Life With CHD
lifewithchd.bsky.social
Life With CHD
@lifewithchd.bsky.social
Real truth about Life with CHD - the good the bad and the ugly ❤️💙 my Classic Fontan lasted 41 years with no other surgeries and no revision. 🙌🫶

Donate Life ~Become an Organ
Donor 💙💚 Heart and Liver Transplant Survivor - Cleveland Clinic 4/22/24
Reposted by Life With CHD
Shahnawaz Amdani discusses various risk factors for recurrent rejection in pediatric heart transplantation and questions what can be done to combat disparities. For all the details, watch the full #QuickTakes video: www.tctmd.com/videos/quick...
January 23, 2025 at 9:59 PM
Reposted by Life With CHD
Now out @plosmentalhealth.org I led a project examining the experiences of families w/ a child w/ HLHS (1 of the rarest & most costly congenital heart diseases). They face more than medical challenges—they grapple with immense psychosocial strains. #CardioSky
doi.org/10.1371/journal.pmen.0000208
Navigating family life with Hypoplastic Left Heart Syndrome: A qualitative study
Hypoplastic Left Heart Syndrome (HLHS) is a critical congenital heart abnormality that, prior to 1980, offered no treatment options beyond comfort care. Surgical advancements have since transformed th...
doi.org
December 20, 2024 at 7:00 PM
If someone crosses your mind, reach out. A simple message can mean more than you know.
#youmatter #chd
March 6, 2025 at 2:08 AM
We are currently seeking video or written stories from ACHD patients to share their experiences, advice for parents of CHD children, and guidance for younger teens navigating their own CHD journeys. MSG me for more details.
January 15, 2025 at 1:49 PM
Reposted by Life With CHD
Explore the article: "Effects of Vitamin D Supplementation on Cardiac Biomarkers: Results from the STURDY Trial." 🌞💊 Gain insights into the findings here: www.sciencedirect.com/science/arti... 🫀📚 #AJPC @aspcardio.bsky.social
November 21, 2024 at 6:17 PM