Sarah
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running2staysane.bsky.social
Sarah
@running2staysane.bsky.social
Solo mum of 6, complex needs TA, jnr parkrun director. Run a bit, swim a bit, trying to stay sane whilst navigating SEND system. Neurodivergent family. Norwich #legorunbuddy
Cannot get up without seeing them & they are where I sit to put my shoes on so I take them. The riddiculous structures & prompts I have built up over the years. We have added visual symbols on daily board, for small, he can read but it reduces demand (pda). #NDfamilylifehacks 😂
November 25, 2025 at 5:19 PM
Yep I have this too. One big daily board, a monthly one and each child has a mini board under the monthly one. Its a clipboard so anything relevant can be put on. Plus one in kitchen for meals. And a mini DO THIS TODAY one where I cant not see it. Then I have my inhalers at bottom of stairs so I
November 25, 2025 at 5:19 PM
Yes and thats what they are doing the vouchers but not for the full fsm allocation. They are reducing it to £1:10 a day, so a voucher for £5 a week. Instead of £12:50-13 which most schools do. Mine calculated it to the penny and did it half termly which worked well. Now its fortnightly from LA.
November 24, 2025 at 3:45 PM
Entitled to and need going above & beyond. It was literally debated in parliament, changes agreed & backed up with guidance. Some schools default to the LA but the child is entitled to this provision.
November 24, 2025 at 2:43 PM
But they arent going above and beyond its a reasonable adjustments mandated in law and guidance now that FSM child who cannot access the meals at school should be given vouchers instead. Plenty of schools do it. How is making a reasonable adjustment to ensure child has access to something they are
November 24, 2025 at 2:43 PM
You have an effective working relationship with school when you are faced with battles like this? For a parent that is already stretched, and then school also struggling. Its so wrong. Ultimately funding needs to be increased in so many areas.
November 24, 2025 at 1:51 PM
I agree schools dont get enough but am not sure costs should be passed on to a parent in this way? ultimately its a child that actually needs quite a specific diet & parent already meeting additional costs because of that. And situations like this pit schools & families against each other, how can
November 24, 2025 at 1:51 PM
Is that even allowed? Its a new one on me. I had to battle for months, and LA is now providing them as child is EOTAS. But to break the £2:58 down & say only £1:10 is for food and thats all child can have, so £5:50 a week. Doesnt seem right to me.
November 24, 2025 at 1:47 PM
I have just seen an interesting query re FSM in a parent group. Child has sensory issues, so vouchers requested. School has eventually said yes but instead of the £2:61 per day in vouchers. Head is saying they will only give £1:10 as that covers food, rest is 'overheads' that school still needs.
November 24, 2025 at 1:47 PM
No its now looking like over £1300 but they aren't sure that will definitely be a long term fix and at that cost I may as well look at getting a new boiler....
November 24, 2025 at 1:42 PM
That sounds incribly full on. Hope you have a good network helping with kids, house etc. Will you at least get uninterrupted sleep if you are away over night?
November 24, 2025 at 1:09 PM
Happy Birthday A and I. Hope they have had a fabulous celebration and that you get a well earned rest at some point!🎂🧁🍾🎁🎈🎉
November 23, 2025 at 11:30 AM
Yep no heating mon-wed, temporary fix which broke within hours,yesterday fixed it properly but did say it may need a system flush as its 10yrs old. Worked fine til lunchtime today and is now showing F2 again. Honestly losing the will. Tbf its first time its gone wrong since I got it. But aghh.
November 22, 2025 at 5:03 PM
Sending hugs. Well done on the walk. Incredible to still be doing all you do. My week started strong then rapidly went downhill & at this point I am past caring 🤣 hopefully a run tomorrow will fix everything...
November 21, 2025 at 3:06 PM
We have a fix but it may still need a new ignition and a full flush of the system... not me crying at the cost 😬 yes cleaning up when you are ill sucks, but small mercies none of the children were also sick (touches wood). The sun is shining so hoping to get out for a walk at least.
November 21, 2025 at 2:31 PM
Day 5 of no heating here, boiler man just sorted a temporary fix. I had the delight of a v&d bug on wed with no hot water to clean up its been a delight....😬😂 if I dont laugh I will cry.
November 21, 2025 at 1:56 PM
Hope the week has improved and you did get out and do something whilst you had childcare. I often end just going for a walk with an audio book, sad but still time off.
November 21, 2025 at 1:51 PM
Yep ime these resources bases can be the opposite of inclusion. Instead they are just a holding pen and they dont meet needs or provide those children with appropriate education.
November 21, 2025 at 8:26 AM