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sedsconnective.org
SEDSConnective
@sedsconnective.org
1.8K followers 170 following 600 posts
The foremost hypermobility neurodivergence community charity BrainBodyMind AUTISM ADHD DYSPRAXIA DYSLEXIA EDS HSD pain
Chair @JGjanegreenmbe.bsky.social
Patron @bendybrain DrzakSpiritos
Web: www.sedsconnective.org
Link: https://linktr.ee/SEDSConnective
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sedsconnective.org
SEDSConnective @sedsconnective.org · Apr 9
Neurodivergence ♾️
We have pioneered these connections as the leading charity as it has been misunderstood or diagnostically misattributed for so long! Read more www.sedsconnective.org 🙏
#brainbody #ADHD #Autism #dyspraxia #dyslexia #dyscalculia #TS #hypermobility #EDS #HSD #NothingAboutUsWithoutUs
An infographic from SEDSConnective titled "Neurodivergence" with overlapping colorful brain illustrations representing different neurodivergent conditions: Autism (green), AD(H)D (blue), Tourette’s (orange), Dyscalculia (purple), Dyslexia (pink), and Dyspraxia (red). Each brain lists associated strengths: Autism: Memory, Fine detail thinking, Passion, Creativity AD(H)D: Creativity, Energetic, Verbal skills Tourette’s: Interpersonal skills, Planning strengths, Hyperfocus Dyscalculia: Verbal skills, Empathy, Intuition Dyslexia: Problem solvers, Visual thinkers, Observant, 3D thinkers Dyspraxia: Empathy, Intuition, Problem solving In the center, a blue circle reads: “Neurodivergence is having a brain that behaves, learns and processes differently from the neuromajority.” Text at the top states: “It is likely that connective tissues are different than the general population in some of these neurodivergences” “You can also have acquired neurodivergence” Logos and credits are at the bottom for SEDSConnective, Jane Green, Mary Colley, and Joseph Aquilina.
sedsconnective.org
📢SEDSConnective Newsletter!
Be the first to hear our exclusive news, exciting updates as well as opportunities to take part in events and projects. 🎉
➡️ Register as a member and sign up to the newsletter here: https://www.sedsconnective.org/ - scroll to the bottom of the page to sign up!
November 28, 2025 at 9:03 AM
Reposted by SEDSConnective
quiltrageous.bsky.social
It's exciting to see research confirming the connections among the various characteristics and medical conditions of the "Chronic Constellation" Maybe someday medical schools and hospital systems will have to acknowledge the vast numbers of us who are currently being misdiagnosed.
sedsconnective.org SEDSConnective @sedsconnective.org · 1d
Neurodivergent adults Autistic, ADHD and those with Tourette’s are over twice as likely to have hypermobility than the general population in this study.
The study pubmed.ncbi.nlm.nih.gov/35185636/ Csecs et al (2022) led by our Patron Dr Eccles is very important.
#autism #adhd #tourettes
November 27, 2025 at 1:59 PM
sedsconnective.org
Our next free monthly Brighton support meeting is today, Friday 28th November | 11am - 12:30pm | Jubilee Library, Brighton, BN1 1GE. No diagnosis needed, no tickets needed!

👉 View on our Website here - https://www.sedsconnective.org/event-details/brighton-hove-members-meet-ups-2025-11-28-11-00
November 28, 2025 at 8:01 AM
sedsconnective.org
Happy Thanksgiving!
May your Thanksgiving be filled with love, laughter and gratitude ⭐
November 27, 2025 at 4:29 PM
sedsconnective.org
Neurodivergent adults Autistic, ADHD and those with Tourette’s are over twice as likely to have hypermobility than the general population in this study.
The study pubmed.ncbi.nlm.nih.gov/35185636/ Csecs et al (2022) led by our Patron Dr Eccles is very important.
#autism #adhd #tourettes
November 27, 2025 at 1:13 PM
sedsconnective.org
Our next free monthly support meeting is today, Thursday 27th November | 7pm - 8:30pm | Heathy Farm, Crawley RH10 3NQ. No diagnosis needed, no tickets needed!

👉 View on our Website here - https://www.sedsconnective.org/event-details/crawley-surrey-sussex-meet-up-2025-11-27-19-00
November 27, 2025 at 9:39 AM
Reposted by SEDSConnective
crawleycaction.bsky.social
Do you have pain, fibromyalgia, tiredness, allergies or stomach issues?
Are you neurodivergent ADHD/Autistic/Dyslexic or have neurodivergent children?
Join @sedsconnective.org support meeting this Thursday 27 November at 7pm in Heathy Farm Pub, Crawley.

More - www.sedsconnective.org/event-detail...
November 25, 2025 at 11:40 AM
Reposted by SEDSConnective
sedsconnective.org
Neurodivergence ♾️
We have pioneered these connections as the leading charity as it has been misunderstood or diagnostically misattributed for so long! Read more www.sedsconnective.org 🙏
#brainbody #ADHD #Autism #dyspraxia #dyslexia #dyscalculia #TS #hypermobility #EDS #HSD #NothingAboutUsWithoutUs
An infographic from SEDSConnective titled "Neurodivergence" with overlapping colorful brain illustrations representing different neurodivergent conditions: Autism (green), AD(H)D (blue), Tourette’s (orange), Dyscalculia (purple), Dyslexia (pink), and Dyspraxia (red). Each brain lists associated strengths: Autism: Memory, Fine detail thinking, Passion, Creativity AD(H)D: Creativity, Energetic, Verbal skills Tourette’s: Interpersonal skills, Planning strengths, Hyperfocus Dyscalculia: Verbal skills, Empathy, Intuition Dyslexia: Problem solvers, Visual thinkers, Observant, 3D thinkers Dyspraxia: Empathy, Intuition, Problem solving In the center, a blue circle reads: “Neurodivergence is having a brain that behaves, learns and processes differently from the neuromajority.” Text at the top states: “It is likely that connective tissues are different than the general population in some of these neurodivergences” “You can also have acquired neurodivergence” Logos and credits are at the bottom for SEDSConnective, Jane Green, Mary Colley, and Joseph Aquilina.
April 9, 2025 at 8:58 AM
sedsconnective.org
The paper’s idea is that if these body signals are noisy or unreliable because of joint hypermobility, the brain may have a harder time reading them and using them to understand and regulate emotions.
November 25, 2025 at 9:19 AM
Reposted by SEDSConnective
learningmet.bsky.social
New article from team member Naomi Jacobs, sharing findings from research with disabled members of churches on the right to participate in religious institutions, in the light of the Equality Act www.scienceopen.com/document?vid...
“I Just Didn’t Fit into the Way That They Did Church”: Barriers to Access and Participation for Disabled People in UK Churches
<p xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" class="first" dir="auto" id="d1540803e97">Disabled people have rights to practise their religions under equality and human rights l...
www.scienceopen.com
November 12, 2025 at 6:04 PM
Reposted by SEDSConnective
jgjanegreenmbe.bsky.social
Autism evidence accepted and published incl ADHD neurodivergence by Parliament
@SEDSConnective.org

x.com/jgjanegreenm...
November 20, 2025 at 6:19 PM
sedsconnective.org
Grateful to @egcouncil @egtowncouncil supporting our grassroutes community charity for cooccurring physical health issues #hypermobility #ND
😊🙏
November 24, 2025 at 11:33 AM
sedsconnective.org
📢We are delighted to announce the next webinar with SEDSConnective Patron Dr Zac Spiritos the neurogastroenterologist 😀
Register with this link for a ticket: https://www.eventbrite.co.uk/e/sedsconnective-dr-zac-spiritos-gut-hypermobility-issues-tickets-1968610401705
November 14, 2025 at 1:56 AM
sedsconnective.org
Misusing language about neurodivergence has happened in the past.
To keep doing it is linguistically oppressive in action just as it is with race, gender or religion.

November 11, 2025 at 9:06 AM
sedsconnective.org
#AntiBullyingWeek 2025! This years theme is “Power for Good" - organised by the Anti-Bullying Alliance (ABA) this week is all about empowering everyone to use their power to support others!
November 10, 2025 at 8:00 AM
sedsconnective.org
'Who' s Avoiding what?'

British Psychological Society Annual Conference 2025 Monday 10th November
Education Additional Needs Unmet Needs EBSA Neurodivergence

#edpsych #cpsych @BPSOfficial #education #AN #EBSA
November 7, 2025 at 5:47 PM
sedsconnective.org
It’s #TrusteesWeek! 💙 We want to say a huge thank you to all of our incredible Trustees for everything they do. A huge thank you to Kelly Harris one of our incredible trustees who also helps to run our free monthly support meetings in Brighton - we cannot thank you enough for all that you do!
November 7, 2025 at 2:41 PM
sedsconnective.org
It’s #TrusteesWeek! 💙
We want to say a huge thank you to all of our incredible Trustees for everything they do to guide and support SEDSConnective.
A special shout-out to Areeba our Physiotherapist FCP who also helps run our free monthly support meetings - your dedication makes such a differenc
November 6, 2025 at 8:00 AM
sedsconnective.org
It’s #TrusteesWeek! 💙
We want to say a huge thank you to all of our incredible Trustees for everything they do to guide and support SEDSConnective.
A special mention to Sonal, our Press & Media Comms and volunteer Trustee, who also leads our amazing team of volunteers!
November 5, 2025 at 8:00 AM
sedsconnective.org
The ADHD & Women Summit!
Our Chair Jane Green MBE, spoke on “Brain Body Burnout - Your Body Is Talking, But Can You Hear It?”

Thank you Seed Talks for hosting such a fantastic event!
@jgjanegreenmbe.bsky.social
November 3, 2025 at 6:50 PM
Reposted by SEDSConnective
pebbleautism.bsky.social
@jgjanegreenmbe.bsky.social fabulous talk this morning. A really useful reframing of how the common signs of ‘anxiety’ when a child or young person is struggling with school can actually be signs of a connective tissue disorder and/or living with chronic pain
A slide showing the common physical symptoms in Emotionally Based School Avoidance: pain, feeling sick, stomach ache, headaches, tiredness, poor digestion, bowel/bladder issues, muscle rigidity, poor sleep, racing heart, fear, upset, anger.
November 1, 2025 at 12:10 PM
sedsconnective.org
📢SEDSConnective Newsletter! Sign up as a member and subscribe to our monthly newsletter!

Be the first to hear our exclusive news, exciting updates as well as opportunities to take part in events and projects. 🎉

➡️Sign up here: www.sedsconnective.org - scroll to the bottom of the page to sign up!
October 29, 2025 at 12:50 PM
sedsconnective.org
Last chance to get tickets! Seed Talks presents The ADHD & Women Summit - London
With our chair Jane Greenmbe SedsConnective and many others on November 1st.
Jane will be speaking on body brains burnout - Your Body is Talking But Can You Hear It?

Grab yours here: ow.ly/MgLx50XaFkQ
October 24, 2025 at 3:26 PM
sedsconnective.org
Just over 1 week to go until the @ehlersdanlos.bsky.social Society EDS ECHO Summit: Mental Health!
With our chair @jgjanegreenmbe.bsky.social
⁠
🎟️ Register now (or apply for a scholarship) at www.ehlers-danlos.com/eds-echo-sum... “
October 24, 2025 at 2:28 PM
sedsconnective.org
Victoria Beckham has disclosed her self-diagnoses of dyslexia and dyscalculia while speaking on Call Her Daddy podcast where she discussed her new Netflix documentary. We know how creativity can be such a powerful strength within neurodivergence and how the struggles can present to others ♾️
October 22, 2025 at 10:47 PM