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Epilepsy Sparks @epilepsysparks.bsky.social · 5d

Interactive, self-paced & global - the ILAE Academy is transforming clinician education in the epilepsies! 🎓 Hear from Prof. Gagandeep Singh 🤩 🇮🇳.

🎙️ Podcast shorturl.at/QdjMR
🎬 YouTube shorturl.at/4gvmM

#EpilepsyEducation #ILAEAcademy #Neurology @ilae-epilepsy.bsky.social

Epilepsy Sparks @epilepsysparks.bsky.social · 5d

How is the ILAE Academy reshaping epileptology training worldwide? 🌍 Hear from Prof. Gagandeep Singh 🤩 🇮🇳 on Torie’s show!

🎙️ Podcast shorturl.at/QdjMR
🎬 YouTube shorturl.at/4gvmM
📄 Show notes shorturl.at/c8SyD
👤 Gagandeep profile shorturl.at/48lSb

@ilae-epilepsy.bsky.social @uclh.bsky.social

Epilepsy Sparks @epilepsysparks.bsky.social · 7d

Snapshots of the fun mini docu about the International Epilepsy Congress in Lisbon 🇵🇹! All by Landis Weidner 🤩🇺🇸 - host of the What The EF podcast about the epilepsies! Check it out here: youtu.be/8jDWeFI_gAw?...

#epilepsy #neurology #whattheef #seizures

Epilepsy Sparks @epilepsysparks.bsky.social · 12d

What can it *really* be like to care for someone with an epilepsy? 🤔
Dr. Florien Boele 🤩🇳🇱🇬🇧 shares why carers’ wellbeing must not be overlooked - and how to take part in her research all about it! 👇

🎬 shorturl.at/7iv2e

#EpilepsySparks #EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch

Epilepsy Sparks @epilepsysparks.bsky.social · 12d

Unpaid carers save the UK £184B a year - but at what cost to their health? 🤯

Dr. Florien Boele 🇳🇱🇬🇧 talks with Torie Robinson about quality of life, stress, & why carers matter. Check out the episode here 👇.

🎬 shorturl.at/7iv2e

#EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch

Low-down of episode and QR code for the study

Epilepsy Sparks @epilepsysparks.bsky.social · 12d

@carers-uk.bsky.social @carersscotland.bsky.social @carers-week.bsky.social

Epilepsy Sparks @epilepsysparks.bsky.social · 12d

Who are carers really - and why do they matter so much in the epilepsies? 💜🤔
Dr. Florien Boele 🤩 🇳🇱🇬🇧 joins Torie Robinson to talk about unpaid carers & their £184B 😮 contribution…!

🎬 shorturl.at/7iv2e
🎙 shorturl.at/ttH16

#EpilepsySparks #EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch

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Epilepsy Sparks @epilepsysparks.bsky.social · 26d

New podcast episode! 📑 Dr Ewan Nurse 🤩🇦🇺 joins Torie to discuss his research re:
〰️ Missed seizures…
〰️ Flawed diaries 🤦‍♀️
〰️ Improving reporting for better care 👊
Watch/listen/read the Epilepsy Sparks Insights episode 👇

🎙️ shorturl.at/BsOVW
🎬 shorturl.at/SJLxN
📄 shorturl.at/RK1vL

#epilepsy #seizurediary

Epilepsy Sparks @epilepsysparks.bsky.social · Sep 18

🔥 New Ep! 🔥
Harvard’s Dr Phillip Pearl 🤩🇺🇸 (Chief of Epilepsy at Boston Children’s Hospital & Prof at Harvard) on:
⚡ Why advocacy matters
🧬 Rare epilepsy & gene therapy
💜 SUDEP & mental health

Catch it here 👇
🎙️ shorturl.at/LbjyF
🎬 shorturl.at/z7VzU
📄 shorturl.at/PDSag

#Epilepsy #Neurology #SUDEP

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Epilepsy Sparks @epilepsysparks.bsky.social · Sep 11

🎬 Podcast trailer drop!
Dr Phillip Pearl 🤩🇺🇸 shares the incredible story of Vitamin B6-dependent epilepsy 😱 - a rare condition where seizures can be treated with a vitamin 💊 - & how it opened the door to modern gene therapy! 👇

🎙️ Podcast mcdn.podbean.com/mf/web/fskua...
🎬 YouTube youtu.be/yJ31k_6xNNg

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Reposted by Epilepsy Sparks

CURE Epilepsy @cureepilepsy.bsky.social · Sep 11

UCLA researchers used stem cell‑derived assembloids to show how SCN8A variants trigger cortical hyperactivity (seizures) and impair hippocampal rhythms (memory). This new model may explain cognitive challenges beyond seizures and open avenues for better treatments.

Read more: https://bit.ly/41O86BE

UCLA researchers find how epilepsy genes disrupt different brain regions using stem cell models

The new research points to the distinct effects that a single disease-causing gene variation can have across different regions of the brain.

newsroom.ucla.edu

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Epilepsy Sparks @epilepsysparks.bsky.social · Sep 11

🧬 New Epilepsy Sparks Insights podcast! 🎧🎬
Dr Phillip Pearl 🤩🇺🇸 from Boston Children’s Hospital & Harvard explains inherited metabolic epilepsies, Vitamin B6 dependency, & the future of gene therapy!
Watch/listen/read, here 👇!
🎙️ Podcast mcdn.podbean.com/mf/web/fskua...
🎬 YouTube youtu.be/yJ31k_6xNNg

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Epilepsy Sparks @epilepsysparks.bsky.social · Sep 11

🌟 NEW PODCAST 🌟
Dr Phillip Pearl 🤩🇺🇸 explains inherited metabolic epilepsies(!), how they cause more than seizures, & how vitamin B6 💊 & diets 🥩 paved the way for gene therapy! Watch/listen/read here 👇!

🎙️ Podcast shorturl.at/5entK
🎬 YouTube shorturl.at/ghltc
📄 Show notes shorturl.at/nIFpn
#epilepsy

Reposted by Epilepsy Sparks

FND Poltergeist 👻 @fndportal.bsky.social · Aug 31

The mighty @epilepsysparks.bsky.social Torie is up now!

Talking patient education and seizure management, how to improve quality of life

Torie Robinson presenting on epilepsy management

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Epilepsy Sparks @epilepsysparks.bsky.social · Sep 11

Thank you so much!!

Epilepsy Sparks @epilepsysparks.bsky.social · Aug 28

Neurologist. Patient. Writer. Dr Jim Morrow 🇬🇧 shares his extraordinary story in our latest Epilepsy Sparks Insights podcast👇!

🎙️ Podcast youtu.be/T7P1-flyzpY
🎬 YouTube mcdn.podbean.com/mf/web/zihpz...
📄 Show notes www.torierobinson.com/epilepsy-spa...

#Epilepsy #NeurologyPodcast #EpilepsyResearch

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Epilepsy Sparks @epilepsysparks.bsky.social · Aug 21

Challenge in #epilepsy care: supernatural beings like “demons” 👹 and “witches” 🧙+ 70 different languages!! See the trailer with paediatric neurologist Dr Yanin Rivera 🇲🇽 in today’s Epilepsy Sparks Insights trailer!! 👇🏻

🎙️ Podcast mcdn.podbean.com/mf/web/i7s8x...
🎬 YouTube youtu.be/l7CWytytUoc

Epilepsy Sparks @epilepsysparks.bsky.social · Aug 21

✨ New Epilepsy Sparks Insights 🎧!
👉 youtu.be/l7CWytytUoc

Paediatric neurologist Dr Yanin Rivera 🇲🇽 shares how cultural beliefs, 93 Epilepsy Centres 😮 & telemedicine are transforming epilepsy care! 👇

🎬 YouTube youtu.be/l7CWytytUoc

🎙️ Podcast mcdn.podbean.com/mf/web/i7s8x...

#epilepsy #mexico

Epilepsy Sparks @epilepsysparks.bsky.social · Aug 20

Yesssss!!! Ditto!

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Epilepsy Sparks @epilepsysparks.bsky.social · Aug 14

🎬 Trailer! 🎬 Sexual health & epilepsy & our talk in Lisbon! With Drs Brad Kamitaki 🇺🇸 & Lucas Orellana 🇦🇷. For patients AND clinicians!

Watch/listen/read, here!! 👇
🎬 YouTube youtu.be/sPS7r0yc2mI
🎙️ Podcast mcdn.podbean.com/mf/web/rdmpx...

#Epilepsy #SexualHealth #ClinicianEducation

Epilepsy Sparks @epilepsysparks.bsky.social · Aug 14

🚨 New Ep! 🚨 Sexual health & epilepsy – why it matters & how clinicians can talk about it. 💜

With Drs & Epileptologists Brad Kamitaki 🤩 🇺🇸 & Lucas Orellana 🤩🇦🇷.

Watch/listen 👇!

🎬 YouTube youtu.be/sPS7r0yc2mI
🎙️ Podcast mcdn.podbean.com/mf/web/rdmpx...

#EpilepsyAwareness #SexualHealth #Neurology

Epilepsy Sparks @epilepsysparks.bsky.social · Aug 7

🎙️ New Episode: “Epilepsy & Suicide: Breaking the Silence” w/ clinical psychologist Milena Gandy 🤩🇦🇺 & epileptologist Heidi Munger Clary 🤩🇺🇸
Let’s talk patient-centred care & clinicians confident to talk about #mentalhealth & #suicide. 👇
🎬 youtu.be/zJuQvPkOt8U

#epilepsy #IEC

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Reposted by Epilepsy Sparks

FutureNeuro Centre @futureneuro.bsky.social · Jul 30

📢 @epilepsyireland.bsky.social has launched their 9th Research Funding Call, focusing on priority areas identified to drive innovation and improve the lives of people with epilepsy.

🔗 Learn more and submit your Expression of Interest by September 26: www.epilepsy.ie/content/appl...

Apply for funding

Researchers and research institutions - we have launched our 9th Research Funding Call! Find out more about how to apply and the process involved.

www.epilepsy.ie

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Epilepsy Sparks @epilepsysparks.bsky.social · Jul 31

🎙️New episode!
“They Aren’t FAKE! Non-Epileptic Events” w/ Dr Parthvi Ravat 💜
Real symptoms, real science, real hope. Watch/listen/read, right here! 👇

🎙️ Podcast shorturl.at/iiRc1
🎬 YouTube shorturl.at/dzczm
📄 Show notes shorturl.at/Xicyt

#epilepsy #FND #PNES

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Epilepsy Sparks @epilepsysparks.bsky.social · Jul 27

🗣️ Have YOUR say about consciousness during seizures!! Takes 5 mins! Type in this link! www.surveymonkey.com/r/epilepsytalk

"Consciousness" - International Insights

Help us improve epilepsy care by taking this 5-minute survey about the word “consciousness.”

www.surveymonkey.com

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