This non-UK one tells us how successful current approaches are in the simplest possible terms:

mehub.uk/2025/03/21/n...

It's normal in the UK
They funded specialist NHS CFS services without any longitudinal studies. Ever.
Billions £££ wasted.
Part of 'our' productivity problem.

I'd give it years. Researchers have repeatedly mischaracterised or oversimplified PEM for many years, so it is worth taking time.

I would use a multi phase approach trying different qualitative research methods and asking participants on an ongoing basis whether the conclusions are reasonable or not. All of that before I'd even start to decide whether a survey/scale is even capable of capturing the range of experiences.

Yes 💯

💯 It was very tough at “moderate to severe”. I made mistakes and had to go back due to some aspects of the design.
I suspect a huge bias towards “mild” respondents. I wonder if the intended outcome can be achieved on the basis of that or not 🤔

Yes. MPs referred to ‘stigma’ but when will someone call the BPSM what IT IS?

The BPS model is careerist-psychiatrists with a ridiculous belief in ‘infectious ideas’ calling seriously ill people malingerers+continuing to do that for decades IN THE FACE OF CONFOUNDING EVIDENCE AND ONGOING DEATHS

That’s the absolute definition of “Driving without due care and attention” / “Careless driving”.
He should face criminal consequences just like anyone else. No “Get out of jail free” cards for police.
Says he didn’t see her at any time and clearly couldn’t avoid collision due to excessive speed 🤷🏻‍♂️

Yes agree. For many I know, the more NHS clinic ‘guidance’ you get, the sicker you get. Even for Mild and Moderate.
I avoid contact as far as possible whilst there’s nothing worth visiting for.