I write about invisible illness.
@elephantstalk.bsky.social
I am a medical student focused on ensuring that patients with chronic illness are SEEN, HEARD, AND HELPED. #longcovid #neurodistinct
Pinned
OK 2026, I am all in for patient advocacy and helping to solve the f*cking mystery of #longcovid. Who’s with me?
Reposted by I write about invisible illness.
OK 2026, I am all in for patient advocacy and helping to solve the f*cking mystery of #longcovid. Who’s with me?
January 12, 2026 at 1:58 AM
OK 2026, I am all in for patient advocacy and helping to solve the f*cking mystery of #longcovid. Who’s with me?
Reposted by I write about invisible illness.
Yes! This! Stop wearing what I call ‘pantyliner’ style masks and choose N95 if you are getting or giving care during this high flu and covid season! Thank you to #theguardian.com for highlighting this @who.int advice:
Important article out today!
"Surgical face masks provide inadequate protection against flu-like illnesses including Covid, and should be replaced by respirator-level masks – worn every time doctors and nurses are face to face with a patient, according...
🧵1/2
www.theguardian.com/global-devel...
"Surgical face masks provide inadequate protection against flu-like illnesses including Covid, and should be replaced by respirator-level masks – worn every time doctors and nurses are face to face with a patient, according...
🧵1/2
www.theguardian.com/global-devel...
Face masks ‘inadequate’ and should be swapped for respirators, WHO is advised
Experts are urging guideline changes on what health professionals should wear to protect against flu-like illnesses including Covid
www.theguardian.com
January 14, 2026 at 12:11 AM
Yes! This! Stop wearing what I call ‘pantyliner’ style masks and choose N95 if you are getting or giving care during this high flu and covid season! Thank you to #theguardian.com for highlighting this @who.int advice:
Yes! This! Stop wearing what I call ‘pantyliner’ style masks and choose N95 if you are getting or giving care during this high flu and covid season! Thank you to #theguardian.com for highlighting this @who.int advice:
Important article out today!
"Surgical face masks provide inadequate protection against flu-like illnesses including Covid, and should be replaced by respirator-level masks – worn every time doctors and nurses are face to face with a patient, according...
🧵1/2
www.theguardian.com/global-devel...
"Surgical face masks provide inadequate protection against flu-like illnesses including Covid, and should be replaced by respirator-level masks – worn every time doctors and nurses are face to face with a patient, according...
🧵1/2
www.theguardian.com/global-devel...
Face masks ‘inadequate’ and should be swapped for respirators, WHO is advised
Experts are urging guideline changes on what health professionals should wear to protect against flu-like illnesses including Covid
www.theguardian.com
January 14, 2026 at 12:11 AM
Yes! This! Stop wearing what I call ‘pantyliner’ style masks and choose N95 if you are getting or giving care during this high flu and covid season! Thank you to #theguardian.com for highlighting this @who.int advice:
Reposted by I write about invisible illness.
"The future of Long COVID research will be measured not by how many trials are launched, but by how many lives they truly represent."
A new op-ed in @thesicktimes.org by Sevda Sarikaya
thesicktimes.org/2026/01/13/s...
A new op-ed in @thesicktimes.org by Sevda Sarikaya
thesicktimes.org/2026/01/13/s...
Severe people may hold answers to Long COVID. They must be included in research. - The Sick Times
People with the most severe symptoms represent the most clinically urgent population, yet they remain absent from the evidence base that guides care. Their exclusion is not a procedural oversight but ...
thesicktimes.org
January 13, 2026 at 6:47 PM
"The future of Long COVID research will be measured not by how many trials are launched, but by how many lives they truly represent."
A new op-ed in @thesicktimes.org by Sevda Sarikaya
thesicktimes.org/2026/01/13/s...
A new op-ed in @thesicktimes.org by Sevda Sarikaya
thesicktimes.org/2026/01/13/s...
Healthcare workers are at huge risk of burnout, infection and even worde—reinfection from #covid and #flu. And yet at my GP’s office in the U.S. they are still handing out those blue ‘pantyliner’ masks to patients and health care workers are not masked at all many times. #wtf #covid #flu
A Quebec survey among healthcare workers found a 17% cumulative risk of long COVID after acute infection, with risk increasing after each reinfection. Estimated prevalence was 5.6% in this population, while other research suggests global rates may reach up to 40% among healthcare workers.
January 12, 2026 at 2:23 PM
OK 2026, I am all in for patient advocacy and helping to solve the f*cking mystery of #longcovid. Who’s with me?
January 12, 2026 at 1:58 AM
OK 2026, I am all in for patient advocacy and helping to solve the f*cking mystery of #longcovid. Who’s with me?
Hey, @kairyssdal.bsky.social : Could you please dive in to this #disability #stat and do a segment on this. Thanks, from a huge fan , a former Forbes writer and now Harvard Medical Student with #longcovid. Happy to help! love your show!!!! #hockeystick #growth
January 11, 2026 at 10:44 PM
Hey, @kairyssdal.bsky.social : Could you please dive in to this #disability #stat and do a segment on this. Thanks, from a huge fan , a former Forbes writer and now Harvard Medical Student with #longcovid. Happy to help! love your show!!!! #hockeystick #growth
Reposted by I write about invisible illness.
Senators Ron Wyden, Ben Ray Lujan, and Ed Markey just published an open letter urging Apple + Google to remove the X and Grok apps from their app stores:
www.nbcnews.com/tech/interne...
www.nbcnews.com/tech/interne...
Thousands of people on X are using Grok to create sexualized images of adults + minors wearing minimal clothing. This not only violates X's own content policy, it may violate the guidelines of Apple’s App Store and the Google Play store:
www.wired.com/story/x-grok...
www.wired.com/story/x-grok...
Why Are Grok and X Still Available in App Stores?
Elon Musk’s chatbot has been used to generate thousands of sexualized images of adults and apparent minors. Apple and Google have removed other “nudify” apps—but continue to host X and Grok.
www.wired.com
January 9, 2026 at 4:41 PM
Senators Ron Wyden, Ben Ray Lujan, and Ed Markey just published an open letter urging Apple + Google to remove the X and Grok apps from their app stores:
www.nbcnews.com/tech/interne...
www.nbcnews.com/tech/interne...
Reposted by I write about invisible illness.
As we experience a huge surge of flu cases, a reminder that the widespread usage of masks at the start of the COVID pandemic wiped out a strain of the flu.
If you haven’t been masking up lately, now would be a great time to restart.
If you haven’t been masking up lately, now would be a great time to restart.
The Covid-19 pandemic killed off one strain of the flu, and that will change the next vaccines | CNN
For 10 years, Americans have had access to flu shots that protect against four strains of the virus: two A strains and two B strains. Starting this fall, however, all the flu shots distributed in the ...
edition.cnn.com
December 30, 2025 at 10:49 PM
As we experience a huge surge of flu cases, a reminder that the widespread usage of masks at the start of the COVID pandemic wiped out a strain of the flu.
If you haven’t been masking up lately, now would be a great time to restart.
If you haven’t been masking up lately, now would be a great time to restart.
Reposted by I write about invisible illness.
Excellent piece from @motherjones.com’s disability correspondent @juliametraux.bsky.social. I’m really struck by how punching down is now a common form of bonding among certain men. Also, as noted, Stewart’s ableist bro-banter about masking seems counter to his support for 9/11 first responders.
Dear Jon Stewart,
No one randomly owes you information about their health, their loved one’s health, or, understandably, just wanting to avoid Covid, which is the only way to prevent Long Covid.
No one randomly owes you information about their health, their loved one’s health, or, understandably, just wanting to avoid Covid, which is the only way to prevent Long Covid.
Hey Jon Stewart, jokes about wearing masks aren't funny
Critics of the Daily Show host say he's a hypocrite.
www.motherjones.com
December 29, 2025 at 7:12 PM
Excellent piece from @motherjones.com’s disability correspondent @juliametraux.bsky.social. I’m really struck by how punching down is now a common form of bonding among certain men. Also, as noted, Stewart’s ableist bro-banter about masking seems counter to his support for 9/11 first responders.
Reposted by I write about invisible illness.
Will Jon Stewart @weeklyshowpodcast.bsky.social advocate as fiercely for COVID responders who worked w/out proper PPE (and now suffer with Long Covid & multiple other health complications) as he does for 9/11 first responders?
December 27, 2025 at 11:21 PM
Will Jon Stewart @weeklyshowpodcast.bsky.social advocate as fiercely for COVID responders who worked w/out proper PPE (and now suffer with Long Covid & multiple other health complications) as he does for 9/11 first responders?
Reposted by I write about invisible illness.
Five years later, we are not alone.
#LongCovid damage is nothing short of baffling.
@sanders.senate.gov
@duckworth.senate.gov
@kaine.senate.gov
Don’t forget about us.
Thank you @nbcchicago.com for helping #LongCovidAwareness by sharing our story.
nbcchicago.app.link/s4hgLRPnXRb
#LongCovid damage is nothing short of baffling.
@sanders.senate.gov
@duckworth.senate.gov
@kaine.senate.gov
Don’t forget about us.
Thank you @nbcchicago.com for helping #LongCovidAwareness by sharing our story.
nbcchicago.app.link/s4hgLRPnXRb
March 23, 2025 at 4:25 PM
Five years later, we are not alone.
#LongCovid damage is nothing short of baffling.
@sanders.senate.gov
@duckworth.senate.gov
@kaine.senate.gov
Don’t forget about us.
Thank you @nbcchicago.com for helping #LongCovidAwareness by sharing our story.
nbcchicago.app.link/s4hgLRPnXRb
#LongCovid damage is nothing short of baffling.
@sanders.senate.gov
@duckworth.senate.gov
@kaine.senate.gov
Don’t forget about us.
Thank you @nbcchicago.com for helping #LongCovidAwareness by sharing our story.
nbcchicago.app.link/s4hgLRPnXRb
Reposted by I write about invisible illness.
Because of our community, 2025 moved the field forward. Since 2012: $60M+ raised, 76 projects, 53 publications.
With just a few days left in 2025, will you consider making a gift? A year-end gift keeps research moving. Donate hope today👉 www.omf.ngo?form=donatenow
With just a few days left in 2025, will you consider making a gift? A year-end gift keeps research moving. Donate hope today👉 www.omf.ngo?form=donatenow
December 27, 2025 at 4:39 PM
Because of our community, 2025 moved the field forward. Since 2012: $60M+ raised, 76 projects, 53 publications.
With just a few days left in 2025, will you consider making a gift? A year-end gift keeps research moving. Donate hope today👉 www.omf.ngo?form=donatenow
With just a few days left in 2025, will you consider making a gift? A year-end gift keeps research moving. Donate hope today👉 www.omf.ngo?form=donatenow
Reposted by I write about invisible illness.
The book is quite repetitive, but I think that repetition conveys & mirrors exactly what it is like to have an undiagnosed illness. When I had undiagnosed lyme for 5 years, I went round & round the same paths with different drs. It's not linear; it's often maddening, disappointing, exhausting.
December 26, 2025 at 8:09 PM
The book is quite repetitive, but I think that repetition conveys & mirrors exactly what it is like to have an undiagnosed illness. When I had undiagnosed lyme for 5 years, I went round & round the same paths with different drs. It's not linear; it's often maddening, disappointing, exhausting.
Why is the word 'journey' so loaded for people with chronic illness? I know why it is for me....and now for this author, who wrote a fantastic explanation for @statnews.com #opinion
I have long Covid. Don’t call my chronic disease a ‘journey’ www.statnews.com/2025/11/25/c... via @statnews.com
I have long Covid. Don’t call my chronic disease a ‘journey’ www.statnews.com/2025/11/25/c... via @statnews.com
I have long Covid. Don’t call my chronic disease a ‘journey’
A “journey” is something you choose. No one chooses chronic illness.
www.statnews.com
December 26, 2025 at 6:07 PM
Why is the word 'journey' so loaded for people with chronic illness? I know why it is for me....and now for this author, who wrote a fantastic explanation for @statnews.com #opinion
I have long Covid. Don’t call my chronic disease a ‘journey’ www.statnews.com/2025/11/25/c... via @statnews.com
I have long Covid. Don’t call my chronic disease a ‘journey’ www.statnews.com/2025/11/25/c... via @statnews.com
Reposted by I write about invisible illness.
Whether they're at the mall, the hospital, a community event or even a dentist's office — people want to see Santa. Here's how a network of Christmas performers across New England make sure that happens.
Inside New England's sprawling network of Santas
Whether they're at the mall, the hospital, a community event or even a dentist's office — people want to see Santa. Here's how a network of Christmas performers across New England make sure that happens.
wbur.fm
December 25, 2025 at 5:00 PM
Whether they're at the mall, the hospital, a community event or even a dentist's office — people want to see Santa. Here's how a network of Christmas performers across New England make sure that happens.