Fiona C
@drfionac.bsky.social
#PwME #Music #Crochet #PersonalGrowth #MECFS #DignityRespectCivility
Pinned
Reposted by Fiona C
Long form health update on the Vlad's ME diary channel
youtu.be/MrJqbCTIsHQ?...
youtu.be/MrJqbCTIsHQ?...
7 months of not walking health update - Long Covid & ME
YouTube video by Vlad Vexler ME Diary
youtu.be
December 4, 2025 at 8:47 PM
Long form health update on the Vlad's ME diary channel
youtu.be/MrJqbCTIsHQ?...
youtu.be/MrJqbCTIsHQ?...
Reposted by Fiona C
Or maybe diagnosis is at last catching up with the crises so many have been enduring, which have for so long been minimised, dismissed or ignored.
share.google/1aKjHRJ596x6...
share.google/1aKjHRJ596x6...
Wes Streeting orders inquiry into mental health ‘overdiagnosis’
Health secretary wants clinical review of the rise in conditions such as ADHD and autism that cause people to drop out of the workforce
share.google
December 4, 2025 at 8:41 AM
Or maybe diagnosis is at last catching up with the crises so many have been enduring, which have for so long been minimised, dismissed or ignored.
share.google/1aKjHRJ596x6...
share.google/1aKjHRJ596x6...
Reposting at a more reasonable hour 😬 #LongCovid #MECFS
I found a clinical trial near me via the Visible app. Three sites in Scotland are involved, looking at #LongCOVID, #LymeDisease and #MECFS. It says they are recruiting so I’ve contacted them to confirm that.
More details here: clinicaltrials.gov/study/NCT067...
More details here: clinicaltrials.gov/study/NCT067...
ClinicalTrials.gov
clinicaltrials.gov
December 4, 2025 at 3:25 PM
Reposting at a more reasonable hour 😬 #LongCovid #MECFS
I found a clinical trial near me via the Visible app. Three sites in Scotland are involved, looking at #LongCOVID, #LymeDisease and #MECFS. It says they are recruiting so I’ve contacted them to confirm that.
More details here: clinicaltrials.gov/study/NCT067...
More details here: clinicaltrials.gov/study/NCT067...
ClinicalTrials.gov
clinicaltrials.gov
December 4, 2025 at 5:00 AM
I found a clinical trial near me via the Visible app. Three sites in Scotland are involved, looking at #LongCOVID, #LymeDisease and #MECFS. It says they are recruiting so I’ve contacted them to confirm that.
More details here: clinicaltrials.gov/study/NCT067...
More details here: clinicaltrials.gov/study/NCT067...
I keep seeing this notification on my phone screen and thinking it says Doctor Who
Bet it was Eccleston…
Bet it was Eccleston…
December 3, 2025 at 10:52 PM
I keep seeing this notification on my phone screen and thinking it says Doctor Who
Bet it was Eccleston…
Bet it was Eccleston…
I’ve seen at least three #PwME I follow on here mention how sleepy they’ve been - and I’ve been weirdly sleepy the past few days too. We don’t take the same meds and range of locations mean it can’t be seasonal… Coincidence? Effect of clock changes a month ago? Stress of impending holiday season? 🤔
December 3, 2025 at 8:26 AM
I’ve seen at least three #PwME I follow on here mention how sleepy they’ve been - and I’ve been weirdly sleepy the past few days too. We don’t take the same meds and range of locations mean it can’t be seasonal… Coincidence? Effect of clock changes a month ago? Stress of impending holiday season? 🤔
Lýrumaður by Teitur, Dreamers' Circus and Mads Kjøller Henningsen
Lýrumaður
YouTube video by ArloandBetty
youtu.be
December 2, 2025 at 7:59 PM
Lýrumaður by Teitur, Dreamers' Circus and Mads Kjøller Henningsen
Reposted by Fiona C
which gallagher is this?
December 2, 2025 at 7:05 PM
which gallagher is this?
Reposted by Fiona C
i'm turning 38 this weekend, which means i've had acute me/cfs symptoms for over half of my life. millions of us with me/cfs and/or long covid are waiting for a breakthrough and @openmedf.bsky.social is our greatest hope. please consider donating. openmedicinefoundation.crowdchange.co/54252
Ace's Birthday OMF Fundraiser
Ace's Birthday OMF Fundraiser
openmedicinefoundation.crowdchange.co
December 2, 2025 at 6:38 PM
i'm turning 38 this weekend, which means i've had acute me/cfs symptoms for over half of my life. millions of us with me/cfs and/or long covid are waiting for a breakthrough and @openmedf.bsky.social is our greatest hope. please consider donating. openmedicinefoundation.crowdchange.co/54252
Reposted by Fiona C
this is the face 1963 paul mccartney makes when he finds out that 2025 paul mccartney gave the ok to make this image
December 2, 2025 at 6:59 PM
this is the face 1963 paul mccartney makes when he finds out that 2025 paul mccartney gave the ok to make this image
Reposted by Fiona C
oh damn so the beatles anthology rerelease has a bunch of ai footage in it? not exactly surprising.
funnily i had it on the other night, but i was only listening while i knitted, so missed the horrors 😅
funnily i had it on the other night, but i was only listening while i knitted, so missed the horrors 😅
December 2, 2025 at 5:49 PM
oh damn so the beatles anthology rerelease has a bunch of ai footage in it? not exactly surprising.
funnily i had it on the other night, but i was only listening while i knitted, so missed the horrors 😅
funnily i had it on the other night, but i was only listening while i knitted, so missed the horrors 😅
I feel really sad about today’s announcement from girlguiding that trans girls will no longer be allowed to join. The benefits of allowing that inclusion seem to me to far outweigh the imagined risks.
As my 13yo said when I told her, “why can’t they just let people be?”
😢
As my 13yo said when I told her, “why can’t they just let people be?”
😢
December 2, 2025 at 6:17 PM
I feel really sad about today’s announcement from girlguiding that trans girls will no longer be allowed to join. The benefits of allowing that inclusion seem to me to far outweigh the imagined risks.
As my 13yo said when I told her, “why can’t they just let people be?”
😢
As my 13yo said when I told her, “why can’t they just let people be?”
😢
I can’t quite get the hang of the new phone app on iOS. I just discovered by chance (because I was making a call) that there was a missed call yesterday 🤦🏻♀️ I need to investigate my settings…
(Intriguingly it was from a mobile phone number in Berlin, though I don’t think I know anyone there)
(Intriguingly it was from a mobile phone number in Berlin, though I don’t think I know anyone there)
December 2, 2025 at 5:15 PM
I can’t quite get the hang of the new phone app on iOS. I just discovered by chance (because I was making a call) that there was a missed call yesterday 🤦🏻♀️ I need to investigate my settings…
(Intriguingly it was from a mobile phone number in Berlin, though I don’t think I know anyone there)
(Intriguingly it was from a mobile phone number in Berlin, though I don’t think I know anyone there)
Reposted by Fiona C
I'm working on The Worst Ghosts of 2025. Seen any contenders? Absolutely terrible ghost photos in the papers throughout the last 12 months?
December 2, 2025 at 1:05 PM
I'm working on The Worst Ghosts of 2025. Seen any contenders? Absolutely terrible ghost photos in the papers throughout the last 12 months?
Reposted by Fiona C
I was a juror once. It was like being in a Local Facebook group except we had the power to jail someone.
December 2, 2025 at 3:07 PM
I was a juror once. It was like being in a Local Facebook group except we had the power to jail someone.
Really enjoyed this one 👍🏻
The Beast in Me (TV Mini Series 2025) ⭐ 7.5 | Drama, Mystery, Thriller
50m | TV-MA
www.imdb.com
December 1, 2025 at 10:35 PM
Really enjoyed this one 👍🏻
Reposted by Fiona C
Just one more day to get 25% off all items in the Couthie Crochet store! Sale ends midnight 2nd December 🧶 #BlackFriday #SmallBusiness #BSNM
couthiecrochet.etsy.com
couthiecrochet.etsy.com
December 1, 2025 at 4:18 PM
Just one more day to get 25% off all items in the Couthie Crochet store! Sale ends midnight 2nd December 🧶 #BlackFriday #SmallBusiness #BSNM
couthiecrochet.etsy.com
couthiecrochet.etsy.com
Reposted by Fiona C
Today's Roll of Law topic:
The Incredibles was a great movie, but it had a seriously negative impact on many TTRPG games.
Let the villain monologue. Seriously.
youtu.be/6EOrGtrPN2s?...
The Incredibles was a great movie, but it had a seriously negative impact on many TTRPG games.
Let the villain monologue. Seriously.
youtu.be/6EOrGtrPN2s?...
How "The Incredibles" Made TTRPGs Worse: Let The Villain Monologue Again
YouTube video by Roll of Law
youtu.be
December 1, 2025 at 6:29 PM
Today's Roll of Law topic:
The Incredibles was a great movie, but it had a seriously negative impact on many TTRPG games.
Let the villain monologue. Seriously.
youtu.be/6EOrGtrPN2s?...
The Incredibles was a great movie, but it had a seriously negative impact on many TTRPG games.
Let the villain monologue. Seriously.
youtu.be/6EOrGtrPN2s?...
Reposted by Fiona C
When you die, do you want to become a ghost in an AI data centre, sent to haunt your loved ones? No? Best update your will...
www.theghostgeek.com/p/digital-gh...
www.theghostgeek.com/p/digital-gh...
Digital Ghosts: Griefbots and a Strange New Afterlife
What happens when mourning meets machine learning and ghosts start talking back?
www.theghostgeek.com
December 1, 2025 at 3:27 PM
When you die, do you want to become a ghost in an AI data centre, sent to haunt your loved ones? No? Best update your will...
www.theghostgeek.com/p/digital-gh...
www.theghostgeek.com/p/digital-gh...
#NowPlaying some new music…
allbatherswearingredarmbands - People Who Ask Don't Get
YouTube video by DephPriest
youtube.com
November 30, 2025 at 10:43 PM
#NowPlaying some new music…
I’ve really been enjoying Deborah’s recaps of Game of Wool episodes* and her discussion of the issues and ethics of the show. (She has a live watchalong in less than an hour if you want to join that too 😊) 🧶
(*I confess that’s partly because it means I don’t have to watch it 😬)
(*I confess that’s partly because it means I don’t have to watch it 😬)
The Game of Wool Finally Makes Sense… But There's a Catch
YouTube video by Deborah Knits
youtu.be
November 30, 2025 at 7:00 PM
I’ve really been enjoying Deborah’s recaps of Game of Wool episodes* and her discussion of the issues and ethics of the show. (She has a live watchalong in less than an hour if you want to join that too 😊) 🧶
(*I confess that’s partly because it means I don’t have to watch it 😬)
(*I confess that’s partly because it means I don’t have to watch it 😬)
Reposted by Fiona C
Today in my canton (ie. state) in Switzerland, we had a referendum to give disabled people under guardianship the right to vote.
Unfortunately 75% of the population voted against. The structural ableism here is very strong and it makes me very sad.
Unfortunately 75% of the population voted against. The structural ableism here is very strong and it makes me very sad.
November 30, 2025 at 11:43 AM
Today in my canton (ie. state) in Switzerland, we had a referendum to give disabled people under guardianship the right to vote.
Unfortunately 75% of the population voted against. The structural ableism here is very strong and it makes me very sad.
Unfortunately 75% of the population voted against. The structural ableism here is very strong and it makes me very sad.
Reposted by Fiona C
Bernd at Ex Astris Scientia @eas_trek has just released an article on the various Suliban emblems that I wrote ages ago. Do check it out here:
www.ex-astris-scientia.org/inconsistenc...
www.ex-astris-scientia.org/inconsistenc...
Ex Astris Scientia - Suliban Emblems and Writing
Appearances of emblems and writing of the Suliban
www.ex-astris-scientia.org
November 29, 2025 at 5:30 PM
Bernd at Ex Astris Scientia @eas_trek has just released an article on the various Suliban emblems that I wrote ages ago. Do check it out here:
www.ex-astris-scientia.org/inconsistenc...
www.ex-astris-scientia.org/inconsistenc...
I’m excited! Been keeping an eye out for this on Prime/Netflix for a year or two, but I just discovered all 4 seasons of Battlestar Gallactica are available for free on ITVx! *does happy dance*
Can’t wait to rewatch this 😊
Can’t wait to rewatch this 😊
Battlestar Galactica (TV Series 2004–2009) ⭐ 8.7 | Action, Adventure, Drama
45m | TV-14
www.imdb.com
November 29, 2025 at 5:52 PM
I’m excited! Been keeping an eye out for this on Prime/Netflix for a year or two, but I just discovered all 4 seasons of Battlestar Gallactica are available for free on ITVx! *does happy dance*
Can’t wait to rewatch this 😊
Can’t wait to rewatch this 😊