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sumoh7.bsky.social
🧪🔬Boy with rare condition amazes doctors after world-first gene therapy | BBC News

BBC News 11/25/2025
www.youtube.com/watch?v=71vG...

#GeneTherapy
#Science
#HunterSyndrome
#MPS2

Please watch and forward. Share with family at Thanksgiving table so more people know about this.
Boy with rare condition amazes doctors after world-first gene therapy | BBC News
YouTube video by BBC News
www.youtube.com
November 25, 2025 at 9:49 PM
klassmi.bsky.social
Prof Simon Jones, who is co-leading the trial tells the BBC: "I've been waiting 20 years to see a boy like Ollie doing as well as he is, and it's just so exciting." #HunterSyndrome almost always occurs in boys affecting one in 100,000. 👨‍⚕️ #ScienceMatters #GeneTherapy 🧬

www.bbc.com/news/article...
Hunter syndrome: Boy with rare condition amazes doctors after world-first gene therapy
Oliver has an inherited condition called Hunter syndrome, which causes progressive damage to the body and brain.
www.bbc.com
November 24, 2025 at 2:53 PM
drtimos.bsky.social
ICYMI: LucidQuest Views >>> Neuroscience Weekly News – August 6th 2025 #News #EpilepsyResearch #genetherapy #HunterSyndrome Comment below!
Neuroscience Weekly News – August 6th 2025
🧠 This Week in Neuroscience: MS Genetics Breakthrough, $372.5M CNS Funding, AI for Drug Discovery, and More Explore the latest […] The post Neuroscience Weekly News – August 6th 2025 appeared first on LucidQuest Ventures.
dlvr.it
August 7, 2025 at 8:36 AM
edwardsdna.bsky.social
This Toddler Was the First Person to Receive a Test Treatment for a Rare Genetic Disorder. Nine Months Later, His Progress Is Inspiring Hope: Oliver Chu is one of five kids participating in a clinical trial… @SmithsonianMag #RareDisease #GeneTherapy #HunterSyndrome #ChildHealth #ClinicalTrials
This Toddler Was the First Person to Receive a Test Treatment for a Rare Genetic Disorder. Nine Months Later, His Progress Is Inspiring Hope
Oliver Chu is one of five kids participating in a clinical trial investigating a gene therapy for Hunter syndrome, a disorder with symptoms akin to childhood dementia that limits life expectancy
dlvr.it
November 28, 2025 at 6:37 AM
gentlem.bsky.social
www.youtube.com/watch?v=71vG...
Engaging, accessible & informative
7 & 1/2 min video tells the story of precious Oliver, the 1st #MPSII #HunterSyndrome recipient of a groundbreaking #gene-therapy treatment.
Boy with rare condition amazes doctors after world-first gene therapy | BBC News
YouTube video by BBC News
www.youtube.com
November 25, 2025 at 9:40 PM
drtimos.bsky.social
LucidQuest Views >>> Neuroscience Weekly News – August 6th 2025 #News #EpilepsyResearch #genetherapy #HunterSyndrome Comment below!
Neuroscience Weekly News – August 6th 2025
🧠 This Week in Neuroscience: MS Genetics Breakthrough, $372.5M CNS Funding, AI for Drug Discovery, and More Explore the latest […] The post Neuroscience Weekly News – August 6th 2025 appeared first on LucidQuest Ventures.
dlvr.it
August 6, 2025 at 8:35 AM
peppypanda.com
In a world-first, a young boy with rare Hunter syndrome is absolutely thriving after receiving groundbreaking gene therapy! Doctors are amazed by his incredible progress, offering new hope for many. ✨ #HunterSyndrome #GeneTherapy #MedicalBreakthrough #UpliftingNews
Hunter syndrome: Boy with rare condition amazes doctors after world-first gene therapy
**A three-year-old boy has astounded doctors with his progress after becoming the first person in the world with his devastating disease to receive a ground-breaking gene therapy.** Oliver Chu has a rare, inherited condition called Hunter syndrome - or MPSII - which causes progressive damage to the body and brain. Due to a faulty gene, before the treatment Oliver was unable to produce an enzyme crucial for keeping cells healthy. In a world first, medical staff in Manchester have tried to halt the disease by altering Oliver's cells using gene therapy.
www.bbc.co.uk
November 24, 2025 at 1:00 PM
stacescases2.bsky.social
#OliverChu has a rare, inherited condition called #Huntersyndrome or #MPSII which causes progressive damage to the body and brain. In the most severe cases, patients with the disease usually die before the age of 20, sometimes described as a type of childhood #dementia.
www.bbc.com/news/article...
Hunter syndrome: Boy with rare condition amazes doctors after world-first gene therapy
Oliver has an inherited condition called Hunter syndrome, which causes progressive damage to the body and brain.
www.bbc.com
November 25, 2025 at 1:48 AM
chrjcar.bsky.social
A 3-year-old boy appears to have fully recovered after receiving the first-ever #GeneTherapy to treat #HunterSyndrome earlier this year, researchers revealed yesterday.
www.bbc.com/news/article...
Hunter syndrome: Boy with rare condition amazes doctors after world-first gene therapy
Oliver has an inherited condition called Hunter syndrome, which causes progressive damage to the body and brain.
www.bbc.com
November 25, 2025 at 5:10 PM
journosnews.com
Three-year-old Oliver Chu shows remarkable recovery after receiving the first-ever gene therapy for Hunter syndrome.

#HunterSyndrome #GeneTherapy #MedicalBreakthrough #ChildHealth #PediatricInnovation
Three-Year-Old Thrives After World-First Gene Therapy for Rare Hunter Syndrome
World-First Gene Therapy Shows Promising Results in Hunter Syndrome A three-year-old boy from California, Oliver Chu, has amazed medical experts
journosnews.com
November 24, 2025 at 7:01 AM
mancad-uom.bsky.social
Hunter’s and Hurler’s syndromes both characteristically lead to hearing loss and we are pleased to see this breakthrough for the children we are helping to monitoring for this study at the Royal Manchester Children’s Hospital, Clinical Research Facility.
#RareDisease #HunterSyndrome #HurlerSyndrome
Hunter syndrome: Boy with rare condition amazes doctors after world-first gene therapy
Oliver has an inherited condition called Hunter syndrome, which causes progressive damage to the body and brain.
www.bbc.co.uk
November 26, 2025 at 10:41 AM
industryexaminer.bsky.social
A 3-year-old from California flies to Manchester for gene therapy.

Our new piece on how rare-disease care is becoming “passport medicine”.
🔗 biotech.industryexaminer.com/passport-med...

#biotech #genetherapy #raredisease #HunterSyndrome #MPSII #GlobalHealth #HealthPolicy #TechNews
From California to Manchester: How One Gene Therapy Is Rewriting Hunter Syndrome Care - Biotech Industry Examiner
Hunter syndrome – or mucopolysaccharidosis type II (MPS II) – is the kind of diagnosis that collapses a family’s sense of time.
biotech.industryexaminer.com
November 25, 2025 at 8:49 AM
drtimos.bsky.social
FYI: LucidQuest Views >>> Neuroscience Weekly News – August 6th 2025 #News #EpilepsyResearch #genetherapy #HunterSyndrome Comment below!
Neuroscience Weekly News – August 6th 2025
🧠 This Week in Neuroscience: MS Genetics Breakthrough, $372.5M CNS Funding, AI for Drug Discovery, and More Explore the latest […] The post Neuroscience Weekly News – August 6th 2025 appeared first on LucidQuest Ventures.
dlvr.it
August 14, 2025 at 8:37 AM
embomolmed.org
New method ➡️ Domain-substituted IGF2 tag modulates targeting of lentiviral #GeneTherapy for #HunterSyndrome

By F. Catalano, WWMP Pijnappel & colleagues @erasmusmc.bsky.social

🗞️ doi.org/10.1038/s443...
September 29, 2025 at 6:55 PM
melissajhogan.substack.com
BCBS of Tennessee wants my son to suffer so they can save a little green. This is the system. And shaming them is the only thing that's ever worked to make things happen.
Friends - make your calls, post your advocacy, whatever you can do to help. #huntersyndrome

www.instagram.com/reel/DDxfZDD...
December 19, 2024 at 10:47 PM
kristinca.bsky.social
I’m jumping into a freezing cold lake to help give my son a chance to grow up. Support my cause today so we can find a cure for Hunter syndrome.

polarotary.rallyup.com/3e4e24/m/kri...

#HunterSyndrome #MPSII #RareDisease #LakeArrowhead #ProjectAlive #Charity #PolarPlunge
January 22, 2025 at 7:22 AM
gimjournal.bsky.social
More options for treating individuals with MPS II? Idursulfase beta is safe and effective for the management of #HunterSyndrome bit.ly/4kt5pM7 #Mucopolysaccharidosis
July 10, 2025 at 5:27 PM
edwardsdna.bsky.social
Boy with Rare Genetic Disorder Amazes Doctors After World-First Gene Therapy: The first child in history has successfully been treated with a new genetic therapy for an ultra-rare developmental… @goodnewsnetwork.org #GeneticDisorder #GeneTherapy #HunterSyndrome #MedicalBreakthrough #RareDisease
Boy with Rare Genetic Disorder Amazes Doctors After World-First Gene Therapy
The first child in history has successfully been treated with a new genetic therapy for an ultra-rare developmental defect called Hunter syndrome. Several years in the making, Oliver Chu became the first in the world to receive the stem cell-based treatment in February, and 3 months later seemed to be a normal child again, meeting […] The post Boy with Rare Genetic Disorder Amazes Doctors After World-First Gene Therapy appeared first on Good News Network.
dlvr.it
November 28, 2025 at 1:43 PM