Naylor007
@naylor007.bsky.social
#pwME #MyalgicEncephalomyelitis One day at a time ... will do what I can to help others
Reposted by Naylor007
Let’s say this loud and clear:
Exercise is not the goal, recovery is the goal so one can exercise.
Listen to this man - he’s a world leading expert on PEM/PENE
#ME #Longcovid
Exercise is not the goal, recovery is the goal so one can exercise.
Listen to this man - he’s a world leading expert on PEM/PENE
#ME #Longcovid
The thing with clinicians working with patients on “pacing” programs is they may turn into “pacing up” if you’re not disciplined about it. It shouldn’t turn into graded activity by another name. A clear understanding and expectation of the program is required for both the patient and the clinician.
November 16, 2024 at 8:11 PM
Let’s say this loud and clear:
Exercise is not the goal, recovery is the goal so one can exercise.
Listen to this man - he’s a world leading expert on PEM/PENE
#ME #Longcovid
Exercise is not the goal, recovery is the goal so one can exercise.
Listen to this man - he’s a world leading expert on PEM/PENE
#ME #Longcovid
Reposted by Naylor007
I have started a Starter Pack for ME and Long COVID. 💙
It includes some mutuals with other packs but also some new faces too. :)
Please let me know if you want to be added. I know I still have about a million wonderful people to add. 💙
go.bsky.app/6R7bqc7
It includes some mutuals with other packs but also some new faces too. :)
Please let me know if you want to be added. I know I still have about a million wonderful people to add. 💙
go.bsky.app/6R7bqc7
November 12, 2024 at 4:23 AM
I have started a Starter Pack for ME and Long COVID. 💙
It includes some mutuals with other packs but also some new faces too. :)
Please let me know if you want to be added. I know I still have about a million wonderful people to add. 💙
go.bsky.app/6R7bqc7
It includes some mutuals with other packs but also some new faces too. :)
Please let me know if you want to be added. I know I still have about a million wonderful people to add. 💙
go.bsky.app/6R7bqc7
Reposted by Naylor007
Great German article on ME/CFS, how patients are treated, the history, PACE trial, the link with Long Covid & insights from Scheibenbogen.
I read it by auto-translating it, found it doable to read it that way.
zeitung.faz.net/fas/leben/20...
#MECFS #LongCovid
I read it by auto-translating it, found it doable to read it that way.
zeitung.faz.net/fas/leben/20...
#MECFS #LongCovid
October 29, 2023 at 8:01 PM
Great German article on ME/CFS, how patients are treated, the history, PACE trial, the link with Long Covid & insights from Scheibenbogen.
I read it by auto-translating it, found it doable to read it that way.
zeitung.faz.net/fas/leben/20...
#MECFS #LongCovid
I read it by auto-translating it, found it doable to read it that way.
zeitung.faz.net/fas/leben/20...
#MECFS #LongCovid
Reposted by Naylor007
Interessanter Preprint, der auch die Frage aufwirft, ob mit Repurposing bereits erhältlicher Medikamente (u. a. Guanfacine oder Memantine; Wirkprinzip Blockade NMDA-abhängiger Kanäle) eine Verbesserung von neurokognitiven Beschwerden erreichen kann.
Brain fog in long COVID: A glutamatergic hypothesis with astrocyte dysfunction accounting for brain ...
Brain [18F]FDG-PET scans have revealed a glucose hypometabolic pattern in patients with long COVID. This hypometabolism might reflect primary astrocyt…
www.sciencedirect.com
October 15, 2023 at 10:29 AM
Interessanter Preprint, der auch die Frage aufwirft, ob mit Repurposing bereits erhältlicher Medikamente (u. a. Guanfacine oder Memantine; Wirkprinzip Blockade NMDA-abhängiger Kanäle) eine Verbesserung von neurokognitiven Beschwerden erreichen kann.
frontiersin.org/articles/10.33…
In thought & linking the NO/ONOO cycle with known impacts of 🔁inflammation on mitochondria ATP, NMDA, HPA, Thyroid, Cortisol hypotheses, makes for a sobering (rudimentary) understanding of how serious this is for us. Really 😡 at the downplay o#MEME
In thought & linking the NO/ONOO cycle with known impacts of 🔁inflammation on mitochondria ATP, NMDA, HPA, Thyroid, Cortisol hypotheses, makes for a sobering (rudimentary) understanding of how serious this is for us. Really 😡 at the downplay o#MEME
October 14, 2023 at 1:21 AM
frontiersin.org/articles/10.33…
In thought & linking the NO/ONOO cycle with known impacts of 🔁inflammation on mitochondria ATP, NMDA, HPA, Thyroid, Cortisol hypotheses, makes for a sobering (rudimentary) understanding of how serious this is for us. Really 😡 at the downplay o#MEME
In thought & linking the NO/ONOO cycle with known impacts of 🔁inflammation on mitochondria ATP, NMDA, HPA, Thyroid, Cortisol hypotheses, makes for a sobering (rudimentary) understanding of how serious this is for us. Really 😡 at the downplay o#MEME
Reposted by Naylor007
Our paper has been published in Mayo Clinic Proceedings! This is a Concise Clinical Review, meaning it MUST be short, with a limited number of pages and citations. Drs. Grach, Ganesh, and Chon and I worked very hard to pare it down to the essentials. www.mayoclinicproceedings.org/article/S002...
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic
disease often preceded by infection. There has been increased interest in ME/CFS recently
because of its significant...
www.mayoclinicproceedings.org
October 3, 2023 at 11:07 PM
Our paper has been published in Mayo Clinic Proceedings! This is a Concise Clinical Review, meaning it MUST be short, with a limited number of pages and citations. Drs. Grach, Ganesh, and Chon and I worked very hard to pare it down to the essentials. www.mayoclinicproceedings.org/article/S002...
Reposted by Naylor007
🧵
Danish newspaper BT writes about the terrible story to #severeME sufferer Morten Brandt who recently passed. Due to this disease being viewed as a "functional disorder" in Denmark, Morten was refused help
Google English translation
tinyurl.com/yc8pbb4e
#MEcfs #CFS #PwME
1/
Danish newspaper BT writes about the terrible story to #severeME sufferer Morten Brandt who recently passed. Due to this disease being viewed as a "functional disorder" in Denmark, Morten was refused help
Google English translation
tinyurl.com/yc8pbb4e
#MEcfs #CFS #PwME
1/
October 1, 2023 at 7:51 PM
🧵
Danish newspaper BT writes about the terrible story to #severeME sufferer Morten Brandt who recently passed. Due to this disease being viewed as a "functional disorder" in Denmark, Morten was refused help
Google English translation
tinyurl.com/yc8pbb4e
#MEcfs #CFS #PwME
1/
Danish newspaper BT writes about the terrible story to #severeME sufferer Morten Brandt who recently passed. Due to this disease being viewed as a "functional disorder" in Denmark, Morten was refused help
Google English translation
tinyurl.com/yc8pbb4e
#MEcfs #CFS #PwME
1/
Reposted by Naylor007
Auslan and Easy Read and accessible doc versions of the final #DisabilityRC report are here. (Click into each volume)
disability.royalcommission.gov.au/publications...
disability.royalcommission.gov.au/publications...
disability.royalcommission.gov.au
September 29, 2023 at 1:53 AM
Auslan and Easy Read and accessible doc versions of the final #DisabilityRC report are here. (Click into each volume)
disability.royalcommission.gov.au/publications...
disability.royalcommission.gov.au/publications...