Lisa Lewis
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lisalewiswilts.bsky.social
Lisa Lewis
@lisalewiswilts.bsky.social
Trustee. Freelance Charity Consultant. Ex Charity CEO. Neurospicy. Currently on a Long Covid recovery journey. #LongCovid #MCAS
2025 will be my year of Radical Rest 🤩
#LongCovid #PEM #CFS #postviralfatigue
January 1, 2025 at 7:14 PM
December 9, 2024 at 2:48 PM
November 27, 2024 at 6:33 PM
November 26, 2024 at 9:21 PM
My constant companion - he’s with me 24/7 and he doesn’t care if I haven’t showered in a week 🥰
#LongCovid
November 21, 2024 at 10:34 AM
I truly value my trustee role for many reasons including those of self worth, making a contribution to society, and mental health etc but this is the price that I have to pay for the cognitive effort involved…

That’s a third of my daily pace points used up in a two hour online meeting.
1/2
November 20, 2024 at 2:07 PM
My personal mantra in order to ensure my acceptance of my current situation / condition.
#LongCovid #CFS #myalgicencephalomyelitis #ME
November 20, 2024 at 1:26 PM
Having a shower & washing my hair took 21 mins & used up 5.4 of my total 27 daily pace points.

That’s 20% of my daily total in 21 mins . Which means I’m basically f*cked for the rest of the day since I haven’t even made it downstairs yet

This is what life with Long Covid / CFS / ME looks like…
November 19, 2024 at 5:24 PM
November 19, 2024 at 10:57 AM