Kirsty Schnickelfritz
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kschnickelfritz.bsky.social
Kirsty Schnickelfritz
@kschnickelfritz.bsky.social
Sometimes inappropriate. Knitting and chocolate addict. Political when the mood takes me. Sick and tired. ME, LongCovid, POTS, Lyme
Telegraph article about hyper mobility and associated conditions.
November 28, 2024 at 1:53 PM
archive.ph
November 28, 2024 at 1:52 PM
Reposted by Kirsty Schnickelfritz
Honoured to have been included in this article by Jeremy Jeffs on his photography project.
wellcomecollection.org/stories/livi...
#MyalgicE
Living with ME
Nine people with ME reveal their unremitting struggles as they negotiate life with their illness, including their battles to be believed, diagnosed and supported.
wellcomecollection.org
November 28, 2024 at 11:15 AM
Reposted by Kirsty Schnickelfritz
Well, this has new meaning to me today, as I just got results showing positive immune activity towards 3 different membrane structures for Borrelia burgdorferi.

I was bitten by an adult tick from a known hot spot aged 10. And I have been chronically ill with post viral #MEcfs since age 14.
The never before seen Borrelia burgdorferi caught in the act of making trouble in our mouse model of borrelia infection-associated chronic illness. I feel so grateful to get to collaborate with Kunzan Liu (who took these sunning images), and Sixian You who makes the invisible visible.
November 28, 2024 at 12:19 PM
Reposted by Kirsty Schnickelfritz
Fantastic that this photography project by Jeremy Jeffs about ME is on display @wellcomecollection.bsky.social

Hope lots of people see it.

(Was meant to take part but wasn't well enough to have anyone here, and have been shielding also.) #pwME
#MEcfs

wellcomecollection.org/stories/livi...
Living with ME
Nine people with ME reveal their unremitting struggles as they negotiate life with their illness, including their battles to be believed, diagnosed and supported.
wellcomecollection.org
November 28, 2024 at 9:18 AM
Chuckled when I heard the news this morning. Trump is so put out that Biden has got the headlines with a ceasefire that he’s fabricated his own immigration deal with Mexico. Mexico haven’t got a clue what he’s on about. 😂😂😂
November 28, 2024 at 6:52 AM
I sent something using Royal Mail Tracked 48 on 22 November. It still hasn’t been delivered yet, it’s 27th today. wtf?
November 27, 2024 at 3:42 PM
Reposted by Kirsty Schnickelfritz
Make sure you’re following #ThereForME on our new social media accounts!
You can find links here: linktr.ee/ThereForME

#ComingSoon
November 26, 2024 at 9:00 AM
November 25, 2024 at 6:58 PM
This is great. They debunk PACE trials in it too.
November 25, 2024 at 12:41 PM
Reposted by Kirsty Schnickelfritz
Hannah is here! @fryrsquared.bsky.social
November 25, 2024 at 11:26 AM
Going to regret this later but it’s been years since I had a Lidl donut.
November 24, 2024 at 6:23 PM
My buddy is keeping a close eye on me today.
November 24, 2024 at 12:44 PM
Wordle 1,253 5/6

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November 23, 2024 at 10:50 AM
Nice
November 23, 2024 at 8:05 AM
@naomidharvey.bsky.social what was the Lyme test you just did? Was it Viramed virachip? Just been putting my results through chat gpt and the outcome was interesting.
November 22, 2024 at 9:27 PM
Reposted by Kirsty Schnickelfritz
Even though pyoderma gangrenosum has currently taken over my world, Lyme hasn't let me forget that it's there. This article is about a groundbreaking discovery that reveals how Borrelia burgdorferi evades the immune system.

www.lymedisease.org/dont-eat-me-...

#lymedisease #chronicillness
"Don't eat me" protein--how Lyme survives the immune system
"We’ve unlocked a critical door to understanding how this bacteria, and possibly other pathogens, manage to trick the immune system to evade clearance."
www.lymedisease.org
May 11, 2024 at 2:04 PM
November 22, 2024 at 11:53 AM
Reposted by Kirsty Schnickelfritz
If you’re thinking of swapping energy suppliers, you could use this code and we’ll each get £50 credit! Win-win. 👍😊
Use this link to sign up to Octopus - share.octopus.energy/peach-boar-422
Octopus Energy
Cheaper, greener energy from the UK's largest investor in solar generation.
share.octopus.energy
November 22, 2024 at 11:25 AM
I got a free Cadbury’s milkshake in my Ocado order. It’s gorgeous. Was a struggle to keep half left for son. 😬
November 21, 2024 at 2:27 PM
November 20, 2024 at 4:42 PM
The state of this. Imagine the backlash a woman would get conducting herself this way. Alex Burghart apparently. Never heard of him.
November 20, 2024 at 12:25 PM