Edith CL
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edithcl.bsky.social
Edith CL
@edithcl.bsky.social
170 followers 560 following 45 posts
#longcovid #MEcfsally #mèresaufront #féministe #citoyenneengagée, idéatrice congrès #ecologiedelenfance
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Reposted by Edith CL
stevenguilbeault.bsky.social
J’ai informé le premier ministre de ma décision de démissionner comme ministre de l’Identité et de la Culture canadiennes, ministre responsable des Langues officielles, ministre de la Nature et de Parcs Canada, ainsi que comme son lieutenant au Québec.

Ma déclaration complète:
November 27, 2025 at 10:31 PM
Reposted by Edith CL
spichaksimon.bsky.social
And coverage for Day 1 of the #ICanCMEConference by the
@icancmeresearch.bsky.social. Features a link to my live tweets.

simonspichak.beehiiv.com/p/icancme-da...
Day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis
A brief summary of the presentations.
simonspichak.beehiiv.com
November 5, 2025 at 2:00 AM
Reposted by Edith CL
jvipondmd.bsky.social
Proud to have co-authored this piece with amazing collaborators at the @thewhn.bsky.social.
Let me know what you think.
whn.global/whn-joins-in...
WHN joins in the chorus: Medical masks are not PPE - WHN
Overview Throughout the COVID pandemic, there has been confusion from public health and medical leaders over which masks to wear to prevent transmission of the SARS-CoV-2 virus. Inadequate supplies of...
whn.global
October 21, 2025 at 5:46 PM
Reposted by Edith CL
batemanhornecenter.bsky.social
For decades, people with ME/CFS faced stigma and little research funding. Now, NIH has spotlighted ME/CFS in its feature on mitochondria—a step toward recognition. Learn about the mitochondria connection & why this matters for #MECFS, #LongCOVID, & related conditions: https://bit.ly/4mjda8g
Illustration of a mitochondrion glowing in orange against a dark background with silhouettes of a man and woman, titled "Mitochondria in the Spotlight".
September 19, 2025 at 3:11 PM
Reposted by Edith CL
batemanhornecenter.bsky.social
☕ Introducing Coffee with a Clinician, launching Oct 2025!

Free monthly Zoom (30–45 mins) led by expert knowledge. Learn from the Clinical Care Guide or join Q&A.

An optional $5 “coffee” donation helps us connect with more clinicians worldwide: https://bit.ly/4grlbXr

#MECFS #LongCOVID #Fibro
Invitation to "Coffee with a Clinician" on Wednesday, October 8 at 10:00 am MDT. Visit batemanhornecenter.org/events to register
September 22, 2025 at 10:36 PM
Reposted by Edith CL
openmedf.bsky.social
A new review from Melbourne ME/CFS Collaboration, in collaboration with Collaborative Center at Montreal, highlights the potential of metformin, an antidiabetic agent, as a treatment for #MECFS and #LongCOVID.

👉 Read the full publication: ow.ly/uXQJ50WVZax
Cover of a review article titled “A Perspective on the Role of Metformin in Treating ME/CFS and Long COVID,” with author names, the OMF logo, and a 3D illustration of a mitochondrion.
September 12, 2025 at 6:00 PM
edithcl.bsky.social
Première preuve solide d’une contribution génétique au MPE dans l’EM.

#encephalomyelitemyalgique #myalgicencephalomyelitis #MEcfs #EMsfc #PEM #MPE
September 16, 2025 at 7:06 PM
Reposted by Edith CL
apresj20.bsky.social
📝 En résumé

🔹Environ 1/3 des personnes infectées développe un #CovidLong.
🔹La prévalence reste élevée même après 2 ans
🔹Facteurs aggravants : non-vaccination, comorbidités, sexe féminin
September 10, 2025 at 5:37 PM
Reposted by Edith CL
apresj20.bsky.social
⚠️Facteurs de risque majeurs
👉OR (odds ratio) = rapport de cotes👉 traduit en augmentation du risque :
🔸Non-vaccination : OR 2,34👉+134% de risque
🔸Comorbidité : OR 1,59👉+59% de risque
🔸Sexe féminin : OR 1,55👉+55% de risque
September 10, 2025 at 5:37 PM
Reposted by Edith CL
apresj20.bsky.social
🧩Sous-types les plus fréquents
🔸Respiration : 20%
🔸Fatigue : 20%
🔸Psychiatrique : 18%
🔸Neurologique :16%
➡️Le #CovidLong touche plusieurs systèmes
September 10, 2025 at 5:37 PM
Reposted by Edith CL
apresj20.bsky.social
⏳ Évolution dans le temps
🔹 Moins d’1 an : 35%
🔹1 à 2 ans : 47%
👉Pas de baisse notable. Le #CovidLong reste fréquent à long terme
September 10, 2025 at 5:37 PM
Reposted by Edith CL
apresj20.bsky.social
🌎Variations géographiques
🔸Amérique du Sud : 51%
🔸Europe : 39%
🔸Asie : 35%
🔸Amérique du Nord : 30%
➡️Des écarts importants selon les régions
September 10, 2025 at 5:37 PM
Reposted by Edith CL
apresj20.bsky.social
📊 Prévalence globale
Le taux estimé de #CovidLong est de 36% (IC 33–40%) après infection au SARS-CoV-2.
👉 Plus d’1 personne sur 3 est concernée
September 10, 2025 at 5:37 PM
Reposted by Edith CL
apresj20.bsky.social
🧵Une méga-analyse mondiale révèle l’ampleur du #CovidLong
429 études (2021–2024, mise à jour juillet 2024) ont été analysées pour estimer :
🔸la prévalence,
🔸les sous-types
🔸les facteurs de risque.
Résultat : le Covid Long reste une menace mondiale.
#ApresJ20
@oxfordacademic.bsky.social
September 10, 2025 at 5:37 PM
Reposted by Edith CL
docteure19.bsky.social
On ne vous le dira pas, mais si c’est un enfant de 14 ans qui est à la caisse à l’épicerie du coin, c’est pcq il y a une crise de main d’œuvre, et cette crise est alimentée par tous ces gens qui sont désormais trop fatigués pour travailler à temps plein ou pour travailler tout court. 3/
September 9, 2025 at 4:57 PM
Reposted by Edith CL
docteure19.bsky.social
On ne vous le dira pas, mais le Paxlovid et la Metformin prise pendant 14 jours lors d’une infection covid aiguë réduisent vos chances de développer la covid longue. Encore faut-il avoir accès aux tests de dépistage, puis à la médication. 2/
September 9, 2025 at 4:57 PM
Reposted by Edith CL
docteure19.bsky.social
On ne vous le dira pas, mais les cas de covid sont à la hausse depuis la rentrée de septembre.

On ne vous le dira pas, mais chaque réinfection augmente votre risque de développer la covid longue. 1/

@baptistejean.bsky.social
September 9, 2025 at 4:57 PM
Reposted by Edith CL
mecfsskeptic.bsky.social
1) On May 12 2025, a group of researchers signed an International Declaration stating that "there is a moral, medical, economic and scientific imperative to invest robustly in international and collaborative research into the pathophysiology of ME/CFS and Long COVID."
September 2, 2025 at 9:32 AM
Reposted by Edith CL
valebodi.bsky.social
New study out of Norway
Killer cell immunoglobulin-like receptor (KIR) alleles suggested to be associated with #ME/CFS www.sciencedirect.com/science/arti...
September 7, 2025 at 1:09 PM
edithcl.bsky.social
Par la fenêtre, je vois la vie
le ciel bleu soir
le sorbier en fruits
le mainate affamé
la voisine assise dehors à profiter des derniers rayons de soleil
j’ai juste envie de sortir la rejoindre
comme les soirs d’été
comme avant
…
August 20, 2025 at 11:49 PM
edithcl.bsky.social
www.vietnam.vn/fr/nuoi-con-...

#maternite #allaitement #environnement #ecologie #parentalite
Allaitement maternel : ajouter 1 mois équivaut à planter 300 000 arbres
(Dan Tri) - Selon les estimations, si chaque mère ayant un enfant de moins de 6 mois allaitait son enfant exclusivement pendant un mois de plus, l'impact environnemental de cette pratique pourrait êtr...
www.vietnam.vn
August 16, 2025 at 3:37 PM
edithcl.bsky.social
www.change.org/p/the-nhs-mu...

#me/cfs #mecfsawareness #severemecfs
Sign the Petition
The NHS must take measures to STOP Dill deteriorating
www.change.org
August 16, 2025 at 12:34 AM
Reposted by Edith CL
meactionuk.bsky.social
The horrendous situation that Sarah Boothby found herself in as her daughter lay dying is still being faced by parents, usually mothers, around the UK.

ow.ly/nlhv50WCEp4

#MyalgicEncephalomyelitis #VerySevereME
As my daughter died of ME, the state met in secret to blame me
Maeve Boothby O’Neill’s mother had no idea she was being accused in private of causing or fabricating the illness that would take her life aged 27
ow.ly
August 12, 2025 at 10:16 AM
Reposted by Edith CL
cancovsoc.bsky.social
Help shape Canada’s respirator standard!

Until August 19, the CSA Z94.4 standard is open for public comment — and for the first time, it includes protections in health care settings.

1/
Graphic with text and images. Woman wearing an N95 mask and medical gloves, with the following text beside her: Support the CSA draft standard for respirator masks in health care. Public feedback is open until August 19th!   Image of a tablet showing a webpage with the following text beside it: DoNoHarm BC has created a thorough guide on providing feedback.
August 14, 2025 at 6:22 PM
Reposted by Edith CL
longcovid-adri.bsky.social
CANADA!! We need to keep pushing for this so we can have SAFE HEALTHCARE! Help by entering your comments, it can take as little as 5mins and share far and wide! WE NEED TO GET LOUD! 🖤🤘
@ninjazz636.bsky.social @longcovidcan-co.bsky.social @young.me @edyong209.bsky.social @exceedhergrasp1.bsky.social
cancovsoc.bsky.social Canadian Covid Society @cancovsoc.bsky.social · Aug 14
Help shape Canada’s respirator standard!

Until August 19, the CSA Z94.4 standard is open for public comment — and for the first time, it includes protections in health care settings.

1/
Graphic with text and images. Woman wearing an N95 mask and medical gloves, with the following text beside her: Support the CSA draft standard for respirator masks in health care. Public feedback is open until August 19th!   Image of a tablet showing a webpage with the following text beside it: DoNoHarm BC has created a thorough guide on providing feedback.
August 14, 2025 at 8:29 PM