Anne Lown
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amlown1.bsky.social
Anne Lown
@amlown1.bsky.social
Reposted by Anne Lown
If you are ME/CFS community, please find useful information in below posts 💙❤️🫂
October 17, 2024 at 8:52 PM
Reposted by Anne Lown
Reposting with correct day: I'm thrilled to be speaking on FRIDAY at the NIH ME/CFS Research Roadmap workshop on Less-Studied Pathologies, on craniocervical instability and tethered cord and the interrelationship between comorbidities. Please come. event.roseliassociates.com/me-cfs-resea...
January 2, 2024 at 8:06 PM
Reposted by Anne Lown
🧵
New

Why the Psychosomatic View on #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Is Inconsistent with Current Evidence and Harmful to Patients

Free full text:
www.mdpi.com/1648-9144/60...

#MEcfs #CFS #PwME #GradedExerciseTherapy #GET #cognitivebehaviouraltherapy #CBT

1/
December 31, 2023 at 2:56 PM
Reposted by Anne Lown
2/
“a still widespread misconception about ME/CFS is the idea the disease is psychosomatic in its etiology or that psychological factors play a key role in the chronic nature of the disease. Contrary to psychosomatic hypotheses, replicable organic abnormalities are evident in ME/CFS [26]”
#CFS #PwME
December 31, 2023 at 9:22 PM
Reposted by Anne Lown
Izzy's harness was somewhat ill-fitting, and she was getting more and more stressed about its removal process.

The good folks at www.aviatorharness.com came through with a new slightly larger harness sized just for caiques!

Patronize them for all your 🦜 harness needs
October 11, 2023 at 8:29 PM
Reposted by Anne Lown
*pulls out thermodynamics textbook* oh wait you probably were not actually asking me
Apartment cold……. Why
October 11, 2023 at 8:47 PM
Reposted by Anne Lown
Earth Layers xkcd.com/2840
October 11, 2023 at 5:28 PM
Reposted by Anne Lown
Miniature bat 🤎
(not really, it's a sphynx moth)
🌿🦋
October 11, 2023 at 9:02 PM
Reposted by Anne Lown
14/
“However, we do not recommend routine exercise testing for patients with ME/CFS, given its propensity to generate PEM and to decrease functional capacity.”

#MEcfs #CFS #MyalgicE #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
October 6, 2023 at 4:03 PM
Reposted by Anne Lown
New pre-print

A Systematic Analysis of the Effectiveness of Mitochondrial-Based Therapies for the Management of
#MyalgicEncephalomyelitis/#ChronicFatigueSyndrome (ME/CFS)

Free full text:
www.preprints.org/manuscript/2...

#MEcfs #CFS #PwME #MyalgicE
October 11, 2023 at 12:24 PM
Reposted by Anne Lown
17/

"Diagnosis of ME/#CFS is based on positive signs & symptoms and is therefore not a diagnosis of exclusion. It is estimated that up to 90% of people with #MECFS are yet undiagnosed, & 29% of those who have been diagnosed waited 5 years or more to receive an accurate diagnosis"

#PwME #MyalgicE
October 11, 2023 at 8:57 PM
Reposted by Anne Lown
16/
6-minute video:

"@grachstephanie.bsky.social & @exceedhergrasp1.bsky.social of @meactnet.bsky.social
share insights from their Concise Review on the diagnosis and management of #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome "

youtube.com/watch?v=WZLY...

#MEcfs #CFS #PwME
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Description: Dr. Stephanie Grach, an Assistant Professor of Medicine in the Division of General Internal Medicine at Mayo Clinic in Rochester, MN, and Jaime...
youtube.com
October 11, 2023 at 2:10 PM