ThereForME
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
#5 DHSC rhetoric is getting stronger on how people with ME are being failed
Ashley Dalton shared many of the usual gov lines but we noticed stronger DHSC rhetoric.
Of course, what matters is action, not words. Tessa Munt duly promised to hold Dalton's "feet to the fire" 🔥
Ashley Dalton shared many of the usual gov lines but we noticed stronger DHSC rhetoric.
Of course, what matters is action, not words. Tessa Munt duly promised to hold Dalton's "feet to the fire" 🔥
November 25, 2025 at 9:50 AM
#5 DHSC rhetoric is getting stronger on how people with ME are being failed
Ashley Dalton shared many of the usual gov lines but we noticed stronger DHSC rhetoric.
Of course, what matters is action, not words. Tessa Munt duly promised to hold Dalton's "feet to the fire" 🔥
Ashley Dalton shared many of the usual gov lines but we noticed stronger DHSC rhetoric.
Of course, what matters is action, not words. Tessa Munt duly promised to hold Dalton's "feet to the fire" 🔥
#4 - The argument for research funding has been bolstered by German funding and DecodeME 👩🔬 💰
Several MPs mentioned new German funding + DecodeME. The argument for putting real money into ME research is feeling more compelling than ever.
Several MPs mentioned new German funding + DecodeME. The argument for putting real money into ME research is feeling more compelling than ever.
November 25, 2025 at 9:49 AM
#4 - The argument for research funding has been bolstered by German funding and DecodeME 👩🔬 💰
Several MPs mentioned new German funding + DecodeME. The argument for putting real money into ME research is feeling more compelling than ever.
Several MPs mentioned new German funding + DecodeME. The argument for putting real money into ME research is feeling more compelling than ever.
#3 - Severe and very severe ME are finally getting airtime 🚨
Tessa Munt dedicated a section of her speech to patient safety risks and Jo Platt confirmed the APPG supports the commissioning of specialised NHS services. Both outlined the need for immediate action to save lives
Tessa Munt dedicated a section of her speech to patient safety risks and Jo Platt confirmed the APPG supports the commissioning of specialised NHS services. Both outlined the need for immediate action to save lives
November 25, 2025 at 9:49 AM
#3 - Severe and very severe ME are finally getting airtime 🚨
Tessa Munt dedicated a section of her speech to patient safety risks and Jo Platt confirmed the APPG supports the commissioning of specialised NHS services. Both outlined the need for immediate action to save lives
Tessa Munt dedicated a section of her speech to patient safety risks and Jo Platt confirmed the APPG supports the commissioning of specialised NHS services. Both outlined the need for immediate action to save lives
#2 - There’s a clear cross-party consensus that the government needs to go further ❤️💛💙
MPs across different parties spoke about how the government needs to go much further in taking action to create meaningful change in the lives of people with ME. Many spoke about funding.
MPs across different parties spoke about how the government needs to go much further in taking action to create meaningful change in the lives of people with ME. Many spoke about funding.
!["I remain deeply concerned that the [delivery] plan falls short of delivering the meaningful change that is urgently needed by people living with those conditions." Helen Maguire. LibDem spokesperson for primary care + MP for Epsom and Ewell. #ThereForME](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:wjbaponwuqichcsh2fiwono5/bafkreiafejby6axq2mnrvyitpbypzmqt4du4oe6veikp74vtuxje74qvca@jpeg)
November 25, 2025 at 9:47 AM
#2 - There’s a clear cross-party consensus that the government needs to go further ❤️💛💙
MPs across different parties spoke about how the government needs to go much further in taking action to create meaningful change in the lives of people with ME. Many spoke about funding.
MPs across different parties spoke about how the government needs to go much further in taking action to create meaningful change in the lives of people with ME. Many spoke about funding.
#1 - MPs turned out in force 💪
We counted 24 MPs speaking or attempting to intervene. This is a great showing for Westminster Hall! Thanks to everyone who wrote to their MPs 🙏
This sends a message to government that MPs are following this issue increasingly closely.
We counted 24 MPs speaking or attempting to intervene. This is a great showing for Westminster Hall! Thanks to everyone who wrote to their MPs 🙏
This sends a message to government that MPs are following this issue increasingly closely.
November 25, 2025 at 9:46 AM
#1 - MPs turned out in force 💪
We counted 24 MPs speaking or attempting to intervene. This is a great showing for Westminster Hall! Thanks to everyone who wrote to their MPs 🙏
This sends a message to government that MPs are following this issue increasingly closely.
We counted 24 MPs speaking or attempting to intervene. This is a great showing for Westminster Hall! Thanks to everyone who wrote to their MPs 🙏
This sends a message to government that MPs are following this issue increasingly closely.
Today's #ThereForME blog shares our takeaways from last week's Westminster Hall debate, tabled by @tessamunt.bsky.social
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November 25, 2025 at 9:45 AM
Today's #ThereForME blog shares our takeaways from last week's Westminster Hall debate, tabled by @tessamunt.bsky.social
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Today we've got a blog from Yanto Evans, focused on Long Covid in Wales and why the Welsh government should prioritise the unfolding health crisis.
His guest blog is also available in Welsh translation.
Link in next post 👇
His guest blog is also available in Welsh translation.
Link in next post 👇
!["In December 2024 [...] the Welsh Cabinet Secretary for Health and Social Care, Jeremy Miles, proclaimed the population was deveoping 'natural immunity' to Covid-19. This is misleading and dangerous." Yanto Evans. New #ThereForME Substack post.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:wjbaponwuqichcsh2fiwono5/bafkreibzujbi2sfy4zeqyk3mxnbjy6t6bkw23xrpipqr4hquf67cvpxd5y@jpeg)
November 18, 2025 at 9:29 AM
Today we've got a blog from Yanto Evans, focused on Long Covid in Wales and why the Welsh government should prioritise the unfolding health crisis.
His guest blog is also available in Welsh translation.
Link in next post 👇
His guest blog is also available in Welsh translation.
Link in next post 👇
We’re absolutely delighted that today’s #ThereForME blog is a guest piece from @wendychambld.bsky.social!
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
November 4, 2025 at 9:25 AM
We’re absolutely delighted that today’s #ThereForME blog is a guest piece from @wendychambld.bsky.social!
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
In today's Substack post we share news about what steps are currently being taken to support those with ME and Long Covid.
Link in next post 👇
Link in next post 👇
October 28, 2025 at 11:41 AM
In today's Substack post we share news about what steps are currently being taken to support those with ME and Long Covid.
Link in next post 👇
Link in next post 👇
It’s your last chance to get your nominations in for the #ThereForME 2025 advent calendar!
⏱️ Today is the last day before nominations close
You can add your nomination here: docs.google.com/forms/d/e/1F...
⏱️ Today is the last day before nominations close
You can add your nomination here: docs.google.com/forms/d/e/1F...
October 26, 2025 at 8:58 AM
It’s your last chance to get your nominations in for the #ThereForME 2025 advent calendar!
⏱️ Today is the last day before nominations close
You can add your nomination here: docs.google.com/forms/d/e/1F...
⏱️ Today is the last day before nominations close
You can add your nomination here: docs.google.com/forms/d/e/1F...
Today's guest blog is from Rosie Barrett, who writes about her sister Alice's experiences.
Rosie outlines the challenges people with v. severe ME face navigating sensory sensitivities, at home and in hospital - and the creativity & flexibility needed to provide safe care.
Rosie outlines the challenges people with v. severe ME face navigating sensory sensitivities, at home and in hospital - and the creativity & flexibility needed to provide safe care.
October 21, 2025 at 8:29 AM
Today's guest blog is from Rosie Barrett, who writes about her sister Alice's experiences.
Rosie outlines the challenges people with v. severe ME face navigating sensory sensitivities, at home and in hospital - and the creativity & flexibility needed to provide safe care.
Rosie outlines the challenges people with v. severe ME face navigating sensory sensitivities, at home and in hospital - and the creativity & flexibility needed to provide safe care.
It would be lovely to celebrate some of the journalists in print and broadcast media who have told our stories and raised awareness.
October 20, 2025 at 6:32 PM
It would be lovely to celebrate some of the journalists in print and broadcast media who have told our stories and raised awareness.
Which researchers do you think deserve to feature in the #ThereForME advent calendar this year?
October 19, 2025 at 4:06 PM
Which researchers do you think deserve to feature in the #ThereForME advent calendar this year?
We'd love to be able to thank some MPs for being #ThereForME!
October 19, 2025 at 7:52 AM
We'd love to be able to thank some MPs for being #ThereForME!
We've already had some lovely nominations! Keep 'em coming!
October 14, 2025 at 4:23 PM
We've already had some lovely nominations! Keep 'em coming!
We know that support for people with ME isn't anywhere near as good as it should be - & we're working hard to change that.
But this Christmas we wanted to take a moment to celebrate those in the UK who are in our corner.
Can you help us find our #ThereForME advent calendar stars?
But this Christmas we wanted to take a moment to celebrate those in the UK who are in our corner.
Can you help us find our #ThereForME advent calendar stars?
October 11, 2025 at 2:32 PM
We know that support for people with ME isn't anywhere near as good as it should be - & we're working hard to change that.
But this Christmas we wanted to take a moment to celebrate those in the UK who are in our corner.
Can you help us find our #ThereForME advent calendar stars?
But this Christmas we wanted to take a moment to celebrate those in the UK who are in our corner.
Can you help us find our #ThereForME advent calendar stars?
From Lib Dem conference to Washington DC - today's #ThereForME campaign update shares an update from advocacy in the UK and overseas.
Read on to find out more 👇
(Link in next post)
Read on to find out more 👇
(Link in next post)
October 7, 2025 at 8:23 AM
From Lib Dem conference to Washington DC - today's #ThereForME campaign update shares an update from advocacy in the UK and overseas.
Read on to find out more 👇
(Link in next post)
Read on to find out more 👇
(Link in next post)
Today's #ThereForME blog shares findings from a mini survey.
We asked carers and clinicians with experience supporting people with v severe ME whether the Health Secretary should commission a service for v severe ME - and if so, what it should look like.
Link in next post 👇
We asked carers and clinicians with experience supporting people with v severe ME whether the Health Secretary should commission a service for v severe ME - and if so, what it should look like.
Link in next post 👇
September 23, 2025 at 8:20 AM
Today's #ThereForME blog shares findings from a mini survey.
We asked carers and clinicians with experience supporting people with v severe ME whether the Health Secretary should commission a service for v severe ME - and if so, what it should look like.
Link in next post 👇
We asked carers and clinicians with experience supporting people with v severe ME whether the Health Secretary should commission a service for v severe ME - and if so, what it should look like.
Link in next post 👇
Our #ThereForMe blog is back!
Our team took a month off in August but we’re back in action. Today we’re sharing three burning questions on our mind as we look to the months ahead.
Link in next post 👇
Our team took a month off in August but we’re back in action. Today we’re sharing three burning questions on our mind as we look to the months ahead.
Link in next post 👇
September 2, 2025 at 8:25 AM
Our #ThereForMe blog is back!
Our team took a month off in August but we’re back in action. Today we’re sharing three burning questions on our mind as we look to the months ahead.
Link in next post 👇
Our team took a month off in August but we’re back in action. Today we’re sharing three burning questions on our mind as we look to the months ahead.
Link in next post 👇
Today’s #ThereForME blog is our last update before a short pause (we’ll be back in September 😎).
We unpack the Delivery Plan, the media coverage and why it matters.
Link in next post 👇
We unpack the Delivery Plan, the media coverage and why it matters.
Link in next post 👇
July 29, 2025 at 8:24 AM
Today’s #ThereForME blog is our last update before a short pause (we’ll be back in September 😎).
We unpack the Delivery Plan, the media coverage and why it matters.
Link in next post 👇
We unpack the Delivery Plan, the media coverage and why it matters.
Link in next post 👇
So that is Year 1 of #ThereForME Wrapped!
A huge thank you to everyone who has helped along the way. From support and encouragement on social media, to our gang of helpful volunteers - we couldn’t have done it without you 💙
A huge thank you to everyone who has helped along the way. From support and encouragement on social media, to our gang of helpful volunteers - we couldn’t have done it without you 💙
July 23, 2025 at 8:43 AM
So that is Year 1 of #ThereForME Wrapped!
A huge thank you to everyone who has helped along the way. From support and encouragement on social media, to our gang of helpful volunteers - we couldn’t have done it without you 💙
A huge thank you to everyone who has helped along the way. From support and encouragement on social media, to our gang of helpful volunteers - we couldn’t have done it without you 💙
We’ve also been working to bring lived experience to the heart of policymaking.
We believe it’s essential to get lived experience in front of people with the power to influence policy and practice.
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We believe it’s essential to get lived experience in front of people with the power to influence policy and practice.
👇
July 23, 2025 at 8:43 AM
We’ve also been working to bring lived experience to the heart of policymaking.
We believe it’s essential to get lived experience in front of people with the power to influence policy and practice.
👇
We believe it’s essential to get lived experience in front of people with the power to influence policy and practice.
👇