Phoebe
@phoebsbo.bsky.social
Life is being autistic and chronically ill with ME and writing about it. Doodle artist. Smorky's human. Scotland. She/her.
https://linktr.ee/phoebsbo
https://linktr.ee/phoebsbo
Pinned
Phoebe
@phoebsbo.bsky.social
· Aug 12
40. Ten Years Ago Today.
Ten years ago today I moved out of my flat in Leith, Edinburgh.
puffsandpens.substack.com
A short new blog post.
Ten years ago today I had to leave my beautiful flat in Edinburgh because of ME. I thought I’d be back, but I never stepped foot in it again.
puffsandpens.substack.com/p/40-ten-yea...
#PwME #MyalgicEncephalomyelitis #ChronicIllness #Disability
Ten years ago today I had to leave my beautiful flat in Edinburgh because of ME. I thought I’d be back, but I never stepped foot in it again.
puffsandpens.substack.com/p/40-ten-yea...
#PwME #MyalgicEncephalomyelitis #ChronicIllness #Disability
November 29, 2025 at 12:20 PM
Thanks to chemical menopause (to treat endo) I’ve been averaging 3-6hrs sleep/night, but last night was a first, I didn’t sleep at all. I turned the light off at 2am, then I lay awake all night. It’s kind of ironic, given so many people assume that having ME means I sleep all the time. #Insomnia
November 22, 2025 at 9:24 AM
Thanks to chemical menopause (to treat endo) I’ve been averaging 3-6hrs sleep/night, but last night was a first, I didn’t sleep at all. I turned the light off at 2am, then I lay awake all night. It’s kind of ironic, given so many people assume that having ME means I sleep all the time. #Insomnia
I just learned that there was a Westminster Hall ME debate yesterday. I remember feeling excited and hopeful about the debate in January 2019. I live tweeted as I watched it and I expected something to change, but nothing did. 1/2
November 20, 2025 at 10:34 AM
I just learned that there was a Westminster Hall ME debate yesterday. I remember feeling excited and hopeful about the debate in January 2019. I live tweeted as I watched it and I expected something to change, but nothing did. 1/2
I received my ADP (Scottish PIP) review determination letter today and I’ve kept my enhanced daily living and mobility awards. Phew! They made their decision without needing to see/speak to me, and I won’t be reviewed again until 2030. Very relieved!
#Disability #ChronicIllness #PwME
#Disability #ChronicIllness #PwME
November 3, 2025 at 5:44 PM
I received my ADP (Scottish PIP) review determination letter today and I’ve kept my enhanced daily living and mobility awards. Phew! They made their decision without needing to see/speak to me, and I won’t be reviewed again until 2030. Very relieved!
#Disability #ChronicIllness #PwME
#Disability #ChronicIllness #PwME
I’d prefer not to use Amazon, but I have a severe energy impairing disability and I’m predominantly housebound. I can’t shop locally. I rarely have the energy to search online for alternatives. I don’t want to rely on my mum/carer for… 1/3
#Amazon #Accessibility #Disability #ChronicIllness #PwME
#Amazon #Accessibility #Disability #ChronicIllness #PwME
October 9, 2025 at 9:03 AM
I’d prefer not to use Amazon, but I have a severe energy impairing disability and I’m predominantly housebound. I can’t shop locally. I rarely have the energy to search online for alternatives. I don’t want to rely on my mum/carer for… 1/3
#Amazon #Accessibility #Disability #ChronicIllness #PwME
#Amazon #Accessibility #Disability #ChronicIllness #PwME
Reposted by Phoebe
Many of the struggles faced by disabled people are also faced by abled folk.
But they don't have the added issue of being disabled on top... Which makes every issue harder to deal with, and sometimes impossible.
But they don't have the added issue of being disabled on top... Which makes every issue harder to deal with, and sometimes impossible.
October 5, 2025 at 6:57 AM
Many of the struggles faced by disabled people are also faced by abled folk.
But they don't have the added issue of being disabled on top... Which makes every issue harder to deal with, and sometimes impossible.
But they don't have the added issue of being disabled on top... Which makes every issue harder to deal with, and sometimes impossible.
Happy Gotcha Day to my sweet little Smorklepuss. Three years ago today! 1/3
#CatsOfBluesky #CatsOnBluesky #Smorky #GotchaDay
#CatsOfBluesky #CatsOnBluesky #Smorky #GotchaDay
September 29, 2025 at 5:34 PM
Happy Gotcha Day to my sweet little Smorklepuss. Three years ago today! 1/3
#CatsOfBluesky #CatsOnBluesky #Smorky #GotchaDay
#CatsOfBluesky #CatsOnBluesky #Smorky #GotchaDay
This happened last night as I attempted to liberate one of Smorky’s mice! I eventually managed to persuade mousey to scamper off into the night, and while we do now share a bond, I hope it finds a new home far away from Smorky the Huntress.
September 11, 2025 at 10:12 AM
This happened last night as I attempted to liberate one of Smorky’s mice! I eventually managed to persuade mousey to scamper off into the night, and while we do now share a bond, I hope it finds a new home far away from Smorky the Huntress.
Reposted by Phoebe
White woman puts Mexican flag on her truck to waste ICE’s time.
August 21, 2025 at 4:59 AM
White woman puts Mexican flag on her truck to waste ICE’s time.
A short new blog post.
Ten years ago today I had to leave my beautiful flat in Edinburgh because of ME. I thought I’d be back, but I never stepped foot in it again.
puffsandpens.substack.com/p/40-ten-yea...
#PwME #MyalgicEncephalomyelitis #ChronicIllness #Disability
Ten years ago today I had to leave my beautiful flat in Edinburgh because of ME. I thought I’d be back, but I never stepped foot in it again.
puffsandpens.substack.com/p/40-ten-yea...
#PwME #MyalgicEncephalomyelitis #ChronicIllness #Disability
40. Ten Years Ago Today.
Ten years ago today I moved out of my flat in Leith, Edinburgh.
puffsandpens.substack.com
August 12, 2025 at 6:37 PM
A short new blog post.
Ten years ago today I had to leave my beautiful flat in Edinburgh because of ME. I thought I’d be back, but I never stepped foot in it again.
puffsandpens.substack.com/p/40-ten-yea...
#PwME #MyalgicEncephalomyelitis #ChronicIllness #Disability
Ten years ago today I had to leave my beautiful flat in Edinburgh because of ME. I thought I’d be back, but I never stepped foot in it again.
puffsandpens.substack.com/p/40-ten-yea...
#PwME #MyalgicEncephalomyelitis #ChronicIllness #Disability
I spent ten weeks writing my answers for my ADP (Scottish PIP) review.
Then I waited to feel well enough to fill in the online form.
I spent today doing it bit by bit, because I can’t use my laptop for more than 5 mins at a time.
I pressed submit, and then this happened…
I am FURIOUS. 🤬
Then I waited to feel well enough to fill in the online form.
I spent today doing it bit by bit, because I can’t use my laptop for more than 5 mins at a time.
I pressed submit, and then this happened…
I am FURIOUS. 🤬
August 5, 2025 at 10:29 PM
I spent ten weeks writing my answers for my ADP (Scottish PIP) review.
Then I waited to feel well enough to fill in the online form.
I spent today doing it bit by bit, because I can’t use my laptop for more than 5 mins at a time.
I pressed submit, and then this happened…
I am FURIOUS. 🤬
Then I waited to feel well enough to fill in the online form.
I spent today doing it bit by bit, because I can’t use my laptop for more than 5 mins at a time.
I pressed submit, and then this happened…
I am FURIOUS. 🤬
I’m almost 7 weeks into my ADP review (Scottish PIP). I’ve completed 13 out of 18 questions, and I’ve written 11,000 words so far. So basically I’m writing a dissertation on everything that’s wrong with Phoebe. 🥴
#PwME #Autistic #ChronicIllness #Disability #DisabilityBenefits
#PwME #Autistic #ChronicIllness #Disability #DisabilityBenefits
July 16, 2025 at 11:12 AM
I’m almost 7 weeks into my ADP review (Scottish PIP). I’ve completed 13 out of 18 questions, and I’ve written 11,000 words so far. So basically I’m writing a dissertation on everything that’s wrong with Phoebe. 🥴
#PwME #Autistic #ChronicIllness #Disability #DisabilityBenefits
#PwME #Autistic #ChronicIllness #Disability #DisabilityBenefits
July 13, 2025 at 3:14 PM
Reposted by Phoebe
Bear in mind that if you held up a sign saying "I support genocide", you would not be arrested under the Terrorism Act.
Just received news that 27 people have been arrested in Parliament Square under the Terrorism Act 2000 for holding signs saying "I oppose genocide. I support Palestine Action".
This is real police state behaviour.
This is real police state behaviour.
July 5, 2025 at 1:44 PM
Bear in mind that if you held up a sign saying "I support genocide", you would not be arrested under the Terrorism Act.
Smorky wishes everyone a happy and safe Pride Month. 🌈
#PrideMonth #HappyPrideMonth #PrideMonth2025 #Smorky #CatsOnBluesky #CatsOfBluesky
#PrideMonth #HappyPrideMonth #PrideMonth2025 #Smorky #CatsOnBluesky #CatsOfBluesky
June 1, 2025 at 10:26 PM
Smorky wishes everyone a happy and safe Pride Month. 🌈
#PrideMonth #HappyPrideMonth #PrideMonth2025 #Smorky #CatsOnBluesky #CatsOfBluesky
#PrideMonth #HappyPrideMonth #PrideMonth2025 #Smorky #CatsOnBluesky #CatsOfBluesky
A small drawing I recently completed. According to some, it looks like a carnivorous plant. I see plants, insects, octopuses, music, and one tiny giraffe!
#Drawing #DoodleArt #DoodleDrawing #DisabledArtist #AutisticArtist #PwME #Autistic
#Drawing #DoodleArt #DoodleDrawing #DisabledArtist #AutisticArtist #PwME #Autistic
May 25, 2025 at 6:42 PM
A small drawing I recently completed. According to some, it looks like a carnivorous plant. I see plants, insects, octopuses, music, and one tiny giraffe!
#Drawing #DoodleArt #DoodleDrawing #DisabledArtist #AutisticArtist #PwME #Autistic
#Drawing #DoodleArt #DoodleDrawing #DisabledArtist #AutisticArtist #PwME #Autistic
I had my first Decapeptyl injection 16 days ago to treat my endometriosis. It works by shutting down my remaining ovary and inducing chemical menopause. Typically, someone will experience perimenopause (with fluctuating hormone levels… 1/2
#PwME #Endometriosis #ChronicIllness
#PwME #Endometriosis #ChronicIllness
May 15, 2025 at 7:20 PM
I had my first Decapeptyl injection 16 days ago to treat my endometriosis. It works by shutting down my remaining ovary and inducing chemical menopause. Typically, someone will experience perimenopause (with fluctuating hormone levels… 1/2
#PwME #Endometriosis #ChronicIllness
#PwME #Endometriosis #ChronicIllness
May 12, 2025 at 7:40 PM
A new blog post, on the reality of Labour’s proposed changes to the PIP Daily Living eligibility criteria. It makes no sense.
#DisabilityBenefits #Disability #ChronicIllness #PwME
puffsandpens.substack.com/p/39-what-th...
#DisabilityBenefits #Disability #ChronicIllness #PwME
puffsandpens.substack.com/p/39-what-th...
39. What the New PIP Eligibility Criteria Will Actually Mean.
PIP (Personal Independence Payment) is a UK benefit designed to cover the additional costs of being disabled and can be claimed by people in or out of work.
puffsandpens.substack.com
April 12, 2025 at 4:07 PM
A new blog post, on the reality of Labour’s proposed changes to the PIP Daily Living eligibility criteria. It makes no sense.
#DisabilityBenefits #Disability #ChronicIllness #PwME
puffsandpens.substack.com/p/39-what-th...
#DisabilityBenefits #Disability #ChronicIllness #PwME
puffsandpens.substack.com/p/39-what-th...
Short new blog post!
How I Feel on a Normal Day With ME.
“I promise you, living with this every day, it’s no holiday, it’s literally one sick day after another.”
Link below… 👇
#PwME #MyalgicEncephalomyelitis #ChronicIllness #Disability
How I Feel on a Normal Day With ME.
“I promise you, living with this every day, it’s no holiday, it’s literally one sick day after another.”
Link below… 👇
#PwME #MyalgicEncephalomyelitis #ChronicIllness #Disability
March 29, 2025 at 12:30 PM
Short new blog post!
How I Feel on a Normal Day With ME.
“I promise you, living with this every day, it’s no holiday, it’s literally one sick day after another.”
Link below… 👇
#PwME #MyalgicEncephalomyelitis #ChronicIllness #Disability
How I Feel on a Normal Day With ME.
“I promise you, living with this every day, it’s no holiday, it’s literally one sick day after another.”
Link below… 👇
#PwME #MyalgicEncephalomyelitis #ChronicIllness #Disability
Short new blog post!
The government believe they will be able to incentivise (force) disabled and chronically ill people into work with their proposed cuts. The government however are not operating in the land of reality.
#DisabilityBenefits #PwME
puffsandpens.substack.com/p/37-the-gov...
The government believe they will be able to incentivise (force) disabled and chronically ill people into work with their proposed cuts. The government however are not operating in the land of reality.
#DisabilityBenefits #PwME
puffsandpens.substack.com/p/37-the-gov...
37. The Government Have Not Thought This Through.
The government believe they will be able to incentivise (force) disabled and chronically ill people into work with their proposed cuts.
puffsandpens.substack.com
March 22, 2025 at 1:19 PM
Short new blog post!
The government believe they will be able to incentivise (force) disabled and chronically ill people into work with their proposed cuts. The government however are not operating in the land of reality.
#DisabilityBenefits #PwME
puffsandpens.substack.com/p/37-the-gov...
The government believe they will be able to incentivise (force) disabled and chronically ill people into work with their proposed cuts. The government however are not operating in the land of reality.
#DisabilityBenefits #PwME
puffsandpens.substack.com/p/37-the-gov...
“Almost no ME/CFS patients return to work.”
As with most illnesses that are left untreated (there is no treatment for ME), people won’t get better.
#PwME #MyalgicEncephalomyelitis #ChronicIllness #Disability
www.sciencenorway.no/chronic-fati...
As with most illnesses that are left untreated (there is no treatment for ME), people won’t get better.
#PwME #MyalgicEncephalomyelitis #ChronicIllness #Disability
www.sciencenorway.no/chronic-fati...
Almost no ME/CFS patients return to work
'The help we have provided to patients through the welfare and healthcare systems has had little rehabilitative effect,' says a researcher.
www.sciencenorway.no
March 21, 2025 at 6:06 PM
“Almost no ME/CFS patients return to work.”
As with most illnesses that are left untreated (there is no treatment for ME), people won’t get better.
#PwME #MyalgicEncephalomyelitis #ChronicIllness #Disability
www.sciencenorway.no/chronic-fati...
As with most illnesses that are left untreated (there is no treatment for ME), people won’t get better.
#PwME #MyalgicEncephalomyelitis #ChronicIllness #Disability
www.sciencenorway.no/chronic-fati...
March 19, 2025 at 7:00 PM
Short new blog post on Labour’s proposed benefit cuts.
I’m on PIP and ESA, they are the entirety of my income, and I’m facing losing my entire ESA award.
#PwME #DisabilityBenefits #Disability #ChronicIllness #LabourParty #KeirStarmer #LizKendall
puffsandpens.substack.com/p/36-labour-...
I’m on PIP and ESA, they are the entirety of my income, and I’m facing losing my entire ESA award.
#PwME #DisabilityBenefits #Disability #ChronicIllness #LabourParty #KeirStarmer #LizKendall
puffsandpens.substack.com/p/36-labour-...
36. Labour Disability Benefits Cuts.
Yesterday the government announced their plans for a series of benefit cuts that will primarily affect disabled people.
puffsandpens.substack.com
March 19, 2025 at 12:44 PM
Short new blog post on Labour’s proposed benefit cuts.
I’m on PIP and ESA, they are the entirety of my income, and I’m facing losing my entire ESA award.
#PwME #DisabilityBenefits #Disability #ChronicIllness #LabourParty #KeirStarmer #LizKendall
puffsandpens.substack.com/p/36-labour-...
I’m on PIP and ESA, they are the entirety of my income, and I’m facing losing my entire ESA award.
#PwME #DisabilityBenefits #Disability #ChronicIllness #LabourParty #KeirStarmer #LizKendall
puffsandpens.substack.com/p/36-labour-...
I have never been so scared. ESA and PIP are the entirety of my income. #DisabilityBenefits
March 18, 2025 at 12:29 AM
I have never been so scared. ESA and PIP are the entirety of my income. #DisabilityBenefits