November 18, 2025 at 9:01 AM
Migraine Ireland is delighted to be joined by FND Ireland - Functional Neurological Disorder for this joint event to highlight the overlapping symptoms and treatments of Functional Neurological Disorder and Migraine
The FND/ talk is on December 9th at 5.30. Link here lnkd.in/ehKWeUfT
#jointforces
The FND/ talk is on December 9th at 5.30. Link here lnkd.in/ehKWeUfT
#jointforces
#Cloudflare is down and yet my intrusive thoughts persist
November 18, 2025 at 2:20 PM
#Cloudflare is down and yet my intrusive thoughts persist
Reposted by FND Portal
Inclusion isn't optional—it's a civil right. IDEA guarantees students with disabilities can learn in the least restrictive environment alongside their peers. https://action.momsrising.org/sign/Disability_Education_cuts/?source=bsky.mr #IDEA50 #MomSky
November 17, 2025 at 9:15 PM
Inclusion isn't optional—it's a civil right. IDEA guarantees students with disabilities can learn in the least restrictive environment alongside their peers. https://action.momsrising.org/sign/Disability_Education_cuts/?source=bsky.mr #IDEA50 #MomSky
The new computer build is underway!
November 17, 2025 at 2:50 PM
The new computer build is underway!
Reposted by FND Portal
Rebel Reveals She Is Battling Primary Pulmonary Lymphoma And Functional Neurological Disorder
Rebel Reveals She Is Battling Primary Pulmonary Lymphoma And Functional Neurological Disorder
Tanea Brooks, known to wrestling fans as Rebel in TNA/Impact Wrestling and AEW, shared a difficult health update on her Instagram account. In an emotional video, Brooks detailed her lengthy medical journey that has led to a serious diagnosis. Brooks noted that her health issues began in May 2024, when she was hospitalized for what […]
The post Rebel Reveals She Is Battling Primary Pulmonary Lymphoma And Functional Neurological Disorder appeared first on Wrestling News.
wrestlingnews.co
November 16, 2025 at 3:26 PM
Rebel Reveals She Is Battling Primary Pulmonary Lymphoma And Functional Neurological Disorder
Reposted by FND Portal
For those unaware, AEW's Rebel is fighting Primary Pulmonary Lymphoma as well as Functional Neurological Disorder. Everything I have heard about Rebel points to the fact that she's an amazing person. I wish her a speedy recovery form the cancer and for successful treatment for the FND. 🤼
All Elite Wrestling star Rebel opens up about her recent health journey, which included a diagnosis of lung cancer.
AEW Star Rebel Opens Up About Cancer Diagnosis - Wrestling Inc.
www.wrestlinginc.com
November 16, 2025 at 9:12 PM
For those unaware, AEW's Rebel is fighting Primary Pulmonary Lymphoma as well as Functional Neurological Disorder. Everything I have heard about Rebel points to the fact that she's an amazing person. I wish her a speedy recovery form the cancer and for successful treatment for the FND. 🤼