SCOTT
@sdkm.bsky.social
Tattooed • RRMS dx2006 • Never give up
Reposted by SCOTT
Fatigue in MS isn’t “being tired.”
It’s your brain and nerves burning energy just to function.
Small fixes help a LOT: hydration, electrolytes, regular rest breaks, and stable blood sugar.
It’s your brain and nerves burning energy just to function.
Small fixes help a LOT: hydration, electrolytes, regular rest breaks, and stable blood sugar.
November 20, 2025 at 5:03 PM
Fatigue in MS isn’t “being tired.”
It’s your brain and nerves burning energy just to function.
Small fixes help a LOT: hydration, electrolytes, regular rest breaks, and stable blood sugar.
It’s your brain and nerves burning energy just to function.
Small fixes help a LOT: hydration, electrolytes, regular rest breaks, and stable blood sugar.
Reposted by SCOTT
Anyone on here with #MS ever been in a #hyperbaricoxygenchamber? What was your experience like? Any positives or otherwise from it you're willing to share? 🤔😁👍🏼
November 17, 2025 at 7:15 PM
Anyone on here with #MS ever been in a #hyperbaricoxygenchamber? What was your experience like? Any positives or otherwise from it you're willing to share? 🤔😁👍🏼
Great session with @jenibaykoca.bsky.social, @chiaraml.bsky.social and others (not on bsky) on Friday afternoon. Moving the psychological distress in #MS subject along and helping develop the digital app for all those with MS 😁👍🏼👊🏼
November 16, 2025 at 10:55 AM
Great session with @jenibaykoca.bsky.social, @chiaraml.bsky.social and others (not on bsky) on Friday afternoon. Moving the psychological distress in #MS subject along and helping develop the digital app for all those with MS 😁👍🏼👊🏼
Reposted by SCOTT
Brain scans reveal that mindfulness meditation for pain is not a placebo
Mindfulness meditation engages separate neural pathways from the well-documented “placebo effect”
www.eurekalert.org/news-release...
Mindfulness meditation engages separate neural pathways from the well-documented “placebo effect”
www.eurekalert.org/news-release...
Brain scans reveal that mindfulness meditation for pain is not a placebo
Brain scans reveal that mindfulness meditation engages different neural pathways compared to placebo, demonstrating that pain relief from mindfulness meditation is not the result of the placebo effect...
www.eurekalert.org
November 15, 2025 at 12:56 PM
Brain scans reveal that mindfulness meditation for pain is not a placebo
Mindfulness meditation engages separate neural pathways from the well-documented “placebo effect”
www.eurekalert.org/news-release...
Mindfulness meditation engages separate neural pathways from the well-documented “placebo effect”
www.eurekalert.org/news-release...
Reposted by SCOTT
#MS_Selfie Breaking News: Fenebrutinib Press Release
My predictions may be correct. What were yours? Is this the game-changer we were hoping for? => gavingiovannoni.substack.com/p/breaking-n...
My predictions may be correct. What were yours? Is this the game-changer we were hoping for? => gavingiovannoni.substack.com/p/breaking-n...
Breaking news: Fenebrutinib Press Release
My predictions may be correct.
gavingiovannoni.substack.com
November 11, 2025 at 7:34 AM
#MS_Selfie Breaking News: Fenebrutinib Press Release
My predictions may be correct. What were yours? Is this the game-changer we were hoping for? => gavingiovannoni.substack.com/p/breaking-n...
My predictions may be correct. What were yours? Is this the game-changer we were hoping for? => gavingiovannoni.substack.com/p/breaking-n...
My wedding and living with #MS do not work well together. I've married the most exceptional woman I've ever been with but #Fatigue won in the end. It's not how many times you fall down, it's the amount of times you get up again! #NeverGiveUp
November 8, 2025 at 1:18 PM
My wedding and living with #MS do not work well together. I've married the most exceptional woman I've ever been with but #Fatigue won in the end. It's not how many times you fall down, it's the amount of times you get up again! #NeverGiveUp
Reposted by SCOTT
Developing a new multiple sclerosis treatment
www.eurekalert.org/news-release...
www.eurekalert.org/news-release...
Developing a new multiple sclerosis treatment
UIC researchers have developed a new way to deliver anti-inflammatory drugs to the central nervous system. Their method, which deploys immune-regulating cells wearing anti-inflammatory “nanopack...
www.eurekalert.org
November 8, 2025 at 12:52 PM
Developing a new multiple sclerosis treatment
www.eurekalert.org/news-release...
www.eurekalert.org/news-release...
I can advocate for this 100%. Calm your mind and move mindfully. It helps a lot done once daily.
#MS #Mindfulness #Calm #Peace
on.soundcloud.com/6FmleHNTsQmR...
#MS #Mindfulness #Calm #Peace
on.soundcloud.com/6FmleHNTsQmR...
Mindfulness: A practical guide to finding peace in a frantic world
A download of guided meditations aimed to complement the learnings found in Prof Mark William's and Dr Danny Penman's guide to freeing yourself from the stresses of everyday life. Containing all the m
soundcloud.com
November 7, 2025 at 3:48 PM
I can advocate for this 100%. Calm your mind and move mindfully. It helps a lot done once daily.
#MS #Mindfulness #Calm #Peace
on.soundcloud.com/6FmleHNTsQmR...
#MS #Mindfulness #Calm #Peace
on.soundcloud.com/6FmleHNTsQmR...
Reposted by SCOTT
#MS_Selfie Newsletter: Are you aware of SAW? Would you want to know if you had smouldering MS?
I am acutely aware of how often you have been gaslit when it comes to smouldering MS. Please share your experiences => buff.ly/xKWBbf4
I am acutely aware of how often you have been gaslit when it comes to smouldering MS. Please share your experiences => buff.ly/xKWBbf4
Are you aware of SAW? Would you want to know if you had smouldering MS?
I am acutely aware of how often you, as people with MS or a spouse, partner or family member of someone with MS, have been gaslit when it comes to smouldering MS.
gavingiovannoni.substack.com
November 2, 2025 at 9:20 PM
Reposted by SCOTT
❤️🧠
“…exercise is important, not only physically, but for the brain...emotionally, we know exercise can reduce depressive symptoms & anxiety…I would say that movement & exercise is essential for those with MS”
podcasts.apple.com/ie/podcast/l...
#spéirghorm #Brain #Wheelchair #MultipleSclerosis
“…exercise is important, not only physically, but for the brain...emotionally, we know exercise can reduce depressive symptoms & anxiety…I would say that movement & exercise is essential for those with MS”
podcasts.apple.com/ie/podcast/l...
#spéirghorm #Brain #Wheelchair #MultipleSclerosis
S02E02. Keep Moving: The Power of Sport with MS and related conditions
Podcast Episode · Let's Talk MS · 23/10/2025 · 41m
podcasts.apple.com
November 2, 2025 at 9:16 PM
❤️🧠
“…exercise is important, not only physically, but for the brain...emotionally, we know exercise can reduce depressive symptoms & anxiety…I would say that movement & exercise is essential for those with MS”
podcasts.apple.com/ie/podcast/l...
#spéirghorm #Brain #Wheelchair #MultipleSclerosis
“…exercise is important, not only physically, but for the brain...emotionally, we know exercise can reduce depressive symptoms & anxiety…I would say that movement & exercise is essential for those with MS”
podcasts.apple.com/ie/podcast/l...
#spéirghorm #Brain #Wheelchair #MultipleSclerosis
Reposted by SCOTT
10 Strange Things About Multiple Sclerosis youtu.be/FyTTRLjEpjM?...
10 Strange Things About Multiple Sclerosis
YouTube video by Dr. Brandon Beaber
youtu.be
October 29, 2025 at 7:41 PM
10 Strange Things About Multiple Sclerosis youtu.be/FyTTRLjEpjM?...
BGB Strong LEVEL 1 | Phase 1 | Session 1, 2 & 3 done this week so far!!
#TheMSGym #MS
BOOM 💥 #DailyPhysio Let's do this!!!!
#TheMSGym #MS
BOOM 💥 #DailyPhysio Let's do this!!!!
October 29, 2025 at 4:32 PM
BGB Strong LEVEL 1 | Phase 1 | Session 1, 2 & 3 done this week so far!!
#TheMSGym #MS
BOOM 💥 #DailyPhysio Let's do this!!!!
#TheMSGym #MS
BOOM 💥 #DailyPhysio Let's do this!!!!
October 24, 2025 at 3:40 PM
Reposted by SCOTT
🎉 curems.net turns one!
In 12 months:
🟢 40% Italian, 60% international readers
🟢 1,250+ contacts from 56 countries
🟢 152 scientific papers cited
🟢 Biweekly updates
CureMS.net is becoming a key resource on #AHSCT for patients and professionals. Thanks to all who support and to all the readers! #MS
In 12 months:
🟢 40% Italian, 60% international readers
🟢 1,250+ contacts from 56 countries
🟢 152 scientific papers cited
🟢 Biweekly updates
CureMS.net is becoming a key resource on #AHSCT for patients and professionals. Thanks to all who support and to all the readers! #MS
October 23, 2025 at 7:42 AM
🎉 curems.net turns one!
In 12 months:
🟢 40% Italian, 60% international readers
🟢 1,250+ contacts from 56 countries
🟢 152 scientific papers cited
🟢 Biweekly updates
CureMS.net is becoming a key resource on #AHSCT for patients and professionals. Thanks to all who support and to all the readers! #MS
In 12 months:
🟢 40% Italian, 60% international readers
🟢 1,250+ contacts from 56 countries
🟢 152 scientific papers cited
🟢 Biweekly updates
CureMS.net is becoming a key resource on #AHSCT for patients and professionals. Thanks to all who support and to all the readers! #MS
Reposted by SCOTT
MS trial results suggest drugs could repair damage
www.bbc.co.uk/news/article...
www.bbc.co.uk/news/article...
Cambridge University multiple sclerosis drugs trial has results boost
The
www.bbc.co.uk
October 23, 2025 at 7:21 AM
MS trial results suggest drugs could repair damage
www.bbc.co.uk/news/article...
www.bbc.co.uk/news/article...
Reposted by SCOTT
#MS fatigue isn’t “being tired.” It’s your body burning through energy faster than a crackhead through a dime bag. Yeah, I said it.
New post → mssucks.co/k
#MSSucks #MSFatigue
New post → mssucks.co/k
#MSSucks #MSFatigue
Sick and Tired of Being Sick and Tired: MS Fatigue
MS fatigue isn’t “just being tired.” It’s neurological chaos that drains your battery faster than caffeine can load it. Spoiler: naps don’t fix this.
mssucks.co
October 21, 2025 at 9:00 PM
#MS fatigue isn’t “being tired.” It’s your body burning through energy faster than a crackhead through a dime bag. Yeah, I said it.
New post → mssucks.co/k
#MSSucks #MSFatigue
New post → mssucks.co/k
#MSSucks #MSFatigue
Reposted by SCOTT
A summary of the efficacy of ublituximab (briumvi) on prevention of relapses and MRI activity in multiple sclerosis (data from the ULTIMATE I/II trials) pmc.ncbi.nlm.nih.gov/articles/PMC...
October 21, 2025 at 4:10 AM
A summary of the efficacy of ublituximab (briumvi) on prevention of relapses and MRI activity in multiple sclerosis (data from the ULTIMATE I/II trials) pmc.ncbi.nlm.nih.gov/articles/PMC...