Jo
@justjo.bsky.social
Interested in goings on. Small life lived in a small house. Past best before date. Lefty. ME/POTS #Anti-RecoveryActivist
Please donate if you can (or share to reach a bigger audience). 🤞💕
We have been asked to share this fundraiser for Rich, a #pwME and
three other rare and serious conditions who is in need of help funding treatment. Please see details below!
Fundraiser sharing policy: docs.google.com/document/d/1...
#MyalgicEncephalomyelitis #MECFS
three other rare and serious conditions who is in need of help funding treatment. Please see details below!
Fundraiser sharing policy: docs.google.com/document/d/1...
#MyalgicEncephalomyelitis #MECFS
Please help my friend @talmandaniel.bsky.social help his friend Rich who needs life-saving help with his highly unusual combination of medical conditions. www.gofundme.com/f/Help-Me-Ge...
This is OVER SEVENTY PERCENT FUNDED! Your dollar could really save a life here
This is OVER SEVENTY PERCENT FUNDED! Your dollar could really save a life here
November 16, 2025 at 8:05 AM
Please donate if you can (or share to reach a bigger audience). 🤞💕
Reposted by Jo
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
www.theguardian.com
October 8, 2025 at 6:09 AM
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
May 18, 2025 at 8:38 AM
Reposted by Jo
I started eating real food again in 2024!…I have now stopped the Peptamen food formula completely, and get all my calories from real food!...And I want to tell you because I want you to hear this story!...what will 2025 bring? #MECFS
New post on my blog:
www.whitneydafoe.com/mecfs/?post=...
New post on my blog:
www.whitneydafoe.com/mecfs/?post=...
I Started Eating Food Again in 2024...What Will 2025 Bring?
I started eating real food again in 2024!...I have now stopped the Peptamen food formula completely, and get all my calories from real food!...It has come time that I feel stable enough with this new ...
www.whitneydafoe.com
February 17, 2025 at 4:06 PM
I started eating real food again in 2024!…I have now stopped the Peptamen food formula completely, and get all my calories from real food!...And I want to tell you because I want you to hear this story!...what will 2025 bring? #MECFS
New post on my blog:
www.whitneydafoe.com/mecfs/?post=...
New post on my blog:
www.whitneydafoe.com/mecfs/?post=...
Happy Birthday! @kschnickelfritz.bsky.social
Tried to post a Bitmoji but it wouldn’t let me. The gifs are crap. So here are a few emojis in their place
🎂🎁🎈🥳🎉👋💃
Tried to post a Bitmoji but it wouldn’t let me. The gifs are crap. So here are a few emojis in their place
🎂🎁🎈🥳🎉👋💃
January 28, 2025 at 10:45 AM
Happy Birthday! @kschnickelfritz.bsky.social
Tried to post a Bitmoji but it wouldn’t let me. The gifs are crap. So here are a few emojis in their place
🎂🎁🎈🥳🎉👋💃
Tried to post a Bitmoji but it wouldn’t let me. The gifs are crap. So here are a few emojis in their place
🎂🎁🎈🥳🎉👋💃
Reposted by Jo
If social media's stressing you out just now (me too) then here's a gentle antidote:
pause for a few seconds & focus on the details in my photo👇-your brain's very likely to release dopamine,lifting your mood due to the bright colours & is ikely to relax in response to seeing these botanical patterns
pause for a few seconds & focus on the details in my photo👇-your brain's very likely to release dopamine,lifting your mood due to the bright colours & is ikely to relax in response to seeing these botanical patterns
January 26, 2025 at 7:05 PM
If social media's stressing you out just now (me too) then here's a gentle antidote:
pause for a few seconds & focus on the details in my photo👇-your brain's very likely to release dopamine,lifting your mood due to the bright colours & is ikely to relax in response to seeing these botanical patterns
pause for a few seconds & focus on the details in my photo👇-your brain's very likely to release dopamine,lifting your mood due to the bright colours & is ikely to relax in response to seeing these botanical patterns
Reposted by Jo
Think about this.. for a second. Doesn't take you much time to get it!
Them? Eons.😉
Them? Eons.😉
January 25, 2025 at 2:50 PM
Think about this.. for a second. Doesn't take you much time to get it!
Them? Eons.😉
Them? Eons.😉
Reposted by Jo
Delighted to have joined the APPG ME and been appointed an officer. Too many people live with ME, with too little understanding, and inadequate care. It’s time to engage - I’m #ThereForME.
December 20, 2024 at 4:02 PM
Delighted to have joined the APPG ME and been appointed an officer. Too many people live with ME, with too little understanding, and inadequate care. It’s time to engage - I’m #ThereForME.
@rolypeck.bsky.social
Thought you might enjoy this.
Thought you might enjoy this.
December 20, 2024 at 3:57 PM
@rolypeck.bsky.social
Thought you might enjoy this.
Thought you might enjoy this.
Petra, I can’t find you! Hope you get to see this. Happy Birthday 🥳 🎂🎈
December 19, 2024 at 9:15 AM
Petra, I can’t find you! Hope you get to see this. Happy Birthday 🥳 🎂🎈
@actionforme.bsky.social Please reconsider posting on X even if just for info and not interaction/discussion. So many people on there (including DecodeME participants) have not seen your research announcement today. #ME
December 16, 2024 at 1:56 PM
@actionforme.bsky.social Please reconsider posting on X even if just for info and not interaction/discussion. So many people on there (including DecodeME participants) have not seen your research announcement today. #ME
Reposted by Jo
1/2
🚨 SequenceME
A groundbreaking partnership has launched today, bringing together experts from Action for ME, Oxford Nanopore Technologies & the University of Edinburgh.
Read more 👇
www.actionforme.org.uk/news/sequenc...
#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #MEResearch
🚨 SequenceME
A groundbreaking partnership has launched today, bringing together experts from Action for ME, Oxford Nanopore Technologies & the University of Edinburgh.
Read more 👇
www.actionforme.org.uk/news/sequenc...
#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #MEResearch
December 16, 2024 at 9:30 AM
1/2
🚨 SequenceME
A groundbreaking partnership has launched today, bringing together experts from Action for ME, Oxford Nanopore Technologies & the University of Edinburgh.
Read more 👇
www.actionforme.org.uk/news/sequenc...
#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #MEResearch
🚨 SequenceME
A groundbreaking partnership has launched today, bringing together experts from Action for ME, Oxford Nanopore Technologies & the University of Edinburgh.
Read more 👇
www.actionforme.org.uk/news/sequenc...
#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #MEResearch
Finally spent a garden Centre voucher I received last Christmas! Very happy with them 🥰
December 5, 2024 at 1:41 PM
Finally spent a garden Centre voucher I received last Christmas! Very happy with them 🥰
Reposted by Jo
Hating yourself for things you can’t control will never make you better, it will only make you bitter.
December 4, 2024 at 2:10 AM
Hating yourself for things you can’t control will never make you better, it will only make you bitter.
Now is the time to make sure you have enough medication to see you through the Xmas period and/or arrange your repeat prescription in good time #ME #ChronicIllness #LC
December 3, 2024 at 5:46 PM
Now is the time to make sure you have enough medication to see you through the Xmas period and/or arrange your repeat prescription in good time #ME #ChronicIllness #LC
Reposted by Jo
My brain’s not well at all atm but small creative routines can help so I’m going to try to post a (hopefully dopamine-boosting) photo for you every day through till🎄. Some small wreaths bc I really like twiggy circles 🌿:
December 1, 2024 at 12:25 PM
My brain’s not well at all atm but small creative routines can help so I’m going to try to post a (hopefully dopamine-boosting) photo for you every day through till🎄. Some small wreaths bc I really like twiggy circles 🌿:
🤣🤣🤣
November 28, 2024 at 2:40 PM
🤣🤣🤣
Reposted by Jo
Fantastic that this photography project by Jeremy Jeffs about ME is on display @wellcomecollection.bsky.social
Hope lots of people see it.
(Was meant to take part but wasn't well enough to have anyone here, and have been shielding also.) #pwME
#MEcfs
wellcomecollection.org/stories/livi...
Hope lots of people see it.
(Was meant to take part but wasn't well enough to have anyone here, and have been shielding also.) #pwME
#MEcfs
wellcomecollection.org/stories/livi...
Living with ME
Nine people with ME reveal their unremitting struggles as they negotiate life with their illness, including their battles to be believed, diagnosed and supported.
wellcomecollection.org
November 28, 2024 at 9:18 AM
Fantastic that this photography project by Jeremy Jeffs about ME is on display @wellcomecollection.bsky.social
Hope lots of people see it.
(Was meant to take part but wasn't well enough to have anyone here, and have been shielding also.) #pwME
#MEcfs
wellcomecollection.org/stories/livi...
Hope lots of people see it.
(Was meant to take part but wasn't well enough to have anyone here, and have been shielding also.) #pwME
#MEcfs
wellcomecollection.org/stories/livi...
👍
Jess Phillips on new anti-domestic violence measures: ‘I feel hopeful today’
Jess Phillips on new anti-domestic violence measures: ‘I feel hopeful today’
Police say strict new restraining orders on domestic abusers will enable them to ‘manage offenders proactively’
In a white-walled room at Croydon custody centre on Wednesday, Jess Phillips lets out a little whoop.
Talking about new strict new…
www.theguardian.com
November 27, 2024 at 10:25 PM
👍
Buggered up my straw because I didn’t have my glasses on and I was trying to insert it into the QR code 🤦♀️🤣 🤓
November 27, 2024 at 5:30 PM
Buggered up my straw because I didn’t have my glasses on and I was trying to insert it into the QR code 🤦♀️🤣 🤓
Reposted by Jo
The #ME Association, a national organisation, has been dominated by this man so long it's transformed into a mental health charity.
ME is not a mental illness.
I wasted months meeting MEA reps (Trustees & employees) pre inquest. 2/3 resigned after listening to me.
thesicktimes.org/2024/11/22/a...
ME is not a mental illness.
I wasted months meeting MEA reps (Trustees & employees) pre inquest. 2/3 resigned after listening to me.
thesicktimes.org/2024/11/22/a...
Advocacy groups suspend ties with U.K. charity The ME Association over chairman’s op-ed - The Sick Times
Earlier this month, the chairman of the United Kingdom charity the ME Association, Neil Riley, published a controversial op-ed in the charity’s magazine arguing that many people with Myalgic Encephalo...
thesicktimes.org
November 27, 2024 at 10:41 AM
The #ME Association, a national organisation, has been dominated by this man so long it's transformed into a mental health charity.
ME is not a mental illness.
I wasted months meeting MEA reps (Trustees & employees) pre inquest. 2/3 resigned after listening to me.
thesicktimes.org/2024/11/22/a...
ME is not a mental illness.
I wasted months meeting MEA reps (Trustees & employees) pre inquest. 2/3 resigned after listening to me.
thesicktimes.org/2024/11/22/a...
Treated myself to 2 new pairs of Snag tights. I always found tights to be uncomfortable and restricting but when I discovered Snag just before I got ill I was delighted. Soft, stretchy, they never droop or fall down. They last ages and wash well. Packed with care too 😍
November 27, 2024 at 2:48 PM
Treated myself to 2 new pairs of Snag tights. I always found tights to be uncomfortable and restricting but when I discovered Snag just before I got ill I was delighted. Soft, stretchy, they never droop or fall down. They last ages and wash well. Packed with care too 😍