elisa
@mildtin.bsky.social
Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
Reposted by elisa
Some good news—official data released today shows US solar generation continues to grow rapidly and is on track to set new record highs. In March, solar output was up 35% compared to the same time last year!
May 22, 2025 at 8:25 PM
Some good news—official data released today shows US solar generation continues to grow rapidly and is on track to set new record highs. In March, solar output was up 35% compared to the same time last year!
Reposted by elisa
Akiko Iwasaki and Harlan Krumholz call for Long COVID and chronic disease research funding in the WSJ:
“Advancing this research is one of the most effective ways to improve the lives of the tens of millions of Americans with chronic diseases.”
www.wsj.com/opinion/how-...
“Advancing this research is one of the most effective ways to improve the lives of the tens of millions of Americans with chronic diseases.”
www.wsj.com/opinion/how-...
Opinion | How to Lead a Chronic Disease Revolution
Washington has an opportunity to help tens of millions.
www.wsj.com
April 30, 2025 at 5:33 AM
Akiko Iwasaki and Harlan Krumholz call for Long COVID and chronic disease research funding in the WSJ:
“Advancing this research is one of the most effective ways to improve the lives of the tens of millions of Americans with chronic diseases.”
www.wsj.com/opinion/how-...
“Advancing this research is one of the most effective ways to improve the lives of the tens of millions of Americans with chronic diseases.”
www.wsj.com/opinion/how-...
Reposted by elisa
This is full of really useful information about #LongCOVID. Congrats, @patientled.bsky.social !
rehabcovidnetwork.med.utoronto.ca/news/patient...
rehabcovidnetwork.med.utoronto.ca/news/patient...
Patient-Led Research Collaborative Launches Fact Sheet
rehabcovidnetwork.med.utoronto.ca
April 26, 2025 at 12:11 PM
This is full of really useful information about #LongCOVID. Congrats, @patientled.bsky.social !
rehabcovidnetwork.med.utoronto.ca/news/patient...
rehabcovidnetwork.med.utoronto.ca/news/patient...
Just sent off bloods for another LC diagnostic study - if you're in Melbourne, Perth or Brissie and haven't participated yet please sign up! They do home visits for housebound folks
April 24, 2025 at 1:02 AM
Just sent off bloods for another LC diagnostic study - if you're in Melbourne, Perth or Brissie and haven't participated yet please sign up! They do home visits for housebound folks
Reposted by elisa
In Italy, muscle biopsies from 8 COVID-19 survivors revealed a distinct myopathy marked by damaged blood vessel linings, not seen in steroid-related muscle disease, suggesting long COVID muscle weakness stems from vascular injury, not direct viral attack.
www.tandfonline.com/doi/full/10....
www.tandfonline.com/doi/full/10....
Muscle disease in severe COVID-19 patients: a microangiopathic myopathy
Patients surviving coronavirus disease of 2019 (COVID-19) often complain of skeletal muscle weakness that may be very limiting and long-lasting. There are almost no studies on the skeletal muscle o...
www.tandfonline.com
April 21, 2025 at 5:10 PM
In Italy, muscle biopsies from 8 COVID-19 survivors revealed a distinct myopathy marked by damaged blood vessel linings, not seen in steroid-related muscle disease, suggesting long COVID muscle weakness stems from vascular injury, not direct viral attack.
www.tandfonline.com/doi/full/10....
www.tandfonline.com/doi/full/10....
In the next year or so, I'm hoping that we'll have the results for
- Nanoneedle validation study
- Several pilot / case studies for mAbs in Long Covid
- Early signals from one or more of the JAK-STAT trials (Abrocitinib, Upadacitinib)
- Nanoneedle validation study
- Several pilot / case studies for mAbs in Long Covid
- Early signals from one or more of the JAK-STAT trials (Abrocitinib, Upadacitinib)
April 19, 2025 at 1:25 AM
In the next year or so, I'm hoping that we'll have the results for
- Nanoneedle validation study
- Several pilot / case studies for mAbs in Long Covid
- Early signals from one or more of the JAK-STAT trials (Abrocitinib, Upadacitinib)
- Nanoneedle validation study
- Several pilot / case studies for mAbs in Long Covid
- Early signals from one or more of the JAK-STAT trials (Abrocitinib, Upadacitinib)
Reposted by elisa
Chan Soon-Shiong Foundation will expand PolyBio’s long COVID research with new funding.
Support targets SARS-CoV-2 persistence in tissue and its potential role in cancer development.
Thank you, @DrPatSoonShiong
polybio.org/chan-soon-sh...
Support targets SARS-CoV-2 persistence in tissue and its potential role in cancer development.
Thank you, @DrPatSoonShiong
polybio.org/chan-soon-sh...
Chan Soon-Shiong Family Foundation donation expands PolyBio Long COVID program - PolyBio Research Foundation
Funds will support exploration of SARS-CoV-2’s potential to drive cancer, as well as continued work delineating persistence of the virus in...
polybio.org
April 15, 2025 at 8:43 PM
Chan Soon-Shiong Foundation will expand PolyBio’s long COVID research with new funding.
Support targets SARS-CoV-2 persistence in tissue and its potential role in cancer development.
Thank you, @DrPatSoonShiong
polybio.org/chan-soon-sh...
Support targets SARS-CoV-2 persistence in tissue and its potential role in cancer development.
Thank you, @DrPatSoonShiong
polybio.org/chan-soon-sh...
Reposted by elisa
goddd the number of things that turn out to be caused (at least partly) by infectious, vaccinatable diseases. apparently some dementia is actually "long chickenpox"?
www.theguardian.com/society/2025...
www.theguardian.com/society/2025...
Study finds strongest evidence yet that shingles vaccine helps cut dementia risk
Older adults in Wales who had the jab were 20% less likely to be diagnosed with dementia that those not vaccinated
www.theguardian.com
April 6, 2025 at 12:17 PM
goddd the number of things that turn out to be caused (at least partly) by infectious, vaccinatable diseases. apparently some dementia is actually "long chickenpox"?
www.theguardian.com/society/2025...
www.theguardian.com/society/2025...
Reposted by elisa
But I've been following politics and organizing long enough to know that the Left has a real tendency toward "thing 1 didn't work, everything sucks and is worthless" and all I can tell you is that the Right does not believe that and their success is largely due to their absolute asshole persistence.
April 2, 2025 at 1:38 AM
But I've been following politics and organizing long enough to know that the Left has a real tendency toward "thing 1 didn't work, everything sucks and is worthless" and all I can tell you is that the Right does not believe that and their success is largely due to their absolute asshole persistence.
Reposted by elisa
Dr. Soon-Shiong: “…is this what I call long COVID, virus persisting?..the group at UCSF has now definitively proven…does that COVID virus suppress the natural killer cell?…it becomes what-you-call-energic? That's now been published. The natural killer cell has gone to sleep."
March 29, 2025 at 8:03 PM
Dr. Soon-Shiong: “…is this what I call long COVID, virus persisting?..the group at UCSF has now definitively proven…does that COVID virus suppress the natural killer cell?…it becomes what-you-call-energic? That's now been published. The natural killer cell has gone to sleep."
Reposted by elisa
h/t to Greg Morrow for this--
They cured symptomatic rabies in mice.
RABIES.
www.embopress.org/doi/full/10....
They cured symptomatic rabies in mice.
RABIES.
www.embopress.org/doi/full/10....
mAb therapy controls CNS‐resident lyssavirus infection via a CD4 T cell‐dependent mechanism | EMBO Molecular Medicine
image image Rabies is a fatal viral disease of humans, with uniform mortality once central nervous
system (CNS) invasion occurs and symptoms appear. This study demonstrates that a single‐dose
monoclon...
www.embopress.org
March 28, 2025 at 3:31 PM
h/t to Greg Morrow for this--
They cured symptomatic rabies in mice.
RABIES.
www.embopress.org/doi/full/10....
They cured symptomatic rabies in mice.
RABIES.
www.embopress.org/doi/full/10....
Reposted by elisa
🚨THANK YOU #LONGCOVID PATIENT COMMUNITY 🚨 Because of you, NIH RECOVER grant terminations being reversed & restored! This win was only possible due to YOUR advocacy & support from our Hill bipartisan champions! THANK YOU to every person who called, emailed & took action! #NoLongCOVIDCuts
March 29, 2025 at 1:57 AM
🚨THANK YOU #LONGCOVID PATIENT COMMUNITY 🚨 Because of you, NIH RECOVER grant terminations being reversed & restored! This win was only possible due to YOUR advocacy & support from our Hill bipartisan champions! THANK YOU to every person who called, emailed & took action! #NoLongCOVIDCuts
Reposted by elisa
NIH, which began this week terminating projects studying long COVID, has reinstated the grants, after pressure from Sen. Todd Young's (R-IN) office, an HHS source tells me.
Young had secured a commitment from RFK Jr that he'd continue funding long COVID research.
Story by @thesicktimes.bsky.social
Young had secured a commitment from RFK Jr that he'd continue funding long COVID research.
Story by @thesicktimes.bsky.social
UPDATE: RECOVER Long COVID pathobiology grants restored - The Sick Times
Long COVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding, accord...
thesicktimes.org
March 28, 2025 at 7:52 PM
NIH, which began this week terminating projects studying long COVID, has reinstated the grants, after pressure from Sen. Todd Young's (R-IN) office, an HHS source tells me.
Young had secured a commitment from RFK Jr that he'd continue funding long COVID research.
Story by @thesicktimes.bsky.social
Young had secured a commitment from RFK Jr that he'd continue funding long COVID research.
Story by @thesicktimes.bsky.social
Reposted by elisa
NEW: The NIH appears to be reversing course on its decision to abruptly cancel a spate of grants for #longCOVID research earlier this week. @cenmag.bsky.social #chemsky #biosky
cen.acs.org/policy/resea...
cen.acs.org/policy/resea...
NIH restores some long COVID grants
Researchers still nervous about funding status
cen.acs.org
March 28, 2025 at 8:30 PM
NEW: The NIH appears to be reversing course on its decision to abruptly cancel a spate of grants for #longCOVID research earlier this week. @cenmag.bsky.social #chemsky #biosky
cen.acs.org/policy/resea...
cen.acs.org/policy/resea...
Reposted by elisa
🚨 BREAKING: Long COVID research grants rescinded earlier this week have been restored, according to researchers & patient reps. Advocates organized quickly yesterday in response to the news, helping reverse the decision.
Exclusive in @thesicktimes.bsky.social
thesicktimes.org/2025/03/28/u...
Exclusive in @thesicktimes.bsky.social
thesicktimes.org/2025/03/28/u...
UPDATE: RECOVER Long COVID pathobiology grants restored - The Sick Times
Long COVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding, accord...
thesicktimes.org
March 28, 2025 at 7:36 PM
🚨 BREAKING: Long COVID research grants rescinded earlier this week have been restored, according to researchers & patient reps. Advocates organized quickly yesterday in response to the news, helping reverse the decision.
Exclusive in @thesicktimes.bsky.social
thesicktimes.org/2025/03/28/u...
Exclusive in @thesicktimes.bsky.social
thesicktimes.org/2025/03/28/u...
Reposted by elisa
Thank you Senator Todd Young (R-IN), Senator Bill Cassidy (R-LA), @kaine.senate.gov @sanders.senate.gov for your help here! Bipartisan coordinated efforts like this are crucial to support constituents and the world community👏👏👏 Appreciate your leadership!!! #LongCovid #NoLongCOVIDCuts
🚨 BREAKING: #LongCOVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding, according to patient representatives in the initiative. bit.ly/3FO8LuQ
March 28, 2025 at 10:23 PM
Thank you Senator Todd Young (R-IN), Senator Bill Cassidy (R-LA), @kaine.senate.gov @sanders.senate.gov for your help here! Bipartisan coordinated efforts like this are crucial to support constituents and the world community👏👏👏 Appreciate your leadership!!! #LongCovid #NoLongCOVIDCuts
Reposted by elisa
Fight back against all their nonsense. Sometimes it works.
JUST IN: Kari Lake has withdrawn the cancelation of Radio Free Europe’s grant, seeking to end a legal standoff.
March 28, 2025 at 12:54 AM
Fight back against all their nonsense. Sometimes it works.
Reposted by elisa
The elimination of: grants to study #LongCovid, the Office of LC, & Advisory Committee on LC — have sent a chilling signal. We encourage folks to take the following action led by our partners:
1. Call your reps: win.newmode.net/longcovidcam...
2. Email your reps: actionnetwork.org/letters/long...
1. Call your reps: win.newmode.net/longcovidcam...
2. Email your reps: actionnetwork.org/letters/long...
March 27, 2025 at 9:37 PM
The elimination of: grants to study #LongCovid, the Office of LC, & Advisory Committee on LC — have sent a chilling signal. We encourage folks to take the following action led by our partners:
1. Call your reps: win.newmode.net/longcovidcam...
2. Email your reps: actionnetwork.org/letters/long...
1. Call your reps: win.newmode.net/longcovidcam...
2. Email your reps: actionnetwork.org/letters/long...
DOGE cuts can and do get reversed but ONLY if there is LOUD and IMMEDIATE pushback
E.g. FDA medical devices reviewers reinstated a week after being let go - it's possible and it needs to happen for LC
Call your reps make sure they hear from us!!
E.g. FDA medical devices reviewers reinstated a week after being let go - it's possible and it needs to happen for LC
Call your reps make sure they hear from us!!
March 27, 2025 at 9:52 PM
DOGE cuts can and do get reversed but ONLY if there is LOUD and IMMEDIATE pushback
E.g. FDA medical devices reviewers reinstated a week after being let go - it's possible and it needs to happen for LC
Call your reps make sure they hear from us!!
E.g. FDA medical devices reviewers reinstated a week after being let go - it's possible and it needs to happen for LC
Call your reps make sure they hear from us!!
Reposted by elisa
THIS IS HUGE! Researchers at Scripps Research Institute have developed a groundbreaking UNIVERSAL coronavirus vaccine that triggers STONG immune responses AND shows promise in neutralizing MULTIPLE coronaviruses, including those responsible for causing COVID-19, MERS, AND even the “common cold.” 🧪🧵⬇️
March 27, 2025 at 4:00 PM
THIS IS HUGE! Researchers at Scripps Research Institute have developed a groundbreaking UNIVERSAL coronavirus vaccine that triggers STONG immune responses AND shows promise in neutralizing MULTIPLE coronaviruses, including those responsible for causing COVID-19, MERS, AND even the “common cold.” 🧪🧵⬇️
Reposted by elisa
The administration has canceled 45 RECOVER #LongCOVID grants. These grants examined pathology, & were vital to understanding infection-associated chronic illness as a whole.
Half of those with #LongCOVID at 6 mo. meet criteria for #MECFS. 🧪
cen.acs.org/policy/resea...
Half of those with #LongCOVID at 6 mo. meet criteria for #MECFS. 🧪
cen.acs.org/policy/resea...
NIH cancels grants through flagship long COVID initiative
Termination ‘a waste of the money we’ve spent already’
cen.acs.org
March 27, 2025 at 3:00 PM
The administration has canceled 45 RECOVER #LongCOVID grants. These grants examined pathology, & were vital to understanding infection-associated chronic illness as a whole.
Half of those with #LongCOVID at 6 mo. meet criteria for #MECFS. 🧪
cen.acs.org/policy/resea...
Half of those with #LongCOVID at 6 mo. meet criteria for #MECFS. 🧪
cen.acs.org/policy/resea...
US friends please call your reps 😭🙏 the only hope for saving these grants 🕯 bsky.app/profile/lcca...
🚨BREAKING: NIH RECOVER #LongCOVID GRANT CUTS HAVE STARTED🚨
The next 2⃣ DAYS critical to tell Congress #NoLongCOVIDCuts to clinical trials & clinic funding.
Can you make just 3⃣ calls & send 3⃣emails today?
☎️Call Congress Tool
bit.ly/NoLongCOVIDC...
📨Email Congress Tool
bit.ly/NoLongCOVIDC...
The next 2⃣ DAYS critical to tell Congress #NoLongCOVIDCuts to clinical trials & clinic funding.
Can you make just 3⃣ calls & send 3⃣emails today?
☎️Call Congress Tool
bit.ly/NoLongCOVIDC...
📨Email Congress Tool
bit.ly/NoLongCOVIDC...
March 27, 2025 at 9:01 PM
US friends please call your reps 😭🙏 the only hope for saving these grants 🕯 bsky.app/profile/lcca...
Reposted by elisa
🚨BREAKING: NIH RECOVER #LongCOVID GRANT CUTS HAVE STARTED🚨
The next 2⃣ DAYS critical to tell Congress #NoLongCOVIDCuts to clinical trials & clinic funding.
Can you make just 3⃣ calls & send 3⃣emails today?
☎️Call Congress Tool
bit.ly/NoLongCOVIDC...
📨Email Congress Tool
bit.ly/NoLongCOVIDC...
The next 2⃣ DAYS critical to tell Congress #NoLongCOVIDCuts to clinical trials & clinic funding.
Can you make just 3⃣ calls & send 3⃣emails today?
☎️Call Congress Tool
bit.ly/NoLongCOVIDC...
📨Email Congress Tool
bit.ly/NoLongCOVIDC...
March 27, 2025 at 8:10 PM
Reposted by elisa
#MEAction plans to announce our #MillionsMissing campaign next week in which we will rally our community to fight back against these research cuts.
TAKE ACTION now by calling your Congressional reps to tell them to STOP the CUTS! See the Long COVID Campaigns toolkit: bit.ly/427IHlE
TAKE ACTION now by calling your Congressional reps to tell them to STOP the CUTS! See the Long COVID Campaigns toolkit: bit.ly/427IHlE
Long COVID Campaign | www.longcovidcampaign.org (@lccampaign.bsky.social)
🚨BREAKING: NIH RECOVER #LongCOVID GRANT CUTS HAVE STARTED🚨
The next 2⃣ DAYS critical to tell Congress #NoLongCOVIDCuts to clinical trials & clinic funding.
Can you make just 3⃣ calls & send 3⃣emails t...
bit.ly
March 27, 2025 at 8:48 PM
#MEAction plans to announce our #MillionsMissing campaign next week in which we will rally our community to fight back against these research cuts.
TAKE ACTION now by calling your Congressional reps to tell them to STOP the CUTS! See the Long COVID Campaigns toolkit: bit.ly/427IHlE
TAKE ACTION now by calling your Congressional reps to tell them to STOP the CUTS! See the Long COVID Campaigns toolkit: bit.ly/427IHlE
Reposted by elisa
🚨BREAKING: NIH RECOVER #LongCOVID GRANT CUTS HAVE STARTED🚨
The next 2⃣ DAYS critical to tell Congress #NoLongCOVIDCuts to clinical trials & clinic funding.
Can you make just 3⃣ calls & send 3⃣emails today?
☎️Call Congress Tool
bit.ly/NoLongCOVIDC...
📨Email Congress Tool
bit.ly/NoLongCOVIDC...
The next 2⃣ DAYS critical to tell Congress #NoLongCOVIDCuts to clinical trials & clinic funding.
Can you make just 3⃣ calls & send 3⃣emails today?
☎️Call Congress Tool
bit.ly/NoLongCOVIDC...
📨Email Congress Tool
bit.ly/NoLongCOVIDC...
March 27, 2025 at 4:37 PM
🚨BREAKING: NIH RECOVER #LongCOVID GRANT CUTS HAVE STARTED🚨
The next 2⃣ DAYS critical to tell Congress #NoLongCOVIDCuts to clinical trials & clinic funding.
Can you make just 3⃣ calls & send 3⃣emails today?
☎️Call Congress Tool
bit.ly/NoLongCOVIDC...
📨Email Congress Tool
bit.ly/NoLongCOVIDC...
The next 2⃣ DAYS critical to tell Congress #NoLongCOVIDCuts to clinical trials & clinic funding.
Can you make just 3⃣ calls & send 3⃣emails today?
☎️Call Congress Tool
bit.ly/NoLongCOVIDC...
📨Email Congress Tool
bit.ly/NoLongCOVIDC...