SCOTT
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sdkm.bsky.social
SCOTT
@sdkm.bsky.social
Tattooed • RRMS dx2006 • Never give up
Congrats to the teenager from me, college rules!! Even I did that! 😂 Uni is for academic genius's! 😂 You'll enjoy it I'm sure, go towards the thing that scares/worries you, you'll realise it's not that scary at all 😊
November 24, 2025 at 6:51 PM
Have a great time! I've never been and it's just over the Isle of Man for me. I want to go. I should go. I like Guinness! 😂
November 23, 2025 at 9:12 PM
I live with MS, which goes hand in hand (no pun intended!) with Raynauds. I can't stand it, we have no grip on anything when our hands are so cold and numb! 🤦🏻‍♂️
November 19, 2025 at 8:46 PM
Hey, I did take it yes, it improved nothing after increasing the dose as per the 'script. So I stopped taking it. I just live with ice blocks for hands 😔 😡 Have you got a coping mechanism at all?
November 19, 2025 at 6:33 PM
Thank you for your reply 🙂 I've done some research, as there is one near to me which has been recommended by non-ms harbouring folk. However, my MS nurse has arranged for me to meet her there and was curious if any awesome MS folk on here had experience, good or otherwise, to help inform me.
November 18, 2025 at 8:02 AM
I'm going to send them the article and see what they say/respond with. I anticipate nothing, expectation level 0. But thank you for sharing it, Prof G has been very helpful over the years and I'm grateful for all his sharing.
November 3, 2025 at 12:18 PM
I mentioned experiencing PIRA to my MS Nurse only a matter of a month or 2 back, guess what? Completely ignored. It feels like I'm having to teach and coach my Neurology team a thing or two, not the other way round! 🤬
November 3, 2025 at 10:38 AM
I only said in the last 48hrs that I was considering going back to play chess again. It's been decades since I last did, but I enjoyed it! Then I got distracted by something inane and dull! Classic! 🤦🏻‍♂️ Thanks for the reminder trigger! 🤣👊🏼
October 31, 2025 at 8:11 AM
Sometimes crying is all we have and it, for me, sometimes really does help 😢 Don't feel bad for crying, let all that emotion out if you need to 😊
October 30, 2025 at 7:54 AM