Author | Lightnews

Reposted by Tiffany

Rheum Cat @rheumcat.bsky.social · 2d

The analytics for #ACR25 on BlueSky

@lupuschat.bsky.social
@tiffanyandlupus.bsky.social
@alisonbays.bsky.social
@jamiechiehlo.bsky.social
@ninacarsonpt.bsky.social
@omar-vasculitis.bsky.social
@nartherheumie.bsky.social
@kristenyoung.bsky.social

211 original posts, 161 media posts, 6 quote posts, 15 link posts

632 total hashtags used

most used hashtags: ACR25, KnowledgeBowl, UWRheum, RheumSky

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Tiffany @tiffanyandlupus.bsky.social · 3d

Absolutely adore @ireneblanco.bsky.social, such an amazing person and one of my favorite rheumatologists. Thank you for stopping by & bringing your mentee who also happens to be my old rheumy by the lupus community booth at #ACR25!

#LADAorg #LupudChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social

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Reposted by Tiffany

Rheum Cat @rheumcat.bsky.social · 3d

#ACR25 - Tuesday posters

🌟 Spondyloarthritis abstracts

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Tiffany @tiffanyandlupus.bsky.social · 3d

So excited about Dr. Daniel Whibley’s presentation at #ACR25 on Cognitive Dysfunction and how it Manifests in those living w/Fibromyalgia. He shared several ways to conduct baseline cognitive tests.

cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat

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Tiffany @tiffanyandlupus.bsky.social · 3d

Absolutely thrilled to catch this #ACR25 session on the Cognitive Function in Rheumatic Diseases. The first presentation was given by, patient advocate, Mary Alore sharing her experience with brain fog.

Cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat

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Tiffany @tiffanyandlupus.bsky.social · 3d

Dr. Jillian Rose also shared some great analogies for what NOT talking about sex health is like!

🔸…it’s like treating half the disease.
🔸…is like measuring function without asking about QoL (quality of life)

See images for reference ↴ #ACR25

cc: @ladaorg.bsky.social @lupuschat.bsky.social

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Tiffany @tiffanyandlupus.bsky.social · 3d

Chile fed up & over it!

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Tiffany @tiffanyandlupus.bsky.social · 3d

Literally me rn 😭

Bootiful 🎃 Tee.Eye.Pea 📚 @tipsosassy.bsky.social · 3d

buttercup from the powerpuff girls is laying under a blanket with her eyes closed .

ALT: buttercup from the powerpuff girls is laying under a blanket with her eyes closed .

media.tenor.com

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Reposted by Tiffany

Grayson (he/him) @graysongoal.bsky.social · 4d

Loved doing this presentation!

If folks at #ACR25 missed our resource QR code and email, please feel free to reach out to me and I'll gladly share those.

Tiffany @tiffanyandlupus.bsky.social · 4d

Learning a lot in an #ACR25 session led by @ireneblanco.bsky.social & hearing Patient Advocate, Grayson Schultz speak on the many barriers LGBTQIA+ individuals face while trying to access healthcare & how to navigate rheumatology care as an LGBTQIA+ patient. #LADAorg #LupusChat @ladaorg.bsky.social

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Tiffany @tiffanyandlupus.bsky.social · 4d

You’re so welcome! Your presentation was awesome! I want to connect with you post conference. If that’s ok, can you DM me your email?

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Tiffany @tiffanyandlupus.bsky.social · 4d

Grayson Schultz encourages providers to lead w/empathy, how to address discrimination, & why LGBTQIA+ representation is needed in research

🔹 adopt a trauma-informed care mindset
🔹 avoid assumptions & stereotypes
🔹 engage in ongoing education
🔹 mistakes occur, apologize/move on
#ACR25 #LADAorg

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Tiffany @tiffanyandlupus.bsky.social · 4d

Learning a lot in an #ACR25 session led by @ireneblanco.bsky.social & hearing Patient Advocate, Grayson Schultz speak on the many barriers LGBTQIA+ individuals face while trying to access healthcare & how to navigate rheumatology care as an LGBTQIA+ patient. #LADAorg #LupusChat @ladaorg.bsky.social

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Tiffany @tiffanyandlupus.bsky.social · 4d

Surprise @lupuschat.bsky.social spotting in Dr. Martha Delgado’s #ACR25 session! An FYI, #LupusChat gave a presentation at the NIH NIAMS annual clinical research event in both 2019 and 2024 on the importance of utilizing digital tools to build communities and advance health literacy. #LADAorg

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Tiffany @tiffanyandlupus.bsky.social · 4d

Dr. Martha Delgado gave a great #ACR25 presentation focused on improving patient participation in clinical trials in Latino communities. She shared barriers for both patients & providers as well current efforts to remove barriers.

cc: @ladaorg.bsky.social #LADAorg @lupuschat.bsky.social #LupusChat

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Tiffany @tiffanyandlupus.bsky.social · 4d

If you see me at #ACR25 ask me for a #LupusChat sticker!

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Reposted by Tiffany

Rheum Cat @rheumcat.bsky.social · 5d

I see the tireless work of people like @arthritischeryl.bsky.social @chroniceileen.bsky.social @tiffanyandlupus.bsky.social @xtel007.bsky.social @carriekellenberger.bsky.social - who live with rheumatic disease and use online spaces to spread awareness to others

#ACR25

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Reposted by Tiffany

Rheum Cat @rheumcat.bsky.social · 5d

A great example, and I'm glad I was able to play a part in getting this study to publication, is the ArLAR initiative to use social media to improve arthritis awareness among Arabic speaking people (not limited to MENA countries)

pubmed.ncbi.nlm.nih.gov/40750316/

#ACR25

Engaging Arabic-Speaking Patients With Rheumatic Diseases Through Social Media: A Multinational Infodemiology Analysis - PubMed

Engaging Arabic-Speaking Patients With Rheumatic Diseases Through Social Media: A Multinational Infodemiology Analysis

pubmed.ncbi.nlm.nih.gov

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Reposted by Tiffany

Rheum Cat @rheumcat.bsky.social · 5d

I loved that a social media study made it into the #ACR25 pediatric year in review

There is so much untapped potential to understand how to reach out to people living with rheumatic disease and provide education and combat misinformation

Dr. Erin Tree @drtinytree.bsky.social · 5d

Dr. Karen Onel presents #ACR25 #pedsrheum Clinical Year in Review: Social Media

🚨 opportunity for increased healthcare provider engagement

#ACRambassador

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Tiffany @tiffanyandlupus.bsky.social · 4d

She was amazing!

Tiffany @tiffanyandlupus.bsky.social · 4d

cc @ladaorg.bsky.social

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Tiffany @tiffanyandlupus.bsky.social · 4d

Patient experience researcher & advocate extraordinaire, Monique Gore-Massy gave a great presentation at #ACR25 on the importance of sexual health being an essential part of patient care! #LADAorg #LupusChat

cc: @ladaorg.bsky.social @lupuschat.bsky.social

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Tiffany @tiffanyandlupus.bsky.social · 4d

Dr. Jillian Rose is giving a remarkably informative presentation on Sexual Health & Rheumatic conditions.

🔹 90% of women w/SLE have reduced arousal

🔹56% of women w/Sjogren’s experience vaginal dryness

🔹89% of men w/Systemic Sclerosis experience erectile dysfunction

#ACR25 #LADAorg #LupusChat

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Tiffany @tiffanyandlupus.bsky.social · 4d

Up early at #ACR25 sitting in on sessions about sexual & reproductive health and rheumatic conditions. Sessions are being led by Dr. Lisa Sammaritano, Dr. Jillian Rose, and Patient Advocate extraordinaire, Monique Gore-Massy. #LADAorg #LupusChat

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Reposted by Tiffany

Rheum Cat @rheumcat.bsky.social · 4d

Can’t get better than this start to your plenary:

“Lupus nephritis is bad.”

#ACR25

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Tiffany @tiffanyandlupus.bsky.social · 5d

Spending some time in the Poster Hall at #ACR25! I’m excited to see the results of several studies as well as the Patient Prospectives posters.
#LADAorg #LupusChat

@ladaorg.bsky.social
@lupuschat.bsky.social

A multicolored archway designating a Hall of Posters. There are people walking under it

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