@wheelieoutthere.bsky.social
MS support at https://themighty.com/topic/multiple-sclerosis/ Writer/reporter on disability issues. More machine than man now — twisted and evil.
For all your MS-related questions,
MS Navigators 800-344-4867
email [email protected]
or live online at www.nationalmssociety.org/resources/get-support/ms-navigator
#MultipleSclerosis #newlydiagnosed #disability #caregiving
MS Navigators 800-344-4867
email [email protected]
or live online at www.nationalmssociety.org/resources/get-support/ms-navigator
#MultipleSclerosis #newlydiagnosed #disability #caregiving
December 15, 2025 at 2:59 AM
For all your MS-related questions,
MS Navigators 800-344-4867
email [email protected]
or live online at www.nationalmssociety.org/resources/get-support/ms-navigator
#MultipleSclerosis #newlydiagnosed #disability #caregiving
MS Navigators 800-344-4867
email [email protected]
or live online at www.nationalmssociety.org/resources/get-support/ms-navigator
#MultipleSclerosis #newlydiagnosed #disability #caregiving
Favorite son of Danville, Illinois.
A very happy 100th birthday to the legendary and supremely talented Dick Van Dyke. 💙
December 13, 2025 at 3:58 PM
Favorite son of Danville, Illinois.
Illness & #disability -- and #caregiving -- come to ALL families. What are we doing, individually and as a people/govt., to support #caregivers ?
A few weeks ago, my dad was diagnosed with Alzheimer’s. I won’t lie—it's been incredibly challenging for me and my family.
Now, I’m embarking on a journey to answer the questions so many of us face when it comes to providing care for our loved ones.
I hope you’ll join me.
Now, I’m embarking on a journey to answer the questions so many of us face when it comes to providing care for our loved ones.
I hope you’ll join me.
My Dad’s Alzheimer’s Diagnosis and Becoming a Caregiver
YouTube video by Senator Andy Kim
youtu.be
December 13, 2025 at 1:02 AM
Illness & #disability -- and #caregiving -- come to ALL families. What are we doing, individually and as a people/govt., to support #caregivers ?
Sen. Kim and family are among the 63 million family caregivers in the U.S. #caregiving #disability
press.aarp.org/2025-07-24-N...
press.aarp.org/2025-07-24-N...
December 13, 2025 at 12:55 AM
Sen. Kim and family are among the 63 million family caregivers in the U.S. #caregiving #disability
press.aarp.org/2025-07-24-N...
press.aarp.org/2025-07-24-N...
"It’s scary when you’re newly diagnosed &...don’t know where the disease is going to take you,” says Christine Stark, an MS Navigator for 8 yrs. "People might feel overwhelmed..., not knowing where to begin....That’s where we can really help."
#MultipleSclerosis Navigators: 800-344-4867
(cont.)
#MultipleSclerosis Navigators: 800-344-4867
(cont.)
December 13, 2025 at 12:37 AM
"It’s scary when you’re newly diagnosed &...don’t know where the disease is going to take you,” says Christine Stark, an MS Navigator for 8 yrs. "People might feel overwhelmed..., not knowing where to begin....That’s where we can really help."
#MultipleSclerosis Navigators: 800-344-4867
(cont.)
#MultipleSclerosis Navigators: 800-344-4867
(cont.)
Sluggo n me like older women.
HOPE YOU ARE ENJOYING THE COMIC STRIPS, AND I APPRECIATE EVERYONE HERE.
December 11, 2025 at 5:25 PM
Sluggo n me like older women.
My knee used to tremor like the engine knock that cars get in winter.
Sit down —> engine knock
Cross my legs —> engine knock
Sneeze —> engine knock
#MultipleSclerosis #disability
Sit down —> engine knock
Cross my legs —> engine knock
Sneeze —> engine knock
#MultipleSclerosis #disability
#MS
It's hard for me to actually catch a #tremor in the moment.
My hands don't always do this, so I can still draw most days. Sometimes #disability does stop you. It's why I give myself grace and don't push myself to draw bigger pieces.
Thank you for being here to see what I CAN do!
#artist #artsky
It's hard for me to actually catch a #tremor in the moment.
My hands don't always do this, so I can still draw most days. Sometimes #disability does stop you. It's why I give myself grace and don't push myself to draw bigger pieces.
Thank you for being here to see what I CAN do!
#artist #artsky
December 10, 2025 at 5:53 PM
My knee used to tremor like the engine knock that cars get in winter.
Sit down —> engine knock
Cross my legs —> engine knock
Sneeze —> engine knock
#MultipleSclerosis #disability
Sit down —> engine knock
Cross my legs —> engine knock
Sneeze —> engine knock
#MultipleSclerosis #disability
I came across *the* example I have been hammering with these food delivery robots.
A man with a mobility aid is forced to step aside because there is not room for him because the robot will not make room for a person (esp. those with a mobility aid who need addditional room)
A man with a mobility aid is forced to step aside because there is not room for him because the robot will not make room for a person (esp. those with a mobility aid who need addditional room)
December 9, 2025 at 2:26 PM
Look, no hands!
Here's me playing pinball for the first time in 40 yrs, thanks to @projectpinball.bsky.social & #HexaPinball
Read about the world of accessible pinball, & those making #pinballforall
A fun day at the office, for sure!
#NewMobility #disability #MultipleSclerosis #InclusiveGameWerks
Here's me playing pinball for the first time in 40 yrs, thanks to @projectpinball.bsky.social & #HexaPinball
Read about the world of accessible pinball, & those making #pinballforall
A fun day at the office, for sure!
#NewMobility #disability #MultipleSclerosis #InclusiveGameWerks
Flipping Accessible: The People and Devices Tilting Pinball Toward Access
When I was an arcade rat in the 1980s, my idea of heaven looked just like what I discovered when I attended the 41st Annual Pinball Expo this October in Schaumburg, Illinois, outside of Chicago: a…
newmobility.com
December 9, 2025 at 12:31 PM
Look, no hands!
Here's me playing pinball for the first time in 40 yrs, thanks to @projectpinball.bsky.social & #HexaPinball
Read about the world of accessible pinball, & those making #pinballforall
A fun day at the office, for sure!
#NewMobility #disability #MultipleSclerosis #InclusiveGameWerks
Here's me playing pinball for the first time in 40 yrs, thanks to @projectpinball.bsky.social & #HexaPinball
Read about the world of accessible pinball, & those making #pinballforall
A fun day at the office, for sure!
#NewMobility #disability #MultipleSclerosis #InclusiveGameWerks
Info on MS & symptoms, how to manage & live well with MS. Ask your questions, share your experiences with others.
Register at engage.nationalmssociety.org/new_to_ms_december_2025_virtual
#MultipleSclerosis #newlydiagnosed #disability #caregiving #autoimmune
Register at engage.nationalmssociety.org/new_to_ms_december_2025_virtual
#MultipleSclerosis #newlydiagnosed #disability #caregiving #autoimmune
December 8, 2025 at 8:35 PM
Info on MS & symptoms, how to manage & live well with MS. Ask your questions, share your experiences with others.
Register at engage.nationalmssociety.org/new_to_ms_december_2025_virtual
#MultipleSclerosis #newlydiagnosed #disability #caregiving #autoimmune
Register at engage.nationalmssociety.org/new_to_ms_december_2025_virtual
#MultipleSclerosis #newlydiagnosed #disability #caregiving #autoimmune
December 6, 2025 at 8:01 PM
Reposted
I also meet a lot of active, happy, engaged seniors. I love asking them what their secret is, and it's always two things:
1: Stay moving. At a certain you either stretch or walk daily or you can't move. Start NOW.
2: Sometimes to care about. Garden. Grandkids. Pets. Doesn't matter.
1: Stay moving. At a certain you either stretch or walk daily or you can't move. Start NOW.
2: Sometimes to care about. Garden. Grandkids. Pets. Doesn't matter.
December 5, 2025 at 1:53 PM
I also meet a lot of active, happy, engaged seniors. I love asking them what their secret is, and it's always two things:
1: Stay moving. At a certain you either stretch or walk daily or you can't move. Start NOW.
2: Sometimes to care about. Garden. Grandkids. Pets. Doesn't matter.
1: Stay moving. At a certain you either stretch or walk daily or you can't move. Start NOW.
2: Sometimes to care about. Garden. Grandkids. Pets. Doesn't matter.
This is what I feel under the night skies, though I don't have the words. #stargazing #supermoon #astronomy
"Be praised, my Lord, through Sister Moon & the stars: In the heavens you have made them, precious & beautiful."
~ Saint Francis of Assisi
"Canticle of the Sun" (1225)
#EveningPrayer #Compline #Supermoon
~ Saint Francis of Assisi
"Canticle of the Sun" (1225)
#EveningPrayer #Compline #Supermoon
December 5, 2025 at 10:44 PM
This is what I feel under the night skies, though I don't have the words. #stargazing #supermoon #astronomy
Feeling deflated after her dx, doctors & bills, Sarah Quezada found her groove again -- as an #MultipleSclerosis advocate. And learned she's good at it!
"It helps my self-esteem. It helps me feel like ... I’m fighting for all of us."
Right now, her focus is on affordable healthcare.
#disability
"It helps my self-esteem. It helps me feel like ... I’m fighting for all of us."
Right now, her focus is on affordable healthcare.
#disability
December 4, 2025 at 9:54 PM
Feeling deflated after her dx, doctors & bills, Sarah Quezada found her groove again -- as an #MultipleSclerosis advocate. And learned she's good at it!
"It helps my self-esteem. It helps me feel like ... I’m fighting for all of us."
Right now, her focus is on affordable healthcare.
#disability
"It helps my self-esteem. It helps me feel like ... I’m fighting for all of us."
Right now, her focus is on affordable healthcare.
#disability
Leading #disability mag New Mobility is fundraising to return to print. "We’ve heard from rehab facilities, community leaders[,] advocates and many others about the hole not having print has left."
One reader lives in jail—NM issues were his only contact w other PWDs.
Please support if you can :)
One reader lives in jail—NM issues were his only contact w other PWDs.
Please support if you can :)
Bring Back New Mobility Print!
Support NM’s fundraising drive today and sustain authentic disability storytelling.
givebutter.com
December 3, 2025 at 5:48 AM
Leading #disability mag New Mobility is fundraising to return to print. "We’ve heard from rehab facilities, community leaders[,] advocates and many others about the hole not having print has left."
One reader lives in jail—NM issues were his only contact w other PWDs.
Please support if you can :)
One reader lives in jail—NM issues were his only contact w other PWDs.
Please support if you can :)
How does spirituality help you cope w #MultipleSclerosis or chronic illness?
Thurs. 12/4/25 12PM ET, MS Society's Ask an MS Expert looks at spirituality's effect on living w MS.
nationalmssociety.org/how-you-can-help/get-involved/calendar-of-all-programs-and-events/ask-an-ms-expert-december-4-2025
Thurs. 12/4/25 12PM ET, MS Society's Ask an MS Expert looks at spirituality's effect on living w MS.
nationalmssociety.org/how-you-can-help/get-involved/calendar-of-all-programs-and-events/ask-an-ms-expert-december-4-2025
December 2, 2025 at 5:54 PM
How does spirituality help you cope w #MultipleSclerosis or chronic illness?
Thurs. 12/4/25 12PM ET, MS Society's Ask an MS Expert looks at spirituality's effect on living w MS.
nationalmssociety.org/how-you-can-help/get-involved/calendar-of-all-programs-and-events/ask-an-ms-expert-december-4-2025
Thurs. 12/4/25 12PM ET, MS Society's Ask an MS Expert looks at spirituality's effect on living w MS.
nationalmssociety.org/how-you-can-help/get-involved/calendar-of-all-programs-and-events/ask-an-ms-expert-december-4-2025
Reposted
Born on this day – Richard Pryor,
Actor, Comedian,
December 1, 1940 – December 10, 2005
Diagnosed with Multiple Sclerosis (MS) in August 1986.
#MultipleSclerosis #MS
Actor, Comedian,
December 1, 1940 – December 10, 2005
Diagnosed with Multiple Sclerosis (MS) in August 1986.
#MultipleSclerosis #MS
December 1, 2025 at 2:21 PM
Born on this day – Richard Pryor,
Actor, Comedian,
December 1, 1940 – December 10, 2005
Diagnosed with Multiple Sclerosis (MS) in August 1986.
#MultipleSclerosis #MS
Actor, Comedian,
December 1, 1940 – December 10, 2005
Diagnosed with Multiple Sclerosis (MS) in August 1986.
#MultipleSclerosis #MS
Caring for Others = Caring for Self
Usually, the demands on family caregivers' time leave them no time for self-care. On this last day of Natl Family Caregivers Month, here are resources for caregivers from caregivers. www.caregiver.org/caregiver-resources/
#caregiving #MultipleSclerosis #disability
Usually, the demands on family caregivers' time leave them no time for self-care. On this last day of Natl Family Caregivers Month, here are resources for caregivers from caregivers. www.caregiver.org/caregiver-resources/
#caregiving #MultipleSclerosis #disability
November 30, 2025 at 9:42 PM
Caring for Others = Caring for Self
Usually, the demands on family caregivers' time leave them no time for self-care. On this last day of Natl Family Caregivers Month, here are resources for caregivers from caregivers. www.caregiver.org/caregiver-resources/
#caregiving #MultipleSclerosis #disability
Usually, the demands on family caregivers' time leave them no time for self-care. On this last day of Natl Family Caregivers Month, here are resources for caregivers from caregivers. www.caregiver.org/caregiver-resources/
#caregiving #MultipleSclerosis #disability
Practicing gratitude can be a healing, empowering form of self-care, says psych prof Robert Emmons, UC–Davis.
"Gratitude has...power to energize,” he writes.“In the face of brokenness, gratitude has the power to heal. In the face of despair, gratitude has the power to bring hope.” #MultipleSclerosis
"Gratitude has...power to energize,” he writes.“In the face of brokenness, gratitude has the power to heal. In the face of despair, gratitude has the power to bring hope.” #MultipleSclerosis
November 29, 2025 at 9:35 PM
Practicing gratitude can be a healing, empowering form of self-care, says psych prof Robert Emmons, UC–Davis.
"Gratitude has...power to energize,” he writes.“In the face of brokenness, gratitude has the power to heal. In the face of despair, gratitude has the power to bring hope.” #MultipleSclerosis
"Gratitude has...power to energize,” he writes.“In the face of brokenness, gratitude has the power to heal. In the face of despair, gratitude has the power to bring hope.” #MultipleSclerosis
What is your passionate hobby or interest that helps you while living w #MultipleSclerosis ?
"Never underestimate the power of believing in yourself and having the courage to give things a go. Now, to find an agent for my novels,” says Sharon Hier, whose short stories are winning awards & notice.
"Never underestimate the power of believing in yourself and having the courage to give things a go. Now, to find an agent for my novels,” says Sharon Hier, whose short stories are winning awards & notice.
Award success for Welsh writer with MS
A south Wales woman who lives with Multiple Sclerosis (MS) is celebrating her writing success after her short story won the Oxford Flash Fiction Prize’s New Voice Award and was selected for publicatio...
nation.cymru
November 24, 2025 at 6:02 PM
What is your passionate hobby or interest that helps you while living w #MultipleSclerosis ?
"Never underestimate the power of believing in yourself and having the courage to give things a go. Now, to find an agent for my novels,” says Sharon Hier, whose short stories are winning awards & notice.
"Never underestimate the power of believing in yourself and having the courage to give things a go. Now, to find an agent for my novels,” says Sharon Hier, whose short stories are winning awards & notice.
Yesterday I choked on a piece of water!
I was never in any danger, but couldn't clear my throat for 45 min. Afterward, I was zonked!
Eating & swallowing difficulties, called dysphagia, are common in those w #MultipleSclerosis. Therapy & mindfulness helped me.
Hydrate safely, my friends. #disability
I was never in any danger, but couldn't clear my throat for 45 min. Afterward, I was zonked!
Eating & swallowing difficulties, called dysphagia, are common in those w #MultipleSclerosis. Therapy & mindfulness helped me.
Hydrate safely, my friends. #disability
November 22, 2025 at 3:29 PM
Yesterday I choked on a piece of water!
I was never in any danger, but couldn't clear my throat for 45 min. Afterward, I was zonked!
Eating & swallowing difficulties, called dysphagia, are common in those w #MultipleSclerosis. Therapy & mindfulness helped me.
Hydrate safely, my friends. #disability
I was never in any danger, but couldn't clear my throat for 45 min. Afterward, I was zonked!
Eating & swallowing difficulties, called dysphagia, are common in those w #MultipleSclerosis. Therapy & mindfulness helped me.
Hydrate safely, my friends. #disability
The only issue...unanimously supported when I’m knocking on doors is that our healthcare system is broken. Yet there is a complete disconnect w individuals not realizing how going to the ballotbox & voting is directly related to their healthcare options. - IA Rep. Josh Turek, running for U.S. Senate
November 22, 2025 at 2:31 PM
The only issue...unanimously supported when I’m knocking on doors is that our healthcare system is broken. Yet there is a complete disconnect w individuals not realizing how going to the ballotbox & voting is directly related to their healthcare options. - IA Rep. Josh Turek, running for U.S. Senate
Reposted
Tonight 7 PM ET, Virtual Caregiver Support Group
3rd Thursday of each month at 7-8 p.m. ET
Contact: Judy, [email protected]
from the #MultipleSclerosis Society
#ChronicIllness #NewlyDiagnosed #Disability
3rd Thursday of each month at 7-8 p.m. ET
Contact: Judy, [email protected]
from the #MultipleSclerosis Society
#ChronicIllness #NewlyDiagnosed #Disability
November 20, 2025 at 10:23 PM
Tonight 7 PM ET, Virtual Caregiver Support Group
3rd Thursday of each month at 7-8 p.m. ET
Contact: Judy, [email protected]
from the #MultipleSclerosis Society
#ChronicIllness #NewlyDiagnosed #Disability
3rd Thursday of each month at 7-8 p.m. ET
Contact: Judy, [email protected]
from the #MultipleSclerosis Society
#ChronicIllness #NewlyDiagnosed #Disability
To manage #MultipleSclerosis, country star Clay Walker feels improvement using a small muscle-relaxant implant. Dxed w RRMS in 1996, Walker uses the baclofen pump to fight spasticity that causes fatigue, pain & tightness.
The 56yo said, “Am I walking perfect? No. Am I walking better? Absolutely."
The 56yo said, “Am I walking perfect? No. Am I walking better? Absolutely."
November 19, 2025 at 12:30 AM
To manage #MultipleSclerosis, country star Clay Walker feels improvement using a small muscle-relaxant implant. Dxed w RRMS in 1996, Walker uses the baclofen pump to fight spasticity that causes fatigue, pain & tightness.
The 56yo said, “Am I walking perfect? No. Am I walking better? Absolutely."
The 56yo said, “Am I walking perfect? No. Am I walking better? Absolutely."