Phil Latouche
@platouche.com
Business Analyst | #longcovid #PASC #patientpartner | Long Covid advocate
Analyste d'affaires | #covidlongue #covidlong #PACL #patientpartenaire #quebec | Défenseur de la COVID longue
Analyste d'affaires | #covidlongue #covidlong #PACL #patientpartenaire #quebec | Défenseur de la COVID longue
Reposted by Phil Latouche
Canada's proposed Long COVID recommendations (CAN-PCC) pose harm to patients.
I spoke with experts + advocates including @sunsopeningband.bsky.social, Adriana Patino, @sabrinapoirier.bsky.social to breakdown why.
#pwME #LongCOVID #CanadaSky
simonspichak.beehiiv.com/p/everything...
I spoke with experts + advocates including @sunsopeningband.bsky.social, Adriana Patino, @sabrinapoirier.bsky.social to breakdown why.
#pwME #LongCOVID #CanadaSky
simonspichak.beehiiv.com/p/everything...
Everything Wrong with Canada's Proposed Long COVID Recommendations
The proposed Canadian guidelines for treating Long COVID pose harm to patients and risk psychologizing the disease.
simonspichak.beehiiv.com
November 25, 2024 at 10:17 PM
Canada's proposed Long COVID recommendations (CAN-PCC) pose harm to patients.
I spoke with experts + advocates including @sunsopeningband.bsky.social, Adriana Patino, @sabrinapoirier.bsky.social to breakdown why.
#pwME #LongCOVID #CanadaSky
simonspichak.beehiiv.com/p/everything...
I spoke with experts + advocates including @sunsopeningband.bsky.social, Adriana Patino, @sabrinapoirier.bsky.social to breakdown why.
#pwME #LongCOVID #CanadaSky
simonspichak.beehiiv.com/p/everything...
Reposted by Phil Latouche
Hey #Canadians, you may have seen me sharing this awesome piece on other platforms, but I want us to rally here too, to push back on the Canadian Post-COVID Condition Guidelines.
They have draft recommendations on exercise and CBT.
I will post a links below for anyone that wants to learn more.
They have draft recommendations on exercise and CBT.
I will post a links below for anyone that wants to learn more.
My submission on the new Canadian draft recommendations for Long Covid
#LongCovid #MECFS #pwME @exceedhergrasp1.bsky.social @donoharmbc.bsky.social
thesciencebit.net/2024/11/21/m...
#LongCovid #MECFS #pwME @exceedhergrasp1.bsky.social @donoharmbc.bsky.social
thesciencebit.net/2024/11/21/m...
My submission on the new Canadian draft recommendations for Long Covid
From Jaime Seltzer over on Bluesky: Please call for this one, guys, this is a horrific turn. There is something at the core of these folks that cannot accept patient narrative as a source of real data...
thesciencebit.net
November 22, 2024 at 11:26 PM
Hey #Canadians, you may have seen me sharing this awesome piece on other platforms, but I want us to rally here too, to push back on the Canadian Post-COVID Condition Guidelines.
They have draft recommendations on exercise and CBT.
I will post a links below for anyone that wants to learn more.
They have draft recommendations on exercise and CBT.
I will post a links below for anyone that wants to learn more.
Reposted by Phil Latouche
Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane.
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November 20, 2024 at 11:27 AM
Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane.
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Reposted by Phil Latouche
I treated POTS and ME/CFS in the before times, and was part of one of the first research teams to identify bioenergetic deficits and dysautonomia in people with ME/CFS. I can say ME/CFS screening always has been an unresolved issue in POTS care. There’s a reason exercise works only ~50% of the time.
Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane.
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November 20, 2024 at 2:18 PM
I treated POTS and ME/CFS in the before times, and was part of one of the first research teams to identify bioenergetic deficits and dysautonomia in people with ME/CFS. I can say ME/CFS screening always has been an unresolved issue in POTS care. There’s a reason exercise works only ~50% of the time.
Reposted by Phil Latouche
Please call for this one, guys, this is a horrific turn.
There is something at the core of these folks that cannot accept patient narrative as a source of real data. They revert to default tropes about exercise rather than listening, or reading up-to-date studies.
There is something at the core of these folks that cannot accept patient narrative as a source of real data. They revert to default tropes about exercise rather than listening, or reading up-to-date studies.
Advocacy alert ‼️ New Canadian draft recommendations for Long Covid are out, & they include concerning guidance to EXERCISE to prevent Long Covid, & to use CBT as a treatment.
Have your say by Wednesday Nov 27 at 8:45 pm Pacific / 11:45 pm Eastern: www.research.net/r/CAN-PCCRec...
Have your say by Wednesday Nov 27 at 8:45 pm Pacific / 11:45 pm Eastern: www.research.net/r/CAN-PCCRec...
November 21, 2024 at 2:17 PM
Please call for this one, guys, this is a horrific turn.
There is something at the core of these folks that cannot accept patient narrative as a source of real data. They revert to default tropes about exercise rather than listening, or reading up-to-date studies.
There is something at the core of these folks that cannot accept patient narrative as a source of real data. They revert to default tropes about exercise rather than listening, or reading up-to-date studies.
Reposted by Phil Latouche
I finally found a chart I'd been looking for in prep for @johnvsjonvsme.bsky.social Scary Science!
'Replicated Findings in ME/CFS and Long Covid' by German Association for #MECFS. Reduced cerebral blood flow seen in '92, autoantibodies '03, hypometabolism of CNS '98, etc. #GreatestMEdicalScandal
'Replicated Findings in ME/CFS and Long Covid' by German Association for #MECFS. Reduced cerebral blood flow seen in '92, autoantibodies '03, hypometabolism of CNS '98, etc. #GreatestMEdicalScandal
November 15, 2024 at 1:53 AM
I finally found a chart I'd been looking for in prep for @johnvsjonvsme.bsky.social Scary Science!
'Replicated Findings in ME/CFS and Long Covid' by German Association for #MECFS. Reduced cerebral blood flow seen in '92, autoantibodies '03, hypometabolism of CNS '98, etc. #GreatestMEdicalScandal
'Replicated Findings in ME/CFS and Long Covid' by German Association for #MECFS. Reduced cerebral blood flow seen in '92, autoantibodies '03, hypometabolism of CNS '98, etc. #GreatestMEdicalScandal
Reposted by Phil Latouche
I’ve added quite a few new connections to my #MECFS and #LongCOVID starter pack.
Still working on getting caught up on requests, but if you visited it before, you may want to visit again for some awesome newbies. 💙
Still working on getting caught up on requests, but if you visited it before, you may want to visit again for some awesome newbies. 💙
I have started a Starter Pack for ME and Long COVID. 💙
It includes some mutuals with other packs but also some new faces too. :)
Please let me know if you want to be added. I know I still have about a million wonderful people to add. 💙
go.bsky.app/6R7bqc7
It includes some mutuals with other packs but also some new faces too. :)
Please let me know if you want to be added. I know I still have about a million wonderful people to add. 💙
go.bsky.app/6R7bqc7
November 14, 2024 at 2:08 AM
I’ve added quite a few new connections to my #MECFS and #LongCOVID starter pack.
Still working on getting caught up on requests, but if you visited it before, you may want to visit again for some awesome newbies. 💙
Still working on getting caught up on requests, but if you visited it before, you may want to visit again for some awesome newbies. 💙
Des gens qui parlent français et qui ont la #covidlongue #covidlong ou #EM #paE
#quebec #canada ? Pourquoi pas regarder pour partir un #starterpack ?
#quebec #canada ? Pourquoi pas regarder pour partir un #starterpack ?
November 14, 2024 at 1:32 AM
Des gens qui parlent français et qui ont la #covidlongue #covidlong ou #EM #paE
#quebec #canada ? Pourquoi pas regarder pour partir un #starterpack ?
#quebec #canada ? Pourquoi pas regarder pour partir un #starterpack ?