elzza 🏳️🌈🏳️⚧️🏴☠️
@elzzadoll.bsky.social
Neurospicy Spoonie, interdisciplinary Artist, Witch
Parent to one young adult human, and one young adult dog
Genderqueer Goblin
they/them
In my sweatpants era
Parent to one young adult human, and one young adult dog
Genderqueer Goblin
they/them
In my sweatpants era
December 22, 2025 at 6:41 PM
Reposted by elzza 🏳️🌈🏳️⚧️🏴☠️
Chronic illness flares can be wildly unpredictable.
We plan as much as we can. We have contingencies. We conserve our energy.
Progress can still be wiped out in a heartbeat.
My latest is about baselines, fear & how to let go of guilt:
www.disabledginger.com/p/what-if-th...
We plan as much as we can. We have contingencies. We conserve our energy.
Progress can still be wiped out in a heartbeat.
My latest is about baselines, fear & how to let go of guilt:
www.disabledginger.com/p/what-if-th...
What If This Flare Never Ends?
It’s one of the biggest fears chronically ill people face. The fear of a never ending flare. That a setback will result in a permanently reduced baseline. That the worst day will become our new normal
www.disabledginger.com
December 21, 2025 at 11:15 PM
Chronic illness flares can be wildly unpredictable.
We plan as much as we can. We have contingencies. We conserve our energy.
Progress can still be wiped out in a heartbeat.
My latest is about baselines, fear & how to let go of guilt:
www.disabledginger.com/p/what-if-th...
We plan as much as we can. We have contingencies. We conserve our energy.
Progress can still be wiped out in a heartbeat.
My latest is about baselines, fear & how to let go of guilt:
www.disabledginger.com/p/what-if-th...
Really stinkin proud of how this #DerpyTiger #appliqué turned out.
But my hands are gonna be so mad at me.
#FibroFiberArtist #chronicpain #DisabledArtist #RecycledFabric
But my hands are gonna be so mad at me.
#FibroFiberArtist #chronicpain #DisabledArtist #RecycledFabric
December 19, 2025 at 7:28 AM
Really stinkin proud of how this #DerpyTiger #appliqué turned out.
But my hands are gonna be so mad at me.
#FibroFiberArtist #chronicpain #DisabledArtist #RecycledFabric
But my hands are gonna be so mad at me.
#FibroFiberArtist #chronicpain #DisabledArtist #RecycledFabric
Went to Goodwill the other day to buy a couple jackets or whatever I could put a quick appliqué onto for a friend's kid, cuz I didn't have spoons to make an outfit from scratch.
Well now I'm 2 days in to a detailed Derpy Tiger back-patch that'll hopefully only take 1 more day. Oopsy
Gonna be rad tho
Well now I'm 2 days in to a detailed Derpy Tiger back-patch that'll hopefully only take 1 more day. Oopsy
Gonna be rad tho
December 18, 2025 at 12:37 AM
Went to Goodwill the other day to buy a couple jackets or whatever I could put a quick appliqué onto for a friend's kid, cuz I didn't have spoons to make an outfit from scratch.
Well now I'm 2 days in to a detailed Derpy Tiger back-patch that'll hopefully only take 1 more day. Oopsy
Gonna be rad tho
Well now I'm 2 days in to a detailed Derpy Tiger back-patch that'll hopefully only take 1 more day. Oopsy
Gonna be rad tho
I'm less "let's make a spreadsheet autistic" and more "ooo find me some graph paper auDHD"
#neurospicy
#neurospicy
December 13, 2025 at 6:26 AM
I'm less "let's make a spreadsheet autistic" and more "ooo find me some graph paper auDHD"
#neurospicy
#neurospicy
Fucking hell
Nervous system can't handle 1 1/2 days of workers replacing the furnace and ducts. Every damn thing flared up
#NEISvoid #fibromyalgia #hEDS #auDHD #neurospicy #mcas
Nervous system can't handle 1 1/2 days of workers replacing the furnace and ducts. Every damn thing flared up
#NEISvoid #fibromyalgia #hEDS #auDHD #neurospicy #mcas
December 10, 2025 at 12:23 AM
Fucking hell
Nervous system can't handle 1 1/2 days of workers replacing the furnace and ducts. Every damn thing flared up
#NEISvoid #fibromyalgia #hEDS #auDHD #neurospicy #mcas
Nervous system can't handle 1 1/2 days of workers replacing the furnace and ducts. Every damn thing flared up
#NEISvoid #fibromyalgia #hEDS #auDHD #neurospicy #mcas
Very well articulated and relatable
“Healthy people optimize their lives through addition: more experiences, more connections, more accomplishments. I’m optimizing through subtraction. And the clarity that comes from extreme constraint is something I never expected to value.” #LongCovid #MECFS
substack.com/home/post/p-...
substack.com/home/post/p-...
The Small Life
Calculating Worth with Diminished Returns
substack.com
December 7, 2025 at 2:04 AM
Very well articulated and relatable
I missed out on Krampus Lauf last night in Portland, again, because I'm disabled and tired. But here, enjoy this Krampus drag look I did exactly 6 years ago for a show for Tammy Brown's Holiday Sparkle tour in Hood River. It's the look my pfp drawing is based on.
#nonbinarydrag #queerartist
#nonbinarydrag #queerartist
December 6, 2025 at 10:03 PM
I missed out on Krampus Lauf last night in Portland, again, because I'm disabled and tired. But here, enjoy this Krampus drag look I did exactly 6 years ago for a show for Tammy Brown's Holiday Sparkle tour in Hood River. It's the look my pfp drawing is based on.
#nonbinarydrag #queerartist
#nonbinarydrag #queerartist
I assume it's a neurospicy focus thing, but there are times I tear thru books, & times like this year where I've started 4 & not finished 1 yet.
But this week my book devouring switch flipped on for the latter 2/3 of Morgan Llewellyn's Irish rebellion novel, 1916.
📚💙
But this week my book devouring switch flipped on for the latter 2/3 of Morgan Llewellyn's Irish rebellion novel, 1916.
📚💙
December 6, 2025 at 5:25 PM
I assume it's a neurospicy focus thing, but there are times I tear thru books, & times like this year where I've started 4 & not finished 1 yet.
But this week my book devouring switch flipped on for the latter 2/3 of Morgan Llewellyn's Irish rebellion novel, 1916.
📚💙
But this week my book devouring switch flipped on for the latter 2/3 of Morgan Llewellyn's Irish rebellion novel, 1916.
📚💙
Ever since I learned the correct pronunciation of axolotl, I've found puns based on the anglicized pronunciation to be insufferable
December 5, 2025 at 1:30 AM
Ever since I learned the correct pronunciation of axolotl, I've found puns based on the anglicized pronunciation to be insufferable
I don't feel like I've ever masked my neurodivergence half as hard as I've masked my chronic illness and pain
You can’t tell if someone is disabled just by looking at them.
There’s no such thing as the “genuinely disabled”.
You are not entitled to a person’s entire medical history just so you can decide whether to believe them or not.
People are not faking disability, most are trying to fake being well.
There’s no such thing as the “genuinely disabled”.
You are not entitled to a person’s entire medical history just so you can decide whether to believe them or not.
People are not faking disability, most are trying to fake being well.
December 4, 2025 at 5:21 PM
I don't feel like I've ever masked my neurodivergence half as hard as I've masked my chronic illness and pain
Don't u love when u go to the Dr for #hEDS pain & list most of your joints as being a problem. And they ask what about your ankles and feet, & you say Yeah but not as bad. Then for the next few weeks your ankles & feet start hurting like mad as if to say oh you think we aren't a problem? #NEISvoid
December 4, 2025 at 5:09 PM
Blah. Only 3 days into Dec & I'm already super fucking tired of winter. I love the PNW with all my heart, but my chronically ill meat suit struggles more and more with the extremes of winter and summer weather that climate change has brought.
Not that we can afford to move to more moderate climes
Not that we can afford to move to more moderate climes
December 4, 2025 at 1:23 AM
Blah. Only 3 days into Dec & I'm already super fucking tired of winter. I love the PNW with all my heart, but my chronically ill meat suit struggles more and more with the extremes of winter and summer weather that climate change has brought.
Not that we can afford to move to more moderate climes
Not that we can afford to move to more moderate climes
Quit burning shit
How much #AirPollution is created when you burn wood?
👉 Defra approved/#Ecodesign stove = 400 times more polluting than a gas boiler.
👉 Open fire = 4000 times more polluting than a gas boiler.
Please think twice about burning if you don't need to.
#WoodBurning
👉 Defra approved/#Ecodesign stove = 400 times more polluting than a gas boiler.
👉 Open fire = 4000 times more polluting than a gas boiler.
Please think twice about burning if you don't need to.
#WoodBurning
November 30, 2025 at 6:14 PM
Quit burning shit
Ah, so we've reached the time of the season when I start contemplating keeping a kn95 in my jacket pocket for morning dog walks in case the neighbors' chimneys are spewing wood smoke. Cuz I'm sensitive like that.
#airpollution #chronicillness #neighborhoodairpollution #airquality #quitburningshit
#airpollution #chronicillness #neighborhoodairpollution #airquality #quitburningshit
November 30, 2025 at 5:39 PM
Ah, so we've reached the time of the season when I start contemplating keeping a kn95 in my jacket pocket for morning dog walks in case the neighbors' chimneys are spewing wood smoke. Cuz I'm sensitive like that.
#airpollution #chronicillness #neighborhoodairpollution #airquality #quitburningshit
#airpollution #chronicillness #neighborhoodairpollution #airquality #quitburningshit
You just died.
The 6th picture in your gallery is what killed you.
Death by cute. Predictable.
The 6th picture in your gallery is what killed you.
Death by cute. Predictable.
November 27, 2025 at 6:39 AM
You just died.
The 6th picture in your gallery is what killed you.
Death by cute. Predictable.
The 6th picture in your gallery is what killed you.
Death by cute. Predictable.
Update: my pcp agrees that all signs still point to POTS, between my history, and the fact my heart rate was still rising after 10 minutes of standing. So, I get to do it again, but next time she's gonna ask the nurse to monitor hr and BP the whole time instead of checking them at intervals. Yay
November 26, 2025 at 4:12 PM
Update: my pcp agrees that all signs still point to POTS, between my history, and the fact my heart rate was still rising after 10 minutes of standing. So, I get to do it again, but next time she's gonna ask the nurse to monitor hr and BP the whole time instead of checking them at intervals. Yay
Got my referrals in the mail. Phew
Now to find out if any of the chiropractors have experience with #hEDS and #fibromyalgia patients and also offer massage.
And hope the old executive dysfunction doesn't get in the way of making all these various appts that continue to spring forth from each appt
Now to find out if any of the chiropractors have experience with #hEDS and #fibromyalgia patients and also offer massage.
And hope the old executive dysfunction doesn't get in the way of making all these various appts that continue to spring forth from each appt
Had a phone appt w Kaiser's Spine Program yest, gatekeeper for acupuncture & chiropractic referrals, it was mostly pain scale questions as expected. A nightmare of arbitrary interpretation for any chronic pain patient. Gonna spend all day 2nd guessing my answers, worried they were too low...
#hEDS
#hEDS
November 25, 2025 at 3:51 AM
Got my referrals in the mail. Phew
Now to find out if any of the chiropractors have experience with #hEDS and #fibromyalgia patients and also offer massage.
And hope the old executive dysfunction doesn't get in the way of making all these various appts that continue to spring forth from each appt
Now to find out if any of the chiropractors have experience with #hEDS and #fibromyalgia patients and also offer massage.
And hope the old executive dysfunction doesn't get in the way of making all these various appts that continue to spring forth from each appt
Me (noticing my breathing had gotten slow and deep the longer the standing test went on): oh that's a sure sign my heart rate's going up, gonna ace this POTS test
Nurse: your HR only increased 16 bmp, 20 is the minimum. You don't have POTS
#chronicillness #NEISvoid
(1/2)
Nurse: your HR only increased 16 bmp, 20 is the minimum. You don't have POTS
#chronicillness #NEISvoid
(1/2)
November 25, 2025 at 3:30 AM
Me (noticing my breathing had gotten slow and deep the longer the standing test went on): oh that's a sure sign my heart rate's going up, gonna ace this POTS test
Nurse: your HR only increased 16 bmp, 20 is the minimum. You don't have POTS
#chronicillness #NEISvoid
(1/2)
Nurse: your HR only increased 16 bmp, 20 is the minimum. You don't have POTS
#chronicillness #NEISvoid
(1/2)
Had a phone appt w Kaiser's Spine Program yest, gatekeeper for acupuncture & chiropractic referrals, it was mostly pain scale questions as expected. A nightmare of arbitrary interpretation for any chronic pain patient. Gonna spend all day 2nd guessing my answers, worried they were too low...
#hEDS
#hEDS
November 20, 2025 at 5:43 PM
Had a phone appt w Kaiser's Spine Program yest, gatekeeper for acupuncture & chiropractic referrals, it was mostly pain scale questions as expected. A nightmare of arbitrary interpretation for any chronic pain patient. Gonna spend all day 2nd guessing my answers, worried they were too low...
#hEDS
#hEDS
Final 2 blocks of my rainbow crumb quilt! 9 months of incremental progress. I can't wait to play with layout next, and I wish I had a blank wall to pin them to.
#rainbowcrumbquilt #queerquilter #fibrofiberartist
#rainbowcrumbquilt #queerquilter #fibrofiberartist
November 20, 2025 at 6:10 AM
Final 2 blocks of my rainbow crumb quilt! 9 months of incremental progress. I can't wait to play with layout next, and I wish I had a blank wall to pin them to.
#rainbowcrumbquilt #queerquilter #fibrofiberartist
#rainbowcrumbquilt #queerquilter #fibrofiberartist
Well, after all these years of struggle, medical trauma & gas lighting, it turned out to be incredibly easy to get a positive assessment for EDS.
I love that the treatment plan printed out for me suggests therapy for medical trauma and neurodivergence
#chronicpain #ehlersdanlos #hypermobility
I love that the treatment plan printed out for me suggests therapy for medical trauma and neurodivergence
#chronicpain #ehlersdanlos #hypermobility
November 18, 2025 at 3:28 AM
Well, after all these years of struggle, medical trauma & gas lighting, it turned out to be incredibly easy to get a positive assessment for EDS.
I love that the treatment plan printed out for me suggests therapy for medical trauma and neurodivergence
#chronicpain #ehlersdanlos #hypermobility
I love that the treatment plan printed out for me suggests therapy for medical trauma and neurodivergence
#chronicpain #ehlersdanlos #hypermobility
Finished my last green crumb quilt block last night. Only 2 blocks left to go, then I can decide how I want to arrange them all, and get to assembling this rainbow lap quilt!
November 17, 2025 at 6:17 PM
Finished my last green crumb quilt block last night. Only 2 blocks left to go, then I can decide how I want to arrange them all, and get to assembling this rainbow lap quilt!
According to my Dr, my brain waking me up at 6 or 7 am consistently and not being able to fall back asleep, does not count as insomnia and I am just old now
November 11, 2025 at 3:43 PM
According to my Dr, my brain waking me up at 6 or 7 am consistently and not being able to fall back asleep, does not count as insomnia and I am just old now
Me (an xennial w/ years of medical trauma from dismissive gen x & boomer Drs): goes into Dr appt all spooked with a list of points to defend the validity of my symptoms
My millennial Dr: asks questions and orders what tests she can to confirm the comorbidities I came to get dxed with
Me: ...?
My millennial Dr: asks questions and orders what tests she can to confirm the comorbidities I came to get dxed with
Me: ...?
November 11, 2025 at 4:37 AM
Me (an xennial w/ years of medical trauma from dismissive gen x & boomer Drs): goes into Dr appt all spooked with a list of points to defend the validity of my symptoms
My millennial Dr: asks questions and orders what tests she can to confirm the comorbidities I came to get dxed with
Me: ...?
My millennial Dr: asks questions and orders what tests she can to confirm the comorbidities I came to get dxed with
Me: ...?