VoiceForIBD
@voiceforibd.bsky.social
IBD Patient Advocate💜🧬
Hispanic/Latina🇵🇪🇺🇸
Crohn’s & Colitis Foundation National Board of Trustees
#CrohnsDisease & #UlcerativeColitis🦠
Committed To Finding A Cure🔬🧬
Hispanic/Latina🇵🇪🇺🇸
Crohn’s & Colitis Foundation National Board of Trustees
#CrohnsDisease & #UlcerativeColitis🦠
Committed To Finding A Cure🔬🧬
IBD looks like strength, resilience & HOPE💛IBD looks like all of us…showing up, speaking up & believing in what’s possible. Hope lives here. And we’re just getting started. La esperanza también vive aquí y lo mejor todavía está por venir #IBDLooksLike #CCAwarenessWeek
@crohnscolitisfdn.bsky.social
@crohnscolitisfdn.bsky.social
December 7, 2025 at 10:24 PM
IBD looks like strength, resilience & HOPE💛IBD looks like all of us…showing up, speaking up & believing in what’s possible. Hope lives here. And we’re just getting started. La esperanza también vive aquí y lo mejor todavía está por venir #IBDLooksLike #CCAwarenessWeek
@crohnscolitisfdn.bsky.social
@crohnscolitisfdn.bsky.social
#IBDLooksLike advocacy📣 Because raising our voices is how we create change - for ourselves, for our communities & for the future of IBD care👊🏼 Watch below to see what my advocacy looks like 👇🏼 @crohnscolitisfdn.bsky.social
December 7, 2025 at 3:22 AM
#IBDLooksLike advocacy📣 Because raising our voices is how we create change - for ourselves, for our communities & for the future of IBD care👊🏼 Watch below to see what my advocacy looks like 👇🏼 @crohnscolitisfdn.bsky.social
IBD looks like community. Because none of us should navigate this disease alone. On day 4 of Crohn’s & Colitis Awareness Week, I’m sharing glimpses into the power of #IBD community in my journey. #IBDLooksLike community…together we are stronger 💪🏼 🤍
@crohnscolitisfdn.bsky.social
@crohnscolitisfdn.bsky.social
December 5, 2025 at 4:22 PM
IBD looks like community. Because none of us should navigate this disease alone. On day 4 of Crohn’s & Colitis Awareness Week, I’m sharing glimpses into the power of #IBD community in my journey. #IBDLooksLike community…together we are stronger 💪🏼 🤍
@crohnscolitisfdn.bsky.social
@crohnscolitisfdn.bsky.social
#IBD looks like more than anyone realizes 👀 It’s the complications that show up beyond the digestive system or #extraintestinal manifestations😔This Awareness Week, I’m sharing what #IBDLooksLike so more patients feel seen & clinicians understand the full picture #EIMs
@crohnscolitisfdn.bsky.social
@crohnscolitisfdn.bsky.social
December 4, 2025 at 7:44 PM
#IBD looks like more than anyone realizes 👀 It’s the complications that show up beyond the digestive system or #extraintestinal manifestations😔This Awareness Week, I’m sharing what #IBDLooksLike so more patients feel seen & clinicians understand the full picture #EIMs
@crohnscolitisfdn.bsky.social
@crohnscolitisfdn.bsky.social
IBD Looks Like Strength You Don’t See. Most people don’t see what living with IBD really looks like. We carry so much…quietly😔 #IBD looks like me🙋🏻♀️It looks like you🫵🏼 It looks like millions of us doing our best every single day🙌🏼
🔗Awareness Week: bit.ly/CrohnsColiti...
@crohnscolitisfdn.bsky.social
🔗Awareness Week: bit.ly/CrohnsColiti...
@crohnscolitisfdn.bsky.social
December 3, 2025 at 4:27 PM
IBD Looks Like Strength You Don’t See. Most people don’t see what living with IBD really looks like. We carry so much…quietly😔 #IBD looks like me🙋🏻♀️It looks like you🫵🏼 It looks like millions of us doing our best every single day🙌🏼
🔗Awareness Week: bit.ly/CrohnsColiti...
@crohnscolitisfdn.bsky.social
🔗Awareness Week: bit.ly/CrohnsColiti...
@crohnscolitisfdn.bsky.social
As a Social Media Ambassador & National Board of Trustees member for the @crohnscolitisfdn.bsky.social I’m sharing what #IBDLooksLike 🙋🏻♀️But #IBD isn’t one story…it’s millions around the 🌍
Share your story w/#IBDLooksLike & donate $50+ to get the 2025 Awareness 👕
🔗 bit.ly/2025CCAWShirt
Share your story w/#IBDLooksLike & donate $50+ to get the 2025 Awareness 👕
🔗 bit.ly/2025CCAWShirt
December 2, 2025 at 3:34 PM
As a Social Media Ambassador & National Board of Trustees member for the @crohnscolitisfdn.bsky.social I’m sharing what #IBDLooksLike 🙋🏻♀️But #IBD isn’t one story…it’s millions around the 🌍
Share your story w/#IBDLooksLike & donate $50+ to get the 2025 Awareness 👕
🔗 bit.ly/2025CCAWShirt
Share your story w/#IBDLooksLike & donate $50+ to get the 2025 Awareness 👕
🔗 bit.ly/2025CCAWShirt
Crohn’s & Colitis Awareness Week runs from Dec 1st-Dec 7th🗓️
To kick things off, I want to highlight a powerful free resource from the @crohnscolitisfdn.bsky.social - the 🆓 Real Life with IBD Guide🗒️ designed to help patients navigate realities of #IBD
DOWNLOAD 🔗 bit.ly/CrohnsColiti...
To kick things off, I want to highlight a powerful free resource from the @crohnscolitisfdn.bsky.social - the 🆓 Real Life with IBD Guide🗒️ designed to help patients navigate realities of #IBD
DOWNLOAD 🔗 bit.ly/CrohnsColiti...
December 1, 2025 at 4:07 PM
Crohn’s & Colitis Awareness Week runs from Dec 1st-Dec 7th🗓️
To kick things off, I want to highlight a powerful free resource from the @crohnscolitisfdn.bsky.social - the 🆓 Real Life with IBD Guide🗒️ designed to help patients navigate realities of #IBD
DOWNLOAD 🔗 bit.ly/CrohnsColiti...
To kick things off, I want to highlight a powerful free resource from the @crohnscolitisfdn.bsky.social - the 🆓 Real Life with IBD Guide🗒️ designed to help patients navigate realities of #IBD
DOWNLOAD 🔗 bit.ly/CrohnsColiti...
The IBD Social Circle recently released a white paper on the “Power of Community” in #IBD If you’ll be at #AIBD and/or already live in Orlando, join us next Sat, Dec. 6, for a live panel discussion on key topics from the white paper 📄 RSVP to 📧 [email protected]
November 29, 2025 at 5:20 PM
The IBD Social Circle recently released a white paper on the “Power of Community” in #IBD If you’ll be at #AIBD and/or already live in Orlando, join us next Sat, Dec. 6, for a live panel discussion on key topics from the white paper 📄 RSVP to 📧 [email protected]
Extraintestinal manifestations can appear before an #IBD diagnosis & are underrecognized in #Hispanic #Latino patients. I moderated a @crohnscolitisfdn.bsky.social
webinar w/Latina GIs Dr. Priscila Santiago & Dr. Sandra Quezada who shared insights on #IBD & #EIMs
Watch 👇🏼
🔗 bit.ly/HoraDeComuni...
webinar w/Latina GIs Dr. Priscila Santiago & Dr. Sandra Quezada who shared insights on #IBD & #EIMs
Watch 👇🏼
🔗 bit.ly/HoraDeComuni...
November 24, 2025 at 3:49 PM
Extraintestinal manifestations can appear before an #IBD diagnosis & are underrecognized in #Hispanic #Latino patients. I moderated a @crohnscolitisfdn.bsky.social
webinar w/Latina GIs Dr. Priscila Santiago & Dr. Sandra Quezada who shared insights on #IBD & #EIMs
Watch 👇🏼
🔗 bit.ly/HoraDeComuni...
webinar w/Latina GIs Dr. Priscila Santiago & Dr. Sandra Quezada who shared insights on #IBD & #EIMs
Watch 👇🏼
🔗 bit.ly/HoraDeComuni...
Join the @crohnscolitisfdn.bsky.social & Team Challenge OC on Sat, 12/20 @ the Great Park as we walk OR run the Run for a Claus 5K🎅🏼We're an official charity team so you can register w/a discount & fundraise for #IBD cures💙 Connect with your local OC #IBD community!
REGISTER: bit.ly/RunForAClaus...
REGISTER: bit.ly/RunForAClaus...
November 7, 2025 at 10:03 PM
Join the @crohnscolitisfdn.bsky.social & Team Challenge OC on Sat, 12/20 @ the Great Park as we walk OR run the Run for a Claus 5K🎅🏼We're an official charity team so you can register w/a discount & fundraise for #IBD cures💙 Connect with your local OC #IBD community!
REGISTER: bit.ly/RunForAClaus...
REGISTER: bit.ly/RunForAClaus...
When @congressmin.bsky.social wants to meet w/you, you don't hesitate as it's a chance to use my voice at a time when #healthcare access is at risk.
Insurance coverage isn't just about numbers. It’s about people, like me🙋🏻♀️Cuts to insurance subsidies don't just affect budgets-they affect lives😞
Insurance coverage isn't just about numbers. It’s about people, like me🙋🏻♀️Cuts to insurance subsidies don't just affect budgets-they affect lives😞
Rocio is an IBD patient who receives coverage through the Affordable Care Act, locally known as Covered California
Because of Republican cuts to these services, she could lose access to the lifesaving care she needs.
We must protect affordable health care. People like Rocio depend on it.
Because of Republican cuts to these services, she could lose access to the lifesaving care she needs.
We must protect affordable health care. People like Rocio depend on it.
October 27, 2025 at 6:30 PM
When @congressmin.bsky.social wants to meet w/you, you don't hesitate as it's a chance to use my voice at a time when #healthcare access is at risk.
Insurance coverage isn't just about numbers. It’s about people, like me🙋🏻♀️Cuts to insurance subsidies don't just affect budgets-they affect lives😞
Insurance coverage isn't just about numbers. It’s about people, like me🙋🏻♀️Cuts to insurance subsidies don't just affect budgets-they affect lives😞
The heaviest #IBD symptoms aren’t always visible - #anxiety #fatigue #fear💜 Support & self-care matter👊🏼
Los síntomas más pesados de la #EII no siempre se ven - #ansiedad #cansancio #miedo 💜 El apoyo y el autocuidado importan👊🏼
#HispanicHeritageMonth #MentalHealth
#SaludMental
Los síntomas más pesados de la #EII no siempre se ven - #ansiedad #cansancio #miedo 💜 El apoyo y el autocuidado importan👊🏼
#HispanicHeritageMonth #MentalHealth
#SaludMental
October 14, 2025 at 2:47 PM
The heaviest #IBD symptoms aren’t always visible - #anxiety #fatigue #fear💜 Support & self-care matter👊🏼
Los síntomas más pesados de la #EII no siempre se ven - #ansiedad #cansancio #miedo 💜 El apoyo y el autocuidado importan👊🏼
#HispanicHeritageMonth #MentalHealth
#SaludMental
Los síntomas más pesados de la #EII no siempre se ven - #ansiedad #cansancio #miedo 💜 El apoyo y el autocuidado importan👊🏼
#HispanicHeritageMonth #MentalHealth
#SaludMental
During #HispanicHeritageMonth I want all #Hispanic #Latino #IBD patients to know we offer a Spanish speaking virtual support group. Durante el Mes de la Herencia Hispana, quiero que todos los pacientes hispanohablantes con la #EII sepan que ofrecemos un grupo de apoyo EN ESPAÑOL.
October 13, 2025 at 2:53 PM
During #HispanicHeritageMonth I want all #Hispanic #Latino #IBD patients to know we offer a Spanish speaking virtual support group. Durante el Mes de la Herencia Hispana, quiero que todos los pacientes hispanohablantes con la #EII sepan que ofrecemos un grupo de apoyo EN ESPAÑOL.
Did you know #IBD doesn't just affect your gut? #Fatigue #Anemia & eye inflammation #Uveitis are extraintestinal manifestations or #ElMs that often go unnoticed. Early recognition can make a difference.
Watch my latest reel 👇🏼 & join the #EIM webinar Tues, 10/7! bit.ly/CommunityHou...
Watch my latest reel 👇🏼 & join the #EIM webinar Tues, 10/7! bit.ly/CommunityHou...
October 6, 2025 at 2:59 PM
Supporting & celebrating all ostomates today on World Ostomy Day🥳Apoyando y celebrando a todos los ostomizados hoy en el Día Mundial de la Ostomía 🥳 #WorldOstomyDay2025
#WorldOstomyDay #OstomyLife
@uoaa-ostomy.bsky.social
@crohnscolitisfdn.bsky.social
#WorldOstomyDay #OstomyLife
@uoaa-ostomy.bsky.social
@crohnscolitisfdn.bsky.social
October 4, 2025 at 9:30 PM
Supporting & celebrating all ostomates today on World Ostomy Day🥳Apoyando y celebrando a todos los ostomizados hoy en el Día Mundial de la Ostomía 🥳 #WorldOstomyDay2025
#WorldOstomyDay #OstomyLife
@uoaa-ostomy.bsky.social
@crohnscolitisfdn.bsky.social
#WorldOstomyDay #OstomyLife
@uoaa-ostomy.bsky.social
@crohnscolitisfdn.bsky.social
Oct. 1 is National Latino Physician Day! While Latinos make up 19% of the 🇺🇸 population, only 6% of physicians identify as Latino/a 🤔Today, I share a heartfelt letter to all Latino physicians on behalf of the American Board of Internal Medicine(ABIM) @abimcert.bsky.social
Read 🗒️ 👉🏼 bit.ly/3Y9oc7C
Read 🗒️ 👉🏼 bit.ly/3Y9oc7C
October 1, 2025 at 1:56 PM
Oct. 1 is National Latino Physician Day! While Latinos make up 19% of the 🇺🇸 population, only 6% of physicians identify as Latino/a 🤔Today, I share a heartfelt letter to all Latino physicians on behalf of the American Board of Internal Medicine(ABIM) @abimcert.bsky.social
Read 🗒️ 👉🏼 bit.ly/3Y9oc7C
Read 🗒️ 👉🏼 bit.ly/3Y9oc7C
Honored to join @amergastroassn.bsky.social for #AGAAdvocacyDay on Capitol Hill 🏛️
100+ GIs 🥼➕ 20 patient advocates = 100+ meetings in 30 states!
Our message ⬇️
✂️Cut prior auth burdens
🛡️Protect NIH research
💪🏼Strengthen Medicare reimbursement
Patient voices matter more than ever 👊🏼
100+ GIs 🥼➕ 20 patient advocates = 100+ meetings in 30 states!
Our message ⬇️
✂️Cut prior auth burdens
🛡️Protect NIH research
💪🏼Strengthen Medicare reimbursement
Patient voices matter more than ever 👊🏼
September 28, 2025 at 2:49 PM
Honored to join @amergastroassn.bsky.social for #AGAAdvocacyDay on Capitol Hill 🏛️
100+ GIs 🥼➕ 20 patient advocates = 100+ meetings in 30 states!
Our message ⬇️
✂️Cut prior auth burdens
🛡️Protect NIH research
💪🏼Strengthen Medicare reimbursement
Patient voices matter more than ever 👊🏼
100+ GIs 🥼➕ 20 patient advocates = 100+ meetings in 30 states!
Our message ⬇️
✂️Cut prior auth burdens
🛡️Protect NIH research
💪🏼Strengthen Medicare reimbursement
Patient voices matter more than ever 👊🏼
During Hispanic Heritage Month, join the @crohnscolitisfdn.bsky.social for a 🆓 webinar re: IBD Extra-Intestinal Manifestations or EIMs in #Hispanic #Latino #IBD patients
📅 Tues, 10/7
⏰ 4 PT · 6 CT · 7 ET
💻 In English w/ Spanish captions
🔗 Register: bit.ly/CommunityHou...
📅 Tues, 10/7
⏰ 4 PT · 6 CT · 7 ET
💻 In English w/ Spanish captions
🔗 Register: bit.ly/CommunityHou...
September 22, 2025 at 7:49 PM
During Hispanic Heritage Month, join the @crohnscolitisfdn.bsky.social for a 🆓 webinar re: IBD Extra-Intestinal Manifestations or EIMs in #Hispanic #Latino #IBD patients
📅 Tues, 10/7
⏰ 4 PT · 6 CT · 7 ET
💻 In English w/ Spanish captions
🔗 Register: bit.ly/CommunityHou...
📅 Tues, 10/7
⏰ 4 PT · 6 CT · 7 ET
💻 In English w/ Spanish captions
🔗 Register: bit.ly/CommunityHou...
My first in-person Day On The Hill with the @crohnscolitisfdn.bsky.social was powerful💙
60 advocates, 22 states, 75 meetings 🤯
All to make sure #IBD voices are impossible to ignore. Grateful, empowered & more determined than ever to keep raising my voice🗣️
#IBDinDC #IBDDayOnTheHill
60 advocates, 22 states, 75 meetings 🤯
All to make sure #IBD voices are impossible to ignore. Grateful, empowered & more determined than ever to keep raising my voice🗣️
#IBDinDC #IBDDayOnTheHill
September 21, 2025 at 4:01 PM
My first in-person Day On The Hill with the @crohnscolitisfdn.bsky.social was powerful💙
60 advocates, 22 states, 75 meetings 🤯
All to make sure #IBD voices are impossible to ignore. Grateful, empowered & more determined than ever to keep raising my voice🗣️
#IBDinDC #IBDDayOnTheHill
60 advocates, 22 states, 75 meetings 🤯
All to make sure #IBD voices are impossible to ignore. Grateful, empowered & more determined than ever to keep raising my voice🗣️
#IBDinDC #IBDDayOnTheHill
Still inspired by the inaugural @cedarssinai.bsky.social #IBD & Women’s Health Conf.💜Honored to share my #Crohns patient journey & learn from sessions on #fertility #pregnancy #genetics #nutrition #microbiome etc. Grateful to Cedars-Sinai, Dr. Abreu, Dr. Khanna & all presenters 🙏🏼
September 20, 2025 at 4:02 PM
Still inspired by the inaugural @cedarssinai.bsky.social #IBD & Women’s Health Conf.💜Honored to share my #Crohns patient journey & learn from sessions on #fertility #pregnancy #genetics #nutrition #microbiome etc. Grateful to Cedars-Sinai, Dr. Abreu, Dr. Khanna & all presenters 🙏🏼
#HispanicHeritageMonth is here 🌎💜 #IBD affects more than digestion. It impacts #nutrition #culture & #family. This month I’ll be sharing new content Más Allá del Intestino: Salud y Resiliencia Latina or Beyond the Intestine: Latino Health & Resilience 👀 Watch and learn…
September 15, 2025 at 2:57 PM
#HispanicHeritageMonth is here 🌎💜 #IBD affects more than digestion. It impacts #nutrition #culture & #family. This month I’ll be sharing new content Más Allá del Intestino: Salud y Resiliencia Latina or Beyond the Intestine: Latino Health & Resilience 👀 Watch and learn…
Protein is power, but which ones are recommended for #IBD patients? In this new video from the @crohnscolitisfdn.bsky.social , I asked a gastroenterologist & a registered dietitian for their guidance on proteins for #Crohns & #UC patients. Watch the full video on YouTube 🎥
bit.ly/IBDandProtein
bit.ly/IBDandProtein
September 10, 2025 at 3:06 PM
Protein is power, but which ones are recommended for #IBD patients? In this new video from the @crohnscolitisfdn.bsky.social , I asked a gastroenterologist & a registered dietitian for their guidance on proteins for #Crohns & #UC patients. Watch the full video on YouTube 🎥
bit.ly/IBDandProtein
bit.ly/IBDandProtein
In this new video from the @crohnscolitisfdn.bsky.social I join a gastroenterologist & a registered dietitian to discuss practical tips for dining out while living with IBD 🍽️
Watch the full video on YouTube 🎥 bit.ly/EatingOutWit...
Watch the full video on YouTube 🎥 bit.ly/EatingOutWit...
September 5, 2025 at 3:08 PM
In this new video from the @crohnscolitisfdn.bsky.social I join a gastroenterologist & a registered dietitian to discuss practical tips for dining out while living with IBD 🍽️
Watch the full video on YouTube 🎥 bit.ly/EatingOutWit...
Watch the full video on YouTube 🎥 bit.ly/EatingOutWit...
🧠 GI Psychology is enrolling for an 8-week virtual #IBD #psychotherapy group for adults living w/ #Crohns or #ulcerativecolitis - combining #CBT & gut-directed #hypnotherapy Offered in partnership with @amcollegegastro.bsky.social
& @crohnscolitisfdn.bsky.social
Learn more👇🏼
🔗 bit.ly/IBDGIPsych
& @crohnscolitisfdn.bsky.social
Learn more👇🏼
🔗 bit.ly/IBDGIPsych
September 3, 2025 at 3:41 PM
🧠 GI Psychology is enrolling for an 8-week virtual #IBD #psychotherapy group for adults living w/ #Crohns or #ulcerativecolitis - combining #CBT & gut-directed #hypnotherapy Offered in partnership with @amcollegegastro.bsky.social
& @crohnscolitisfdn.bsky.social
Learn more👇🏼
🔗 bit.ly/IBDGIPsych
& @crohnscolitisfdn.bsky.social
Learn more👇🏼
🔗 bit.ly/IBDGIPsych
What does professionalism in #healthcare mean today? At the ABIM Foundation. Forum, I represented #patients in conversations about #professionalism #advocacy #equity & the future of medicine. 🔑 Professionalism must begin with the patient.✨ #PatientsFirst #PatientVoicesMatter
August 5, 2025 at 2:51 PM
What does professionalism in #healthcare mean today? At the ABIM Foundation. Forum, I represented #patients in conversations about #professionalism #advocacy #equity & the future of medicine. 🔑 Professionalism must begin with the patient.✨ #PatientsFirst #PatientVoicesMatter