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ruthsg.bsky.social
Ruth SG #FBLC
@ruthsg.bsky.social
79 followers 62 following 24 posts
#FBLC #LongCovid #LongCovidKids #MECFS ally. #MillionsMissing #MaskUp #Ireland
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Reposted by Ruth SG #FBLC
irishmecfsassoc.bsky.social
Pleased to see this free coverage on the Irish Medical Times website

“The Irish ME/CFS Association is pleased to announce that a leading international ME Expert, Dr Nigel Speight, will give 5 free talks on ME during ME Awareness Month”

www.imt.ie/events/irish...

#MEcfs #PwME #CFS
Irish ME/CFS Association - Free May Talks with Dr Nigel Speight
The Irish ME/CFS Association is pleased to announce that a leading international ME Expert, Dr Nigel Speight, will give 5 free talks on ME during ME
www.imt.ie
April 29, 2024 at 9:33 PM
Reposted by Ruth SG #FBLC
apresj20.bsky.social
👇👇👇
À Toulouse, des malades atteints de Covid long s'organisent pour faire reconnaître leurs droits - France Bleu
Depuis 2023, le 15 mars est la journée internationale de sensibilisation au Covid Long. Selon l’OMS, 10% des personnes qui ont été infectées par le Covid-19 présentent des symptômes persistants plus d...
www.francebleu.fr
March 15, 2024 at 6:28 PM
Reposted by Ruth SG #FBLC
openmedf.bsky.social
Today, we unite in solidarity to observe #LongCOVIDAwareness Day. This day holds profound significance for countless individuals worldwide. We stand together in spirit and purpose, recognizing the extensive impact of SARS-CoV-2.

Learn more about OMF supported #LongCOVID research👉 ow.ly/EqV050QUAbY.
March 15: Long COVID Awareness Day
March 15, 2024 at 6:36 PM
Reposted by Ruth SG #FBLC
longcovidsupport.bsky.social
📣Tues 20th Feb. 1-2pm GMT

Webinar by the LOCOMOTION Study on some of their work.

Chairs: Dr Manoj Sivan & Long Covid Support Advisor Dr Clare Rayner.

Session on Orthostatic Intolerance co-presented by our Founding Member @nikki-s.bsky.social.

#LongCovid

locomotion.leeds.ac.uk/news/locomot...
LOCOMOTION Webinar: Assessments in a Long COVID Clinic
Date and time: Tue 20th Feb 2024, 13:00-14:00 GMT (Click here to register) LOCOMOTION is hosting a series of free public webinars to share the findings from our study and give people the opportunity t...
locomotion.leeds.ac.uk
February 7, 2024 at 7:58 PM
Reposted by Ruth SG #FBLC
nikki-s.bsky.social
The Long Covid Support charity is run by p/w #LongCovid. The work carried out is incredible, including:

➡️ Running a support group with 62k+ members
➡️ LC Research & Involvement
➡️ Advocating with policy makers
➡️ LC education & awareness

Please help the charity raise some much needed funds!
longcovidsupport.bsky.social Long Covid Support @longcovidsupport.bsky.social · Jan 27
📣 Long Covid Support is proud to team up with NOTCH!

With the help of NOTCH, we now have a range of #LongCovid notches available for you to buy in fabulous colours!

🌟10% of every sale will be donated to the Long Covid Support charity!🌟

➡️ Take a look!

notch.io/collections/...
Image shows a blue cord bracelet with 4 notches on it in purple, orange, blue and red with references to Long Covid on them. There is also a close up of the notches and a black tin with white writing bearing the logos of Long Covid Support and NOTCH. Text in the image says: Long Covid Support has teamed with NOTCH for a range of colourful notches. 10% of every sale will be donated to Long Covid Support! The website address is also given: http://www.notch.io/collections/long-covid-support-notch-collection A light blue, white and black corded bracelet with a silver coloured clasp saying NOTCH. It has 4 notches on it in orange, green, red and blue with references to Long Covid on them. There is also a close-up of the notches. The image also contains logos of NOTCH and Long Covid Support. Close up of part of a light blue, white and black corded bracelet with a 4 notches on it in orange, green, red and blue with references to Long Covid on them. A royal blue corded bracelet with a brass clasp saying NOTCH. It has 4 notches on it in purple, orange, blue and red with references to Long Covid on them.
January 28, 2024 at 12:42 PM
Reposted by Ruth SG #FBLC
canadahealthwatch.ca
ER Physician: ‘Long COVID took over my life. My symptoms seemed endless.’

www.uhn.ca/corporate/Ne...

🍁 CanadaHealthwatch.ca: Canada's hub for health news
January 25, 2024 at 10:00 PM
Reposted by Ruth SG #FBLC
betsyladyzhets.bsky.social
Today @thesicktimes.bsky.social: Very excited to share our first story by a freelance contributor, Simon Spichak, covering #LongCovid billboards, including the challenges some advocates have faced in running these awareness campaigns.
Long Covid advocates face challenges, potential discrimination with billboard campaigns - The Sick T...
People with Long Covid in the U.S., Canada, U.K., and Europe are buying billboard ads to raise awareness about the disease and promote the urgent need for clinical trials. These billboards aim to do t...
thesicktimes.org
January 9, 2024 at 8:52 PM
Reposted by Ruth SG #FBLC
irishmecfsassoc.bsky.social
#PwME #MEcfs
January 1, 2024 at 1:39 PM
Reposted by Ruth SG #FBLC
luckytran.com
Thank you to all the healthcare workers who are working through the holidays to keep us all safe (including wearing N95s to protect patients)!
From everyone at the RMH: Merry Christmas! Our dedicated elves/nurses/docs are on duty if you need, but we would love to hear that you are safe with your loved ones at home. Stay safe, plan ahead and drink responsibly. For emergencies, please dial 000.
December 26, 2023 at 6:17 AM
Reposted by Ruth SG #FBLC
scottnorrisphoto.bsky.social
Looking Up
bit.ly/3FrOuGn

"Keep looking up…that’s the secret of life."
--Snoopy (Charles M. Schulz)

Shot in Riverside Park, Milwaukee, WI.

Copyright 2021 Scott Norris Creative
scottnorrisphotography.com

#photography #blackandwhite #trees #forest #park #Milwaukee #art
Looking Up https://bit.ly/3FrOuGn "Keep looking up…that’s the secret of life." --Snoopy (Charles M. Schulz) Shot in Riverside Park, Milwaukee, WI. Copyright 2021 Scott Norris Creative scottnorrisphotography.com #photography #blackandwhite #trees #forest #park #Milwaukee #art
December 24, 2023 at 4:17 PM
Reposted by Ruth SG #FBLC
julialmv.bsky.social
A beautiful, visual description of living with Long COVID including hundreds of hopes for the future, collected from the community.

"It is a constant deluge of pain that slowly strips you of everything you used to be by taking away everything you used to do..."

www.nytimes.com/interactive/...
The author Giorgia Lupi's Long COVID symptoms in 2022 and 2023 summarized with a colorful array vertical brushstrokes. Each day has a thin black horizontal line with vertical brushstrokes showing the symptoms from that day. Each color represents a symptom type. The second half of 2022 is dominated by blue, symbolizing pain. A visualization of the hopes from individuals with Long COVID with each individual's hope, name, and how long they have been sick in a rectangle that looks like a sticky note. Our hopes include being able to date, dance, work, think, help others, and live.
December 14, 2023 at 4:34 PM
Reposted by Ruth SG #FBLC
cvcev.bsky.social
𝟵𝟬% 𝗼𝗳 𝗖𝗹𝗶𝗻𝗶𝗰𝗮𝗹𝗹𝘆 𝗩𝘂𝗹𝗻𝗲𝗿𝗮𝗯𝗹𝗲 𝗽𝗲𝗼𝗽𝗹𝗲 𝗵𝗮𝘃𝗲 𝗼𝗿 𝘄𝗼𝘂𝗹𝗱 𝗱𝗲𝗹𝗮𝘆/𝗰𝗮𝗻𝗰𝗲𝗹 𝗺𝗲𝗱𝗶𝗰𝗮𝗹 𝗮𝗽𝗽𝗼𝗶𝗻𝘁𝗺𝗲𝗻𝘁𝘀 𝗱𝘂𝗲 𝘁𝗼 𝗵𝗶𝗴𝗵 𝗖𝗼𝘃𝗶𝗱 𝗿𝗶𝘀𝗸𝘀

Living with Covid is ignoring Covid risks
We are denied safe #AccessToHealthcare
Doughnut graph 90% of Clinically Vulnerable people have or would delay / cancel medical appointments due to high Covid risks. [Poll of 827 Clinically Vulnerable people November 2023] Clinically Vulnerable Families logo
November 20, 2023 at 8:41 AM
Reposted by Ruth SG #FBLC
luckytran.com
It’s great that the CDC Director is finally recommending wearing a mask!

I hope this means she will lead by example by wearing it at public appearances, and that the CDC will issue stronger guidance for mask requirements in essential spaces like healthcare settings.

twitter.com/CDCDirector/...
December 7, 2023 at 6:59 PM
Reposted by Ruth SG #FBLC
chromatowski.bsky.social
Seen in NYC

#LongCovid #LetsStickTogether
Photo from inside a subway car. The door is open and shows the platform with a sign saying Canal St & Broadway. An ad inside the subway car has a black sticker with a purple stripe. White text reads, “Sometimes, Long Covid is forever Covid. We need help now. Berlin Buyers Club.”
December 8, 2023 at 11:25 PM
Reposted by Ruth SG #FBLC
irishmecfsassoc.bsky.social
#Ireland

Our updated Christmas card page is now up

irishmecfs.org/christmas_ca...

Wide selection: 14 packs with English and English & Irish verse packs

10% of gross amount goes to our research fund.

Shops don't get a cut so more goes to charity

Please re-post +/or like

#MEcfs #CFS #PwME
Screenshot from page of 9 Christmas card images
November 28, 2023 at 10:44 PM
Reposted by Ruth SG #FBLC
nellree.bsky.social
Pay what you can Online Poetry Workshop for Long Haulers Jan 18 & Feb 1 riverbank.ticketsolve.com/share/873641... riverbank.ticketsolve.com/share/873641...
Grateful for all reskeets
@longcovidsupport.bsky.social @julierehmeyer.bsky.social @paulashields.bsky.social
@FirstFortnight @Riverbank
November 29, 2023 at 11:18 AM
Reposted by Ruth SG #FBLC
nikki-s.bsky.social
📣 For those of you with #LongCovid who use the Visible app, you can now enrol in a study with the Putrino Lab. (Tip: I needed to update the app before I could see the study in the ‘Research’ section).

www.makevisible.com/blog/introdu...
Introducing: David Putrino’s Research Study
www.makevisible.com
November 28, 2023 at 7:05 AM
Reposted by Ruth SG #FBLC
tomkindlon.bsky.social
I'm considering going to this protest, "“Scrap The Green Paper” coalition calls on the Department of Social Protection to "Scrap the Green Paper" on Disability Reforms." outside Leinster House on Thur, Dec 7.

Main thing that might stop me is my health

beacons.ai/scrapthegree...

#PwME #disability
A white person with bright red hair sitting in a wheelchair. They are wearing ear defenders, a bright red dress and a red mask that has writing on it saying "nothing about us without us". They are tearing up the Green Paper on Disability Reform. Surrounding the person is scraps of paper with text. Image text Disabled people demand the Irish Government: Scrap the Green Paper on Disability Reform Protest at Leinster House 7th Dec 12pm Find out what disabled people have to say 4th Dec 6pm Online Find out more from https://beacons.ai/scrapthegreenpaper
November 20, 2023 at 1:46 PM
Reposted by Ruth SG #FBLC
dave43law.bsky.social
This
November 18, 2023 at 4:43 PM
Reposted by Ruth SG #FBLC
yogafogie.bsky.social
Mary Ladd (Long Hauler Publishing) has launched a Kickstarter for The Long COVID Reader! Please help to amplify the patient voice in the Long COVID narrative. Its 45 stories will capture what it’s like to live with LCAC and celebrate the creativity of PwLC.

www.kickstarter.com/projects/mar...
The Long Covid Reader: The Book About Covid Long Haulers
An anthology amplifying the voices of 45 Long Haulers, sharing raw, powerful stories that shed light on the impact of Long Covid
www.kickstarter.com
October 4, 2023 at 4:42 PM
Reposted by Ruth SG #FBLC
sabrinapoirier.bsky.social
To all the fierce women in my circle who fight for themselves and their communities. 💛

Let’s keep our fires burning, together. 🔥
November 17, 2023 at 4:05 PM
Reposted by Ruth SG #FBLC
emilyesfraser.bsky.social
Lantana, persimmon, impatiens, bottlebrush. #FlowerReport Oakland, CA
Orange lantana flowers Persimmon hanging from a tree Pale pink impatiens Bright red bottlebrush
November 12, 2023 at 11:50 PM
Reposted by Ruth SG #FBLC
jamesglen.bsky.social
I've just donated to this great UK #LongCovid billboard initiative started by Aaron Campbell.

I’d really appreciate it if you would share or donate to this GoFundMe: Billboards for Long Covid and #MECFS. gofund.me/b18a647c
Billboards for Long Covid and MECFS., organized by aaron campbell
All donations to this fundraiser will be used to pay for billboards that will hel… aaron campbell needs your support for Billboards for Long Covid and MECFS.
gofund.me
November 4, 2023 at 10:40 AM
Reposted by Ruth SG #FBLC
irishmecfsassoc.bsky.social
The information bundles to Irish GPs are starting to go out in advance of the webinar on November 21. Still time to submit your GP's details

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE
1000 (of over 3200) information bundles that are going out to Irish GPs. Still time to submit Irish GP details to tomkindlon@irishmecfs.org
November 6, 2023 at 3:42 PM
Reposted by Ruth SG #FBLC
cabruce.bsky.social
The best advocacy I’ve seen In a very long time.

www.gofundme.com/f/billboards...
November 4, 2023 at 12:58 PM