Institute for Health and Disability Policy Studies
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ihdps.bsky.social
Institute for Health and Disability Policy Studies
@ihdps.bsky.social
120 followers 170 following 90 posts
To conduct timely and meaningful research and evaluation to inform health and disability policy, with the goal of improving access and quality of care for all people, particularly for those with disabilities and chronic illnesses.
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ihdps.bsky.social
Institute for Health and Disability Policy Studies @ihdps.bsky.social · Aug 5
The 2025 National Survey on Health and Disability (NSHD) is now closed!

While we look at the information people have shared, we invite you to sign up for our newsletter to stay in the loop about disability research news, resources, and other opportunities: tinyurl.com/ycxepyzk
Text: Thank you to everyone who participated in the National Survey on Health and Disability (NSHD) by contributing your voice, sharing the survey with the disability community, or conducting research that guides disability policy. Without your efforts, our work would not succeed! Image: A large diverse group of people, including people with disabilities
Reposted by Institute for Health and Disability Policy Studies
crdjustice.bsky.social
Accessing disaster aid can be overwhelming, especially for disabled people, elders, people of color, & low-income communities. FEMA is often the main system people are directed to after a disaster, but navigating it is not always transparent or easy. This guide breaks down the real steps. [1/7]
A snowy residential street with cars buried in snow is shown. Overlaid text reads “Accessing FEMA Disaster Relief.” The U.S. Department of Homeland Security seal appears on the left. Text at the bottom reads “Katherine Scala, CRDJ Intern,” and the Center for Racial & Disability Justice logo appears in the lower left corner.
December 4, 2025 at 7:57 PM
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aahealthdisability.bsky.social
We’re now accepting applications for our 2026 Scholarship on Health & Disability! This award is made each year to undergraduate/ graduate students pursuing studies in the broad field of #DisabilityHealth. Due: March 6, 2026
Share this opportunity: aahd.us/initiatives/...
#Disability #DisabilitySky
Disability & Health Scholarship Program now accepting applications. American Association on Health and Disability.
December 9, 2025 at 5:47 PM
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disabilityscoop.bsky.social
The U.S. #SupremeCourt is set to hear arguments in a case that advocates say could have major implications for how #IntellectualDisability is defined. #disabilities #SCOTUS
Supreme Court To Hear Case On Intellectual Disability
The U.S. Supreme Court is set to hear arguments in a case that advocates say could have major implications for how intellectual disability is defined.
www.disabilityscoop.com
December 8, 2025 at 5:17 AM
ihdps.bsky.social
This project from the @center4ds.bsky.social documented the experiences of disabled and chronically ill people during the COVID-19 pandemic.

disabilitycovidchronicles.nyu.edu

#Covid19 #LongCovid #disability
Disability Covid Chronicles
Documenting the experiences of disabled and chronically ill people during the current COVID-19 pandemic, organized by the NYU Center for Disability Studies
disabilitycovidchronicles.nyu.edu
December 3, 2025 at 7:25 PM
ihdps.bsky.social
The @bazeloncenter.bsky.social has released a short guide for states to support people with disabilities in light of impending changes to Medicaid.

Read more at:

Guide:
www.bazelon.org/wp-content/u...

Bazelon's site:
www.bazelon.org
www.bazelon.org
December 2, 2025 at 9:15 PM
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ukresearch.bsky.social
UK’s Human Development Institute (HDI) received $3.2 million in funding from the U.S. Department of Education to support a nationwide effort to engage employers and improve job opportunities for people with disabilities.

Learn more: https://bit.ly/3MAklNd
HDI grant to advance employer engagement strategies in vocational rehabilitation | UK Research
The UK Human Development Institute received $3.2 million in funding from the U.S. Department of Education to support a nationwide effort to engage employers and improve job opportunities for people wi...
bit.ly
December 2, 2025 at 6:20 PM
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lauralew105.bsky.social
Medicaid is the bare minimum for people with Long COVID and other complex conditions. But instead of improving it, amid skyrocketing disability claims, the Trump administration is making it worse. The impact could be catastrophic.
My feature for @thesicktimes.org: thesicktimes.org/2025/12/02/t...
The future of Medicaid is “really scary” for people with Long COVID - The Sick Times
The deep cuts to Medicaid funding in the Trump administration’s spending bill of almost $1 trillion — as well as new requirements making Medicaid more difficult to obtain and maintain — will hit disad...
thesicktimes.org
December 2, 2025 at 7:14 PM
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bhanlon15.bsky.social
'Long COVID patients face more than double the healthcare costs after diagnosis'

'"Long COVID is a debilitating disease for patients, presenting in a myriad of ways, with far-reaching implications for those affected."

www.news-medical.net/news/2025120...
Long COVID patients face more than double the healthcare costs after diagnosis
People with Long COVID use the health service significantly more than they did before their diagnosis. These patients need to use GP, outpatient, inpatient and emergency department services more than ...
www.news-medical.net
December 2, 2025 at 4:57 PM
Reposted by Institute for Health and Disability Policy Studies
northwestada.bsky.social
Not long after passage of the ADA came the regional centers today comprising the ADA National Network. They were created to help communities understand the ADA and its provisions. Learn more about the different types of services offered by your regional center!

adata.org/factsheet/AD...
What Types of Services Can the ADA National Network Offer You? | ADA National Network
adata.org
November 24, 2025 at 6:25 PM
ihdps.bsky.social
Guide from NCHPAD shows ways to engage as a person with a disability with a local CIL in many different roles - including consumer, advocate, peer, staff and more!

www.nchpad.org/resources/un...

#Disability #PeerSupport
Unlocking Opportunities: Engaging with Your State’s Center for Independent Living
How people with disabilities can become active service recipients, staff members, leaders and advocates within their local centers for independent living.
www.nchpad.org
November 20, 2025 at 8:34 PM
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kucdisabilities.bsky.social
🎉 KU Transition to Postsecondary Education has received a grant to increase access to college in Kansas for students with intellectual disabilities!

To learn more, visit loom.ly/3lpS24U
Five people wearing black caps and gowns smile at a graduation ceremony
November 6, 2025 at 9:32 PM
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disabilitybelongs.bsky.social
Housing is a basic human need that is out of reach for hundreds of thousands of disabled people. Read the thread for some key facts, and then check out our blog post at the link below to learn more.

Image Description: An unhoused person sleeping on a sidewalk.

#Disabilities #Disability
The Housing Crisis in the Disability Community - Disability Belongs™
Nearly half of unhoused individuals live with a disability, yet their unique needs are often left out of housing policy and service design.
www.disabilitybelongs.org
November 12, 2025 at 3:05 PM
ihdps.bsky.social
Researchers use data from the National Survey on Health and Disability to look at cannabis use by people with disabilities

Read more at: www.sciencedirect.com/science/arti...
Reasons for cannabis use among adults with disabilities: Findings from the 2023-2024 National Survey on Health and Disabilities
People with disabilities disproportionately use cannabis compared to those without a disability; however, little is known about reasons for use among …
www.sciencedirect.com
November 11, 2025 at 8:44 PM
ihdps.bsky.social
What does the government shutdown mean for people with disabilities?

This explainer from American Association of People with Disabilities has information on what to expect, as well as some resources (feedingamerica, Food Security Network) that people can use.

www.aapd.com/explainer-wh...
Explainer: What the Government Shutdown Means for SNAP, WIC, and Disability Programs - AAPD
Update as of October 27, 2025: The federal government shutdown is now in its fourth week, with no immediate end in sight. As you can read about in our previous explainer, Congress has failed to pass a...
www.aapd.com
November 6, 2025 at 9:00 PM
ihdps.bsky.social
New journal article from IHDPS explores whether having a proxy leads to people with disabilities being incorrectly represented in survey data.

Read the full article at: www.frontiersin.org/journals/res...

#DisabilityResearch #DisabilityData
Text: Does who responds matter?: exploring potential proxy response bias in the Washington Group Short Set disability estimates Aaron Beuoy & Kelsey Goddard Published in Frontiers in Research Metrics and Analytics DOI: 10.3389/frma.2025.1654769 Images: A black man using a wheelchair talks to a woman in a suit who holds a clipboard with information between them, KU The University of Kansas Institute for Health and Disability Policy Studies logo
November 4, 2025 at 9:03 PM
ihdps.bsky.social
To follow up on Tuesday's post -

Please visit essentialdata.us

It shows how good data can be crucial for funding and services.

E.g. Today we heard in Langston University RRTC's employment listening session that poor data for special education through employment is leading to a lack of support
America's Essential Data
Highlighting examples of how our essential public data serve the American people.
essentialdata.us
October 30, 2025 at 7:42 PM
ihdps.bsky.social
Datasets from Transportation, Labor, and Commerce departments connect employers with talented Americans with disabilities.

#DisabilityData #ResearchMatters

(Links in comments) - Post 2 of 2
text: A nonprofit disability organization launches a small business accelerator when they learn from the Current Population Survey's disability labor force characteristics data that workers with disabilities are twice as likely to be self-employed than work for someone image: a woman sitting and drawing on an easel text: The bad news is all of these datasets are at risk. The good news resources like EssentialData.us help make the case for how federal datasets benefit American lives and livelihoods. text: learn more at EssentialData.us psst did you know? these graphics are made by a disabled designer heart kate text & images: image credits - man with bus - metropolitan transportation authority via Flickr, woman on couch - resume genius via Unsplash, woman drawing - European disability forum via Flickr, man with pig - U.S. department of Agriculture via Flickr
October 28, 2025 at 7:50 PM
ihdps.bsky.social
U.S. Chief Data Scientist @denicewross.bsky.social worked with the Disability Health Equity Research Network (DHERN) to show the connection between disability data to real outcomes for people with disabilities.

#DisabilityData #ResearchMatters

(Links in comments) - Post 1 of 2
text: federal datasets for national disability employment awareness month that keep disabled Americans going images: man with wheelchair entering bus, man with wheelchair feeding pig, Disability Health Equity Research Network logo, FAS federation of American scientists logo, America's Essential Data logo text: a wheelchair user has an easier commute to work thanks to expanded door-to-door transit services in response to the National Household Travel Survey showing the employment barriers faced by adults with travel-limiting disabilities image: man with wheelchair entering bus text: A cancer patient continues working during treatment because they find info about workplace accommodations that match their symptoms and job duties in the Job Accommodation Network Situations and Solutions finder database, from the Office of Disability Employment policy image: woman sits on couch using her laptop text: A farmworker paralyzed in a combine accident finds the right assistive tech to continue working with help from AgrAbility, a USDA-funded program that exists to serve the 2 in 10 farmers who are living with disabilities, a need made visible by American Survey Data image: a man with a wheelchair feeds a pig
October 28, 2025 at 7:48 PM
ihdps.bsky.social
We are at the last day of Center on KTDRR 's 2025 Virtual Knowledge Translation (KT) Conference this year, and are learning about lots of great KT resources!

One is a pilot project in Nigeria presented by Charles Chibuisi Ehiemere - Familia Solutions. More info in comments.
Website screenshot. Familia Supporting Maternal & Child Health Empowering women of reproductive age with digital health solutions for better maternal and child health outcomes
October 23, 2025 at 7:37 PM
ihdps.bsky.social
We are learning about great resources at KTDRR's 2025 KT Conference!

One is "Thinking for Me" - a comic by advocate Giancarlo Vicari for youth about turning 18 and talking to parents about alternatives to guardianship.

It is available as video and pdf:
youth-voice.org/youth-ambass...
Giancarlo Vicari - Center on Youth Voice, Youth Choice
Giancarlo was born on October 30th, 2008, in Summit New Jersey and is growing up in Union, New Jersey. He was first educated at Washington Elementary School in Union, New Jersey then from 2nd grade to...
nam10.safelinks.protection.outlook.com
October 21, 2025 at 5:12 PM
ihdps.bsky.social
From @aapd.com -

What the Trump Administration’s Reduction-in-Force Means for People with Disabilities

Civil protections, reasonable accommodations, and other services will likely be impacted

www.aapd.com/explainer-wh...
Explainer: What the Trump Administration’s Reduction-in-Force Means for People with Disabilities - AAPD
What is a Reduction-in-Force (RIF)? A Reduction-in-Force (RIF) is a process in which an employer permanently eliminates some positions, resulting in layoffs. For any employer, RIFs can happen for reas...
www.aapd.com
October 16, 2025 at 6:50 PM
ihdps.bsky.social
The new journal article from IHDPS shows a link between transportation access and better social connectivity and health for people with disabilities.

Read more in the Journals of Transport and Health:
doi.org/10.1016/j.jth.2025.102165

#DisabilityResearch #DisabilityHealth #DisabilityTransport
The moderating effects of perceived transportation access on health and social connectedness for people with disabilities Published in Journals of Transport & Health DOI: 10.1016/j.jth.2025.102165 Man using a wheelchair uses a lift to enter a van with assistance from another man KU The University of Kansas Institute for Health and Disability Policy Studies logo
October 14, 2025 at 7:50 PM
Reposted by Institute for Health and Disability Policy Studies
kucdisabilities.bsky.social
The KUCD team was honored to present at the annual SOAR Conference in Omaha, NE!

Communications Specialist Austin Myers and Research Assistant Ryan Henley presented the stories of self-advocates and led a group discussion about the importance of advocating for oneself and the barriers people face.
Six people pose for a photo in front of the SOAR conference banner. Two people sit in power chairs and four people stand.
October 8, 2025 at 4:00 PM
Reposted by Institute for Health and Disability Policy Studies
drkaraayers.bsky.social
Our Disability Research Lab is set for our biggest year yet as we are now funded! Join us for our kick-off meeting Thursday, October 16 at 12pm EST. To register for our first meeting, sign up here (or via QR code in image): lnkd.in/gCwd3s5P
The Disability Research Lab is recruiting new members. We are looking for researchers with disabilities at any stage of their career and in any field. Join us for our kick-off meeting Thursday, October 16 at 12pm EST. A QR code is available to register or the link is in the body of the post. Email Kara at kara.ayers@cchmc.org with questions.
October 6, 2025 at 11:39 PM
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kulifespan.bsky.social
October is National Disability Employment Awareness Month! Our researchers at @kucdisabilities.bsky.social and @ihdps.bsky.social are working with #Kansas to support equitable treatment for disabled employees. #NDEAM #KUresearch
A man sitting at a desk wearing a hearing aid speaks in sign language to an individual on his laptop during a video conference call while a woman sits at another desk nearby working separately
October 3, 2025 at 4:05 PM