Lightnews — Scholar-powered news

Amy M. Russell @amymrussell.bsky.social · Mar 28

Delighted to see WHO Director-General Dr Tedros join us on Bluesky @drtedros.who.int

Welcome Dr Tedros!

Amy M. Russell @amymrussell.bsky.social · Mar 26

Launching today ‘Creating knowledge together’ – a collection of 13 essays on the power of community engaged research, published by British Science Association. Read our essay ‘How to ethically share power with public research partners: AKA keeping blobs blobby’ and explore the full collection here:

British Science Association @britsciassoc.bsky.social · Mar 26

Explore the power of community engaged research.

We've published essays amplifying voices often left out of traditional research, created with fantastic communities & organisations, sponsored by UKRI.

#CreatingKnowledgeTogether

Read here:

www.britishscienceassociation.org/News/creatin...

‘Creating knowledge together’ essay series explores power of community-engaged research

A new series of essays published by the British Science Association explores the power of community-engaged research, and the importance of bringing missing voices into the research process for the be...

www.britishscienceassociation.org

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Reposted by Amy M. Russell

Vaso Totsika @vasototsika.bsky.social · Mar 13

The figures haven't changed in the past few years

Mencap @handle.invalid · Mar 12

1/3 🚨 The latest NHS data shows there are 2,065 people with a learning disability and/or autism in mental health hospitals.

👉 It’s time for change. Join us in campaigning for a better future. Sign up to become a Mencap campaigner, brnw.ch/21wRhxA

#HomesNotHospitals #MentalHealthActReform

A purple graphic with a cream icon of a padlock. The white text reads "The latest NHS data shows there are at least 2,065 people with a learning disability and/or autism locked away mental health hospitals."

A purple graphic with a cream icon of a padlock. The white text reads "Within December 2024 8,040 reported uses of restraint in one month e.g. physical, chemical, mechanical restraint and being kept in isolation. Of these, 2,455 were against children (under 18s)."

A purple graphic with a cream icon of a padlock. The white and purple text reads "Children in units. The number of children with a learning disability and/or autism in inpatient units is 200."

A purple graphic with a cream icon of a padlock. The white and purple text reads "Shut away for too long. The average length of stay for people with a learning disability and/or autism who are currently in impatient units is 4.6 years"

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Amy M. Russell @amymrussell.bsky.social · Mar 12

www.learningdisabilityengland.org.uk/no-research-...

‘No research about us without us’ – Learning Disability England

www.learningdisabilityengland.org.uk

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Amy M. Russell @amymrussell.bsky.social · Mar 12

Great summary of the day by @peterlangdon.bsky.social It felt like it was one of those talks that resonated with a lot of people. Lots of break time discussion about recruitment, ethics, gatekeepers and funding. So much energy and desire for improvement gives me a kick up the bum to keep going!

Peter Langdon @peterlangdon.bsky.social · Mar 12

We’re back again this year showcasing excellent research involving people with intellectual disabilities and autistic people taking place across the Midlands! Thank you to our partners: NHS England, ADASS, NIHR RDN East and West Midlands, Reach-Out, University of Birmingham

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Peter Langdon @peterlangdon.bsky.social · Mar 12

We’re back again this year showcasing excellent research involving people with intellectual disabilities and autistic people taking place across the Midlands! Thank you to our partners: NHS England, ADASS, NIHR RDN East and West Midlands, Reach-Out, University of Birmingham

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Amy M. Russell @amymrussell.bsky.social · Mar 12

Thank you! Angela Henderson and Debbie Cairns were co-applicants on our project so we learned a lot from the citizens jury. It was such a great piece of work you all did.

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Prof. Virginia Braun (she/her they/them) @ginnybraun.bsky.social · Mar 11

30 Charts That Show How Covid Changed Everything (US)

30 Charts That Show How Covid Changed Everything in March 2020 (Gift Article)

It can be easy to forget, or look away from, the pain and disruption of the pandemic. The numbers will be there to remind us.

www.nytimes.com

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Mary Madden @feministgothic.bsky.social · Mar 11

actionnetwork.org/petitions/sa...

Say No to an Austerity Budget!

14 years of austerity have pushed the UK's public services well past their limits. Our communities are at breaking point. Every part of life has been damaged by it. Choosing to implement an austerity ...

actionnetwork.org

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Reposted by Amy M. Russell

The BMJ @bmj.com · Feb 16

How should you respond to a regime that has disregard for health and wellbeing, ignores the central role of inequalities in poor health outcomes, and believes science and scholarship to be enemies of progress?

@kamranabbasi.bsky.social in the latest Editor's Choice
www.bmj.com/content/388/...

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Amy M. Russell @amymrussell.bsky.social · Mar 12

Gary Boulet and I are the keynotes today for the Midlands Learning Disability and Autism Research event. Our talk is on the contribution people with learning disabilities make to research; as participants, advisors & as research leaders.

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Dr. Becca @docbecca.bsky.social · Feb 25

Great write up at @thetransmitter.bsky.social on the seeming erasure of SABV in the new era of NIH. Gotta say The Transmitter is killing it the last few weeks, first to report on the Federal Register block and now this. Leading the charge! 💪 www.thetransmitter.org/policy/exclu...

Exclusive: NIH appears to archive policy requiring female animals in studies

Such a shift would “put us back in the dark ages in terms of our science,” says neuroscientist Anne Murphy, who helped to formulate the original policy.

www.thetransmitter.org

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Kristen Panthagani, MD, PhD @kmpanthagani.bsky.social · Feb 25

Why is measles such a big deal? Here's why:

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Mike Stabile @mikestabile.bsky.social · Feb 19

"Amanda Jones, a librarian in Louisiana, has received death threats since speaking out against book bans. She was labelled a paedophile and filmed by strangers in public. She fears going out alone. “I can name a librarian in every state this has happened to — and I fear it’s only going to get worse”

I am the ‘Michael Jordan of book banning’. This is why I do it

Bruce Friedman has challenged 1,200 books since the pandemic, alarming free speech advocates — and librarians who face death threats

www.thetimes.com

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Amy M. Russell @amymrussell.bsky.social · Feb 20

Done! Keep ‘em coming!

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Dr Victoria Shepherd @vickylshepherd.bsky.social · Feb 19

More to add to the trial methodology starter pack @amymrussell.bsky.social (and lots to follow here @trialforge.bsky.social @streweek.bsky.social) in not already!

Amy M. Russell @amymrussell.bsky.social · Dec 3

I’ve done a starter pack for people working in inclusivity in trial methodology but I can’t see some of the key people I’d like to include. Feel free to share

@vickylshepherd.bsky.social
@katiegillies.bsky.social
@markjayes.bsky.social
@kerryhood.bsky.social
@willjcragg.bsky.social

Image shows the tagged people above in a starter pack card saying join the conversation trial methodology on Bluesky

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Alt National Park Service @altnps.bsky.social · Feb 14

One of our supporters shared this with us—people are getting creative tonight!

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Amy M. Russell @amymrussell.bsky.social · Feb 14

Exactly

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Katie Gillies @katiegillies.bsky.social · Feb 12

Currently low response rates from CTU Directors (n=5), Programmers/Data Managers (n=0), & QA Managers (n=3) working in clinical trials. We need to know what these groups think the challenges are for greener trials.

forms.office.com/e/fkeLD8HbMA

Please complete &RT

@ukctunetwork.bsky.social

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Alessandro Rigolon @alerigolon.bsky.social · Feb 11

This is just so cruel. My wife works at a school attended by many kids with disabilities, and one of my daughters is neurodivergent. I am at a loss for words. This state just keeps disappointing me.

ballerinaX @ballerinax.bsky.social · Feb 11

Utah is among the states suing for the right to discriminate against disabled people & that your disabled child can be discriminated against in school in school

"The lawsuit says that no one should have to follow any part of Section 504"

Call Governor Cox & the Atty General 801 366-0260 #utpol

Section 504 covers all parts of society that get money from the United States government.
Section 504 and its rules are very important, especially in education and healthcare. Here are
some ways that Section 504 and its rules help us. The rules in Section 504 say that:
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Schools must include students with disabilities and help them learn.
Doctors and schools must have sign language interpreters for people who are Deaf or
hard of hearing who sign. Videos must have captions.
Doctors must give clear information to disabled people. This includes people with
intellectual and developmental disabilities.
Websites for schools and hospitals must work for people who are blind or low-vision.
Doctors and hospitals cannot stop helping someone because they have a disability.
Doctors and hospitals must have tools and machines that work for wheelchair users.
This includes machines that check for cancer.

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Marita Hennessy @maritahennessy.bsky.social · Feb 7

"It’s particularly egregious as a women’s health product to be deceiving about what it can and can't do and could prevent women from getting proper treatment."

#FemTech #WomensHealth #COI #CDoH

www.forbes.com/sites/cyrusf...

Procter & Gamble’s Menopause Test Kit Is A ‘Fraud,’ Lawsuit Claims

A urine stick test isn’t the best way to determine a woman’s menopausal status.

www.forbes.com

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Amy M. Russell @amymrussell.bsky.social · Feb 2

@gemashwell.bsky.social this looks interesting.

Amy M. Russell @amymrussell.bsky.social · Feb 2

Let deregulate children catching fire and botulism. It doesn’t sound like unnecessary red tape when you look at it that way…

Trish Greenhalgh @trishgreenhalgh.bsky.social · Feb 1

We had a house fire once. This makes my blood run cold.

Hetan Shah @hetanshah.bsky.social · Feb 1

Let’s deregulate the flammability of children’s pyjamas to improve growth says @economist.com
www.economist.com/leaders/2025...

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Amy M. Russell @amymrussell.bsky.social · Jan 31

On the 5 year anniversary of the shambles that half the country didn't want and now its hard to find anyone who still thinks it was a good idea I felt this was worth a repost #brexit

Caroline Lucas @carolinelucas.bsky.social · Jan 5

Pity Farage wasn’t asked about this - he should be forced to own it @bbclaurak.bsky.social @theneweuropean.bsky.social

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Just Jack @just-jack-1.bsky.social · Jan 29

How can anyone in their right mind ignore this letter from Caroline Kennedy about her cousin, RFK Jr.?

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