Lisa Lewis
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lisalewiswilts.bsky.social
Lisa Lewis
@lisalewiswilts.bsky.social
Trustee. Freelance Charity Consultant. Ex Charity CEO. Neurospicy. Currently on a Long Covid recovery journey. #LongCovid #MCAS
I most definitely wasn’t glorifying exhaustion from chronic illness. The act of Radical Rest is not ltd to those of us who are suffering from chronic conditions or post viral fatigue etc. I was using the image as a reminder for EVERYONE to practice self care. Unfortunately, I didn’t…
January 3, 2025 at 3:48 PM
I have absolutely no idea what you’re meaning is here. Maybe it’s my brain fog but…
January 3, 2025 at 2:51 PM
Reposted by Lisa Lewis
Just to bust this myth: PEM is *not* just disproportionate fatigue. This is a huge misconception. PEM/PENE is a systemic, whole body response to over exertion, that involves inflammation, muscle damage, neuroinflammation, immune activation and metabolic dysfunction. It’s never just fatigue #MEcfs
December 9, 2024 at 2:45 PM
That’s a really interesting observation and now you’ve said it it makes total sense. Good job I don’t eat before I shower - can’t imagine how many more pace points I would waste 😳
November 19, 2024 at 8:11 PM
Yes! It’s a free app, or you can additionally purchase & subscribe to the wearable monitoring device - which is what I have just started wearing
November 19, 2024 at 8:07 PM
I know! I finally have validation that it’s “not in my head” 🥳
November 19, 2024 at 8:04 PM
I was thinking more along the lines of how you explain to someone who isn’t suffering from PEM etc what fatigue is really like. eg when someone who is “healthy” tells you that they are “exhausted” & they don’t understand that when I get out of bed in the am I feel like I’ve already run 2 marathons
November 19, 2024 at 3:24 PM
Thank you!
November 17, 2024 at 5:18 PM