EDSisSUCHaMESS
@edsissuchamess.bsky.social
Former professor, #hEDS sufferer, and Oxford comma user.
Please support me at coff.ee/EDSisSUCHaMESS
Please support me at coff.ee/EDSisSUCHaMESS
Pinned
“When health is absent, wisdom cannot reveal itself, art cannot become manifest, strength cannot be exerted, wealth is useless, and reason is powerless.”
-Herophilos
-Herophilos
It’s overcast and humid today, so my body decided it didn’t feel like functioning properly. I’m simultaneously in pain, too hot and yet shivering from cold, nauseous, and dizzy.
Meanwhile, I promised my dad a chapter (since he paid our car insurance for us).
Le sigh.
Meanwhile, I promised my dad a chapter (since he paid our car insurance for us).
Le sigh.
November 30, 2025 at 10:49 PM
It’s overcast and humid today, so my body decided it didn’t feel like functioning properly. I’m simultaneously in pain, too hot and yet shivering from cold, nauseous, and dizzy.
Meanwhile, I promised my dad a chapter (since he paid our car insurance for us).
Le sigh.
Meanwhile, I promised my dad a chapter (since he paid our car insurance for us).
Le sigh.
So my apartment just sent out an email that we’re not allowed to feed the squirrels.
Do you think they’ll accept that we’re feeding the birds but the squirrels come anyway?
Meanwhile, the two baby squirrels are bulking up for winter and even cuter.
Do you think they’ll accept that we’re feeding the birds but the squirrels come anyway?
Meanwhile, the two baby squirrels are bulking up for winter and even cuter.
November 29, 2025 at 9:05 PM
So my apartment just sent out an email that we’re not allowed to feed the squirrels.
Do you think they’ll accept that we’re feeding the birds but the squirrels come anyway?
Meanwhile, the two baby squirrels are bulking up for winter and even cuter.
Do you think they’ll accept that we’re feeding the birds but the squirrels come anyway?
Meanwhile, the two baby squirrels are bulking up for winter and even cuter.
My amazing sister sent us some money, so we can pay rent now — yay!
Dealing with financial insecurity when you’re already struggling through living with a disability is fucking insane.
It shouldn’t take over a year to get disability. How are we supposed to live in the meantime???
Dealing with financial insecurity when you’re already struggling through living with a disability is fucking insane.
It shouldn’t take over a year to get disability. How are we supposed to live in the meantime???
November 29, 2025 at 7:41 PM
My amazing sister sent us some money, so we can pay rent now — yay!
Dealing with financial insecurity when you’re already struggling through living with a disability is fucking insane.
It shouldn’t take over a year to get disability. How are we supposed to live in the meantime???
Dealing with financial insecurity when you’re already struggling through living with a disability is fucking insane.
It shouldn’t take over a year to get disability. How are we supposed to live in the meantime???
November 29, 2025 at 2:37 AM
Rent is due in three days and I’m $700 short.
If you can, please support me at: coff.ee/EDSisSUCHaMESS
If you can, please support me at: coff.ee/EDSisSUCHaMESS
Camille
Former professor, #hEDS sufferer, and Oxford comma user.
I applied for disability in November 2024 and have been denied once. They are currently reviewing my appeal, which will take who knows how lon
coff.ee
November 27, 2025 at 9:06 PM
Rent is due in three days and I’m $700 short.
If you can, please support me at: coff.ee/EDSisSUCHaMESS
If you can, please support me at: coff.ee/EDSisSUCHaMESS
Thanksgiving is my favorite holiday because I love the food and I love going around the table and saying what we’re thankful for from the past year.
This day gives us chance to relax (except for cooking!) and remember that as bad as things are, some things are still amazing.
Happy Thanksgiving!
This day gives us chance to relax (except for cooking!) and remember that as bad as things are, some things are still amazing.
Happy Thanksgiving!
November 27, 2025 at 9:04 PM
Thanksgiving is my favorite holiday because I love the food and I love going around the table and saying what we’re thankful for from the past year.
This day gives us chance to relax (except for cooking!) and remember that as bad as things are, some things are still amazing.
Happy Thanksgiving!
This day gives us chance to relax (except for cooking!) and remember that as bad as things are, some things are still amazing.
Happy Thanksgiving!
I woke up early thanks to a panic attack about money and I’m supposed to have lunch with my Grandma in about 3 hours.
So my options are:
1. Try desperately to go back to sleep, fall asleep for maybe 30 minutes before I have to be up, feel groggy.
2. Doom scroll until it’s time to go, feel groggy.
So my options are:
1. Try desperately to go back to sleep, fall asleep for maybe 30 minutes before I have to be up, feel groggy.
2. Doom scroll until it’s time to go, feel groggy.
November 26, 2025 at 7:21 PM
I woke up early thanks to a panic attack about money and I’m supposed to have lunch with my Grandma in about 3 hours.
So my options are:
1. Try desperately to go back to sleep, fall asleep for maybe 30 minutes before I have to be up, feel groggy.
2. Doom scroll until it’s time to go, feel groggy.
So my options are:
1. Try desperately to go back to sleep, fall asleep for maybe 30 minutes before I have to be up, feel groggy.
2. Doom scroll until it’s time to go, feel groggy.
Does anyone know like 75-100 people that could spare $20 a month to help me out? Even 50 people could make a big difference in my life.
I’m lucky to have great Medicaid living in CA but the rent here is outrageous and we’re paying more for car insurance than we are for our one car.
🧵 (1/4)
I’m lucky to have great Medicaid living in CA but the rent here is outrageous and we’re paying more for car insurance than we are for our one car.
🧵 (1/4)
Camille
Former professor, #hEDS sufferer, and Oxford comma user.
I applied for disability in November 2024 and have been denied once. They are currently reviewing my appeal, which will take who knows how lon
coff.ee
November 25, 2025 at 9:22 PM
Does anyone know like 75-100 people that could spare $20 a month to help me out? Even 50 people could make a big difference in my life.
I’m lucky to have great Medicaid living in CA but the rent here is outrageous and we’re paying more for car insurance than we are for our one car.
🧵 (1/4)
I’m lucky to have great Medicaid living in CA but the rent here is outrageous and we’re paying more for car insurance than we are for our one car.
🧵 (1/4)
So after overdoing it yesterday, I ended up with a massive migraine and worse than usual dysautonomia.
And today I had to do bloodwork and get the second gel injection in my left knee.
So yeah, my body is NOT happy right now.
And today I had to do bloodwork and get the second gel injection in my left knee.
So yeah, my body is NOT happy right now.
November 25, 2025 at 12:36 AM
So after overdoing it yesterday, I ended up with a massive migraine and worse than usual dysautonomia.
And today I had to do bloodwork and get the second gel injection in my left knee.
So yeah, my body is NOT happy right now.
And today I had to do bloodwork and get the second gel injection in my left knee.
So yeah, my body is NOT happy right now.
🧵 Here I sit, listening to the voices of my “family” swirling around me. As usual, nobody had bothered to set a place setting for me, even though I had just cooked most of the food they were now enjoying without me.
November 24, 2025 at 2:48 AM
🧵 Here I sit, listening to the voices of my “family” swirling around me. As usual, nobody had bothered to set a place setting for me, even though I had just cooked most of the food they were now enjoying without me.
My Grandma does Thanksgiving the Sunday before and I got tasked with the turkey, stuffing, and gravy.
So I decided the best way to prepare for heavy duty cooking was to forget to take my meds last night. 🤦🏻♀️
So yeah, cooking this morning has been a delight. At least the turkey is in the oven now.
So I decided the best way to prepare for heavy duty cooking was to forget to take my meds last night. 🤦🏻♀️
So yeah, cooking this morning has been a delight. At least the turkey is in the oven now.
November 23, 2025 at 8:16 PM
My Grandma does Thanksgiving the Sunday before and I got tasked with the turkey, stuffing, and gravy.
So I decided the best way to prepare for heavy duty cooking was to forget to take my meds last night. 🤦🏻♀️
So yeah, cooking this morning has been a delight. At least the turkey is in the oven now.
So I decided the best way to prepare for heavy duty cooking was to forget to take my meds last night. 🤦🏻♀️
So yeah, cooking this morning has been a delight. At least the turkey is in the oven now.
I hate asking for help, but rent is due next week and I don’t have enough to cover it.
I’m still waiting on the decision for my disability benefits appeal — I applied over a year ago.
Please, if you’re able, support me at coff.ee/EDSisSUCHaMESS
I’m still waiting on the decision for my disability benefits appeal — I applied over a year ago.
Please, if you’re able, support me at coff.ee/EDSisSUCHaMESS
Camille
Former professor, #hEDS sufferer, and Oxford comma user.
I applied for disability in November 2024 and have been denied once. They are currently reviewing my appeal, which will take who knows how lon
coff.ee
November 22, 2025 at 7:06 PM
I hate asking for help, but rent is due next week and I don’t have enough to cover it.
I’m still waiting on the decision for my disability benefits appeal — I applied over a year ago.
Please, if you’re able, support me at coff.ee/EDSisSUCHaMESS
I’m still waiting on the decision for my disability benefits appeal — I applied over a year ago.
Please, if you’re able, support me at coff.ee/EDSisSUCHaMESS
Amazing how AOC is able to coherently answer a question about a topic she hadn’t yet had a chance to research.
Maybe she can give some tips to Speaker Johnson.
Maybe she can give some tips to Speaker Johnson.
AOC to @pabloreports.bsky.social : A swastika is one of the clearest symbols of hatred in all of humanity… to remove that designation… indicates a possible collaboration with those very elements, which I think is genuinely frightening to any American.
November 21, 2025 at 8:02 PM
Amazing how AOC is able to coherently answer a question about a topic she hadn’t yet had a chance to research.
Maybe she can give some tips to Speaker Johnson.
Maybe she can give some tips to Speaker Johnson.
I feel like this is a good time to post Isaac Asimov:
“Violence is the last refuge of the incompetent.”
“Violence is the last refuge of the incompetent.”
November 21, 2025 at 3:14 AM
I feel like this is a good time to post Isaac Asimov:
“Violence is the last refuge of the incompetent.”
“Violence is the last refuge of the incompetent.”
Our senior kitty Freya is so adorable. As soon as she wakes up from a nap, she has to immediately go and eat.
But because she’s a little elderly and still half asleep, her walk from the couch to her food bowl is that of a drunken sailor.
But because she’s a little elderly and still half asleep, her walk from the couch to her food bowl is that of a drunken sailor.
November 21, 2025 at 1:54 AM
Our senior kitty Freya is so adorable. As soon as she wakes up from a nap, she has to immediately go and eat.
But because she’s a little elderly and still half asleep, her walk from the couch to her food bowl is that of a drunken sailor.
But because she’s a little elderly and still half asleep, her walk from the couch to her food bowl is that of a drunken sailor.
Rain and cold here today, plus I had to leave the house to go to a doctor’s appointment.
Edibles and reading non-political fiction for the rest of the day.
If only I was responsible enough to just be healthy! 🙄🤬
Edibles and reading non-political fiction for the rest of the day.
If only I was responsible enough to just be healthy! 🙄🤬
November 21, 2025 at 1:12 AM
Rain and cold here today, plus I had to leave the house to go to a doctor’s appointment.
Edibles and reading non-political fiction for the rest of the day.
If only I was responsible enough to just be healthy! 🙄🤬
Edibles and reading non-political fiction for the rest of the day.
If only I was responsible enough to just be healthy! 🙄🤬
Those of us with chronic illness are already being punished:
-by our bodies
-by a society that doesn’t want to face the reality that anyone can become chronically ill
-by a for-profit healthcare system that doesn’t want to waste the time and money to help us.
We’re not irresponsible, we’re sick.
-by our bodies
-by a society that doesn’t want to face the reality that anyone can become chronically ill
-by a for-profit healthcare system that doesn’t want to waste the time and money to help us.
We’re not irresponsible, we’re sick.
Markwayne Mullin: "Reward people for being healthy. Think about this. Healthcare is the only industry that you're not rewarded for taking care of your responsibility. If you think about homeowners insurance, if you're within 500 feet of a fire hydrant, your insurance goes down."
November 19, 2025 at 10:02 PM
Those of us with chronic illness are already being punished:
-by our bodies
-by a society that doesn’t want to face the reality that anyone can become chronically ill
-by a for-profit healthcare system that doesn’t want to waste the time and money to help us.
We’re not irresponsible, we’re sick.
-by our bodies
-by a society that doesn’t want to face the reality that anyone can become chronically ill
-by a for-profit healthcare system that doesn’t want to waste the time and money to help us.
We’re not irresponsible, we’re sick.
We need to institute recall elections for the Presidency.
I can’t imagine three more years of this shit and while would should definitely impeach Trump, the rest of the lineup is just as bad.
I can’t imagine three more years of this shit and while would should definitely impeach Trump, the rest of the lineup is just as bad.
November 19, 2025 at 3:58 AM
We need to institute recall elections for the Presidency.
I can’t imagine three more years of this shit and while would should definitely impeach Trump, the rest of the lineup is just as bad.
I can’t imagine three more years of this shit and while would should definitely impeach Trump, the rest of the lineup is just as bad.
Seriously body, please chill the fuck out for a day or two.
It stopped raining, but now it’s cold, so the flare continues. Yay.
And yes, southern California cold isn’t real cold but my body doesn’t seem to understand the difference.
It stopped raining, but now it’s cold, so the flare continues. Yay.
And yes, southern California cold isn’t real cold but my body doesn’t seem to understand the difference.
November 18, 2025 at 10:42 PM
Seriously body, please chill the fuck out for a day or two.
It stopped raining, but now it’s cold, so the flare continues. Yay.
And yes, southern California cold isn’t real cold but my body doesn’t seem to understand the difference.
It stopped raining, but now it’s cold, so the flare continues. Yay.
And yes, southern California cold isn’t real cold but my body doesn’t seem to understand the difference.
First of all, he’s only saying this because the DOJ will say they can’t release files pertaining to an active investigation.
Second, “a curse on the Democrats”? Politics is not supposed to be “my team” vs. “your team”. It’s supposed to be about helping people and making their lives better.
Second, “a curse on the Democrats”? Politics is not supposed to be “my team” vs. “your team”. It’s supposed to be about helping people and making their lives better.
Trump: "House Republicans should vote to release the Epstein files, because we have nothing to hide."
November 17, 2025 at 4:09 AM
First of all, he’s only saying this because the DOJ will say they can’t release files pertaining to an active investigation.
Second, “a curse on the Democrats”? Politics is not supposed to be “my team” vs. “your team”. It’s supposed to be about helping people and making their lives better.
Second, “a curse on the Democrats”? Politics is not supposed to be “my team” vs. “your team”. It’s supposed to be about helping people and making their lives better.
I’m feeling very sorry for myself today.
Everything hurts, my stomach is still acting up, the vertigo and brain fog are ridiculously bad right now, my nose is somehow simultaneously stuffed up and running constantly, and I’m insanely stressed about money.
Nobody chooses chronic illness over a job!
Everything hurts, my stomach is still acting up, the vertigo and brain fog are ridiculously bad right now, my nose is somehow simultaneously stuffed up and running constantly, and I’m insanely stressed about money.
Nobody chooses chronic illness over a job!
November 16, 2025 at 10:37 PM
I’m feeling very sorry for myself today.
Everything hurts, my stomach is still acting up, the vertigo and brain fog are ridiculously bad right now, my nose is somehow simultaneously stuffed up and running constantly, and I’m insanely stressed about money.
Nobody chooses chronic illness over a job!
Everything hurts, my stomach is still acting up, the vertigo and brain fog are ridiculously bad right now, my nose is somehow simultaneously stuffed up and running constantly, and I’m insanely stressed about money.
Nobody chooses chronic illness over a job!
Once again, a Democrat whines about how things should be instead of meeting the needs of the moment by dealing with what is actually happening.
The Trump administration has been committing political malpractice for 9 months. Do you really think they’re going to stop just because you want them to?
The Trump administration has been committing political malpractice for 9 months. Do you really think they’re going to stop just because you want them to?
Tim Kaine: "It would be political malpractice of the highest order for the House to not take up a bipartisan bill coming out of the Senate."
November 16, 2025 at 6:39 PM
Once again, a Democrat whines about how things should be instead of meeting the needs of the moment by dealing with what is actually happening.
The Trump administration has been committing political malpractice for 9 months. Do you really think they’re going to stop just because you want them to?
The Trump administration has been committing political malpractice for 9 months. Do you really think they’re going to stop just because you want them to?
This is NOT okay. This is NOT how you talk to people. And this is definitely NOT how the government should be talking to its citizens.
It’s time to bring back truth, decency, and common courtesy in America.
Make America America Again! #MA3
It’s time to bring back truth, decency, and common courtesy in America.
Make America America Again! #MA3
Official U.S. Government account refers to its citizens as "imbecilic morons".
November 15, 2025 at 4:25 AM
This is NOT okay. This is NOT how you talk to people. And this is definitely NOT how the government should be talking to its citizens.
It’s time to bring back truth, decency, and common courtesy in America.
Make America America Again! #MA3
It’s time to bring back truth, decency, and common courtesy in America.
Make America America Again! #MA3