Something Chronic
@somethingchronic.bsky.social
Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
2/2
decades in a darkened room on a feeding tube, unable to tolerate light, sound or even the presence of people in the room. Even thinking too hard can worsen you. I’ll always try my best to hold on to hope but for me there’s a lot of comfort knowing I would be able to choose when enough is enough.
decades in a darkened room on a feeding tube, unable to tolerate light, sound or even the presence of people in the room. Even thinking too hard can worsen you. I’ll always try my best to hold on to hope but for me there’s a lot of comfort knowing I would be able to choose when enough is enough.
November 14, 2025 at 7:32 AM
2/2
decades in a darkened room on a feeding tube, unable to tolerate light, sound or even the presence of people in the room. Even thinking too hard can worsen you. I’ll always try my best to hold on to hope but for me there’s a lot of comfort knowing I would be able to choose when enough is enough.
decades in a darkened room on a feeding tube, unable to tolerate light, sound or even the presence of people in the room. Even thinking too hard can worsen you. I’ll always try my best to hold on to hope but for me there’s a lot of comfort knowing I would be able to choose when enough is enough.
The implication that all disabled people are in opposition of the bill really frustrates me! I do understand opposition arguments and they are important, valid concerns that need to be considered carefully.
I am in favour of a (well-regulated) bill because I have an illness where I could spend… 1/2
I am in favour of a (well-regulated) bill because I have an illness where I could spend… 1/2
November 14, 2025 at 7:32 AM
The implication that all disabled people are in opposition of the bill really frustrates me! I do understand opposition arguments and they are important, valid concerns that need to be considered carefully.
I am in favour of a (well-regulated) bill because I have an illness where I could spend… 1/2
I am in favour of a (well-regulated) bill because I have an illness where I could spend… 1/2
Anna I’ve tagged you on another post as someone just said they can help out you in touch with people – sounds very promising!!
I also saw this which is ME research in Victoria (!) in case it helps:
www.s4me.info/threads/aust...
I also saw this which is ME research in Victoria (!) in case it helps:
www.s4me.info/threads/aust...
Open - Australia: Recruitment round for concurrent ME/CFS cellular biomedical studies at La Trobe University
Hello everybody.
I am recruiting for a couple of studies but chiefly doing this via one study recently funded by ME Research UK (grant held by Dr. Sarah Annesley).
Looking for females only, residing...
www.s4me.info
November 13, 2025 at 8:59 AM
Anna I’ve tagged you on another post as someone just said they can help out you in touch with people – sounds very promising!!
I also saw this which is ME research in Victoria (!) in case it helps:
www.s4me.info/threads/aust...
I also saw this which is ME research in Victoria (!) in case it helps:
www.s4me.info/threads/aust...
November 13, 2025 at 8:57 AM
Adrien thank you so much for this!!
Anna I’m tagging you in on each post as you said low spoons/foggy brain before x @halcionandon.bsky.social
Anna I’m tagging you in on each post as you said low spoons/foggy brain before x @halcionandon.bsky.social
November 13, 2025 at 8:57 AM
Adrien thank you so much for this!!
Anna I’m tagging you in on each post as you said low spoons/foggy brain before x @halcionandon.bsky.social
Anna I’m tagging you in on each post as you said low spoons/foggy brain before x @halcionandon.bsky.social
Wow people are immediately brutal and self-righteous without even bothering to check facts! And who posts to 1000s of followers without even bothering to check they’ve quoted correctly?! (I know, loads of people… bah! Doesn’t surprise me but it’s jarring to see it.) Sorry you had that happen George!
November 12, 2025 at 3:19 PM
Wow people are immediately brutal and self-righteous without even bothering to check facts! And who posts to 1000s of followers without even bothering to check they’ve quoted correctly?! (I know, loads of people… bah! Doesn’t surprise me but it’s jarring to see it.) Sorry you had that happen George!
Notice how he sprays himself once and everyone else four times – it’s like a weird display of dominance (isn’t everything with him…!)
November 12, 2025 at 3:05 PM
Notice how he sprays himself once and everyone else four times – it’s like a weird display of dominance (isn’t everything with him…!)
Thanks so much for the help – tagging in Anna to make sure she sees it! @halcionandon.bsky.social
November 12, 2025 at 2:07 PM
Thanks so much for the help – tagging in Anna to make sure she sees it! @halcionandon.bsky.social
Nothing yet, I’m so sorry – I’ll keep posting! It doesn’t look like Janet’s posted in a while so she probably hasn’t seen the tag in yet, fingers crossed she may be able to repost when she does! I hope you’re hanging in there Anna, sending you love x
November 12, 2025 at 1:33 PM
Nothing yet, I’m so sorry – I’ll keep posting! It doesn’t look like Janet’s posted in a while so she probably hasn’t seen the tag in yet, fingers crossed she may be able to repost when she does! I hope you’re hanging in there Anna, sending you love x
I can’t stand him but the implication that becoming disabled is karma is disgusting. Please could you find other ways to poke fun at him without punching down on disabled people, it’s hard enough dealing with prejudice as it is.
November 12, 2025 at 12:57 AM
I can’t stand him but the implication that becoming disabled is karma is disgusting. Please could you find other ways to poke fun at him without punching down on disabled people, it’s hard enough dealing with prejudice as it is.