Arthur
@unrealarthur.bsky.social
ME Patient-ly Waiting for Biomedical Research | Volunteer @crunchme.bsky.social
#GreatestMEdicalScandal @unreal_arthur crunchme.org
#GreatestMEdicalScandal @unreal_arthur crunchme.org
November 6, 2025 at 8:29 AM
Reposted by Arthur
I wonder how long before the subs stop using "chronic fatigue syndrome". It's a lot of wasted line space compared with ME.
#ME #Editors #Journalism
#ME #Editors #Journalism
October 2, 2025 at 11:00 PM
I wonder how long before the subs stop using "chronic fatigue syndrome". It's a lot of wasted line space compared with ME.
#ME #Editors #Journalism
#ME #Editors #Journalism
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September 29, 2025 at 5:34 PM
@actionforme.bsky.social ’s estimate page: www.actionforme.org.uk/supporting-y...?
Reposted by Arthur
'standard operating procedures'. ME demands staff ignore SOPs. The on practical help I am aware of anywhere in the world is in the link pinned to my profile. In England pwME under NHS care are given PN and TPN once it is established they are starving, but only in hospitals. This destroys any chance
August 19, 2025 at 8:35 AM
'standard operating procedures'. ME demands staff ignore SOPs. The on practical help I am aware of anywhere in the world is in the link pinned to my profile. In England pwME under NHS care are given PN and TPN once it is established they are starving, but only in hospitals. This destroys any chance