ThereForME
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
#5 DHSC rhetoric is getting stronger on how people with ME are being failed
Ashley Dalton shared many of the usual gov lines but we noticed stronger DHSC rhetoric.
Of course, what matters is action, not words. Tessa Munt duly promised to hold Dalton's "feet to the fire" 🔥
Ashley Dalton shared many of the usual gov lines but we noticed stronger DHSC rhetoric.
Of course, what matters is action, not words. Tessa Munt duly promised to hold Dalton's "feet to the fire" 🔥
November 25, 2025 at 9:50 AM
#5 DHSC rhetoric is getting stronger on how people with ME are being failed
Ashley Dalton shared many of the usual gov lines but we noticed stronger DHSC rhetoric.
Of course, what matters is action, not words. Tessa Munt duly promised to hold Dalton's "feet to the fire" 🔥
Ashley Dalton shared many of the usual gov lines but we noticed stronger DHSC rhetoric.
Of course, what matters is action, not words. Tessa Munt duly promised to hold Dalton's "feet to the fire" 🔥
#4 - The argument for research funding has been bolstered by German funding and DecodeME 👩🔬 💰
Several MPs mentioned new German funding + DecodeME. The argument for putting real money into ME research is feeling more compelling than ever.
Several MPs mentioned new German funding + DecodeME. The argument for putting real money into ME research is feeling more compelling than ever.
November 25, 2025 at 9:49 AM
#4 - The argument for research funding has been bolstered by German funding and DecodeME 👩🔬 💰
Several MPs mentioned new German funding + DecodeME. The argument for putting real money into ME research is feeling more compelling than ever.
Several MPs mentioned new German funding + DecodeME. The argument for putting real money into ME research is feeling more compelling than ever.
#3 - Severe and very severe ME are finally getting airtime 🚨
Tessa Munt dedicated a section of her speech to patient safety risks and Jo Platt confirmed the APPG supports the commissioning of specialised NHS services. Both outlined the need for immediate action to save lives
Tessa Munt dedicated a section of her speech to patient safety risks and Jo Platt confirmed the APPG supports the commissioning of specialised NHS services. Both outlined the need for immediate action to save lives
November 25, 2025 at 9:49 AM
#3 - Severe and very severe ME are finally getting airtime 🚨
Tessa Munt dedicated a section of her speech to patient safety risks and Jo Platt confirmed the APPG supports the commissioning of specialised NHS services. Both outlined the need for immediate action to save lives
Tessa Munt dedicated a section of her speech to patient safety risks and Jo Platt confirmed the APPG supports the commissioning of specialised NHS services. Both outlined the need for immediate action to save lives
#2 - There’s a clear cross-party consensus that the government needs to go further ❤️💛💙
MPs across different parties spoke about how the government needs to go much further in taking action to create meaningful change in the lives of people with ME. Many spoke about funding.
MPs across different parties spoke about how the government needs to go much further in taking action to create meaningful change in the lives of people with ME. Many spoke about funding.
!["I remain deeply concerned that the [delivery] plan falls short of delivering the meaningful change that is urgently needed by people living with those conditions." Helen Maguire. LibDem spokesperson for primary care + MP for Epsom and Ewell. #ThereForME](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:wjbaponwuqichcsh2fiwono5/bafkreiafejby6axq2mnrvyitpbypzmqt4du4oe6veikp74vtuxje74qvca@jpeg)
November 25, 2025 at 9:47 AM
#2 - There’s a clear cross-party consensus that the government needs to go further ❤️💛💙
MPs across different parties spoke about how the government needs to go much further in taking action to create meaningful change in the lives of people with ME. Many spoke about funding.
MPs across different parties spoke about how the government needs to go much further in taking action to create meaningful change in the lives of people with ME. Many spoke about funding.
#1 - MPs turned out in force 💪
We counted 24 MPs speaking or attempting to intervene. This is a great showing for Westminster Hall! Thanks to everyone who wrote to their MPs 🙏
This sends a message to government that MPs are following this issue increasingly closely.
We counted 24 MPs speaking or attempting to intervene. This is a great showing for Westminster Hall! Thanks to everyone who wrote to their MPs 🙏
This sends a message to government that MPs are following this issue increasingly closely.
November 25, 2025 at 9:46 AM
#1 - MPs turned out in force 💪
We counted 24 MPs speaking or attempting to intervene. This is a great showing for Westminster Hall! Thanks to everyone who wrote to their MPs 🙏
This sends a message to government that MPs are following this issue increasingly closely.
We counted 24 MPs speaking or attempting to intervene. This is a great showing for Westminster Hall! Thanks to everyone who wrote to their MPs 🙏
This sends a message to government that MPs are following this issue increasingly closely.
Reposted by ThereForME
3/3
If you haven’t already, please contact your MP and urge them to be there. Every voice matters, and attendance is crucial for driving real change for #pwME!
Template letter (via #ThereForME) 👇
docs.google.com/document/d/1...
If you haven’t already, please contact your MP and urge them to be there. Every voice matters, and attendance is crucial for driving real change for #pwME!
Template letter (via #ThereForME) 👇
docs.google.com/document/d/1...
Write to your MP
Write to your MP Substack: https://www.thereforme.uk/ Linktree: https://linktr.ee/ThereForME About #ThereForME #ThereForME is a campaign led by patients and carers, calling for an NHS that’s ther...
docs.google.com
November 18, 2025 at 12:30 PM
3/3
If you haven’t already, please contact your MP and urge them to be there. Every voice matters, and attendance is crucial for driving real change for #pwME!
Template letter (via #ThereForME) 👇
docs.google.com/document/d/1...
If you haven’t already, please contact your MP and urge them to be there. Every voice matters, and attendance is crucial for driving real change for #pwME!
Template letter (via #ThereForME) 👇
docs.google.com/document/d/1...
Reposted by ThereForME
(2/2) Please write to your MP and ask them to attend! You can find your local MP here: members.parliament.uk/FindYourMP
@thereforme.bsky.social have produced a template letter to help: www.thereforme.uk/p/westminste...
🔗https://whatson.parliament.uk/event/cal53589
@thereforme.bsky.social have produced a template letter to help: www.thereforme.uk/p/westminste...
🔗https://whatson.parliament.uk/event/cal53589
Find your MP - MPs and Lords - UK Parliament
Enter your postcode, location, MPs name or job title to find the name and contact details of your local MP.
members.parliament.uk
November 14, 2025 at 9:52 AM
(2/2) Please write to your MP and ask them to attend! You can find your local MP here: members.parliament.uk/FindYourMP
@thereforme.bsky.social have produced a template letter to help: www.thereforme.uk/p/westminste...
🔗https://whatson.parliament.uk/event/cal53589
@thereforme.bsky.social have produced a template letter to help: www.thereforme.uk/p/westminste...
🔗https://whatson.parliament.uk/event/cal53589