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Reposted by Miles W. Griffis

C.H. Romatowski @chromatowski.bsky.social · 7h

I hesitate to elevate this comment—IME people aware of how uninformed it is are in the majority on Bsky—but worth observing that this coming from eg the NYT opinion page is part of why RFK has an opening to pretend to be better on Long Covid than liberals. They’ve made the bar that low.

Post from jamelle
@jamellebouie.net
Account Muted

(and i think it is a demand that stems from fear more than a rational assessment of the threat environment)

October 14, 2025 at 5:06 AM

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Miles W. Griffis @mileswgriffis.bsky.social · 13h

NEW 😷: Masks are a vital tool in protecting people from COVID-19 & other airborne diseases. But s ome employers are banning them, even though Americans have the right to accessibility tools under the ADA.

Nadi Zimmerman reports for @thesicktimes.org

thesicktimes.org/2025/10/14/d...

Despite the ongoing pandemic, some companies are banning employees from masking - The Sick Times

While some anti-mask policies have failed — a win for workers — there is a larger effort to ban masks in the U.S. on state and local levels. And more businesses may attempt to ban masks in the workpla...

thesicktimes.org

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Reposted by Miles W. Griffis

🎃 public HELLth guy 🎃 @publichealthguy1.bsky.social · 3d

“failure by design” is 100% correct. they do this every time. and the confusion they create masks the damage in media coverage. it’s a war of attrition

Joshua Weitz @joshuasweitz.bsky.social · 3d

New reporting: many apparently fired at CDC in 'error'. This is a failure by design given that the admin does not care about fulfilling agency missions. This is the kind of error that should have political consequences.

Unserious people cause real-world harm.

🎁
www.nytimes.com/2025/10/11/h...

Trump Administration Will Rehire Scores of Experts Fired in Error

www.nytimes.com

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Reposted by Miles W. Griffis

Julia MV @julialmv.bsky.social · 4d

Amazing! People who were helped by a drug in a clinical trial share their experiences & recommendations:

"We call for two urgent actions...
Hear our stories... & critically examine what went wrong in the original trial design.

Collaborate ... to launch a redesigned clinical trial of Vyvgart..."

The Sick Times @thesicktimes.org · 4d

A group of 53 people with #LongCOVID joined a clinical trial for Vyvgart. For many of them, the treatment changed everything.

Then, without warning, Argenx canceled the trial.

Most of them have now relapsed.

They're calling on the NIH and HHS to study the drug: bit.ly/48l1Qp5

A photo Nicole Barrick, a woman in a pink KN95 mask, receives an infusion of Vyvgart. The text reads, "The Sick Times. Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug. By Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White."

"For those living with Long COVID, every ounce of hope is hard-won. This isn’t just about physical symptoms. It’s about the emotional toll of being given hope — and then having it taken away." - Vyvgart clinical trial participants
Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White

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Miles W. Griffis @mileswgriffis.bsky.social · 4d

NEW: 53 participants involved in the Vyvgart trial for Long COVID are calling on the government to fund research for the drug after they saw significant improvements that the study didn’t capture.

thesicktimes.org/2025/10/10/v...

Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug. - The Sick Times

We are a group of 53 individuals with Long COVID from across the U.S. In 2023, we joined a Long COVID clinical trial for Vyvgart (efgartigimod), a drug approved by the Food and Drug Administration (FD...

thesicktimes.org

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Miles W. Griffis @mileswgriffis.bsky.social · 5d

Members of the Sumud flotilla were TORTURED by Israel & U.S. leaders did not step in to help their citizens.

Israel has also assassinated more than 250+ Palestinian journalists to hide their genocide. Now, they are kidnapping/torturing international journalists.

www.aljazeera.com/news/2025/10...

US activist from Gaza flotilla alleges ‘psychological torture’ by Israel

David Adler says Sumud Flotilla activists were 'kidnapped, stripped, zip-tied, blindfolded' and sent to prison camp.

www.aljazeera.com

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Miles W. Griffis @mileswgriffis.bsky.social · 5d

Emily Wilder was one of many journalists kidnapped by Israel in a second flotilla attempting to break the genocidal state's siege on Palestine.

We must DEMAND Israel & the U.S. release her and the the 144 others (+remaining members of the sumud flotilla) who were abducted in international waters

Jireh Deng @bokchoy-baobei.bsky.social · 6d

My friend and Jewish American reporter Emily Wilder was detained by the Israeli military last night while sailing with the Gaza flotilla reporting for @jewishcurrents.bsky.social. Please help our friend get home safely and call her US reps. bit.ly/ReleaseEm

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Reposted by Miles W. Griffis

Robert Reich @rbreich.bsky.social · 6d

Data centers are receiving billions in state tax exemptions.

These centers, many owned by Big Tech giants, are driving up electric bills and sucking up huge amounts of water.

AI is boosting the stock portfolios of the richest Americans while everyone else pays the price.

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Miles W. Griffis @mileswgriffis.bsky.social · 7d

Giveawayyyy!!!

The Sick Times @thesicktimes.org · 7d

We’ve hit 10K newsletter subscribers, so we’re giving away five The Sick Times swag packs, including pins, stickers, a patch, and our famous dad hat!

Sign up for our newsletter, or forward a recent newsletter to a friend, then comment “10K GIVEAWAY” to be entered. thesicktimes.org/newsletter/

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Reposted by Miles W. Griffis

margot @marmb.bsky.social · 7d

pleasure working with @thesicktimes.org <3

Miles W. Griffis @mileswgriffis.bsky.social · 7d

Hypermobility is a common, overlapping condition with Long COVID. Upcoming guidelines may make it easier for people to be diagnosed with the syndrome.

A new feature by Margot Armbruster in @thesicktimes.org

thesicktimes.org/2025/10/07/g...

Getting diagnosed with hypermobility can help some people with Long COVID. Upcoming guidelines may make it easier. - The Sick Times

Current diagnostic criteria for hypermobile Ehlers-Danlos syndrome (hEDS), a common comorbidity of Long COVID, are restrictive. The Ehlers-Danlos Society is developing new hEDS criteria that will be r...

thesicktimes.org

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Reposted by Miles W. Griffis

C.H. Romatowski @chromatowski.bsky.social · 7d

Great piece on joint hypermobility, which is common among people with Long Covid and related chronic conditions.

I’d add getting diagnosed can lend important insight into how to protect yourself. Better to know in advance than find out the hard way that, say, yoga could really mess you up.

Miles W. Griffis @mileswgriffis.bsky.social · 7d

Hypermobility is a common, overlapping condition with Long COVID. Upcoming guidelines may make it easier for people to be diagnosed with the syndrome.

A new feature by Margot Armbruster in @thesicktimes.org

thesicktimes.org/2025/10/07/g...

Getting diagnosed with hypermobility can help some people with Long COVID. Upcoming guidelines may make it easier. - The Sick Times

Current diagnostic criteria for hypermobile Ehlers-Danlos syndrome (hEDS), a common comorbidity of Long COVID, are restrictive. The Ehlers-Danlos Society is developing new hEDS criteria that will be r...

thesicktimes.org

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Miles W. Griffis @mileswgriffis.bsky.social · 7d

Hypermobility is a common, overlapping condition with Long COVID. Upcoming guidelines may make it easier for people to be diagnosed with the syndrome.

A new feature by Margot Armbruster in @thesicktimes.org

thesicktimes.org/2025/10/07/g...

Getting diagnosed with hypermobility can help some people with Long COVID. Upcoming guidelines may make it easier. - The Sick Times

Current diagnostic criteria for hypermobile Ehlers-Danlos syndrome (hEDS), a common comorbidity of Long COVID, are restrictive. The Ehlers-Danlos Society is developing new hEDS criteria that will be r...

thesicktimes.org

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Reposted by Miles W. Griffis

Joe Rivano Barros @jrivanob.bsky.social · 8d

Logan Hollarsmith, who was born in San Francisco & was one of the Gaza flotilla members held in an Israeli prison, is being released

his mother says no local elected except Sup. Fielder reached out to her—& almost none returned our requests for comment

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Reposted by Miles W. Griffis

🎃 public HELLth guy 🎃 @publichealthguy1.bsky.social · 9d

a respected senior CDC official telling the public that the federal agency has undergone a hostile takeover and it barely makes the news because that’s the state of the world today

Prof Sheena Cruickshank @sheencr.bsky.social · 10d

This is another damning picture of Kennedy refusing to meet with senior scientists and get advice about infections or vaccines whilst he spreads disinformation #healthpolicy

A ‘hostile takeover’: ousted CDC official raises alarm over RFK Jr approach to infectious disease

Debra Houry speaks after testifying on eight months under Kennedy, who critics say shuns science and spreads falsehoods

www.theguardian.com

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Reposted by Miles W. Griffis

Chantzy @chantzy.bsky.social · 10d

It was standing room only at today's Living with Long Covid exhibit at the @museumofvan.bsky.social!

I was moved to tears by some of the personal stories on display. Such a great event

Long Covid researcher and activist Kayli Jamison speaks at today's Long Covid launch event at the Museum of Vancouver

Selfie at event wearing a white headstrap zimi mask with purple flowers

One of the stories that resonated - "I was able to venture out for an ice cream cone with a friend this day. I don't feel comfortable eating in restaurants or going to bars like most people my age. Spring and summer are nice beaches they give me more options to spend time outdoors with fewer people around - which means I get to see the people I love more often. Even short moments like this help me feel a little more like a "normal" 24 year old again

Some of the personal stories on display. A combo of text and pictures artistically laid out on white walls with brightly coloured orange and yellow backgrounds

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Reposted by Miles W. Griffis

betsy ladyzhets 😷 @betsyladyzhets.bsky.social · 11d

Today @thesicktimes.org: Armani Guerra shares his personal experience with Long COVID, and how it led him to start the first-ever case competition for IACCs at the University of Michigan's business school. thesicktimes.org/2025/10/03/l...

Long COVID inspired me to start an IACC case competition at my business school. Here’s how you can get involved. - The Sick Times

On October 31, at the University of Michigan’s Ross School of Business in Ann Arbor, top graduate students will compete to develop innovative business solutions for the IACC community. This event, whi...

thesicktimes.org

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Reposted by Miles W. Griffis

The Sick Times @thesicktimes.org · 11d

Since developing Long COVID, Armani Guerra has battled debilitating symptoms, even as he applied for and began his MBA at the University of Michigan’s Ross School of Business. Now, he is organizing the first-ever IACC Case Competition. bit.ly/46Bv0iy

A black and white photo of Armani Guerra wearing a suit and tie. Behind him is a blue-ish tinted photo of the University of Michigan’s Ross School of Business with yellow business doodles on top of it. The text reads, “The Sick Times. Long COVID inspired me to start an IACC case competition at my business school. Here’s how you can get involved. By Armani Guerra.”

I set out to recruit fellow MBA candidates at my business school to develop the first international case competition focused on IACCs like Long COVID, postural orthostatic tachycardia syndrome (POTS), myalgic encephalomyelitis (ME), and more. A task I initially thought would be difficult proved easy, as my peers empathized with my story and saw the daily toll this illness had on me, when I barely made it to class each day.

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Reposted by Miles W. Griffis

Karen Attiah @karenattiah.bsky.social · 12d

I wrote this piece about 7th anniversary of Jamal Khashoggi's murder.

On the costs of speaking the truth in today's world.

And how Jamal's memory still stalks Saudi Arabia--- and the Washington Post.

open.substack.com/pub/karenatt...

Jamal Khashoggi, the Washington Post, and the Cost of Speaking Out

As Saudi Arabia hosts comedians and courts gamers, the silenced voice of Jamal Khashoggi still echoes.

open.substack.com

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Reposted by Miles W. Griffis

Julia Métraux @juliametraux.bsky.social · 13d

Ridiculously, Medicare Telehealth coverage keeps are getting tied to continuing resolutions. Bills could be passed separately. But political bureaucracy. This means Medicare Telehealth waivers are kaput as of today. My latest for @motherjones.com www.motherjones.com/politics/202...

Another shutdown casualty: Medicare telehealth coverage

It's got bipartisan support—and millions of Americans need it. But Congress keeps failing to lock in funding for Medicare telehealth services.

www.motherjones.com

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Miles W. Griffis @mileswgriffis.bsky.social · 13d

🙏🏼🙏🏼🙏🏼

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Miles W. Griffis @mileswgriffis.bsky.social · 13d

Thanks Jenka!!

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Miles W. Griffis @mileswgriffis.bsky.social · 13d

🙏🦇

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Miles W. Griffis @mileswgriffis.bsky.social · 13d

Thanks so much Marthine 🙏

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Reposted by Miles W. Griffis

Marthine Satris @msatris.bsky.social · 13d

I loved this essay when I read it. Glad to see the recognition for Miles's beautiful writing here!

Miles W. Griffis @mileswgriffis.bsky.social · 13d

👀 I'm listed in the notables for the 2025 Best American Science and Nature Writing!

My essay "Back from the dead: Learning how to live and die with Long COVID" for @highcountrynews.org was long listed by editor Susan Orlean. You can read it free here:

www.hcn.org/issues/56-6/...

Learning how to live and die with long COVID - High Country News

The late artist David Wojnarowicz’s work has brought me back from the dead.

www.hcn.org

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Miles W. Griffis @mileswgriffis.bsky.social · 13d

Israel, while committing two years of genocide in Palestine, is now abducting humanitarian vessels from the Sumud flotilla, blocking life saving aid from reaching Gaza. ILLEGAL in both international and maritime law. Our global leaders are complicit in this genocide.

Drop Site @dropsitenews.com · 13d

🚨 BREAKING: The Sirius-Haifa (carrying Drop Site editor Alex Colston) has been boarded by Israeli military...Contact with Colston has been lost; as part of security protocols, he and other...

🎥 “The Ship Sirius: A day in the life,” a video report from Alex Colston (@recolston.bsky.social)...

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