Miriam Johnson
miriamjohnsonhyms.bsky.social
Miriam Johnson
@miriamjohnsonhyms.bsky.social
Professor of Palliative Medicine, Wolfson Palliative Care Research Centre, HYMS, University of Hull.
Reposted by Miriam Johnson
Reposted by Miriam Johnson
🏆Honoured to win the Dorothy Robson prize for #PalliativeMedicine at @hyms.ac.uk for an abstract
-from my #PhD research on #Inequalities in access to #PalliativeCare in lung disease
- thank you ☺️ 🫁

@wolfsonpallcare.bsky.social
@jonathankoffman.bsky.social @flissmurtagh.bsky.social
December 3, 2025 at 11:20 AM
Reposted by Miriam Johnson
🧵/ Today a damning parliamentary report on the state of palliative care services in England was published.

Services are patchy, underfunded & “ill-equipped” to address end-of-life needs.

Bereavement support is “frequently inaccessible.

The palliative care workforce is in a “critical” situation”.
November 28, 2025 at 8:25 AM
Reposted by Miriam Johnson
The Health and Social Care Committee’s evaluation of palliative care in England was published yesterday.

It’s hugely important, not least in the context of the assisted dying bill.

It’s had almost no media coverage.

committees.parliament.uk/publications...
November 29, 2025 at 8:52 AM
Reposted by Miriam Johnson
Without major investment, the govt’s 'commitment' to supporting people to palliative care is nothing but soft soap.

Please don’t buy it. Write to your MP. Speak out. Demand better.

Thank you @laylamoran.bsky.social & team for this hugely important work.

www.independent.co.uk/news/uk/home...
Warning issued as palliative care in England is ‘failing to meet people’s needs’
A new report has highlighted that bereavement support for loved ones, while "valuable", is "frequently inaccessible".
www.independent.co.uk
November 28, 2025 at 8:31 AM
Reposted by Miriam Johnson
Just out. Findings from our SUPPORTED research into homecare at end-of-life, which highlights the importance - and challenges of - inter-professional working. @wolfsonpallcare.bsky.social #socialcare #palliativecare #homecare
November 27, 2025 at 9:02 AM
Reposted by Miriam Johnson
this is amazing news - the HPV vaccine promises to eliminate cervical cancer in countries where uptake is high.
Vaccinating boys and girls. It works bitches.
November 26, 2025 at 6:57 PM
Reposted by Miriam Johnson
NEW RESEARCH (published in @palliativemedj.bsky.social)

Researchers at explore barriers to effective collaboration with homecare workers in community #PalliativeCare, and how systems can improve integration.

Read more below:

tinyurl.com/5n6kn46a
Addressing barriers to interprofessional working with homecare workers in community palliative care: Insights from a multi-site qualitative case study - Zana Bayley, Cat Forward, Caroline White, Helen...
Background: Homecare workers (paid workers without professional qualifications who provide care for people within their own homes) are crucial providers of end-...
tinyurl.com
November 26, 2025 at 5:19 PM
Reposted by Miriam Johnson
I think @scarlettmcnally.bsky.social is absolutely right in this piece from the @bmj.com last month.

Some bits of healthcare can be simple and transactional, but a lot is much more nuanced, and there’s an important role for senior wise clinicians.

Link:
www.bmj.com/content/391/...

#MedSky
November 15, 2025 at 1:12 PM
Reposted by Miriam Johnson
Our researchers presented their work at a @universityofhull.bsky.social event held in the @houseoflords.parliament.uk highlighting the need for continued investment in palliative care research and improved access to services across the UK. @flissmurtagh.bsky.social @miriamjohnsonhyms.bsky.social
October 3, 2025 at 9:58 AM
Reposted by Miriam Johnson
We’re proud to be part of the UKRI I3 partnership with the University of Technology Sydney, strengthening global #PalliativeCare #research 🌍

Over 80 joint papers, £2.8M funding, 37 exchanges & 5 conferences, building capacity, collaboration & impact worldwide.

Learn more here: tinyurl.com/5axstwbf
Building Critical Mass for Palliative Care Research | Wolfson Palliative Care Research Centre
The world population is ageing and, with the growth of multi-morbidities, UK deaths are expected to increase by 40% by 2040. New models of care and treatments are urgently needed to improve quality of life for the significantly increased number of people living with life-limiting illnesses. Yet research activity remains extremely limited and neglected, with a severe lack of critical mass of academics and research centres to build the palliative care evidence base. www.hyms.ac.uk/wolfson
tinyurl.com
November 6, 2025 at 12:21 PM
Reposted by Miriam Johnson
"It makes us feel really vulnerable."

With far right rallies being held across the UK, a group of medics decided it’s time to speak up. Omnya Ahmed joins our latest podcast to talk about the impact of racism in the NHS

🎧 open.spotify.com/episode/1zS9...
🎧 podcasts.apple.com/gb/podcast/d...
November 5, 2025 at 4:43 PM
Reposted by Miriam Johnson
Register to listen to @flissmurtagh.bsky.social talk about essential elements of care during the final year of life for adults with advanced illness. #AdvanceCarePlan #PalliativeCare @rcphysicians.bsky.social @apmeducation.bsky.social
October 29, 2025 at 12:37 PM
Reposted by Miriam Johnson
Government doesn't know how reliant it is on independent adult hospices for the provision of palliative and end-of-life care.

With more people dying in England each year, the sustainability of independent hospices is of national importance.

Read: www.nao.org.uk/reports/the-...
October 29, 2025 at 7:00 AM
Reposted by Miriam Johnson
Congratulations Sonya!! @ysteachingnhs.bsky.social
Dr Sonya Bushell has been awarded #SAPC Junior Investigator Research Prize by Society for Academic Primary care on “Better to be prepared”: understandings of early Advance Care Planning amongst those with long-term conditions at the SAPC Annual Scientific Meeting2025
October 27, 2025 at 1:49 PM
Reposted by Miriam Johnson
Asylum seekers, housed in hotels in Manchester, are reaching out in their own words to address the concerns of the local community.

Please take a minute to read their letter, & share it with the people in your life who need to hear the truth about the people they are protesting.
October 27, 2025 at 11:41 AM
Reposted by Miriam Johnson
Our researchers are very proud to be part of the team who developed the Breathing Space Garden which will be at Chelsea 2026! @asthmaandlung.org.uk @katebinnie.bsky.social @projectgivingback.bsky.social @annhutchinson.bsky.social
www.rhs.org.uk/shows-events...
The Asthma and Lung UK Breathing Space Garden
www.rhs.org.uk
October 21, 2025 at 8:43 AM
Reposted by Miriam Johnson
More People. More Need. More Action.
As ageing and chronic disease rise, palliative care is no longer optional. It’s a health system imperative.
This #WorldPalliativeCareDay, EAPC calls for stronger integration into national and EU health strategies.
#EAPC #WHPCD #PalliativeCare
October 11, 2025 at 2:48 PM
Reposted by Miriam Johnson
#Ambition2021 and the 2025 commission on PC and #EOLC urge for more funding of #researchinpc only 0.26% of the total health research funding is allocated to #PalliativeCare #HealthResearch . urgent investment needed
New paper published @flissmurtagh.bsky.social Funding for palliative research remains very low: out of total of 18,023 health research awards in 2022, only 136 related to palliative research – just 0.26% of the total £4.2billion awarded. See spcare.bmj.com/content/earl...
October 7, 2025 at 7:30 PM
Reposted by Miriam Johnson
Is #tylenol safe in pregnancy? Data 👇

A large Swedish study of 2.48M children found:

👶 No link btwn prenatal tylenol & autism, ADHD, or intellectual disability once sibling comparisons controlled for family/genetic factors.

👉 Tylenol is safe in pregnancy if needed.
jamanetwork.com/journals/jam...
Acetaminophen Use During Pregnancy and Children’s Risk of Autism, ADHD, and Intellectual Disability
This nationwide cohort study with sibling control analysis examines the association of acetaminophen use during pregnancy with children’s risk of autism, ADHD, and intellectual disability.
jamanetwork.com
September 23, 2025 at 3:42 AM
Reposted by Miriam Johnson
Please know that this is Trump scaremongering.

There is no good scientific evidence linking paracetamol (Tylenol) to autism.

A 2024 Swedish study of 2.4 million births found no relationship whatsoever between exposure to paracetamol in utero & subsequent autism.
www.theguardian.com/us-news/2025...
Trump attacks Tylenol as officials unveil highly contentious conclusions on autism
President says acetaminophen – also known as paracetamol - increases risk when taken by pregnant women, assertion contradicted by research
www.theguardian.com
September 23, 2025 at 6:04 AM
Reposted by Miriam Johnson
Our large umbrella review of models, components and outcomes of palliative and end-of-life care provided to adults living at home is now out! This includes evidence from 66 systematic reviews! All you want to know about models of care! journals.sagepub.com/doi/full/10....
Models, components and outcomes of palliative and end-of-life care provided to adults living at home: A systematic umbrella review of reviews - Sophie Pask, Chukwuebuka Okwuosa, Ahmed Mohamed, Rebecca...
Background: There is growing demand for home-based palliative care because of patient preference, and increased number of deaths. Optimal models for community-b...
journals.sagepub.com
September 22, 2025 at 10:23 AM
Reposted by Miriam Johnson
📝The results of the National Student Survey for 2025 are in and it's time to celebrate!🎉We've improved significantly since 2024, across all 9 areas and above the sector benchmark. Read more about these fantastic results here: www.hyms.ac.uk/about/news/2...
July 17, 2025 at 9:20 AM
Anywhere in Nyhavn - my most favourite place to eat in the world
Anyone have recs for must dos in Copenhagen? Restaurants?
June 26, 2025 at 6:43 PM