#5YearsLongCovid
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berlin-buyers-club.bsky.social
How long will people with Long COVID (& ME/CFS!!) have to wait until this public health emergency is taken seriously?

youtu.be/DTC9YcxHzSM?...

#LongCovidAwareness2025 #5YearsLongCOVID
#HalfADecadeOfNeglect
Five Years of Long COVID, Half A Decade of Neglect
YouTube video by Berlin Buyers Club
youtu.be
March 30, 2025 at 9:01 AM
mayalongcovid.bsky.social
More #PedroPascalPapers for #LongCovidAwarenessDay (a day late)

#MECFS #LongCovid #PEM #PostExertionalMalaise #OrthostaticIntolerance #POTS #IACC #GreatestMEdicalScandal #JohnVsJonVsME #PedroPascal #MedEd #5YearsLongCovid #FundThePlan #WearAMask #LongCovidResearch #LongCovidSOS #MillionsMissing
Pedro Pascal matched to ME/LongCovid research infographic Incidence and Prevalence of Post-COVID-19 Myalgic Encephalomyelitis J Gen Int Med, 2025 ME/CFS prevalence after COVID infection in this prospective study was found to be 4.5%, up from 0.2-1% general pre-pandemic levels. Post Exertional Malaise, the cardinal symptom of ME/CFS, was the most common and most debilitating symptom among those with Long Covid. Second most common symptoms were cognitive impairment & orthostatic intolerance. Pedro Pascal matched to ME/LongCovid research infographic Long COVID science, research and policy Nature, 2024 Several mechanistic pathways are implicated in Long COVID, including viral persistence, immune dysregulation, mitochondrial dysfunction, complement dysregulation, endothelial inflammation and microbiome dysbiosis. Manifestations of long COVID, including heart disease, diabetes, myalgic encephalomyelitis and dysautonomia are chronic conditions that last a lifetime. Only 7-10% are fully recovered at 2 years. Pedro Pascal matched to ME/LongCovid research infographic High proportions of post-exertional malaise and orthostatic intolerance in Post Covid Front Med, 2023 Exercise-based treatments can worsen/exacerbate symptoms in people who have post Covid post-exertional malaise (PEM) or orthostatic intolerance (Ol). While other studies found rates of Post Covid PEM to be as high as 82%, this study found rates of PEM to be 48% (women) 41% (men) and rates of orthostatic intolerance to be 29%/28% (women/men). Standard screenings of PEM & Ol is recommended to promote appropriate therapies. Pedro Pascal matched to ME/LongCovid research infographic Oxidative Stress is a shared characteristic of ME/CFS & Long Covid BioRxiv (Preprint), 2024 Analysis of intracellular pathways shows that both Long Covid & ME/CFS share signatures of elevated oxidative stress, specifically among lymphocytes, compared to healthy controls. This work pinpoints a potential targetable cellular mechanism, where these metabolic changes clearly affect lymphocyte activation. Findings showed sex-specific redox signatures in ME/CFS patients, suggesting pathophysiology is distinct between genders.
March 16, 2025 at 6:59 PM
postx.bsky.social
Live blog: International demonstrations ignite for Long COVID Awareness Day

#5YearsLongCovid #HalfADecadeOfNeglect
#LongCovidAwarenessDay2025
#SaltingtheVibes

thesicktimes.org/2025/03/15/i...
Berlin Mauerpark, Long COVID and ME Advocacy group Berlin Buyers held a demonstration. People wear masks and are holding signs in their hands
March 16, 2025 at 10:23 AM
chimonalisa.bsky.social
#5YearsLongCovid #HalfADecadeOfNeglect
I’ve been sick for 1120 days. How much longer?
March 16, 2025 at 8:55 AM
daniellebeckman.bsky.social
#LongCovidAwarenessDay2025
Amy on twitter: I've been 90-99% bedbound for nearly 3.5 years. People say "it's the vax" - I never got the vax. People say "it's laziness" - I used to be an athlete. No more excuses. We need help NOW. #5YearsLongCovid #HalfADecadeOfNeglect #LongCovidAwarenessDay2025
March 15, 2025 at 9:34 PM
longhaulerspodcast.bsky.social
"I'm disappointed in society and angry we're not protecting the children. I distrust the government and medical community. I'm treated as less than and have to bring my husband to appointments because I won't be believed."

#longcovid #longcovidawarenessday #covidlonghauler #5yearslongcovid
March 15, 2025 at 8:16 PM
longhaulerspodcast.bsky.social
"I didn't know I was at risk for long COVID until I got it because society doesn't talk about this. If I had known, I think I would have taken more precautions....

🧵 1/3

#longcovid #longcovidawareness
#longcovidawarenessday
#covidlonghauler #postcovid #5yearslongcovid
March 15, 2025 at 6:46 PM
ktins8.bsky.social
#LongCovidAwarenessDay2025 Demo in Berlin organisiert vom @berlin-buyers-club.bsky.social Club 🙏

#LongCovid = eine öffentliche Gesundheitskrise!!

#5YearsLongCovid #HalfADecadeOfNeglect
#MECFS #PAIS
March 15, 2025 at 6:13 PM
yvokk.bsky.social
It's #LongCovidAwarenessDay2025
5 years of a global pandemic, 3 years of #LongCovid #mecfs and a bunch of other diagnoses for me.💙
It's a different life and I feel like I woke up in a parallel universe.
Thanks Berlin Buyers Club for the signs! 🖤🤍💙
#5YearsLongCovid
#HalfADecadeOfNeglect
There are two pictures. The picture on top is black and white with a white woman with dark short hair lying in bed. On the bottom colorful photo is the same white woman with slightly longer hair wearing a blue headband and a bright red jacket. She smiles into the camera while standing next to a young girl whose face is hidden behind a heart. They are standing in front of a lake with mountains in the distance that are partly hidden behind clouds. Image description: A protest graphic for Long Covid Awareness Day 2025 made by Berlin Buyers Club. The text Still Sick Still Ignored Still Fighting Long Covid Awareness Day 2025 is in white and pink text on a black background. There is a smiley face in red with letter x for eyes and a zigzag style mouth suggesting the emoji is sick and tired. The small text Berlin Buyers Club is in the top left hand corner.
March 15, 2025 at 5:55 PM
ian-goodfellow.bsky.social
#5YearsLongCovid #HalfADecadeOfNeglect #LongCovidAwarenessDay2025
March 15, 2025 at 5:41 PM
elaudia.bsky.social
Fast 4 Jahre bin ich inzwischen krank mit LongCovid und #MECFS - ohne Besserung. Wir brauchen endlich ausreichend Forschung und medizinische Versorgung!

#longcovidawarenessday2025
#5yearslongcovid
#halfadecadeofneglect

@berlin-buyers-club.bsky.social
March 15, 2025 at 5:18 PM
pluizigeboterham.nl
Ik heb de redactie een uurtje terug ongeveer gemaild, maar ik ben te hard aan het crashen. Ik hoop echt dat ze het oppakken. Als iemand nog fut heeft: mail de nieuwsredacties alsjeblieft. Tag journalisten die je kent.

#NietHersteld #5JaarLongCovid #5YearsLongCovid #LongCovidAwarenessDay2025
March 15, 2025 at 4:17 PM
amandavmulligen.bsky.social
Mijn zoon - was 10 toen zijn #LongCovid begon. Is nu bijna 15.

#NietHersteld #5JaarLongCovid #5YearsLongCovid #HalfADecadeOfNeglect #LongCovidAwarenessDay2025
March 15, 2025 at 4:00 PM
alyssaaerinn.bsky.social
"We're not trying to make you aware of Long COVlD just so you care about us...we're trying to make you aware of it because we care about you, too." - Themme Fatale @bimbolaureate.bsky.social

That about sums it up for #LongCovidAwarenessDay #5YearsLongCovid
March 15, 2025 at 3:12 PM
hourlybreezing.ntw.app

Bluesky's Top 10 Trending Words from the Past 60 Minutes:
💨x1 - ukraine 🔓
💨x219 - 1﹐365
💨x1 - gaza 🔓
💨x89 - fuckaas
💨x54 - storer
💨x49 - imls
💨x47 - gnonto
💨x46 - 2025-03-15
💨x43 - wennemars
(tap to see all posts w/ the word! ANDROID: long-press©)

#ListenToBlackVoices
Word Cloud; its top words (sorted by weighted frequency, descending): ukraine, 1﹐365, gaza, fuckaas, storer, imls, gnonto, 2025-03-15, wennemars, joep, ides, sturgill, maoist, jorgenson, durchgeschaut, 3/15/2025, masto, bhutan, 2025/03/15, sebring, @sentimentbot.bsky.social, cottom, chimpanzee, @cortezmasto.senate.gov, 15/03/2025, stephens, qpr, cortez, tressie, interrogated, pedersen, imsa, bret, bompastor, 3/15/25, 2025#舞台けいどろファン同時再生2025, wanita, idus, schatz, ramazani, hudson's, hasegawa, cadres, zarco, tornadoes, schiri, manifestazione, handsoff2025.com?sqf_source=i, erben, bedbug, @shaheen.senate.gov, 250315, 15/03, krahl, kirsten, gillibrand, f-35s, babysitting, aaronson, @schatz.bsky.social, @kirstengillibrand.bsky.social, 2025/3/15, 03/15/2025, shaheen, sebuah, elversberg, durbin, dtp, deepsafe, brutus, auron, ai-original, @hassan.senate.gov, utara, preußen, kenderaan, juszczyk, gürtel, colostrum, caesaribus, burnin, bogle, @durbin.senate.gov, 15-mar-2025, skjelmose, rasool, meslier, mekhi, masern, mads, gripen, femshep, feculence, farke, eier, dscc, crew-10, belgrade, belgrad, @peters.senate.gov, 縮ん, ロングレッグス, ドジャース, wereldkampioen, tuapse, saab, pintt2, parijs-nice, paddy's, mjcca, jatuh, ibáñez, i-city, gladbach, gattaz, fuckass, encircled, d-pa, chimpanzees, chimp, caturday, caesar, burlingame, babysitter, arlington, @unnaxoficial.bsky.social, @claynobles.bsky.social, 4/21, 3/15, 1﹐366, 환경, 한계를, コテージ, グノーシア, オドロキ, wereldtitel, weizman, wanzen, vijaya, tsunoda, tkmr, tesler, supla, solstad, schaatsen, sarney, pfaff, peters, persekutuan, paderborn, ouachita, nyenget, morbidelli, morawiecki, menghala, maut, maoists, lebuh, jenning, jejambat, jeanmonnot, inama, hassan, genuíno, freakier, elmer's, elfer, ditemui, dipercayai, dilanggar, cdt, caesar's, bomb-sniffing, blinda, berkata, berhampiran, bagnaia, arah, ampadu, alam-seorang, abira, 2025年03月15日, 14s, 1000m, 협박플, 초록, 에너지, 시스템을, 로봇, 기존의, 개발, 生年月日, コンジアム, について#チ球の運動について, すくみ, ‭6, дуров, έργα, wollman, webpages Hashtag Cloud; its hashtagged words/phrases (sorted by weighted frequency, descending): caturday, blueskyartshow, sunlight, lufc, itavire, idesofmarch, f1, teslatakedown, 643, svwbmg, longcovidawarenessday, rugby, screenshotsaturday, parisnice, longcovid, askwxm, betze, sixnations, werder, 6nations, 377, softiesaturday, disney, longcovidawarenessday2025, fotovorschlag, fpl, theidesoftrump, scs, schumer, catsky, australiangp, veterans, saturday, motogp, stpatricksday, fcufcb, imsa, argentinagp, osndsc, idesoftrump, ausgp, 舞台, national, interregnum, bhafc, bbcaq, scpfck, sakamotodays, chuckschumer, breakingnews, aiart#aiart, 80s, wxmafc, wkafstanden, m05scf, fuckchuck, formula1, 5yearslongcovid, 야노, 암캐, niethersteld, network, dildo, belgrade, wpl, swasticar, softcocksaturday, serbia, lipsinasongormovie, 유부녀, tda25, showmeyourknits, mot, mcfc, march, kleinekunstklasse, hahohe, freespeech, foodsky, dcfcfans, dcfc, dance, couchpeloton, cfcw, aoc, weekkforkinetic, schaatsen, parkrun, mancity, macromarch, longcovidawareness, itaire, discord, cars, beyondthegates, 197, weekendsingles, subwaywlc, saturdayvibes, portugal, pafc, ohio, mowx, mcibha, m6n, kiff, gaychub, coybig, coyb, bush, blackbag, airport, 5jaarlongcovid, 암퇘지, 人外, weekendvibes, tirrenoadriatico, saintsfc, safc, protests, marchmadness, juliuscaesar, irish, happycaturday, hamar, golf, everton, e1503, boy, aewcollision, 15marzo, 1164, 조련, 육변기, 상납, 멜섭, write, worldbuilding, wetpussy, wet, vivelecanada, thewritewomen, starmer, stardom, spiritual, senate, sebring12, rwesgd, quotebot, paranormal, other, openrp, night, miqomarch, itavirl, international, indieauthors, humiliation, helpfolkslive2025, healthxph, dubai, doj, dandysworld, clipstudiopaint, boxoffice, bookwormsat, arkansas, 173, 16, 𝟐𝟎𝟐𝟓𝐗𝐚𝐝𝐫𝐞𝐳, 𝐒𝐞𝐦𝐀𝐧𝐢𝐬𝐭𝐢𝐚, 신상상납, 남존여비, 광대플, デュエマ, writinglife, wochenendohrwuermer, wba, utft, trfc, synthsky, svw, sunshine, stlwx, soul, smackdown, sleep, shadow, revpit, qprlee, qos, pusb, oufc, nation, moma, mathsconf37, horrorgames, holiday, freedomofspeech, evewhu Emoji Cloud; its emojis (sorted by weighted frequency, descending): 🪈, 📏, 🏉, 🚣, 📵, 🇷🇸, ☘️, 🪂, 🧙🏻‍♀️, 🧃, 🤴🏿, 🕧, 🕌, 🔚, 💺, 💁🏽‍♂️, 💁‍♂️, 👨🏻, 🏟, 🏄‍♂️, ⛴️, ◼, 🫛, 🫎, 🪝, 🧳, 🧞, 🧖🏽‍♀️, 🧒🏻, 🧑🏻‍🦱, 🧑‍🚀, 🧎‍♀️, 🦞, 🥾, 🥋, 🤸🏻‍♂️, 🤛🏾, 🤙🏻, 🤏🏽, 🛳️, 🛥️, 🛢️, 🚽, 🚶🏻‍♀️, 🚵, 🚴🏼, 🚴‍♂️, 🚴‍♀️, 🚴, 🚣‍♂️, 🙍‍♂️, 🙆🏻‍♀️, 🗡️, 🖐🏼, 🕣, 🕙, 📋, 💮, 💒, 💏, 💅🏿, 💃🏿, 💁🏼‍♀️, 👸🏽, 👸, 👷🏻‍♀️, 👶🏻, 👬, 👩‍🎨, 👨🏽‍💻, 👨‍👩‍👦‍👦, 👨‍🍳, 👨‍⚖️, 👦, 👐🏼, 👊🏾, 🏪, 🏨, 🏎, 🏊‍♀️, 🏃🏻‍♂️, 🏁, 🎺, 🎷, 🎳, 🍹, 🍱, 🌩️, 🇿🇲, 🇹🇿, 🇸🇲, 🇸🇪, 🇷🇴, 🇲🇲, 🇮🇹, 🇮🇪, 🇭🇺, 🇪🇹, 🇨🇾, 🇧🇻, 🇧🇬, 🇦🇺, 🆗, 〰️, ➖, ⛓, ⛑️, ☯, ☪️, ◀, Ⓜ️, ⏱️, ↙️, ↘, 0️⃣ Emoji Legend ⚠️💨# | "Trend Strength Rating" (deprecated; soon to be replaced by 💨x#, see below) 🔓 | "Unlocked" Ongoing Emergency Word (such words are not weighted down by their own previous usage; their *ongoing* increased usage--weeks, months, years--would otherwise move them down the list.) [NOT YET IMPLEMENTED] 💨x# | "Increased Trending Rate" for a Word (meaningful value; "💨x8 - burger" will mean "burger" is trending at 8 times its own normal rate for this time of day) [PREVIOUSLY USED] ⚠️🌀💨 | "Trend Strength Rating" (see above) ⚠️🌀 CAT. # | [same; "CAT." = Category, like hurricane] 💬# | 10min Post Count 🆎# | 10min Word Count 🙂# | 10min Emoji Count
March 15, 2025 at 3:03 PM
naturethinking.de
Ich bin jetzt seit 1076 Tagen krank, 1076 Tage #LongCOVID, 1076 Tage Dauerschmerzen, 1076 Tage für immer verloren, gefangen im eigenen Körper, in Isolationshaft.
Wie viele #LongCovidAwarenessDay braucht es noch bis die Politik ambitioniert handelt?

#5YearsLongCovid #HalfADecadeOfNeglect
March 15, 2025 at 2:59 PM
bekhonl.bsky.social
#NietHersteld
#5JaarLongCovid
#5YearsLongCovid
#LongCovidAwarenessDay2025
March 15, 2025 at 2:55 PM
safkempers.bsky.social
#NietHersteld #5jaarLongCovid #5YearsLongCovid #LongCovidAwarenessDay2025

Het maken van deze post kost mij een week aan energie. Als de politiek en de gezondheidszorg 50 jaar geleden PAIS patiënten hadden geloofd, was dit niet nodig geweest. Dan was ik waarschijnlijk minder ziek geweest,
Persoon (ik) met kort, blond haar ligt in bed met bloemetjesdekbed. Houdt bord vast met tekst 'ik ben ziek, ik zou niet moeten hoeven protesteren!'
March 15, 2025 at 2:54 PM
longhaulerspodcast.bsky.social
We cover important topics like:
- Diagnosis & Medical Care
- Work & school
- Impact on social life
- Support resources & communities
- Advocacy & awareness

#longcovid #covidlonghauler #5yearslongcovid
#halfadecadeofneglect #longcovidawarenessday
#curelongcovidnow #longcovidmakesusone #ilcad2025
March 15, 2025 at 2:53 PM
longhaulerspodcast.bsky.social
Happy #LongCovidAwarenessDay2025! We have a very special episode today w/ multiple guests, sharing our survey results! 🧵

open.spotify.com/episode/5qwV...

#longcovid #covidlonghauler #5yearslongcovid
#halfadecadeofneglect #longcovidawarenessday
#curelongcovidnow #longcovidmakesusone #ilcad2025
Episode 7 - Long Covid Awareness Day: Voices from our Community Five Years In by Covid Longhaulers Podcast
In this special episode of the COVID Longhaulers Podcast, Emerson and Jessie mark Long Covid Awareness Day by diving deep into the realities of living with Long Covid five years into the pandemic. The...
creators.spotify.com
March 15, 2025 at 2:53 PM
bekhonl.bsky.social
#NietHersteld
#5JaarLongCovid
#5YearsLongCovid
#LongCovidAwarenessDay2025
Persoon met jas waarop A4 hangt met text 5jr LC
March 15, 2025 at 2:49 PM
fiffanyrage.bsky.social
I wrote them a love letter:

Cuties,

I love the fuck out of all of you & don’t want you to end up like me ❤️ Listen to the disabled historians about what’s coming for us & the connection between viruses, eugenics, & fascism.

Also please fucking mask 😷
-Fiffany

#saltingthevibes
#5YearsLongCovid
March 15, 2025 at 2:41 PM
fiffanyrage.bsky.social
Oh hey everyone, I don’t talk about it often but I got sick in March 2020 & never got better. I honestly don’t want to say more right now because the fact that I have been nearly bed ridden for 5 years hurts my heart so much. I’ve done so much grieving,

#5YearsLongCovid
#LongCovidAwarnessDay2025
March 15, 2025 at 2:41 PM
sanverv.bsky.social
Van de 5 jaar ben ik 'pas' 2 jaar de sjaak.

#NietHersteld
#5YearsLongCovid
#LongCovidAwarenessDay2025
Ik lig met een A4 op mijn borst en gezicht. "Ik MIS (concerten zingen vrijen klussen koken tuinieren, reizen, tafelen met veel, spontaniteit ) MIJ
March 15, 2025 at 2:35 PM
bekhonl.bsky.social
#NietHersteld
#5JaarLongCovid
#5YearsLongCovid
#LongCovidAwarenessDay2025
March 15, 2025 at 2:30 PM