FND Portal
@fndportal.bsky.social
A person with Functional Neurological Disorder. News and musings on FND, disability, and brain science. Contributing to projects at AAN, FNDS, UCL, NHNN. When we work together we can change it for the better. He/him.
Reposted by FND Portal
#FNDIreland is delighted to support participation in #FND research by Daniel McCabe, PhD Researcher at @qubelfastofficial.bsky.social. The study is open to those living on the island of Ireland. See poster for full details. 🧠💚🧡
@neuroscienceirl.bsky.social @donbps.bsky.social @fndportal.bsky.social
@neuroscienceirl.bsky.social @donbps.bsky.social @fndportal.bsky.social
November 28, 2025 at 9:48 AM
#FNDIreland is delighted to support participation in #FND research by Daniel McCabe, PhD Researcher at @qubelfastofficial.bsky.social. The study is open to those living on the island of Ireland. See poster for full details. 🧠💚🧡
@neuroscienceirl.bsky.social @donbps.bsky.social @fndportal.bsky.social
@neuroscienceirl.bsky.social @donbps.bsky.social @fndportal.bsky.social
I nearly understood this
🧠👀
'These findings reveal high-dimensional aspects of cortical representation undetectable with conventional methods, such as RSA, & contradict previous theories suggesting that high-level visual cortex representations are low-dimensional.' #neuroskyence
journals.plos.org/ploscompbiol...
'These findings reveal high-dimensional aspects of cortical representation undetectable with conventional methods, such as RSA, & contradict previous theories suggesting that high-level visual cortex representations are low-dimensional.' #neuroskyence
journals.plos.org/ploscompbiol...
Universal scale-free representations in human visual cortex
Author summary The human cerebral cortex is thought to encode sensory information in population activity patterns, but the statistical structure of these population codes has yet to be characterized. ...
journals.plos.org
November 28, 2025 at 5:20 AM
I nearly understood this
Reposted by FND Portal
Some ideas for communication and explanation of functional movement disorder 2/
October 1, 2025 at 2:03 PM
Some ideas for communication and explanation of functional movement disorder 2/
Reposted by FND Portal
Looking forward to our final #FNDIreland Peer Support Meeting of the year in Dublin. Please email us or contact us via our website to register to attend. fnd.ie/contact-us/ 💚 🧡
📍 Blanchardstown
📅 13th December 2025
⏰ 11am
#FND #FunctionalNeurologicalDisorder #PeerSupport
📍 Blanchardstown
📅 13th December 2025
⏰ 11am
#FND #FunctionalNeurologicalDisorder #PeerSupport
November 27, 2025 at 12:45 PM
Looking forward to our final #FNDIreland Peer Support Meeting of the year in Dublin. Please email us or contact us via our website to register to attend. fnd.ie/contact-us/ 💚 🧡
📍 Blanchardstown
📅 13th December 2025
⏰ 11am
#FND #FunctionalNeurologicalDisorder #PeerSupport
📍 Blanchardstown
📅 13th December 2025
⏰ 11am
#FND #FunctionalNeurologicalDisorder #PeerSupport
Reposted by FND Portal
From cells to selves
Contemplating the world requires a body, and a body requires an immune system: the rungs of life create the stuff of thought | @annaciaunica.bsky.social
#philsky #cognitivescience
aeon.co/essays/why-y...
Contemplating the world requires a body, and a body requires an immune system: the rungs of life create the stuff of thought | @annaciaunica.bsky.social
#philsky #cognitivescience
aeon.co/essays/why-y...
Why you need your whole body – from head to toes – to think | Aeon Essays
Contemplating the world requires a body, and a body requires an immune system: the rungs of life create the stuff of thought
aeon.co
November 27, 2025 at 5:41 PM
From cells to selves
Contemplating the world requires a body, and a body requires an immune system: the rungs of life create the stuff of thought | @annaciaunica.bsky.social
#philsky #cognitivescience
aeon.co/essays/why-y...
Contemplating the world requires a body, and a body requires an immune system: the rungs of life create the stuff of thought | @annaciaunica.bsky.social
#philsky #cognitivescience
aeon.co/essays/why-y...
Spending Thanksgiving working as fast as humanly possible to ensure my own economic survival 😅
November 27, 2025 at 5:08 PM
Spending Thanksgiving working as fast as humanly possible to ensure my own economic survival 😅
Saya Gray - LIE DOWN.. (Official Video)
YouTube video by SayaGrayVEVO
m.youtube.com
November 26, 2025 at 4:07 PM
One thing about me is I do be posting
November 26, 2025 at 3:16 PM
One thing about me is I do be posting
Reposted by FND Portal
This does not surprise me, and it's exactly why slogans like "trust science" aren't really helpful. Conspiracy theorists often think of themselves *as* scientists: they are looking at evidence and developing theories. They trust the method of science, but think it's been perverted in this case.
Well-reported, this story is quite revealing.
It seems that RFK, Jr. may be genuinely trying to evaluate scientific evidence, but he cherry-picks evidence to support his preconceived views and dismisses other evidence as corrupt.
#ScienceNotScience
1/4
It seems that RFK, Jr. may be genuinely trying to evaluate scientific evidence, but he cherry-picks evidence to support his preconceived views and dismisses other evidence as corrupt.
#ScienceNotScience
1/4
NEW: When RFK Jr. first told Trump that Tylenol might cause autism, the president wanted to tweet out a warning. Kennedy told him not to do that. There was nuance, and the drug companies would push back. “I don’t give a shit about that,” Trump responded. www.theatlantic.com/magazine/202...
November 26, 2025 at 2:35 PM
This does not surprise me, and it's exactly why slogans like "trust science" aren't really helpful. Conspiracy theorists often think of themselves *as* scientists: they are looking at evidence and developing theories. They trust the method of science, but think it's been perverted in this case.
Reposted by FND Portal
"When I got my diagnosis I could have thrown a party," says Sophie Davis who is managing the symptoms of functional neurological disorder
Beverley woman's fight for respect with rare disorder with frightening effects
www.hulldailymail.co.uk
November 26, 2025 at 11:20 AM
"When I got my diagnosis I could have thrown a party," says Sophie Davis who is managing the symptoms of functional neurological disorder
Reposted by FND Portal
Great piece on #interoception and brain body interactions by @carlzimmer.com in the @nytimes.com www.nytimes.com/2025/11/25/s... What an exciting time to work on this. Join us @cshlmeetings.bsky.social to learn more about the this exciting field meetings.cshl.edu/meetings.asp...
Mapping the Sense of What’s Going On Inside
www.nytimes.com
November 26, 2025 at 8:58 AM
Great piece on #interoception and brain body interactions by @carlzimmer.com in the @nytimes.com www.nytimes.com/2025/11/25/s... What an exciting time to work on this. Join us @cshlmeetings.bsky.social to learn more about the this exciting field meetings.cshl.edu/meetings.asp...
Reposted by FND Portal
Thank you to @harvardmed.bsky.social (Harvard Medicine Magazine) for this recent article on #FND. This evidence-based view highlights real brain connectivity differences and supports multidisciplinary approaches for recovery.
November 25, 2025 at 4:14 PM
Thank you to @harvardmed.bsky.social (Harvard Medicine Magazine) for this recent article on #FND. This evidence-based view highlights real brain connectivity differences and supports multidisciplinary approaches for recovery.
Reposted by FND Portal
“It is easy to think #pacing only applies to chores or #stressful tasks, but #joy takes energy too. Decorating, catching up with loved ones, wrapping gifts, or preparing meals can be draining in ways others do not notice.”: buff.ly/06Z7X6k
by @thethrivingspoonie.com
#ChronicPain #HolidaySeason
by @thethrivingspoonie.com
#ChronicPain #HolidaySeason
Chronic Illness Survival Tips: How I Learned to Celebrate the Holidays Without Burning Out
Learn chronic illness holiday survival tips that help you protect your energy, adapt traditions, and move through the season with more ease.
buff.ly
November 25, 2025 at 2:30 PM
“It is easy to think #pacing only applies to chores or #stressful tasks, but #joy takes energy too. Decorating, catching up with loved ones, wrapping gifts, or preparing meals can be draining in ways others do not notice.”: buff.ly/06Z7X6k
by @thethrivingspoonie.com
#ChronicPain #HolidaySeason
by @thethrivingspoonie.com
#ChronicPain #HolidaySeason
What an incredible piece of work. So cool to read about Charcot in this vivid detail - who had such a huge effect on FND, but also ... most other neurological conditions you've heard of. And the fields of neurology and psychology. And popular culture. And...
"Charcot Redux" - @ajlees.bsky.social has written a magisterial article on Charcot, which gives you something of the man and his context.
Essential for anyone needing an introduction
doi.org/10.1093/brai...
Essential for anyone needing an introduction
doi.org/10.1093/brai...
November 25, 2025 at 1:32 PM
What an incredible piece of work. So cool to read about Charcot in this vivid detail - who had such a huge effect on FND, but also ... most other neurological conditions you've heard of. And the fields of neurology and psychology. And popular culture. And...
Reposted by FND Portal
Just published my "Programming for Psychologists" course! 👩💻 github.com/Naubody/prog...
Designed for Psychology & Cognitive Neuroscience Master's students starting their programming journey at @vuamsterdam.bsky.social.
Feel free to share! Feedback welcome!
Designed for Psychology & Cognitive Neuroscience Master's students starting their programming journey at @vuamsterdam.bsky.social.
Feel free to share! Feedback welcome!
November 24, 2025 at 1:14 PM
Just published my "Programming for Psychologists" course! 👩💻 github.com/Naubody/prog...
Designed for Psychology & Cognitive Neuroscience Master's students starting their programming journey at @vuamsterdam.bsky.social.
Feel free to share! Feedback welcome!
Designed for Psychology & Cognitive Neuroscience Master's students starting their programming journey at @vuamsterdam.bsky.social.
Feel free to share! Feedback welcome!
Reposted by FND Portal
Thanks for the post @alancarson15.bsky.social - grateful that the Harvard Medical School magazine put together this spotlight on functional neurological disorder.
November 22, 2025 at 8:14 PM
Thanks for the post @alancarson15.bsky.social - grateful that the Harvard Medical School magazine put together this spotlight on functional neurological disorder.
I would still like to know what was up with Biden's Parkinson-esque appearance in 2024, by the way. We never got great answers to that one
November 22, 2025 at 3:17 PM
I would still like to know what was up with Biden's Parkinson-esque appearance in 2024, by the way. We never got great answers to that one
Reposted by FND Portal
In case this wasn't.... matchlessly clear... RFK Jr. told the New York Times he's personally responsible for the new CDC website page claiming that vaccines may cause autism. This is a lie and Kennedy employed tortured logic to try to justify it to the paper. www.motherjones.com/politics/202...
RFK Jr. wants you to know he’s personally responsible for anti-vax misinformation on CDC website
He told the New York Times there’s no proof that vaccines don’t cause autism, which is a lie.
www.motherjones.com
November 22, 2025 at 3:12 PM
In case this wasn't.... matchlessly clear... RFK Jr. told the New York Times he's personally responsible for the new CDC website page claiming that vaccines may cause autism. This is a lie and Kennedy employed tortured logic to try to justify it to the paper. www.motherjones.com/politics/202...
Reposted by FND Portal
On November 26 our @SpringerNature book in commemoration of Bud (A.D.) Craig's legacy is out. See TOC with 14 contributions on the insular cortex, bodily self, emotion, psychiatric disorders, epilepsy, pain, mindfulness, touch, music, and subjective time. link.springer.com/book/10.1007...
The Bodily Self, Emotion, and Subjective Time
This book provides a comprehensive exploration of the interplay between the bodily self, emotion, and subjective time perception and consciousness.
link.springer.com
October 28, 2025 at 7:42 AM
On November 26 our @SpringerNature book in commemoration of Bud (A.D.) Craig's legacy is out. See TOC with 14 contributions on the insular cortex, bodily self, emotion, psychiatric disorders, epilepsy, pain, mindfulness, touch, music, and subjective time. link.springer.com/book/10.1007...
One of the best articles I’ve seen on FND - and from Harvard Med, no less! Bravo 👏
What’s happening around Harvard in global health this week?
1) Habits in your 20s shape your heart for life
2) Functional Neurological Disorder
3) USAID shutdown led to hundreds of thousands of deaths
4) Single prime editing system potentially treats multiple genetic diseases
bit.ly/m/HarvardGH_...
1) Habits in your 20s shape your heart for life
2) Functional Neurological Disorder
3) USAID shutdown led to hundreds of thousands of deaths
4) Single prime editing system potentially treats multiple genetic diseases
bit.ly/m/HarvardGH_...
November 21, 2025 at 8:16 PM
One of the best articles I’ve seen on FND - and from Harvard Med, no less! Bravo 👏
Reposted by FND Portal
🧠 Could psychedelics help rewire the brain–body disconnect?
💊 + 🧍♀️A new pilot study explores this question by investigating psilocybin-assisted therapy in Motor Functional Neurological Disorder (FND), pairing pharmacological and rehabilitative approaches.
💊 + 🧍♀️A new pilot study explores this question by investigating psilocybin-assisted therapy in Motor Functional Neurological Disorder (FND), pairing pharmacological and rehabilitative approaches.
November 21, 2025 at 2:49 PM
🧠 Could psychedelics help rewire the brain–body disconnect?
💊 + 🧍♀️A new pilot study explores this question by investigating psilocybin-assisted therapy in Motor Functional Neurological Disorder (FND), pairing pharmacological and rehabilitative approaches.
💊 + 🧍♀️A new pilot study explores this question by investigating psilocybin-assisted therapy in Motor Functional Neurological Disorder (FND), pairing pharmacological and rehabilitative approaches.
Reposted by FND Portal
The President called for the murder of Congressional Democrats.
Congressional Democrats should call for his immediate removal or resignation.
Congressional Republicans should condemn his statements and call for him to recant them.
It's the very least they should be doing!
Congressional Democrats should call for his immediate removal or resignation.
Congressional Republicans should condemn his statements and call for him to recant them.
It's the very least they should be doing!
November 20, 2025 at 6:00 PM
The President called for the murder of Congressional Democrats.
Congressional Democrats should call for his immediate removal or resignation.
Congressional Republicans should condemn his statements and call for him to recant them.
It's the very least they should be doing!
Congressional Democrats should call for his immediate removal or resignation.
Congressional Republicans should condemn his statements and call for him to recant them.
It's the very least they should be doing!
Reposted by FND Portal
We had our #FNDIreland peer support meeting in Dublin at the weekend. A big THANK YOU to all those who attended and shared their experience of living with #FND.
Thanks to @fingalcoco.bsky.social for providing our meeting space. Our final meeting of the year will be on December 13th. 💚🧡
Thanks to @fingalcoco.bsky.social for providing our meeting space. Our final meeting of the year will be on December 13th. 💚🧡
November 19, 2025 at 8:58 AM
We had our #FNDIreland peer support meeting in Dublin at the weekend. A big THANK YOU to all those who attended and shared their experience of living with #FND.
Thanks to @fingalcoco.bsky.social for providing our meeting space. Our final meeting of the year will be on December 13th. 💚🧡
Thanks to @fingalcoco.bsky.social for providing our meeting space. Our final meeting of the year will be on December 13th. 💚🧡
Reposted by FND Portal
“All I can say is ‘Wake up, America. This administration wants to take your vaccines away from you. And they’re on a path to do that,’” Michael Osterholm, director of @cidrap.bsky.social
www.statnews.com/2025/11/20/c...
www.statnews.com/2025/11/20/c...
Under RFK Jr., CDC reverses course on stance that vaccines don’t cause autism
A CDC website now promotes the debunked idea of a link between vaccines and autism.
www.statnews.com
November 20, 2025 at 5:06 PM
“All I can say is ‘Wake up, America. This administration wants to take your vaccines away from you. And they’re on a path to do that,’” Michael Osterholm, director of @cidrap.bsky.social
www.statnews.com/2025/11/20/c...
www.statnews.com/2025/11/20/c...
Reposted by FND Portal
Living with a dynamic disability feels like being gaslit my own body.
Every day, often every hour is a mystery to what version of myself will show up: the me whose body cooperates, or the who can’t trust her own legs.
#ChronicallyIll #DynamicDisability #Disability #InvisibleIllness
Every day, often every hour is a mystery to what version of myself will show up: the me whose body cooperates, or the who can’t trust her own legs.
#ChronicallyIll #DynamicDisability #Disability #InvisibleIllness
November 19, 2025 at 5:47 PM
Living with a dynamic disability feels like being gaslit my own body.
Every day, often every hour is a mystery to what version of myself will show up: the me whose body cooperates, or the who can’t trust her own legs.
#ChronicallyIll #DynamicDisability #Disability #InvisibleIllness
Every day, often every hour is a mystery to what version of myself will show up: the me whose body cooperates, or the who can’t trust her own legs.
#ChronicallyIll #DynamicDisability #Disability #InvisibleIllness