Help Kit Access Life-Changing Healthcare
gofund.me/6c3d9baa
The NHS doesn’t yet offer the tests I need & so I'm fundraising to access these privately. If you can donate or share, I’d be so grateful. Thank you 🙏💜 #eds #edsawareness #chronicillness #potssyndrome #adhd #nhs #healing #healthiswealth
gofund.me/6c3d9baa
The NHS doesn’t yet offer the tests I need & so I'm fundraising to access these privately. If you can donate or share, I’d be so grateful. Thank you 🙏💜 #eds #edsawareness #chronicillness #potssyndrome #adhd #nhs #healing #healthiswealth
August 30, 2025 at 10:33 AM
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She’s Not Just Flexible—Her Connective Tissues Are Failing Her
Subscribe to read more on www.pouringpotions.com
#EhlersDanlosSyndrome #EDSawareness #Hypermobility #GeneticDisorders #ConnectiveTissueDisorder #InvisibleIllness #MedicalReels #JointDislocation
Subscribe to read more on www.pouringpotions.com
#EhlersDanlosSyndrome #EDSawareness #Hypermobility #GeneticDisorders #ConnectiveTissueDisorder #InvisibleIllness #MedicalReels #JointDislocation
July 20, 2025 at 8:10 PM
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We need provision, we need more medical staff who actually know about EDS and we need properly defined care pathways, screenings and a multidisciplinary approach for all 13 types.
We deserve the care we need.
#disabilitypridemonth #edsawareness
We deserve the care we need.
#disabilitypridemonth #edsawareness
July 1, 2025 at 5:43 PM
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Gotta love that EDS easy bruising thing. 😆 I’m such a fragile fuckin flower. This is from *using a swing on a swingset NORMALLY* for about 20 minutes yesterday (which I’m SUPPOSED TO, it’s both low impact exercise and PT for my vertigo). 😂
#ehlersdanlos #EDSawareness #disability #bruising #bruises
#ehlersdanlos #EDSawareness #disability #bruising #bruises
June 9, 2025 at 8:20 PM
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🎗️ Charity Stream for EDS Society 🎗️
Starting June 1st at 5PM CEST on Twitch!
Join me as we raise funds and awareness for the EDS Society
🕹️ Come hang out, donate if you can, and help us spread the word. Every bit of love and support counts. 💜
twitch.tv/papersharks
#CharityStream #EDSAwareness #EDS
Starting June 1st at 5PM CEST on Twitch!
Join me as we raise funds and awareness for the EDS Society
🕹️ Come hang out, donate if you can, and help us spread the word. Every bit of love and support counts. 💜
twitch.tv/papersharks
#CharityStream #EDSAwareness #EDS
May 30, 2025 at 12:55 AM
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Taking a step into nostalgia with some Zoo Tycoon and building us a perfect home for the Dazzle and for Ehlers Danlos Support UK !!!
#EDSAwareness #EDS #hEDS #CharityStream #Dazzle #WeAllDazzleTogether
www.twitch.tv/deviant_nails_
#EDSAwareness #EDS #hEDS #CharityStream #Dazzle #WeAllDazzleTogether
www.twitch.tv/deviant_nails_
DeViaNt_Nails_ - Twitch
Building a home for the Herd! Charity Stream EDS Awareness Month | !zebra | !EDS | !CFS | !kofi |
www.twitch.tv
May 21, 2025 at 7:04 PM
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1 quotes
We've got 22 Ways to Celebrate EDS Awareness Month in May! See if one or two suit you:
buff.ly/bhtQQQ2
#EDSAwareness #EDS #hEDS #Hypermobility #HSD #MedEd #Zebras #NEISvoid #Doctors #MedSky #Spoonies #EhlersDanlosSyndrome
buff.ly/bhtQQQ2
#EDSAwareness #EDS #hEDS #Hypermobility #HSD #MedEd #Zebras #NEISvoid #Doctors #MedSky #Spoonies #EhlersDanlosSyndrome
May 20, 2025 at 2:14 PM
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Strukturen gehört für mich zu einer der bittersten Realitäten im Leben mit dem #EhlersDanlosSyndrom
#SelteneErkrankung #hEDS #MyEDSChallenge #EdsAwareness #rareDisease #ChronischKrank #SeltenSindViele #Mcas #SFN #SmallFiberNeuropathie #EhlersDanlosSyndrome #Zebrastreifen
#SelteneErkrankung #hEDS #MyEDSChallenge #EdsAwareness #rareDisease #ChronischKrank #SeltenSindViele #Mcas #SFN #SmallFiberNeuropathie #EhlersDanlosSyndrome #Zebrastreifen
May 16, 2025 at 8:24 PM
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New essay about learning to care for a chronically ill body and…gardening? It all ties together, I promise. New #polaroids included open.substack.com/pub/kelleycl...
#neisvoid #edsawareness #eherlsdanlos #eds #heds #chronicillness #disability #gardening #sx70 #slr680 #instantfilm
#neisvoid #edsawareness #eherlsdanlos #eds #heds #chronicillness #disability #gardening #sx70 #slr680 #instantfilm
May 15, 2025 at 12:11 PM
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3 reposts
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May 13, 2025 at 7:05 AM
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Today is #MEAwarenessDay, it's #InternationalNursesDay #RedCrossWeek #HypermobilityAwareness #EDSAwareness #NationalCleanAirMonth #ActiononStrokeMonth #ShareAStoryMonth #DeafAwarenessWeek #DyingMattersWeek #FibromyalgiaAwareness and more..
louisekenward.substack.com/p/may-a-mont...
louisekenward.substack.com/p/may-a-mont...
May: a month of 'awareness'
acknowledging the need for greater understanding and the challenges to it
louisekenward.substack.com
May 12, 2025 at 8:41 AM
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May 9, 2025 at 5:36 AM
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The Digital Download Dino Colouring Pages I've created in support of Ehlers-Danlos Support UK are now live on my Ko-FI!!
I'll be adding more as I finish them!
All proceeds from sales will go into supporting Ehlers-Danlos Support UK
ko-fi.com/deviantnails...
#EDSAwareness #EDS #Zebra
I'll be adding more as I finish them!
All proceeds from sales will go into supporting Ehlers-Danlos Support UK
ko-fi.com/deviantnails...
#EDSAwareness #EDS #Zebra
Visit DeViaNt Nails's Shop!
I've opened a shop. Come take a look!
ko-fi.com
May 8, 2025 at 5:19 AM
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We are so proud of our community coming together to support DeVi and her fundraising for Ehlers-Danlos Support UK during #EDSAwareness Month
DeVi is unable to take part in many of the walks for charity happening this month so we had out dino's march for her!
May we all continue to Dazzle Together!
DeVi is unable to take part in many of the walks for charity happening this month so we had out dino's march for her!
May we all continue to Dazzle Together!
I just want to say a HUGE thank you to everyone that showed up and took part in tonight's Dazzling Dino's #EDS Migration
That moment I came over the hill and saw you all together and Dazzling will stick with me forever and be a treasured memory.
#EhlersDanlos #PathofTitans #communityserver
That moment I came over the hill and saw you all together and Dazzling will stick with me forever and be a treasured memory.
#EhlersDanlos #PathofTitans #communityserver
May 8, 2025 at 4:09 AM
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3 likes
@christiecox.bsky.social
My opinions on this topic are strong. Read what I have to say on Substack about how EDS Awareness month needs more than lit up buildings and ribbons on your social media profile. We need real change!
#edsawareness
zebras.substack.com/p/forget-awa...
My opinions on this topic are strong. Read what I have to say on Substack about how EDS Awareness month needs more than lit up buildings and ribbons on your social media profile. We need real change!
#edsawareness
zebras.substack.com/p/forget-awa...
Forget EDS Awareness. We Need a Reckoning.
The EDS community doesn’t just need a social media ribbon. It needs a revolution.
zebras.substack.com
May 6, 2025 at 1:17 PM
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🎬 Don’t miss Complicated at the MIND 2025 Conference—Thurs, May 29 at noon! 🍿 Join us for popcorn & a heartfelt convo with EDS patients. 💬🧠 Register: mind2025.org
#Charleston #EDSAwareness #Neuroscience #PatientVoices
#Charleston #EDSAwareness #Neuroscience #PatientVoices
May 5, 2025 at 12:32 PM
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#EDSawareness month day 5
Dislocated my shoulder opening the curtain. Fiddled around a bit to get it back in, my dad, standing there watching, goes "I heard that" when it ground back into place.
I think seismic sensors in Aotearoa also picked it up
Took my Celebrex like a big girl
Dislocated my shoulder opening the curtain. Fiddled around a bit to get it back in, my dad, standing there watching, goes "I heard that" when it ground back into place.
I think seismic sensors in Aotearoa also picked it up
Took my Celebrex like a big girl
May 5, 2025 at 4:06 AM
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#zebrastrongart WIP progress - inks and flats done! 🦓💖🦓
#eds #edsawareness #edsawarenessmonth #comics #webcomics #indiecomics #Celestis
#eds #edsawareness #edsawarenessmonth #comics #webcomics #indiecomics #Celestis
May 5, 2025 at 1:04 AM
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4 likes
Starting a lil earlier than usual cos I'm busy later but we're doing our first OFFICIAL Fundraiser Stream on the month raising money for Ehlers-Danlos Support UK as it's #EDSAwareness Month!!
Growing some stripy dino's on @pathoftitans.bsky.social @wildamber.bsky.social !!
Twitch.tv/deviant_nails_
Growing some stripy dino's on @pathoftitans.bsky.social @wildamber.bsky.social !!
Twitch.tv/deviant_nails_
DeViaNt_Nails_ - Twitch
Hi! I'm DeViaNt Nails!! Welcome to my humble stream!! Please make yourself at home and stay as long as you'd like. I will mostly be working on Nail Arts for Luxury Reusable Full Coverage Nail Tips
Twitch.tv
May 4, 2025 at 6:04 PM
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#EDSawareness day 4.
So far we've only got one wrist strapping and some residual instability in the jaw from Talie's dentist appointment... but I am having an ongoing conversation with myself about whether or not it's worth risking my shoulder to do some outside stuff today...
Gardening is risky
So far we've only got one wrist strapping and some residual instability in the jaw from Talie's dentist appointment... but I am having an ongoing conversation with myself about whether or not it's worth risking my shoulder to do some outside stuff today...
Gardening is risky
May 4, 2025 at 7:00 AM
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The cutest zebra support 🥹💖🦓💖 thank you sweet Rylan!! #edsawarenessmonth #ehlersdanlos #edsawareness
May 3, 2025 at 7:03 PM
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I try not to post too much about my EDS and how it affects me, but with it being #EDSAwareness Month I'm gonna be a little more transparent each day to hopefully highlight just how varied daily living can be with the condition 💜
So hi, I'm DeVi, a Vtuber with EDS 🦓 🤍🖤🤍🖤🤍
So hi, I'm DeVi, a Vtuber with EDS 🦓 🤍🖤🤍🖤🤍
May 3, 2025 at 5:26 PM
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We've got 22 Ways to Celebrate EDS Awareness Month in May! See if one or two suit you:
buff.ly/bhtQQQ2
#EDSAwareness #EDS #hEDS #Hypermobility #HSD #MedEd #Zebras #NEISvoid #Doctors #MedSky #Spoonies #EhlersDanlosSyndrome
buff.ly/bhtQQQ2
#EDSAwareness #EDS #hEDS #Hypermobility #HSD #MedEd #Zebras #NEISvoid #Doctors #MedSky #Spoonies #EhlersDanlosSyndrome
May 2, 2025 at 2:14 PM
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My WIP <3 I've already seen another wip too! #zebrastrongart #zebrastrong #eds #edsawareness #wip #indieartist #comics #webcomics #globalcomix #celestis
May 1, 2025 at 11:16 PM
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May is EDS and HSD Awareness Month!
🦓
Now more than ever, we need EDS and HSD awareness.
➖➖➖➖➖➖➖➖➖➖➖
#EDS #HSD #ChronicIllness #EhlersDanlosSyndrome #HypermobilitySyndromeDisorder #Zebras #Dazzle #ConnectiveTissue #EDSAwareness #HSDAwareness #MayIsEDSAwaresnessMonth
🦓
Now more than ever, we need EDS and HSD awareness.
➖➖➖➖➖➖➖➖➖➖➖
#EDS #HSD #ChronicIllness #EhlersDanlosSyndrome #HypermobilitySyndromeDisorder #Zebras #Dazzle #ConnectiveTissue #EDSAwareness #HSDAwareness #MayIsEDSAwaresnessMonth
May 1, 2025 at 4:43 PM
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