The LAM Foundation
@thelamfoundation.bsky.social
The LAM Foundation's mission is to catalyze new treatments—and ultimately a cure—for LAM by advancing research, supporting compassionate care, and amplifying the voice of women with rare diseases. www.thelamfoundation.org
Pinned
Join our supportive network of scientists, clinicians, and LAM patients. Receive valuable resources and stay informed on the latest LAM-related news and events.
https://www.thelamfoundation.org/join-our-community/?utm_source=BS&utm_medium=Post&utm_id=Join+List
#Curelam #lymphangioleiomyomatosis
https://www.thelamfoundation.org/join-our-community/?utm_source=BS&utm_medium=Post&utm_id=Join+List
#Curelam #lymphangioleiomyomatosis
Every day, women hear three letters that change everything: LAM.
For them, every day is Rare Disease Day.
On 2/28, your impact can go even further. An anonymous donor will match our donations if we reach $15K.
Give today
https://give.thelamfoundation.org/give/758534/#!/donation/checkout
For them, every day is Rare Disease Day.
On 2/28, your impact can go even further. An anonymous donor will match our donations if we reach $15K.
Give today
https://give.thelamfoundation.org/give/758534/#!/donation/checkout
Donate to Rare Disease Day FY26
Join me for #RareDiseaseDay during February in supporting The LAM Foundation’s mission to find a cure for lymphangioleiomyomatosis (LAM), one of 6000 rare diseases worldwide. This rare lung disease impacts thousands of women around the world. Raise awareness and support our cause today:
give.thelamfoundation.org
February 10, 2026 at 8:01 PM
Every day, women hear three letters that change everything: LAM.
For them, every day is Rare Disease Day.
On 2/28, your impact can go even further. An anonymous donor will match our donations if we reach $15K.
Give today
https://give.thelamfoundation.org/give/758534/#!/donation/checkout
For them, every day is Rare Disease Day.
On 2/28, your impact can go even further. An anonymous donor will match our donations if we reach $15K.
Give today
https://give.thelamfoundation.org/give/758534/#!/donation/checkout
Women’s health is gaining traction, but rare diseases like LAM are often overlooked. Dr. Lyndsay Hoy & Dr. Marina K. Holz highlight the gaps.
Read now: https://www.asbmb.org/asbmb-today/opinions/020426/womens-health-cannot-leave-rare-diseases-behind
#WomensHealth #RareDiseases #WomenInScience
Read now: https://www.asbmb.org/asbmb-today/opinions/020426/womens-health-cannot-leave-rare-diseases-behind
#WomensHealth #RareDiseases #WomenInScience
February 8, 2026 at 10:35 PM
Women’s health is gaining traction, but rare diseases like LAM are often overlooked. Dr. Lyndsay Hoy & Dr. Marina K. Holz highlight the gaps.
Read now: https://www.asbmb.org/asbmb-today/opinions/020426/womens-health-cannot-leave-rare-diseases-behind
#WomensHealth #RareDiseases #WomenInScience
Read now: https://www.asbmb.org/asbmb-today/opinions/020426/womens-health-cannot-leave-rare-diseases-behind
#WomensHealth #RareDiseases #WomenInScience
Attention LAM professionals! Only one week left to register for our virtual webinar on the LAM Cell Atlas with Yan Xu, PhD! Learn more: https://ow.ly/lWOa50Y6eUj
#CureLAM #pulmonology #raredisease
#CureLAM #pulmonology #raredisease
February 4, 2026 at 10:00 PM
Attention LAM professionals! Only one week left to register for our virtual webinar on the LAM Cell Atlas with Yan Xu, PhD! Learn more: https://ow.ly/lWOa50Y6eUj
#CureLAM #pulmonology #raredisease
#CureLAM #pulmonology #raredisease
Looking for ways to support those living with LAM on #RareDiseaseDay? There are many ways to participate! Check out our special Rare Disease Day newsletter to learn how.
https://ow.ly/wfJo50Y8upV
https://ow.ly/wfJo50Y8upV
February 3, 2026 at 10:01 PM
Looking for ways to support those living with LAM on #RareDiseaseDay? There are many ways to participate! Check out our special Rare Disease Day newsletter to learn how.
https://ow.ly/wfJo50Y8upV
https://ow.ly/wfJo50Y8upV
Attention Professionals!
You are invited to a virtual webinar exploring the use of the LAM Cell Atlas, presented by Yan Xu, PhD, of the Division of Pulmonary Biology and Biomedical Informatics at Cincinnati Children's Hospital Medical Center.
Learn more: https://ow.ly/6zPN50Y6byX
You are invited to a virtual webinar exploring the use of the LAM Cell Atlas, presented by Yan Xu, PhD, of the Division of Pulmonary Biology and Biomedical Informatics at Cincinnati Children's Hospital Medical Center.
Learn more: https://ow.ly/6zPN50Y6byX
January 30, 2026 at 5:20 PM
Attention Professionals!
You are invited to a virtual webinar exploring the use of the LAM Cell Atlas, presented by Yan Xu, PhD, of the Division of Pulmonary Biology and Biomedical Informatics at Cincinnati Children's Hospital Medical Center.
Learn more: https://ow.ly/6zPN50Y6byX
You are invited to a virtual webinar exploring the use of the LAM Cell Atlas, presented by Yan Xu, PhD, of the Division of Pulmonary Biology and Biomedical Informatics at Cincinnati Children's Hospital Medical Center.
Learn more: https://ow.ly/6zPN50Y6byX
It's here! The January edition of The LAM Foundation newsletter is now available. Click here to read the latest: https://ow.ly/viGv50Y5Hra
#curelam #raredisease #thelamfoundation
#curelam #raredisease #thelamfoundation
January 29, 2026 at 9:59 PM
It's here! The January edition of The LAM Foundation newsletter is now available. Click here to read the latest: https://ow.ly/viGv50Y5Hra
#curelam #raredisease #thelamfoundation
#curelam #raredisease #thelamfoundation
On 2/28, #RareDiseaseDay, we honor those with rare diseases. Join us for the Rare Disease Day Challenge. An anonymous donor will match $15,000 by 2/28!
Start here: https://ow.ly/U4wy50Y53Bn #rarediseaseday
Start here: https://ow.ly/U4wy50Y53Bn #rarediseaseday
January 28, 2026 at 10:01 PM
On 2/28, #RareDiseaseDay, we honor those with rare diseases. Join us for the Rare Disease Day Challenge. An anonymous donor will match $15,000 by 2/28!
Start here: https://ow.ly/U4wy50Y53Bn #rarediseaseday
Start here: https://ow.ly/U4wy50Y53Bn #rarediseaseday
Did you miss last week’s LAMposium in Your Living Room? We’ve got you covered! The recording is now available. Watch here: https://youtu.be/9uXvQQeUCsM
January 27, 2026 at 10:50 PM
Did you miss last week’s LAMposium in Your Living Room? We’ve got you covered! The recording is now available. Watch here: https://youtu.be/9uXvQQeUCsM
LAM Clinician Spotlight: Dr. Ali Ataya
Dr. Ataya has provided advanced care at the University of Florida since 2016. As co-chair of the Clinical Advisory Board, he supports new providers and strengthens LAM care! Learn more about the LAM Clinic Network: https://ow.ly/LrZC50Y3R58
#PulmonaryMedicine
Dr. Ataya has provided advanced care at the University of Florida since 2016. As co-chair of the Clinical Advisory Board, he supports new providers and strengthens LAM care! Learn more about the LAM Clinic Network: https://ow.ly/LrZC50Y3R58
#PulmonaryMedicine
January 26, 2026 at 5:25 PM
LAM Clinician Spotlight: Dr. Ali Ataya
Dr. Ataya has provided advanced care at the University of Florida since 2016. As co-chair of the Clinical Advisory Board, he supports new providers and strengthens LAM care! Learn more about the LAM Clinic Network: https://ow.ly/LrZC50Y3R58
#PulmonaryMedicine
Dr. Ataya has provided advanced care at the University of Florida since 2016. As co-chair of the Clinical Advisory Board, he supports new providers and strengthens LAM care! Learn more about the LAM Clinic Network: https://ow.ly/LrZC50Y3R58
#PulmonaryMedicine
week
LAMposium in your Living Room is just 1 week away! Join Susan Jacobs, MS, RN, FAAN, for insights on supplemental oxygen. Submit questions by Jan 15, 2026.
Register:
https://www.tfaforms.com/5206874
#Supplementaloxygen #O2 #patientsupport #curelam #thelamfoundation
LAMposium in your Living Room is just 1 week away! Join Susan Jacobs, MS, RN, FAAN, for insights on supplemental oxygen. Submit questions by Jan 15, 2026.
Register:
https://www.tfaforms.com/5206874
#Supplementaloxygen #O2 #patientsupport #curelam #thelamfoundation
January 14, 2026 at 10:00 PM
week
LAMposium in your Living Room is just 1 week away! Join Susan Jacobs, MS, RN, FAAN, for insights on supplemental oxygen. Submit questions by Jan 15, 2026.
Register:
https://www.tfaforms.com/5206874
#Supplementaloxygen #O2 #patientsupport #curelam #thelamfoundation
LAMposium in your Living Room is just 1 week away! Join Susan Jacobs, MS, RN, FAAN, for insights on supplemental oxygen. Submit questions by Jan 15, 2026.
Register:
https://www.tfaforms.com/5206874
#Supplementaloxygen #O2 #patientsupport #curelam #thelamfoundation
Watch this video to hear members of our Board of Directors share what our refreshed mission means to them—and why it matters so deeply.
https://ow.ly/AtyL50XTbCj
What does TLF mean to you? Share your thoughts in the comments.
#RareDiseases
https://ow.ly/AtyL50XTbCj
What does TLF mean to you? Share your thoughts in the comments.
#RareDiseases
January 8, 2026 at 7:00 PM
Watch this video to hear members of our Board of Directors share what our refreshed mission means to them—and why it matters so deeply.
https://ow.ly/AtyL50XTbCj
What does TLF mean to you? Share your thoughts in the comments.
#RareDiseases
https://ow.ly/AtyL50XTbCj
What does TLF mean to you? Share your thoughts in the comments.
#RareDiseases
LAMposium in your Living Room is just 2 weeks away! Join Susan Jacobs, MS, RN, FAAN, for insights on supplemental oxygen. Submit questions by Jan 15, 2026. Register: https://www.tfaforms.com/5206874 #Supplementaloxygen #O2 #patientsupport #curelam #thelamfoundation
January 7, 2026 at 4:15 PM
LAMposium in your Living Room is just 2 weeks away! Join Susan Jacobs, MS, RN, FAAN, for insights on supplemental oxygen. Submit questions by Jan 15, 2026. Register: https://www.tfaforms.com/5206874 #Supplementaloxygen #O2 #patientsupport #curelam #thelamfoundation
Thanks to you, our community grew stronger in 2025! 💗 720 new donors, $350K raised, 1270 new registrants, & 30 years of TLF! Learn more: https://ow.ly/fzNm50XNJ7b
Exciting news coming soon! 🌏🎉
#theLAMFoundation #CommunityGrowth #LAMAwareness
Exciting news coming soon! 🌏🎉
#theLAMFoundation #CommunityGrowth #LAMAwareness
January 6, 2026 at 9:00 PM
Thanks to you, our community grew stronger in 2025! 💗 720 new donors, $350K raised, 1270 new registrants, & 30 years of TLF! Learn more: https://ow.ly/fzNm50XNJ7b
Exciting news coming soon! 🌏🎉
#theLAMFoundation #CommunityGrowth #LAMAwareness
Exciting news coming soon! 🌏🎉
#theLAMFoundation #CommunityGrowth #LAMAwareness
Strengthening the LAM Clinic & Research Network in 2025!
This year: 4 LAM Clinic Director Meetings for best practices & 1 New Clinic in Turkey! Learn more: https://ow.ly/iIUS50XNHnj
Stay tuned for a special announcement! #LAM #HealthCare #Research
This year: 4 LAM Clinic Director Meetings for best practices & 1 New Clinic in Turkey! Learn more: https://ow.ly/iIUS50XNHnj
Stay tuned for a special announcement! #LAM #HealthCare #Research
January 4, 2026 at 7:00 PM
Strengthening the LAM Clinic & Research Network in 2025!
This year: 4 LAM Clinic Director Meetings for best practices & 1 New Clinic in Turkey! Learn more: https://ow.ly/iIUS50XNHnj
Stay tuned for a special announcement! #LAM #HealthCare #Research
This year: 4 LAM Clinic Director Meetings for best practices & 1 New Clinic in Turkey! Learn more: https://ow.ly/iIUS50XNHnj
Stay tuned for a special announcement! #LAM #HealthCare #Research
2025 was a powerful year at The LAM Foundation! 💪 301 new patients, 4,483 total connections, 41 support events, and 12 life-saving transplants! 🫁🫀 Stay tuned for an exciting announcement to kick off the new year! ✨
Learn more: https://ow.ly/iIUS50XNHnj
Learn more: https://ow.ly/iIUS50XNHnj
January 3, 2026 at 7:00 PM
2025 was a powerful year at The LAM Foundation! 💪 301 new patients, 4,483 total connections, 41 support events, and 12 life-saving transplants! 🫁🫀 Stay tuned for an exciting announcement to kick off the new year! ✨
Learn more: https://ow.ly/iIUS50XNHnj
Learn more: https://ow.ly/iIUS50XNHnj
In 2025, The LAM Foundation:
🏆 Awarded 5 new research grants
📈 Invested $420,000+ in LAM research
🧪 Supported 7 active projects.
Stay tuned for a special announcement!
#LAMResearch #ResearchGrants #MedicalResearch #HopeInResearch #CureLAM #TheLAMfoundation
🏆 Awarded 5 new research grants
📈 Invested $420,000+ in LAM research
🧪 Supported 7 active projects.
Stay tuned for a special announcement!
#LAMResearch #ResearchGrants #MedicalResearch #HopeInResearch #CureLAM #TheLAMfoundation
January 2, 2026 at 2:01 PM
In 2025, The LAM Foundation:
🏆 Awarded 5 new research grants
📈 Invested $420,000+ in LAM research
🧪 Supported 7 active projects.
Stay tuned for a special announcement!
#LAMResearch #ResearchGrants #MedicalResearch #HopeInResearch #CureLAM #TheLAMfoundation
🏆 Awarded 5 new research grants
📈 Invested $420,000+ in LAM research
🧪 Supported 7 active projects.
Stay tuned for a special announcement!
#LAMResearch #ResearchGrants #MedicalResearch #HopeInResearch #CureLAM #TheLAMfoundation
Happy New Year! 🎉
Reflecting on 2025’s impact and momentum.
Stay tuned for highlights and a special announcement! ✨
#HappyNewYear
Reflecting on 2025’s impact and momentum.
Stay tuned for highlights and a special announcement! ✨
#HappyNewYear
January 1, 2026 at 8:00 PM
Happy New Year! 🎉
Reflecting on 2025’s impact and momentum.
Stay tuned for highlights and a special announcement! ✨
#HappyNewYear
Reflecting on 2025’s impact and momentum.
Stay tuned for highlights and a special announcement! ✨
#HappyNewYear
Just hours left to make your 2025 gift to The LAM Foundation!
Help women with LAM breathe easier and dream bigger.
Give before midnight!
thelamfoundation.org/donate
#CureLAM #RareDisease #WomenInScience #LAMAwareness #GiveHope #NonprofitSupport
Help women with LAM breathe easier and dream bigger.
Give before midnight!
thelamfoundation.org/donate
#CureLAM #RareDisease #WomenInScience #LAMAwareness #GiveHope #NonprofitSupport
December 31, 2025 at 10:00 PM
Just hours left to make your 2025 gift to The LAM Foundation!
Help women with LAM breathe easier and dream bigger.
Give before midnight!
thelamfoundation.org/donate
#CureLAM #RareDisease #WomenInScience #LAMAwareness #GiveHope #NonprofitSupport
Help women with LAM breathe easier and dream bigger.
Give before midnight!
thelamfoundation.org/donate
#CureLAM #RareDisease #WomenInScience #LAMAwareness #GiveHope #NonprofitSupport
As we step into a new year, we invite you to make one more powerful choice: to give hope.
Your year-end gift says:
“I believe in a world without LAM.” 🌎💖
Donate before midnight: thelamfoundation.org/donate
#LAMAwareness #YearEndGiving #GiveHope #cureLAM
Your year-end gift says:
“I believe in a world without LAM.” 🌎💖
Donate before midnight: thelamfoundation.org/donate
#LAMAwareness #YearEndGiving #GiveHope #cureLAM
December 31, 2025 at 4:01 PM
As we step into a new year, we invite you to make one more powerful choice: to give hope.
Your year-end gift says:
“I believe in a world without LAM.” 🌎💖
Donate before midnight: thelamfoundation.org/donate
#LAMAwareness #YearEndGiving #GiveHope #cureLAM
Your year-end gift says:
“I believe in a world without LAM.” 🌎💖
Donate before midnight: thelamfoundation.org/donate
#LAMAwareness #YearEndGiving #GiveHope #cureLAM
Just ONE day left to give your 2025 gift to The LAM Foundation!
🌟 Thank you to all who have contributed!
💖 Give today: https://give.thelamfoundation.org/campaign/738991/donate
#GiveHope #YearEndGiving #NonprofitSupport #MakeADifference #SupportLAM #CharityImpact
🌟 Thank you to all who have contributed!
💖 Give today: https://give.thelamfoundation.org/campaign/738991/donate
#GiveHope #YearEndGiving #NonprofitSupport #MakeADifference #SupportLAM #CharityImpact
December 30, 2025 at 8:00 PM
Just ONE day left to give your 2025 gift to The LAM Foundation!
🌟 Thank you to all who have contributed!
💖 Give today: https://give.thelamfoundation.org/campaign/738991/donate
#GiveHope #YearEndGiving #NonprofitSupport #MakeADifference #SupportLAM #CharityImpact
🌟 Thank you to all who have contributed!
💖 Give today: https://give.thelamfoundation.org/campaign/738991/donate
#GiveHope #YearEndGiving #NonprofitSupport #MakeADifference #SupportLAM #CharityImpact
Celebrating 30 years of hope! 🎉 Join us in finishing 2025 strong—your gift supports patients and research.
Give by midnight Dec 31!
https://give.thelamfoundation.org/campaign/738991/donate
Thank you!
#LAMFoundation #RareDisease #LAMposium2025 #LAMAwareness #Curelam #thelamfoundation
Give by midnight Dec 31!
https://give.thelamfoundation.org/campaign/738991/donate
Thank you!
#LAMFoundation #RareDisease #LAMposium2025 #LAMAwareness #Curelam #thelamfoundation
December 29, 2025 at 6:55 PM
Celebrating 30 years of hope! 🎉 Join us in finishing 2025 strong—your gift supports patients and research.
Give by midnight Dec 31!
https://give.thelamfoundation.org/campaign/738991/donate
Thank you!
#LAMFoundation #RareDisease #LAMposium2025 #LAMAwareness #Curelam #thelamfoundation
Give by midnight Dec 31!
https://give.thelamfoundation.org/campaign/738991/donate
Thank you!
#LAMFoundation #RareDisease #LAMposium2025 #LAMAwareness #Curelam #thelamfoundation
We’re proud to celebrate LAM Clinic Director Göksel Altınışık Ergur, MD, who opened the first LAM clinic in Turkey earlier this year. Read this spotlight to learn how this milestone is expanding care and hope for people with LAM.
https://ow.ly/9hCm50XLcmp
#RareDisease #WomenInMedicine #curelam
https://ow.ly/9hCm50XLcmp
#RareDisease #WomenInMedicine #curelam
December 26, 2025 at 2:01 PM
We’re proud to celebrate LAM Clinic Director Göksel Altınışık Ergur, MD, who opened the first LAM clinic in Turkey earlier this year. Read this spotlight to learn how this milestone is expanding care and hope for people with LAM.
https://ow.ly/9hCm50XLcmp
#RareDisease #WomenInMedicine #curelam
https://ow.ly/9hCm50XLcmp
#RareDisease #WomenInMedicine #curelam
Catch the latest LAMposium in Your Living Room Circle of Hope! Join post-transplant patients as they share their experiences. Watch now: https://youtu.be/wiHQxesHMfA
December 22, 2025 at 8:50 PM
Catch the latest LAMposium in Your Living Room Circle of Hope! Join post-transplant patients as they share their experiences. Watch now: https://youtu.be/wiHQxesHMfA
Join us for our next LAMposium in your Living Room! Questions? Email [email protected] by 1/15/26.
Register: https://www.tfaforms.com/5206874
#Supplementaloxygen #O2 #patientsupport #curelam #thelamfoundation
Register: https://www.tfaforms.com/5206874
#Supplementaloxygen #O2 #patientsupport #curelam #thelamfoundation
December 21, 2025 at 10:40 PM
Join us for our next LAMposium in your Living Room! Questions? Email [email protected] by 1/15/26.
Register: https://www.tfaforms.com/5206874
#Supplementaloxygen #O2 #patientsupport #curelam #thelamfoundation
Register: https://www.tfaforms.com/5206874
#Supplementaloxygen #O2 #patientsupport #curelam #thelamfoundation
Recent research from Nottingham, UK, in collaboration with researchers from the UK and the US, explored whether LAM nodules hinder lung healing.
https://www.thelamfoundation.org/study-suggests-that-blocking-protein-il-6-may-help-protect-and-heal-lungs-in-lam-patients
#science 🧪 #PulmSky
https://www.thelamfoundation.org/study-suggests-that-blocking-protein-il-6-may-help-protect-and-heal-lungs-in-lam-patients
#science 🧪 #PulmSky
December 19, 2025 at 2:01 PM
Recent research from Nottingham, UK, in collaboration with researchers from the UK and the US, explored whether LAM nodules hinder lung healing.
https://www.thelamfoundation.org/study-suggests-that-blocking-protein-il-6-may-help-protect-and-heal-lungs-in-lam-patients
#science 🧪 #PulmSky
https://www.thelamfoundation.org/study-suggests-that-blocking-protein-il-6-may-help-protect-and-heal-lungs-in-lam-patients
#science 🧪 #PulmSky