#CureCHM
LightNews LightNews
curechm.bsky.social
Welcome Mike McConnell, PhD, CRF’s new Chief Scientific Officer! Mike is a neuroscientist with expertise in stem cells, genomics & rare disease. He’ll help accelerate CHM research & keep our community informed.

#chiefscientificofficer #curechm
Welcome Mike McConnell, PhD, CRF’s New Chief Scientific Officer!
July 3, 2025 at 3:20 PM
curechm.bsky.social
Hear from Thomas Peterson, a longtime CRF supporter and CHM parent, as he reflects on his 2025 CRF International Conference experience and what the CRF community has meant to him over the years. #CureCHM

youtu.be/i0b2WUeHg68?...
Interview with Longtime Supporter & CHM Parent | 2025 CRF International Conference
YouTube video by Choroideremia Research Foundation - Cure CHM
youtu.be
July 18, 2025 at 5:58 PM
curechm.bsky.social
🎥 Intro to AI for CHMers — Presenter Shawn Keene breaks down AI in plain English & how it helps the blind/low vision community. Real-life examples, demos & even an AI-generated CHM song at 45:20!

#CureCHM #AIForGood #BlindTech

youtu.be/rtr9PfP7-B0?...
Intro to AI for CHMers: What It Is, How It Helps, and Why It’s Not Just for Techies
YouTube video by Choroideremia Research Foundation - Cure CHM
youtu.be
June 5, 2025 at 1:27 PM
curechm.bsky.social
Kevin Scott — a mental health counselor and member of the CHM community — shares his personal journey with choroideremia, the emotional impact of vision loss, and how support and mindset can make all the difference. #CureCHM

youtu.be/fVnznbd6hCo?...
Facing CHM with Resilience | 2025 CRF International Conference
YouTube video by Choroideremia Research Foundation - Cure CHM
youtu.be
July 18, 2025 at 6:16 PM
curechm.bsky.social
Choroideremia Research Foundation Launches Membership Drive Amid 25 Years of Progress and Community

Read the Full Press Release:
www.einpresswire.com/article/8333...

#CureCHM #MembershipDrive #25Years #CRF
Choroideremia Research Foundation Launches Membership Drive Amid 25 Years of Progress and Community
Join CRF’s 2025 Membership Drive and be part of 25 years of connection, progress, and purpose. Support CHM research and the global CHM community.
www.einpresswire.com
July 24, 2025 at 1:57 PM
curechm.bsky.social
CRF Research Spotlight: CHM Updates with Ben Shaberman
youtu.be/xIqQqvnlz3E?...
#CureCHM #Choroideremia #RareDisease #SavingSight
CRF Research Spotlight: CHM Updates with Ben Shaberman | 2025 CRF International Conference
YouTube video by Choroideremia Research Foundation - Cure CHM
youtu.be
September 25, 2025 at 5:45 PM
curechm.bsky.social
Huge thanks to Jess Thompson and his cardiac practice for sponsoring the Mesa Sprint Tri and sharing these great shots! Grateful for your support and for helping spread CHM awareness.

#TeamCHM #MesaSprintTri #CureCHM
Group photo of participants in Team CHM gear at the Mesa Sprint Tri Group of people holding curechm.org towels by the pool at the Mesa Sprint Tri
September 29, 2025 at 4:50 PM
curechm.bsky.social
H. Eric Hartman, CRF Director of Advocacy, interviews Dr. Sena Gocuk, OD, MPhil, PhD, Postdoctoral Research Fellow at the University of Melbourne, about her pioneering research on female carriers of choroideremia and how it affects women.
#ARVO2025 #CureCHM #VisionResearch

youtu.be/E0ub4Os5Nzo?...
How Choroideremia Affects Women: New Insights from ARVO 2025 #ARVO2025 #CureCHM #Choroideremia
YouTube video by Choroideremia Research Foundation - Cure CHM
youtu.be
May 22, 2025 at 2:23 AM
curechm.bsky.social
One week ‘til the 2025 CRF Conference! 🎉
June 25–28 | Radisson Blu, Mall of America

Science, support, youth events & more—don’t miss it!

📄 Schedule: www.curechm.org/wp-content/u...

#CRFConference2025 #CureCHM #CHMStrong
June 18, 2025 at 3:57 PM
curechm.bsky.social
Team CHM crushed the 2025 Marine Corps & NYC Marathons! Every mile raised awareness & support for CHM research—your dedication inspires us all. #TeamCHM #CureCHM
Picture collage of Team CHM runners at the 50th Marine Corps Marathon and TCS NYC Marathon.
November 4, 2025 at 9:34 PM
saveddaredevil.com
In honor of #GivingTuesday and #InternationalDisabilityDay, considering making a donation to any of the following charities + organizations supported by #SaveDaredevil and #Daredevil cast. Thank you 🤗!
➡️ @Sightsavers
➡️ @nyplheiskell
➡️ @fightblindness
➡️ @curechm
➡️ @AFB1921
November 23, 2024 at 9:51 AM
curechm.bsky.social
October 15th marks White Cane Safety Day—celebrating independence, mobility, and confidence for people with vision loss.

#WhiteCaneSafetyDay #Accessibility #CureCHM #VisionLossAwareness #Choroideremia
An image of a crosswalk with Cory MacDonald posing with his white cane. Text that says October 15, 2025 White Cane Safety Day. Celebrating independence, awareness, and mobility for people who are blind or visually impaired.
October 15, 2025 at 3:15 PM
curechm.bsky.social
Joanna, Matt, & Michelle took on the Alicante Marathon in Spain, & Joanna proudly sported her Team CHM shirt on race day! While this wasn’t a fundraiser, every moment of visibility helps raise awareness for choroideremia (CHM).

#teamchm #curechm #marathon #Alicante #choroideremia
Collage of three photos: a group photo of Joanna, Matt, and Michelle after the race; a mid-race photo of Joanna giving a thumbs-up; and a photo of her running in a blue Team CHM shirt.
December 4, 2025 at 4:20 PM
curechm.bsky.social
👋 Welcome to the Choroideremia Research Foundation!

We fund research, raise awareness, and support those affected by CHM, a rare inherited retinal disease that causes blindness.

Follow for updates, resources & ways to help!

#RareDisease #Choroideremia #BlindnessAwareness #GeneTherapy #CureCHM
May 21, 2025 at 3:45 PM
curechm.bsky.social
Kiora Pharmaceuticals just announced a $110M licensing deal with Japan-based Senju Pharmaceutical to develop and commercialize KIO-301, their optogenetics-based vision restoration program, across Asia.

www.newsfilecorp.com/release/2542...

#VisionResearch #RetinalDiseases #KIO301 #CureCHM
Kiora Pharmaceuticals and Senju Pharmaceutical Partner on KIO-301 for the Treatment of Retinal Diseases in Asia
Total potential deal value of $110 million plus royaltiesKiora to receive an immediate $1.25 million exclusive option feeIf the option...
www.newsfilecorp.com
June 3, 2025 at 5:59 PM
curechm.bsky.social
Tomorrow is GivingTuesday!

Your gift to CRF will be doubled up to $25K thanks to two generous donors.

Twice the impact. Twice the hope. Let’s do this.
curechm.salsalabs.org/givingtuesda...

#GivingTuesday #curechm #choroideremia
#GivingTuesday2025
GivingTuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world. Give to the Choroideremia Research Foundation this GivingTu...
curechm.salsalabs.org
December 1, 2025 at 3:56 PM
curechm.bsky.social
This past Saturday, Team CHM participated in the 12th Annual Million Dollar Bike Ride in Philadelphia to raise awareness and research funding for choroideremia (CHM).
@odc-upenn.bsky.social

#TeamCHM #MillionDollarBikeRide #RideForRare #CureCHM #CHMStrong #PennMDBR #PennMedMDBR2025
June 17, 2025 at 9:09 PM
curechm.bsky.social
🎉 Got a birthday coming up? Celebrate with purpose! Start a virtual fundraiser for the Choroideremia Research Foundation to support sight-saving research.

Facebook: www.facebook.com/fundraisers
CRF Page: curechm.salsalabs.org/p2p

#BirthdayFundraiser #CureCHM
Celebrate Your Birthday & Support Sight-Saving Research!
July 8, 2025 at 8:32 PM
curechm.bsky.social
Nutrition, Diet & Exercise for CHM Health with Dr. Katie Bales
youtu.be/AyYkzWy8J-8?...
#CureCHM #Choroideremia #RareDiseaseCommunity
Nutrition, Diet & Exercise for CHM Health with Dr. Katie Bales | 2025 CRF International Conference
YouTube video by Choroideremia Research Foundation - Cure CHM
youtu.be
September 25, 2025 at 8:21 PM
curechm.bsky.social
CHM 101 with Dr. Ian MacDonald
youtu.be/rj8EOfyf0KM?...

#CureCHM #Choroideremia #RareDisease #SavingSight #RetinaResearch #Ophthalmology
2025 CRF International Conference | CHM 101 with Dr. Ian MacDonald
YouTube video by Choroideremia Research Foundation - Cure CHM
youtu.be
September 18, 2025 at 3:52 PM
curechm.bsky.social
October is World Blindness Awareness Month! At the CRF, we are committed to helping those affected by choroideremia (CHM) through research, patient support, and community initiatives.

Support our mission: curechm.salsalabs.org/donate

#WorldBlindnessAwarenessMonth #CureCHM
Choroideremia Research Foundation Logo. Text: October is World Blindness Awareness Month Icons: Guide Dog, Eye, Blindness Awareness White Ribbon, White Cane
October 6, 2025 at 6:09 PM
curechm.bsky.social
Optogenetics with Dr. Raj Agrawal, Ray Therapeutics

youtu.be/bMpK4_pc2qI?...

#CureCHM #Choroideremia #RareDisease #SavingSight #RetinaResearch
2025 CRF International Conference | Optogenetics with Dr. Raj Agrawal, Ray Therapeutics
YouTube video by Choroideremia Research Foundation - Cure CHM
youtu.be
September 18, 2025 at 3:55 PM
curechm.bsky.social
Optogenetics with Dr. Eric Daniels, Kiora Pharmaceuticals

youtu.be/sFVdAyXXTOk?...

#CureCHM #Choroideremia #RareDisease #SavingSight #RetinaResearch
2025 CRF International Conference | Optogenetics with Dr. Eric Daniels, Kiora Pharmaceuticals
YouTube video by Choroideremia Research Foundation - Cure CHM
youtu.be
September 18, 2025 at 4:06 PM
curechm.bsky.social
Huge thanks to Michelle Holbrook & family for their CHM FUNdraiser #6! Amazing turnout, energy, & generosity supporting the CHM community. #CureCHM
Group of 30 people who attended the fundraiser to work out at Good Movement Studio in Park City, Utah. The group is standing outside with mountains in the background. Michelle, Damon, and Brixton Holbrook posing together by the juice and coffee station.
October 14, 2025 at 6:38 PM
curechm.bsky.social
⏳ Reminder: CRF 2025 Research Grant proposals due June 30!

Funding available for gene therapy, retinal degeneration & CHM research — including the prestigious Randy Wheelock Award.

Apply now: www.curechm.org/research/#fu...

#CureCHM #GeneTherapy #RetinalResearch #RareDisease
Research - Gene Trials and Evolving Therapies - CureCHM
CRF advances research on choroideremia (CHM) through gene therapy, DNA editing, and stem cell therapy. Join us in the fight for a cure.
www.curechm.org
June 9, 2025 at 2:34 PM