VoiceForIBD
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voiceforibd.bsky.social
VoiceForIBD
@voiceforibd.bsky.social
160 followers 110 following 120 posts
IBD Patient Advocate💜🧬
Hispanic/Latina🇵🇪🇺🇸
Crohn’s & Colitis Foundation National Board of Trustees
#CrohnsDisease & #UlcerativeColitis🦠
Committed To Finding A Cure🔬🧬
Posts Replies Media Videos
voiceforibd.bsky.social
IBD looks like strength, resilience & HOPE💛IBD looks like all of us…showing up, speaking up & believing in what’s possible. Hope lives here. And we’re just getting started. La esperanza también vive aquí y lo mejor todavía está por venir #IBDLooksLike #CCAwarenessWeek
@crohnscolitisfdn.bsky.social
December 7, 2025 at 10:24 PM
voiceforibd.bsky.social
#IBDLooksLike advocacy📣 Because raising our voices is how we create change - for ourselves, for our communities & for the future of IBD care👊🏼 Watch below to see what my advocacy looks like 👇🏼 @crohnscolitisfdn.bsky.social
December 7, 2025 at 3:22 AM
voiceforibd.bsky.social
IBD looks like community. Because none of us should navigate this disease alone. On day 4 of Crohn’s & Colitis Awareness Week, I’m sharing glimpses into the power of #IBD community in my journey. #IBDLooksLike community…together we are stronger 💪🏼 🤍

@crohnscolitisfdn.bsky.social
December 5, 2025 at 4:22 PM
voiceforibd.bsky.social
#IBD looks like more than anyone realizes 👀 It’s the complications that show up beyond the digestive system or #extraintestinal manifestations😔This Awareness Week, I’m sharing what #IBDLooksLike so more patients feel seen & clinicians understand the full picture #EIMs
@crohnscolitisfdn.bsky.social
December 4, 2025 at 7:44 PM
voiceforibd.bsky.social
IBD Looks Like Strength You Don’t See. Most people don’t see what living with IBD really looks like. We carry so much…quietly😔 #IBD looks like me🙋🏻‍♀️It looks like you🫵🏼 It looks like millions of us doing our best every single day🙌🏼

🔗Awareness Week: bit.ly/CrohnsColiti...

@crohnscolitisfdn.bsky.social
December 3, 2025 at 4:27 PM
voiceforibd.bsky.social
As a Social Media Ambassador & National Board of Trustees member for the @crohnscolitisfdn.bsky.social I’m sharing what #IBDLooksLike 🙋🏻‍♀️But #IBD isn’t one story…it’s millions around the 🌍

Share your story w/#IBDLooksLike & donate $50+ to get the 2025 Awareness 👕

🔗 bit.ly/2025CCAWShirt
December 2, 2025 at 3:34 PM
voiceforibd.bsky.social
Crohn’s & Colitis Awareness Week runs from Dec 1st-Dec 7th🗓️

To kick things off, I want to highlight a powerful free resource from the @crohnscolitisfdn.bsky.social - the 🆓 Real Life with IBD Guide🗒️ designed to help patients navigate realities of #IBD

DOWNLOAD 🔗 bit.ly/CrohnsColiti...
December 1, 2025 at 4:07 PM
voiceforibd.bsky.social
The IBD Social Circle recently released a white paper on the “Power of Community” in #IBD If you’ll be at #AIBD and/or already live in Orlando, join us next Sat, Dec. 6, for a live panel discussion on key topics from the white paper 📄 RSVP to 📧 [email protected]
November 29, 2025 at 5:20 PM
voiceforibd.bsky.social
Extraintestinal manifestations can appear before an #IBD diagnosis & are underrecognized in #Hispanic #Latino patients. I moderated a @crohnscolitisfdn.bsky.social
webinar w/Latina GIs Dr. Priscila Santiago & Dr. Sandra Quezada who shared insights on #IBD & #EIMs

Watch 👇🏼
🔗 bit.ly/HoraDeComuni...
November 24, 2025 at 3:49 PM
voiceforibd.bsky.social
Join the @crohnscolitisfdn.bsky.social & Team Challenge OC on Sat, 12/20 @ the Great Park as we walk OR run the Run for a Claus 5K🎅🏼We're an official charity team so you can register w/a discount & fundraise for #IBD cures💙 Connect with your local OC #IBD community!

REGISTER: bit.ly/RunForAClaus...
November 7, 2025 at 10:03 PM
voiceforibd.bsky.social
The heaviest #IBD symptoms aren’t always visible - #anxiety #fatigue #fear💜 Support & self-care matter👊🏼

Los síntomas más pesados de la #EII no siempre se ven - #ansiedad #cansancio #miedo 💜 El apoyo y el autocuidado importan👊🏼

#HispanicHeritageMonth #MentalHealth
#SaludMental
October 14, 2025 at 2:47 PM
voiceforibd.bsky.social
During #HispanicHeritageMonth I want all #Hispanic #Latino #IBD patients to know we offer a Spanish speaking virtual support group. Durante el Mes de la Herencia Hispana, quiero que todos los pacientes hispanohablantes con la #EII sepan que ofrecemos un grupo de apoyo EN ESPAÑOL.
October 13, 2025 at 2:53 PM
voiceforibd.bsky.social
Did you know #IBD doesn't just affect your gut? #Fatigue #Anemia & eye inflammation #Uveitis are extraintestinal manifestations or #ElMs that often go unnoticed. Early recognition can make a difference.

Watch my latest reel 👇🏼 & join the #EIM webinar Tues, 10/7! bit.ly/CommunityHou...
October 6, 2025 at 2:59 PM
voiceforibd.bsky.social
Supporting & celebrating all ostomates today on World Ostomy Day🥳Apoyando y celebrando a todos los ostomizados hoy en el Día Mundial de la Ostomía 🥳 #WorldOstomyDay2025
#WorldOstomyDay #OstomyLife

@uoaa-ostomy.bsky.social
@crohnscolitisfdn.bsky.social
October 4, 2025 at 9:30 PM
voiceforibd.bsky.social
Oct. 1 is National Latino Physician Day! While Latinos make up 19% of the 🇺🇸 population, only 6% of physicians identify as Latino/a 🤔Today, I share a heartfelt letter to all Latino physicians on behalf of the American Board of Internal Medicine(ABIM) @abimcert.bsky.social

Read 🗒️ 👉🏼 bit.ly/3Y9oc7C
October 1, 2025 at 1:56 PM
voiceforibd.bsky.social
Honored to join @amergastroassn.bsky.social for #AGAAdvocacyDay on Capitol Hill 🏛️

100+ GIs 🥼➕ 20 patient advocates = 100+ meetings in 30 states!

Our message ⬇️

✂️Cut prior auth burdens
🛡️Protect NIH research
💪🏼Strengthen Medicare reimbursement

Patient voices matter more than ever 👊🏼
September 28, 2025 at 2:49 PM
voiceforibd.bsky.social
During Hispanic Heritage Month, join the @crohnscolitisfdn.bsky.social for a 🆓 webinar re: IBD Extra-Intestinal Manifestations or EIMs in #Hispanic #Latino #IBD patients

📅 Tues, 10/7
⏰ 4 PT · 6 CT · 7 ET
💻 In English w/ Spanish captions
🔗 Register: bit.ly/CommunityHou...
September 22, 2025 at 7:49 PM
voiceforibd.bsky.social
My first in-person Day On The Hill with the @crohnscolitisfdn.bsky.social was powerful💙

60 advocates, 22 states, 75 meetings 🤯

All to make sure #IBD voices are impossible to ignore. Grateful, empowered & more determined than ever to keep raising my voice🗣️

#IBDinDC #IBDDayOnTheHill
September 21, 2025 at 4:01 PM
voiceforibd.bsky.social
Still inspired by the inaugural @cedarssinai.bsky.social #IBD & Women’s Health Conf.💜Honored to share my #Crohns patient journey & learn from sessions on #fertility #pregnancy #genetics #nutrition #microbiome etc. Grateful to Cedars-Sinai, Dr. Abreu, Dr. Khanna & all presenters 🙏🏼
September 20, 2025 at 4:02 PM
voiceforibd.bsky.social
#HispanicHeritageMonth is here 🌎💜 #IBD affects more than digestion. It impacts #nutrition #culture & #family. This month I’ll be sharing new content Más Allá del Intestino: Salud y Resiliencia Latina or Beyond the Intestine: Latino Health & Resilience 👀 Watch and learn…
September 15, 2025 at 2:57 PM
voiceforibd.bsky.social
Protein is power, but which ones are recommended for #IBD patients? In this new video from the @crohnscolitisfdn.bsky.social , I asked a gastroenterologist & a registered dietitian for their guidance on proteins for #Crohns & #UC patients. Watch the full video on YouTube 🎥
bit.ly/IBDandProtein
September 10, 2025 at 3:06 PM
voiceforibd.bsky.social
In this new video from the @crohnscolitisfdn.bsky.social I join a gastroenterologist & a registered dietitian to discuss practical tips for dining out while living with IBD 🍽️

Watch the full video on YouTube 🎥 bit.ly/EatingOutWit...
September 5, 2025 at 3:08 PM
voiceforibd.bsky.social
🧠 GI Psychology is enrolling for an 8-week virtual #IBD #psychotherapy group for adults living w/ #Crohns or #ulcerativecolitis - combining #CBT & gut-directed #hypnotherapy Offered in partnership with @amcollegegastro.bsky.social
& @crohnscolitisfdn.bsky.social

Learn more👇🏼
🔗 bit.ly/IBDGIPsych
September 3, 2025 at 3:41 PM
voiceforibd.bsky.social
What does professionalism in #healthcare mean today? At the ABIM Foundation. Forum, I represented #patients in conversations about #professionalism #advocacy #equity & the future of medicine. 🔑 Professionalism must begin with the patient.✨ #PatientsFirst #PatientVoicesMatter
August 5, 2025 at 2:51 PM
voiceforibd.bsky.social
GI Psychology is enrolling for an 8-wk virtual #IBD #psychotherapy group for adults living w/ #Crohns or #ulcerativecolitis - combining #CBT & gut-directed #hypnotherapy It’s being offered in partnership w/the @amcollegegastro.bsky.social & @crohnscolitisfdn.bsky.social

🔗 bit.ly/IBDGIPsych
July 30, 2025 at 2:50 PM