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rgarde.bsky.social
R🍁
@rgarde.bsky.social
CANADIAN. Former freelance web content writer, author of books for Christian midlife women, creator of art, gardener. Not a Christian Nationalist!! #ME/CFS
Don't do mornings. https://www.facebook.com/ArtRosalieGarde instagram.com/rosaliegarde
I have the bed wedge. Is the other thing a neck brace? I have one of those for my neck pain I sometimes wear at my computer desk. Or is it something else?
November 26, 2025 at 4:53 AM
When an ankle is inflamed:

you don’t stretch it

you don’t rotate it to “loosen it”

you do gentle weight shifts

you let it heal

That makes sense!
November 26, 2025 at 4:50 AM
2. Hearing or feeling the crunch/crackle reinforces the urge. But each “one more” adds irritation. Chasing the crunch is what irritates the tissue.
3. Massaging during a flare often overstimulates the area.

Healing advice given was to think of it my neck like a sprained ankle.
November 26, 2025 at 4:50 AM
Would a do nothing day help? (this week I actually found 2 rest days did help). Will this result in a pain flare? (I'm still in a pain flare from activity done Oct 20). Is agreeing to this a bad idea? (chances are the day of I won't be in shape for it).
November 25, 2025 at 6:16 AM
Replying as an exercise for myself. Mine would be: with other things I want to do today, will a shower overtax me? How much standing will there be?Can I take that? (went on a museum trip last year and the nice person wanted to 'guide' us in person. He went on and on and I could hardly wait to sit!!)
November 25, 2025 at 6:16 AM
I can imagine the getting the scooter out using spoons. Things like bringing a box up from the basement or taking one down for storage is something I'm cautious of. Crazy amount of things become elephants to us that never use to.
November 25, 2025 at 6:09 AM
that after suggesting it was adrenal fatigue and that I should see her naturopath. There was no asking me what I'd done to that point, etc. It is difficult to communicate because others don't want to believe it. I go through waves of doubt myself too. Why journalling is important.
November 25, 2025 at 6:05 AM
Reflecting, I'm pretty sure it has been longer than a year as I stated above. I had to put 2 & 2 together from the internet. First time I read about PEM I said, "Oh my goodness, that explains my situation!" Last year at my gym group I timidly brought it up and one lady said "don't make it a crutch"
November 25, 2025 at 6:05 AM
I know I have it, physician appointments are so spread out and I don't report everything so an official diagnosis hasn't happened. So I'm out.
November 25, 2025 at 6:01 AM
The term "malaise" gets me. It too is vague. AI says: malaise is originally a French term where it means a vague feeling of discomfort, unease, or faintness, & it has been adopted into English with very similar meanings. -- I suppose we all describe it differently. My core feature is I fall asleep.
November 25, 2025 at 5:53 AM
I'm Canadian and going to be talking to my doctor about this product.
November 24, 2025 at 6:35 AM
Can you tell me what you think she should have said?
November 24, 2025 at 6:26 AM
Using God's name in vain.
November 23, 2025 at 6:12 AM
she qualifies for a Pension Jan 5
November 22, 2025 at 4:58 AM
Oh, dear.
I told my doctor of my gentle exercise programs I was doing. I was upbeat then. The last visit, I told him I had to drop out of them. Of course, I was put on Cymbalta for pain and that added to me crashing after those classes. Will see what he says this visit. He is still mid-diagnosis.
November 22, 2025 at 4:55 AM
Mine was 'sleep lab' 'sleep lab' 'sleep lab'. No, sir. No thanks. (I did do an at home sleep study out of pocket.)
November 22, 2025 at 4:52 AM
well, extreme tiredness describes mine. But there are other descriptors, yes.
November 22, 2025 at 4:51 AM
does it say buy a ready made meal to pop into the oven? I loke those.
November 22, 2025 at 4:41 AM