Daniel Moore
@talmandaniel.bsky.social
Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
New episode of Post-Exertional Mayonnaise podcast out today. We talk about managing fluctuations while living with ME and Chronic illness. Why not join us?
May 5, 2025 at 5:36 PM
New episode of Post-Exertional Mayonnaise podcast out today. We talk about managing fluctuations while living with ME and Chronic illness. Why not join us?
Reposted by Daniel Moore
Just because we can’t be on the streets doesn’t mean we’re invisible. Take part in online actions if you can. #ME #Disabled #BenefitCuts
March 25, 2025 at 3:31 PM
Just because we can’t be on the streets doesn’t mean we’re invisible. Take part in online actions if you can. #ME #Disabled #BenefitCuts
When you write lyrics to a song about PEM and desperately want to find melodies and hooks but you have PEM so can't pick up the guitar.
March 25, 2025 at 10:15 AM
When you write lyrics to a song about PEM and desperately want to find melodies and hooks but you have PEM so can't pick up the guitar.
Reposted by Daniel Moore
More need to know how bad it is for so many. Lives up ended yet few beneficial treatments. Prevention is key. Improve air quality, N95 and stay home if unwell. More money for research needed
March 15, 2025 at 2:40 AM
More need to know how bad it is for so many. Lives up ended yet few beneficial treatments. Prevention is key. Improve air quality, N95 and stay home if unwell. More money for research needed
New episode of Post-Exertional Mayonnaise podcast out now! We talk about toxic religion and spirituality in relation to #MyalgicE and chronic illness. Join us on YouTube or wherever you get podcasts!
March 14, 2025 at 11:34 AM
New episode of Post-Exertional Mayonnaise podcast out now! We talk about toxic religion and spirituality in relation to #MyalgicE and chronic illness. Join us on YouTube or wherever you get podcasts!
Last night my son went to watch the GB basketball match and danced on camera like his life depended on it to win a basketball signed by the team.
Wish I could have been there.
FU ME.
Wish I could have been there.
FU ME.
February 25, 2025 at 5:29 PM
Last night my son went to watch the GB basketball match and danced on camera like his life depended on it to win a basketball signed by the team.
Wish I could have been there.
FU ME.
Wish I could have been there.
FU ME.
Reposted by Daniel Moore
New #ThereForME blog out today highlighting some of the community campaigning work going on for #ME and #LongCovid - from #FundThePlan to Long Covid Awareness Day.
Read more and learn how you can get involved 👇
www.thereforme.uk/p/campaign-u...
Read more and learn how you can get involved 👇
www.thereforme.uk/p/campaign-u...
February 25, 2025 at 9:30 AM
New #ThereForME blog out today highlighting some of the community campaigning work going on for #ME and #LongCovid - from #FundThePlan to Long Covid Awareness Day.
Read more and learn how you can get involved 👇
www.thereforme.uk/p/campaign-u...
Read more and learn how you can get involved 👇
www.thereforme.uk/p/campaign-u...
New ME/chronic illness podcast episode out now!
Join myself, @litsadremousis.bsky.social and @dovsz.bsky.social as we discuss life online with a chronic illness.
Join myself, @litsadremousis.bsky.social and @dovsz.bsky.social as we discuss life online with a chronic illness.
February 19, 2025 at 12:02 PM
New ME/chronic illness podcast episode out now!
Join myself, @litsadremousis.bsky.social and @dovsz.bsky.social as we discuss life online with a chronic illness.
Join myself, @litsadremousis.bsky.social and @dovsz.bsky.social as we discuss life online with a chronic illness.
Recently watched The Traitors New Zealand. It's like the traitors on the cheap. No helicopters or speedboats and the competitors have to drive themselves places. Still, not bad!
February 17, 2025 at 4:17 PM
Recently watched The Traitors New Zealand. It's like the traitors on the cheap. No helicopters or speedboats and the competitors have to drive themselves places. Still, not bad!
Reposted by Daniel Moore
Worth repeating: there is NOT an ounce of exaggeration in this. This illness is out of the charts. #GreatestMEdicalScandal
My friends w/ ME are not okay. Every text or dm I brace myself for a new horror, from being gaslit to being unable to swallow to being encouraged to kill themselves to seizures from noise & light. The mild version is the end of life as you knew it. The most severe version is an unimaginable hell
I don’t think people could fathom living how people with my disease live. I haven’t seen the sky in 3 months. I only see it when I get wheeled out for appointments on a stretcher which is every 3-4 months. I have eaten the same 6 foods for almost 3 yrs now. EVERYTHING I do is in bed. This is MECFS.
February 9, 2025 at 8:19 AM
Worth repeating: there is NOT an ounce of exaggeration in this. This illness is out of the charts. #GreatestMEdicalScandal
Reposted by Daniel Moore
@talmandaniel.bsky.social you might be interested in sharing this in your ME community?
Chronically ill or disabled? Isolated? Need support? Join #CripCoop. Share your skills & needs (if you're too sick to do anything, you can still get support: CripCoOp is for all CIAD people, nof just those able to give support) & connect with other people. Together, we can do anything CripCoop.co.uk
February 8, 2025 at 9:31 AM
@talmandaniel.bsky.social you might be interested in sharing this in your ME community?
Reposted by Daniel Moore
Jeremy Jeffs is a filmmaker and photographer whose experience of living with ME/CFS inspired him to talk to and photograph others with the same illness.
wellcomecollection.org/stories/livi...
Image is from free AMMES February 2025 e-newsletter
#MEcfs #PwME @talmandaniel.bsky.social
wellcomecollection.org/stories/livi...
Image is from free AMMES February 2025 e-newsletter
#MEcfs #PwME @talmandaniel.bsky.social
February 6, 2025 at 10:05 PM
Jeremy Jeffs is a filmmaker and photographer whose experience of living with ME/CFS inspired him to talk to and photograph others with the same illness.
wellcomecollection.org/stories/livi...
Image is from free AMMES February 2025 e-newsletter
#MEcfs #PwME @talmandaniel.bsky.social
wellcomecollection.org/stories/livi...
Image is from free AMMES February 2025 e-newsletter
#MEcfs #PwME @talmandaniel.bsky.social
It's 12 years today since I did drag, at work. I'm kind of gutted that no photos exist but so pleased that I did it. Looking back it played a small part in my much needed faith deconstruction. It was such a surreal experience but so much fun, even if the high heels were two sizes too small. 😂👠
February 1, 2025 at 10:13 PM
It's 12 years today since I did drag, at work. I'm kind of gutted that no photos exist but so pleased that I did it. Looking back it played a small part in my much needed faith deconstruction. It was such a surreal experience but so much fun, even if the high heels were two sizes too small. 😂👠
Reposted by Daniel Moore
My latest article which is Part 2
On The Subject of Wintering
This article was inspired by the book ‘Wintering’ by Katherine May (2020) and studies the term in relation to those with the disease, MyalgicEncephalomyelitis, or M.E.
#MyalgicEncephalomyelitis
www.thriftvip.co.uk/articles/on-...
On The Subject of Wintering
This article was inspired by the book ‘Wintering’ by Katherine May (2020) and studies the term in relation to those with the disease, MyalgicEncephalomyelitis, or M.E.
#MyalgicEncephalomyelitis
www.thriftvip.co.uk/articles/on-...
On The Subject of Wintering P2 — ThriftVIP®
This article was inspired by the book ‘Wintering’ by Katherine May (2020) and studies the term in relation to those with the disease, MyalgicEncephalomyelitis, or M.E. for short.
www.thriftvip.co.uk
January 31, 2025 at 8:09 PM
My latest article which is Part 2
On The Subject of Wintering
This article was inspired by the book ‘Wintering’ by Katherine May (2020) and studies the term in relation to those with the disease, MyalgicEncephalomyelitis, or M.E.
#MyalgicEncephalomyelitis
www.thriftvip.co.uk/articles/on-...
On The Subject of Wintering
This article was inspired by the book ‘Wintering’ by Katherine May (2020) and studies the term in relation to those with the disease, MyalgicEncephalomyelitis, or M.E.
#MyalgicEncephalomyelitis
www.thriftvip.co.uk/articles/on-...
Reposted by Daniel Moore
I can’t wait for this cookbook! I’ve been talking with Rachel all along the way and I know the recipes are going to be so amazing. I just pre-ordered two copies so I can give one to my daughter. It would help Rachel if you pre-ordered a copy.
www.healthrising.org/blog/2025/01...
www.healthrising.org/blog/2025/01...
Rachel Riggs' "In Good Health: Uncomplicated, Allergen-Aware Recipes for a Nourished Life" for People with Complex Chronic Illnesses is now Available for Pre-order - Health Rising
"In Good Health: Uncomplicated, Allergen-Aware Recipes for a Nourished Life" provides 75 recipes for those with dietary restrictions or anyone looking to fuel their body with nutrient-dense food.
www.healthrising.org
January 31, 2025 at 7:09 AM
I can’t wait for this cookbook! I’ve been talking with Rachel all along the way and I know the recipes are going to be so amazing. I just pre-ordered two copies so I can give one to my daughter. It would help Rachel if you pre-ordered a copy.
www.healthrising.org/blog/2025/01...
www.healthrising.org/blog/2025/01...
Reposted by Daniel Moore
For those of us living on the edges of society, #pwME & other marginalised conditions), I’m feeling slightly less alone and slightly less in a minority of the ‘Missing In Action’ from life, as sadly & as expected, the cases of Long Covid / M.E. rise.
My article:
www.thriftvip.co.uk/articles/on-...
My article:
www.thriftvip.co.uk/articles/on-...
On The Subject Of Wintering P1 — ThriftVIP®
For those of us living on the edges of society, as we have been for decades now (people with MyalgicEncephalomyelitis and other marginalised conditions), I am coming to feel slightly less alone and sl...
www.thriftvip.co.uk
January 17, 2025 at 2:02 PM
For those of us living on the edges of society, #pwME & other marginalised conditions), I’m feeling slightly less alone and slightly less in a minority of the ‘Missing In Action’ from life, as sadly & as expected, the cases of Long Covid / M.E. rise.
My article:
www.thriftvip.co.uk/articles/on-...
My article:
www.thriftvip.co.uk/articles/on-...
Latest episode of Post-Exertional Mayonnaise podcast out now! @litsadremousis.bsky.social, @dovsz.bsky.social and I talk about living with ME in a world of change
youtu.be/Sc9GRzktRws?...
youtu.be/Sc9GRzktRws?...
Living with ME in a world of change
YouTube video by Post-Exertional Mayonnaise
youtu.be
January 27, 2025 at 9:13 PM
Latest episode of Post-Exertional Mayonnaise podcast out now! @litsadremousis.bsky.social, @dovsz.bsky.social and I talk about living with ME in a world of change
youtu.be/Sc9GRzktRws?...
youtu.be/Sc9GRzktRws?...
Read a Facebook post today which mentioned ME and memory loss. It struck a chord with me as my memory has been terrible recently. If you have ME, has your memory become really poor over the years? I get head tremors so sometimes wonder if it's linked to them!
January 27, 2025 at 7:28 PM
Read a Facebook post today which mentioned ME and memory loss. It struck a chord with me as my memory has been terrible recently. If you have ME, has your memory become really poor over the years? I get head tremors so sometimes wonder if it's linked to them!
New episode of our ME and Chronic illness podcast, Post-Exertional Mayonnaise is out soon. We consider how change impacts us as people with ME. Out soon! Search for us on YouTube and your podcast provider. Also find us at pempod.com
January 26, 2025 at 4:11 PM
New episode of our ME and Chronic illness podcast, Post-Exertional Mayonnaise is out soon. We consider how change impacts us as people with ME. Out soon! Search for us on YouTube and your podcast provider. Also find us at pempod.com
Reposted by Daniel Moore
Today’s cartoon - because I had some fun and now I’m in bed (still having some fun).
#IYKYK
#ChronicIllness #ChronicIllnessMemes #WheelchairUsers #PEM
#ME #MEcfs #LC #POTS #MCAS #InvisibleIllness #Fibromyalgia #LymeDisease
#PostInfectiousIllness
#IYKYK
#ChronicIllness #ChronicIllnessMemes #WheelchairUsers #PEM
#ME #MEcfs #LC #POTS #MCAS #InvisibleIllness #Fibromyalgia #LymeDisease
#PostInfectiousIllness
January 21, 2025 at 12:03 PM
Today’s cartoon - because I had some fun and now I’m in bed (still having some fun).
#IYKYK
#ChronicIllness #ChronicIllnessMemes #WheelchairUsers #PEM
#ME #MEcfs #LC #POTS #MCAS #InvisibleIllness #Fibromyalgia #LymeDisease
#PostInfectiousIllness
#IYKYK
#ChronicIllness #ChronicIllnessMemes #WheelchairUsers #PEM
#ME #MEcfs #LC #POTS #MCAS #InvisibleIllness #Fibromyalgia #LymeDisease
#PostInfectiousIllness
I sometimes think that ME is as just as much about dealing with the mindf#@k that the condition and PEM places you in, as the physical symptoms. It feels like you can forget how bad it can get until it happens again. A fresh hell each time.
January 22, 2025 at 12:48 PM
I sometimes think that ME is as just as much about dealing with the mindf#@k that the condition and PEM places you in, as the physical symptoms. It feels like you can forget how bad it can get until it happens again. A fresh hell each time.
Reposted by Daniel Moore
Thanks @talmandaniel.bsky.social for contributing to this in-depth article on parenting with #LongCovid #MECFS
The only reason this injustice is happening is due to decades of systemic neglect. Australia is still far behind UK, US & even NZ!
www.abc.net.au/news/2024-12...
The only reason this injustice is happening is due to decades of systemic neglect. Australia is still far behind UK, US & even NZ!
www.abc.net.au/news/2024-12...
'Up yours long COVID': The women refusing to let their baby dreams die
Long COVID is snuffing out some patients' dreams of having children, and complicating pregnancy and parenthood for those who choose to conceive despite their symptoms and doubts about when or if they ...
www.abc.net.au
December 28, 2024 at 9:20 PM
Thanks @talmandaniel.bsky.social for contributing to this in-depth article on parenting with #LongCovid #MECFS
The only reason this injustice is happening is due to decades of systemic neglect. Australia is still far behind UK, US & even NZ!
www.abc.net.au/news/2024-12...
The only reason this injustice is happening is due to decades of systemic neglect. Australia is still far behind UK, US & even NZ!
www.abc.net.au/news/2024-12...
ME peeps...
If you accidentally found something that, legally, made you feel wonderfully ME free and energised for an hour or two without major PEM, despite being potentially risky and having possible longer term side effects, would you try it again?
If you accidentally found something that, legally, made you feel wonderfully ME free and energised for an hour or two without major PEM, despite being potentially risky and having possible longer term side effects, would you try it again?
December 15, 2024 at 1:52 PM
ME peeps...
If you accidentally found something that, legally, made you feel wonderfully ME free and energised for an hour or two without major PEM, despite being potentially risky and having possible longer term side effects, would you try it again?
If you accidentally found something that, legally, made you feel wonderfully ME free and energised for an hour or two without major PEM, despite being potentially risky and having possible longer term side effects, would you try it again?
Honoured to have been included in this article by Jeremy Jeffs on his photography project.
wellcomecollection.org/stories/livi...
#MyalgicE
wellcomecollection.org/stories/livi...
#MyalgicE
Living with ME
Nine people with ME reveal their unremitting struggles as they negotiate life with their illness, including their battles to be believed, diagnosed and supported.
wellcomecollection.org
November 28, 2024 at 11:15 AM
Honoured to have been included in this article by Jeremy Jeffs on his photography project.
wellcomecollection.org/stories/livi...
#MyalgicE
wellcomecollection.org/stories/livi...
#MyalgicE