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tironbeard.bsky.social
Not Many Spoons
@tironbeard.bsky.social
230 followers 790 following 14 posts
Dad. Husband. ME/CFS. Interested in history, politics, books, gaming, food. Quiet but here. Banner: Picture of a mountain covered with green trees and a cloudy blue sky. Profile: Winter landscape with a tree and snowy mountains in the background.
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paris.nyc
paris martineau @paris.nyc · 1d
my latest investigation for @consumerreports.org is based on months of reporting and 60+ lab tests of leading protein supplements

we found that most protein powders and shakes have more lead in one serving than our experts say is safe to have in a day (🧵)

www.consumerreports.org/lead/protein...
Protein Powders and Shakes Contain High Levels of Lead - Consumer Reports
CR tests of 23 popular protein powders and shakes found that most contain high levels of lead.
www.consumerreports.org
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peterhotezmdphd.bsky.social
Prof Peter Hotez MD PhD DSc(hon) @peterhotezmdphd.bsky.social · 15h
Biopreparedness1
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kateviolette.com
Kate Violette @kateviolette.com · 21h
Multiple threads on the timeline today that all boil down to adults saying with their whole-ass chests "I JUST WANT TO BE ABLE TO HAVE FUN ALL THE TIME AND NOT DEAL WITH THE LESS FUN PARTS OF REALITY"

And like yeah, I get it, we all get it.

But also, my Frodos, it has indeed happened in our time.
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chantzy.bsky.social
Chantzy @chantzy.bsky.social · 2d
Dear liberals,

If you identify as a leftist who believes in intersectional justice & fighting fascism, please wear a mask in public. It’s one small act of solidarity with the millions living with long Covid - and a reminder that caring for others includes protecting their health
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juliadoubleday.bsky.social
Julia Doubleday @juliadoubleday.bsky.social · 1d
“Doing what you can to avoid spreading it to other people” is masking , until we have clean air - and in the meantime , you all need to be advocating for clean air, which none of you are showing the urgency around when you fail to mask.
40%+ of Covid cases are asymp and Covid disables people
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kateviolette.com
Kate Violette @kateviolette.com · 23h
"Sometimes things are hard or unfair but reality and science don't care"

one million times this

I am genuinely sorry this is how the universe works but it is indeed how the universe works, and the sooner more people get hip to this the healthier and happier we collectively all will be.
juliadoubleday.bsky.social
Julia Doubleday @juliadoubleday.bsky.social · 1d
The framing “it’s unreasonable to ask me to mask” reminds me of climate change discussions - “it’s unreasonable to ask for net zero” etc - bc ppl think of the politics as more “real” than the science. Sometimes things are hard or unfair but reality and science don’t care
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gregggonsalves.bsky.social
Gregg Gonsalves @gregggonsalves.bsky.social · 10d
@joho.bsky.social is a practicing clinician at NYU & a public health hero. In his previous book he documented the unhinged campaign in the early years of COVID to tell us SARSCOV2 was no big deal, we should let people get infected. Now these maniacs are in charge. Read about it here in his new book.
joho.bsky.social
Jonathan Howard @joho.bsky.social · 11d
The sequel to We Want Them Infected is done!

COVID killed 1.2 million Americans while vaccines saved millions.

Yet, disinformation superspreaders were empowered, where they are taking a wrecking ball to science & medicine.

How did that happen?🧵

sciencebasedmedicine.org/everyone-els...
Everyone Else is Lying to You: My Book is Done!
The pandemic’s biggest disinformation superspreaders are now in charge. How did this happen?
sciencebasedmedicine.org
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tironbeard.bsky.social
Not Many Spoons @tironbeard.bsky.social · 9d
Insightful. “Disabled people, and people with Long COVID, have been calling ourselves canaries in the coal mine for a reason. We may have been harmed first and worst, but we are warning you that COVID is dangerous because our bodies are made of flesh and blood - hearts and brains- just like yours.”
juliadoubleday.bsky.social
Julia Doubleday @juliadoubleday.bsky.social · 9d
Nobody has Long COVID, but everybody has brain fog, cognitive decline and memory loss. I talk about the overwhelming scientific evidence that COVID damages the brain, and the overwhelming social unwillingness to acknowledge it in my latest:

www.thegauntlet.news/p/when-will-...
When Will the Lion Concern Himself
Joking memes make light of the uncomfortable reality: everyone's got a little of that post-COVID brain damage these days
www.thegauntlet.news
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exceedhergrasp1.bsky.social
It's ME(Jaime) @exceedhergrasp1.bsky.social · 14d
Hey, #MedSky & #SciSky! New text from Elsevier out today, "The Scientific Basis of Fatigue", with multiple chapters on different diseases, including #MECFS, COVID, Parkinson's, stroke and MS.

Proud to be the co-author of the #MECFS chapter with authors from Mayo and Bateman-Horne! More info:🧪
meactnet.bsky.social
#MEAction Network @meactnet.bsky.social · 14d
Stellar new work from @grachstephanie.bsky.social, @exceedhergrasp1.bsky.social, @batemanhornecenter.bsky.social's Bell and Yellman & @raviganeshmd.bsky.social in the Elsevier text 'The Scientific Basis of Fatigue'! The book has chapters on #MECFS, COVID, Parkinson’s, stroke, and multiple sclerosis.
Text-based graphic with one photo. Text: New publication. Managing myalgic encephalomyelitis/chronic fatigue syndrome: a new narrative. a chapter in a new Elsevier textbook written by coauthors from #MEAction, Mayo Clinic Rochester and the Bateman-Horne Center. “I was honored to co-author this chapter with colleagues from Mayo Clinic and the Bateman-Horne Center to give clinicians and researchers the tools they need to better recognize, study and treat ME/CFS.” Jaime Seltzer, Scientific Director, #MEAction Photo: Jaime Seltzer (white woman with long, dark hair) wearing glasses and cream blazer and red top slightly smiling.
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meactnet.bsky.social
#MEAction Network @meactnet.bsky.social · 14d
Stellar new work from @grachstephanie.bsky.social, @exceedhergrasp1.bsky.social, @batemanhornecenter.bsky.social's Bell and Yellman & @raviganeshmd.bsky.social in the Elsevier text 'The Scientific Basis of Fatigue'! The book has chapters on #MECFS, COVID, Parkinson’s, stroke, and multiple sclerosis.
Text-based graphic with one photo. Text: New publication. Managing myalgic encephalomyelitis/chronic fatigue syndrome: a new narrative. a chapter in a new Elsevier textbook written by coauthors from #MEAction, Mayo Clinic Rochester and the Bateman-Horne Center. “I was honored to co-author this chapter with colleagues from Mayo Clinic and the Bateman-Horne Center to give clinicians and researchers the tools they need to better recognize, study and treat ME/CFS.” Jaime Seltzer, Scientific Director, #MEAction Photo: Jaime Seltzer (white woman with long, dark hair) wearing glasses and cream blazer and red top slightly smiling.
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peterhotezmdphd.bsky.social
Prof Peter Hotez MD PhD DSc(hon) @peterhotezmdphd.bsky.social · 16d
New measles epidemic
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luckytran.com
Dr. Lucky Tran @luckytran.com · 20d
Yesterday, history happened at the UN: For the first time hundreds of orgs signed a global pledge declaring that healthy indoor air is a human right.

Healthy indoor air is a key tool for preventing pandemics, building climate resilience, and increasing health equity. We need it everywhere!
People signing the Global Pledge for Healthy Indoor Air at the UN
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brownecfm.bsky.social
Conor Browne @brownecfm.bsky.social · 19d
Let me be clear. As someone who has been professionally involved with the biodefense / biosecurity sector for nearly 20 years, and has worked on biological risk analysis for Covid-19 since early 2020, reducing one's risk of being infected is not health anxiety. It's just smart.
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meactnet.bsky.social
#MEAction Network @meactnet.bsky.social · 20d
We have wonderful events to add to your Fall calendar.

Register: www.meaction.net/event-list

Oct 1 3 pm ET: Q&A with Author Brian Buckbee

Oct 9 3 pm ET: Grief is Love by Marisa Renee Lee

Oct 21 3 pm ET: Dealing with Grief & Chronic Illness: A Workshop with Marisa Renee Lee

#pwME #MECFS
Graphic with the 3 events and information on each shared in the post. #MEAction October Events 1. Photo of book cover "We Should All Be Birds" Q & A with Author Brian Buckbee Oct. 1 3 pm ET 2. Photo of book "Grief is Love" Grief is Love by Marisa Renee Lee Oct. 9 3 pm ET 3. Photo of Marisa Renee Lee (Black woman smiling wearing black top) Dealing with Grief & Chronic Illness Oct. 21 3 pm ET
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exceedhergrasp1.bsky.social
It's ME(Jaime) @exceedhergrasp1.bsky.social · 21d
Our current admin hates disabled people 🌈
www.afge.org/article/cdc-...
CDC Removes Disability as Reasonable Accommodation for Remote Work, Backtracks After Union Pressure
Leadership at the Centers for Disease Control and Prevention had said employees with disabilities would no longer be approved for telework or remote work as a reasonable accommodation – a stunning vio...
www.afge.org
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luckytran.com
Dr. Lucky Tran @luckytran.com · 20d
Here's a Youtube link of Violet Affleck's full speech about COVID and clean air at the United Nations:
Violet Affleck's Fiery UN Speech On COVID and Clean Air
YouTube video by Lucky Tran
youtu.be
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luckytran.com
Dr. Lucky Tran @luckytran.com · 21d
“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.”

Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!
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broadwaybabyto.bsky.social
Kelly @broadwaybabyto.bsky.social · 22d
Today’s autism announcement was just as bad as we feared

Trump blamed Tylenol & vaccines for autism

They encouraged women to just “tough out” their pain

They praised people who don’t “need” meds or vaccines

These are eugenicist talking points & they’re devastating to the disability community:
Trump's Big Autism Announcement and What It Means for the Disability Community
The MAHA team came out swinging today against vaccines, Tylenol and more. Their big autism announcement was riddled with eugenicist language designed to blame and punish people for their disabilities.
www.disabledginger.com
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rosebroderick.bsky.social
O. Rose Broderick @rosebroderick.bsky.social · 28d
BREAKING: The CDC is temporarily ending remote work. The decision leaves scores of employees in the lurch, even forcing people with disabilities with high-support needs to come into the office. #disability

www.statnews.com/2025/09/16/c...
CDC temporarily revokes remote work approvals for employees with disabilities
The CDC revoked permission for employees with disabilities to work from home, at least temporarily
www.statnews.com
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brownecfm.bsky.social
Conor Browne @brownecfm.bsky.social · 29d
1. Pandemics shape politics and societies. Collective trauma is a powerful force, as is societal reaction to governmental responses to reduce transmission. This is not controversial; humanity experienced it after The Spanish Flu.
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exceedhergrasp1.bsky.social
It's ME(Jaime) @exceedhergrasp1.bsky.social · 29d
Try taking the COVID competency exam yourself, and share it around! Great way to bust myths (and the person who wrote it is an epidemiologist, and well-informed, so it really does).

seanmullen.com/covidcompete...
100% You got 20 out of 20 questions correct (weighted score: 26.6/26.6). *mask face emoji* EPIDEMIOLOGIST'S NIGHTMARE Perfect score! You're so well-informed, conspiracy theorists actively avoid you at parties.
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exceedhergrasp1.bsky.social
It's ME(Jaime) @exceedhergrasp1.bsky.social · Sep 10
Made it to RECOVER TLC!
Me, with my brown hair pulled back wearing a dark blue business jacket and a bright patterned yellow and blue shirt wearing glasses and a black face mask
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worldwildlife.bsky.social
Wildlife @worldwildlife.bsky.social · Sep 6
Sea Otter (Enhydra lutris): There is so much more to a sea otter than meets the eye. By munching on urchins, it helps kelp forests flourish, and by crunching on crabs, it promotes eelgrass in estuaries. This mammal has the thickest of fur per square inch and is native to Pacific coasts. #seaotter
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wilhelminaj.bsky.social
Wilhelmina Jenkins @wilhelminaj.bsky.social · Sep 5
Today the importance of donations to #MEAction is especially clear. In addition to the brilliant reporting from Scientific Director Jaime Seltzer, we have the announcement of a new staff member for the Minnesota Home Health Navigation Program. To continue this good work, please donate if you can.
exceedhergrasp1.bsky.social
It's ME(Jaime) @exceedhergrasp1.bsky.social · Sep 5
Reminder: if you find this translational work valuable, please drop a donation to #MEAction here: www.meaction.net/donate

We'd really appreciate it!
Donate - #MEAction Network
www.meaction.net
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tomkindlon.bsky.social
Tom Kindlon @tomkindlon.bsky.social · Sep 5
Updated public information page on ME/CFS from New Zealand's health authority

info.health.nz/conditions-t...

Initial impressions from me & a few others are that it is quite good. It probably helps that feedback had been sought.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Chronic fatigue syndrome Chronic fatigue syndrome is a debilitating, long-term illness that affects many systems in the body. It is also called myalgic encephalomyelitis or ME/CFS. It can affect people of all ages and ethnic and socio-economic groups. Women are more likely to be diagnosed with it than men. On this page What causes ME/CFS Symptoms of ME/CFS Diagnosing ME/CFS Self care for ME/CFS Medication and other help for ME/CFS What causes ME/CFS We do not yet understand what causes ME/CFS, but research suggests that the immune system is involved. It often starts after an infection such as: glandular fever the flu COVID-19. There is some evidence that the illness may run in families.
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