I’m grateful to my colleagues and collaborators who made this work possible.

📄 www.pcori.org/sites/defaul...

How might you or your organization incorporate person-centered approaches in research and care? Let me know if you would like to discuss

People with IDD and their families have historically been excluded from many areas of health research. This roadmap is a step toward changing that — ensuring that voices of people with lived experience are central in the research process.

Thrilled to share that I co-authored “A Roadmap for Accelerating Research in Intellectual and Developmental Disabilities using PCORnet” with an incredible group of experts from across the US. And I’ll be able to share another update on this work soon!!!

📄 www.pcori.org/sites/defaul...

4 years ago today, I shared this image of Hatteras OBX and wrote:

“No rain, no rainbows.
Cloudy days always close and lead to sun-filled tomorrows.
So I will continue to practice sitting in the present with all it includes… so I can see tomorrow even more
clearly and fully alive.”

💜
Still true.

Please join us next Tuesday to hear our PCORI project finding and learn from incredible North Carolina and National Disability Advocates about advancing health research with the IDD community. It is free and open to everyone. Register here duke.is/7/nr6b

It’s a beautiful, quiet night on campus. And this view of the #dukechapel never grows old. #foreverduke

My design inspo for today. #sabbathrest #knowandbeknown

This is a nightmare.

This!!!! 👇👇👇

Check out our new publication describing these important findings! @brystana.bsky.social breaks things down 👇👇👇#academicsky #vbp #econsky #healthpolicy

So proud of my friends Terri Moffitt and Avshalom Caspi!!! They have conducted incredible research for many years to build to this.

How old are you, really?

#aging #healthpolicy #humandevelopment #biomarkers #science #technology