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epilepsysparks.bsky.social
Epilepsy Sparks
@epilepsysparks.bsky.social
330 followers 210 following 97 posts
Educating re the #epilepsies ๐Ÿง โšก๐Ÿ”ฌ๐Ÿงฌ! Check out our podcast & website! We bridge the comms gaps between clinicians, academics, & people with an epilepsy!
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epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท 6d
Interactive, self-paced & global - the ILAE Academy is transforming clinician education in the epilepsies! ๐ŸŽ“ Hear from Prof. Gagandeep Singh ๐Ÿคฉ ๐Ÿ‡ฎ๐Ÿ‡ณ.

๐ŸŽ™๏ธ Podcast shorturl.at/QdjMR
๐ŸŽฌ YouTube shorturl.at/4gvmM

#EpilepsyEducation #ILAEAcademy #Neurology @ilae-epilepsy.bsky.social
epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท 6d
How is the ILAE Academy reshaping epileptology training worldwide? ๐ŸŒ Hear from Prof. Gagandeep Singh ๐Ÿคฉ ๐Ÿ‡ฎ๐Ÿ‡ณ on Torieโ€™s show!

๐ŸŽ™๏ธ Podcast shorturl.at/QdjMR
๐ŸŽฌ YouTube shorturl.at/4gvmM
๐Ÿ“„ Show notes shorturl.at/c8SyD
๐Ÿ‘ค Gagandeep profile shorturl.at/48lSb

@ilae-epilepsy.bsky.social @uclh.bsky.social
epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท 8d
Snapshots of the fun mini docu about the International Epilepsy Congress in Lisbon ๐Ÿ‡ต๐Ÿ‡น! All by Landis Weidner ๐Ÿคฉ๐Ÿ‡บ๐Ÿ‡ธ - host of the What The EF podcast about the epilepsies! Check it out here: youtu.be/8jDWeFI_gAw?...

#epilepsy #neurology #whattheef #seizures
epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท 13d
What can it *really* be like to care for someone with an epilepsy? ๐Ÿค”
Dr. Florien Boele ๐Ÿคฉ๐Ÿ‡ณ๐Ÿ‡ฑ๐Ÿ‡ฌ๐Ÿ‡ง shares why carersโ€™ wellbeing must not be overlooked - and how to take part in her research all about it! ๐Ÿ‘‡

๐ŸŽฌ shorturl.at/7iv2e

#EpilepsySparks #EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch
epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท 13d
Unpaid carers save the UK ยฃ184B a year - but at what cost to their health? ๐Ÿคฏ

Dr. Florien Boele ๐Ÿ‡ณ๐Ÿ‡ฑ๐Ÿ‡ฌ๐Ÿ‡ง talks with Torie Robinson about quality of life, stress, & why carers matter. Check out the episode here ๐Ÿ‘‡.

๐ŸŽฌ shorturl.at/7iv2e

#EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch
Low-down of episode and QR code for the study
epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท 13d
@carers-uk.bsky.social @carersscotland.bsky.social @carers-week.bsky.social
epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท 13d
Who are carers really - and why do they matter so much in the epilepsies? ๐Ÿ’œ๐Ÿค”
Dr. Florien Boele ๐Ÿคฉ ๐Ÿ‡ณ๐Ÿ‡ฑ๐Ÿ‡ฌ๐Ÿ‡ง joins Torie Robinson to talk about unpaid carers & their ยฃ184B ๐Ÿ˜ฎ contributionโ€ฆ!

๐ŸŽฌ shorturl.at/7iv2e
๐ŸŽ™ shorturl.at/ttH16

#EpilepsySparks #EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch
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epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท 27d
New podcast episode! ๐Ÿ“‘ Dr Ewan Nurse ๐Ÿคฉ๐Ÿ‡ฆ๐Ÿ‡บ joins Torie to discuss his research re:
ใ€ฐ๏ธ Missed seizuresโ€ฆ
ใ€ฐ๏ธ Flawed diaries ๐Ÿคฆโ€โ™€๏ธ
ใ€ฐ๏ธ Improving reporting for better care ๐Ÿ‘Š
Watch/listen/read the Epilepsy Sparks Insights episode ๐Ÿ‘‡

๐ŸŽ™๏ธ shorturl.at/BsOVW
๐ŸŽฌ shorturl.at/SJLxN
๐Ÿ“„ shorturl.at/RK1vL

#epilepsy #seizurediary
epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท Sep 18
๐Ÿ”ฅ New Ep! ๐Ÿ”ฅ
Harvardโ€™s Dr Phillip Pearl ๐Ÿคฉ๐Ÿ‡บ๐Ÿ‡ธ (Chief of Epilepsy at Boston Childrenโ€™s Hospital & Prof at Harvard) on:
โšก Why advocacy matters
๐Ÿงฌ Rare epilepsy & gene therapy
๐Ÿ’œ SUDEP & mental health

Catch it here ๐Ÿ‘‡
๐ŸŽ™๏ธ shorturl.at/LbjyF
๐ŸŽฌ shorturl.at/z7VzU
๐Ÿ“„ shorturl.at/PDSag

#Epilepsy #Neurology #SUDEP
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epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท Sep 11
๐ŸŽฌ Podcast trailer drop!
Dr Phillip Pearl ๐Ÿคฉ๐Ÿ‡บ๐Ÿ‡ธ shares the incredible story of Vitamin B6-dependent epilepsy ๐Ÿ˜ฑ - a rare condition where seizures can be treated with a vitamin ๐Ÿ’Š - & how it opened the door to modern gene therapy! ๐Ÿ‘‡

๐ŸŽ™๏ธ Podcast mcdn.podbean.com/mf/web/fskua...
๐ŸŽฌ YouTube youtu.be/yJ31k_6xNNg
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Reposted by Epilepsy Sparks
cureepilepsy.bsky.social
CURE Epilepsy @cureepilepsy.bsky.social ยท Sep 11
UCLA researchers used stem cellโ€‘derived assembloids to show how SCN8A variants trigger cortical hyperactivity (seizures) and impair hippocampal rhythms (memory). This new model may explain cognitive challenges beyond seizures and open avenues for better treatments.

Read more: https://bit.ly/41O86BE
UCLA researchers find how epilepsy genes disrupt different brain regions using stem cell models
The new research points to the distinct effects that a single disease-causing gene variation can have across different regions of the brain.
newsroom.ucla.edu
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epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท Sep 11
๐Ÿงฌ New Epilepsy Sparks Insights podcast! ๐ŸŽง๐ŸŽฌ
Dr Phillip Pearl ๐Ÿคฉ๐Ÿ‡บ๐Ÿ‡ธ from Boston Childrenโ€™s Hospital & Harvard explains inherited metabolic epilepsies, Vitamin B6 dependency, & the future of gene therapy!
Watch/listen/read, here ๐Ÿ‘‡!
๐ŸŽ™๏ธ Podcast mcdn.podbean.com/mf/web/fskua...
๐ŸŽฌ YouTube youtu.be/yJ31k_6xNNg
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epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท Sep 11
๐ŸŒŸ NEW PODCAST ๐ŸŒŸ
Dr Phillip Pearl ๐Ÿคฉ๐Ÿ‡บ๐Ÿ‡ธ explains inherited metabolic epilepsies(!), how they cause more than seizures, & how vitamin B6 ๐Ÿ’Š & diets ๐Ÿฅฉ paved the way for gene therapy! Watch/listen/read here ๐Ÿ‘‡!

๐ŸŽ™๏ธ Podcast shorturl.at/5entK
๐ŸŽฌ YouTube shorturl.at/ghltc
๐Ÿ“„ Show notes shorturl.at/nIFpn
#epilepsy
Reposted by Epilepsy Sparks
fndportal.bsky.social
FND Poltergeist ๐Ÿ‘ป @fndportal.bsky.social ยท Aug 31
The mighty @epilepsysparks.bsky.social Torie is up now!

Talking patient education and seizure management, how to improve quality of life
Torie Robinson presenting on epilepsy management
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epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท Sep 11
Thank you so much!!
epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท Aug 28
Neurologist. Patient. Writer. Dr Jim Morrow ๐Ÿ‡ฌ๐Ÿ‡ง shares his extraordinary story in our latest Epilepsy Sparks Insights podcast๐Ÿ‘‡!

๐ŸŽ™๏ธ Podcast youtu.be/T7P1-flyzpY
๐ŸŽฌ YouTube mcdn.podbean.com/mf/web/zihpz...
๐Ÿ“„ Show notes www.torierobinson.com/epilepsy-spa...

#Epilepsy #NeurologyPodcast #EpilepsyResearch
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epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท Aug 21
Challenge in #epilepsy care: supernatural beings like โ€œdemonsโ€ ๐Ÿ‘น and โ€œwitchesโ€ ๐Ÿง™+ 70 different languages!! See the trailer with paediatric neurologist Dr Yanin Rivera ๐Ÿ‡ฒ๐Ÿ‡ฝ in todayโ€™s Epilepsy Sparks Insights trailer!! ๐Ÿ‘‡๐Ÿป

๐ŸŽ™๏ธ Podcast mcdn.podbean.com/mf/web/i7s8x...
๐ŸŽฌ YouTube youtu.be/l7CWytytUoc
epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท Aug 21
โœจ New Epilepsy Sparks Insights ๐ŸŽง!
๐Ÿ‘‰ youtu.be/l7CWytytUoc

Paediatric neurologist Dr Yanin Rivera ๐Ÿ‡ฒ๐Ÿ‡ฝ shares how cultural beliefs, 93 Epilepsy Centres ๐Ÿ˜ฎ & telemedicine are transforming epilepsy care! ๐Ÿ‘‡

๐ŸŽฌ YouTube youtu.be/l7CWytytUoc

๐ŸŽ™๏ธ Podcast mcdn.podbean.com/mf/web/i7s8x...

#epilepsy #mexico
epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท Aug 20
Yesssss!!! Ditto!
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epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท Aug 14
๐ŸŽฌ Trailer! ๐ŸŽฌ Sexual health & epilepsy & our talk in Lisbon! With Drs Brad Kamitaki ๐Ÿ‡บ๐Ÿ‡ธ & Lucas Orellana ๐Ÿ‡ฆ๐Ÿ‡ท. For patients AND clinicians!

Watch/listen/read, here!! ๐Ÿ‘‡
๐ŸŽฌ YouTube youtu.be/sPS7r0yc2mI
๐ŸŽ™๏ธ Podcast mcdn.podbean.com/mf/web/rdmpx...

#Epilepsy #SexualHealth #ClinicianEducation
epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท Aug 14
๐Ÿšจ New Ep! ๐Ÿšจ Sexual health & epilepsy โ€“ why it matters & how clinicians can talk about it. ๐Ÿ’œ

With Drs & Epileptologists Brad Kamitaki ๐Ÿคฉ ๐Ÿ‡บ๐Ÿ‡ธ & Lucas Orellana ๐Ÿคฉ๐Ÿ‡ฆ๐Ÿ‡ท.

Watch/listen ๐Ÿ‘‡!

๐ŸŽฌ YouTube youtu.be/sPS7r0yc2mI
๐ŸŽ™๏ธ Podcast mcdn.podbean.com/mf/web/rdmpx...

#EpilepsyAwareness #SexualHealth #Neurology
epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท Aug 7
๐ŸŽ™๏ธ New Episode: โ€œEpilepsy & Suicide: Breaking the Silenceโ€ w/ clinical psychologist Milena Gandy ๐Ÿคฉ๐Ÿ‡ฆ๐Ÿ‡บ & epileptologist Heidi Munger Clary ๐Ÿคฉ๐Ÿ‡บ๐Ÿ‡ธ
Letโ€™s talk patient-centred care & clinicians confident to talk about #mentalhealth & #suicide. ๐Ÿ‘‡
๐ŸŽฌ youtu.be/zJuQvPkOt8U

#epilepsy #IEC
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Reposted by Epilepsy Sparks
futureneuro.bsky.social
FutureNeuro Centre @futureneuro.bsky.social ยท Jul 30
๐Ÿ“ข @epilepsyireland.bsky.social has launched their 9th Research Funding Call, focusing on priority areas identified to drive innovation and improve the lives of people with epilepsy.

๐Ÿ”— Learn more and submit your Expression of Interest by September 26: www.epilepsy.ie/content/appl...
Apply for funding
Researchers and research institutions - we have launched our 9th Research Funding Call! Find out more about how to apply and the process involved.
www.epilepsy.ie
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epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท Jul 31
๐ŸŽ™๏ธNew episode!
โ€œThey Arenโ€™t FAKE! Non-Epileptic Eventsโ€ w/ Dr Parthvi Ravat ๐Ÿ’œ
Real symptoms, real science, real hope. Watch/listen/read, right here! ๐Ÿ‘‡

๐ŸŽ™๏ธ Podcast shorturl.at/iiRc1
๐ŸŽฌ YouTube shorturl.at/dzczm
๐Ÿ“„ Show notes shorturl.at/Xicyt

#epilepsy #FND #PNES
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epilepsysparks.bsky.social
Epilepsy Sparks @epilepsysparks.bsky.social ยท Jul 27
๐Ÿ—ฃ๏ธ Have YOUR say about consciousness during seizures!! Takes 5 mins! Type in this link! www.surveymonkey.com/r/epilepsytalk
"Consciousness" - International Insights
Help us improve epilepsy care by taking this 5-minute survey about the word โ€œconsciousness.โ€
www.surveymonkey.com
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