IPOPI
@ipopi.bsky.social
IPOPI, International Patient Organisation for Primary Immunodeficiencies, is a non-profit international organisation and the leading advocate for primary immunodeficiency (PID) patients worldwide
📖 What’s new in our autumn newsletter?
The 2024 PIDetect Programme is empowering healthcare professionals across Mali and improving PID diagnosis nationwide. Find out how these efforts are creating real impact and what’s next!
✨ Read more: e-news.ipopi.org
#PIDetect #PIDs #Mali
The 2024 PIDetect Programme is empowering healthcare professionals across Mali and improving PID diagnosis nationwide. Find out how these efforts are creating real impact and what’s next!
✨ Read more: e-news.ipopi.org
#PIDetect #PIDs #Mali
November 28, 2025 at 3:01 PM
📖 What’s new in our autumn newsletter?
The 2024 PIDetect Programme is empowering healthcare professionals across Mali and improving PID diagnosis nationwide. Find out how these efforts are creating real impact and what’s next!
✨ Read more: e-news.ipopi.org
#PIDetect #PIDs #Mali
The 2024 PIDetect Programme is empowering healthcare professionals across Mali and improving PID diagnosis nationwide. Find out how these efforts are creating real impact and what’s next!
✨ Read more: e-news.ipopi.org
#PIDetect #PIDs #Mali
IPOPI invites you to the upcoming PID Forum at the European Parliament!
PID Forum: When Rare Meets the Not-So-Rare – The Case of PIDs & SIDs.
Register here: forms.gle/eHJsMh7aoD1V...
We look forward to welcoming you!
PID Forum: When Rare Meets the Not-So-Rare – The Case of PIDs & SIDs.
Register here: forms.gle/eHJsMh7aoD1V...
We look forward to welcoming you!
November 27, 2025 at 12:43 PM
IPOPI invites you to the upcoming PID Forum at the European Parliament!
PID Forum: When Rare Meets the Not-So-Rare – The Case of PIDs & SIDs.
Register here: forms.gle/eHJsMh7aoD1V...
We look forward to welcoming you!
PID Forum: When Rare Meets the Not-So-Rare – The Case of PIDs & SIDs.
Register here: forms.gle/eHJsMh7aoD1V...
We look forward to welcoming you!
We’re happy to share this snapshot from the closing session of the Scientific Day on #Immunology and #AMR. 👏🏻
IPOPI was represented by Leire Solis, our Health Policy & Advocacy Director. 💙
🚀 We continue paving a promising path to protect people living with PIDs. 💪🏻
IPOPI was represented by Leire Solis, our Health Policy & Advocacy Director. 💙
🚀 We continue paving a promising path to protect people living with PIDs. 💪🏻
November 26, 2025 at 11:28 AM
We’re happy to share this snapshot from the closing session of the Scientific Day on #Immunology and #AMR. 👏🏻
IPOPI was represented by Leire Solis, our Health Policy & Advocacy Director. 💙
🚀 We continue paving a promising path to protect people living with PIDs. 💪🏻
IPOPI was represented by Leire Solis, our Health Policy & Advocacy Director. 💙
🚀 We continue paving a promising path to protect people living with PIDs. 💪🏻
Have you read our Autumn Newsletter? 🍂📰
We shared an important milestone in neonatal screening — a major step forward for early diagnosis and improved patient care.
🔗 Missed it? Catch up on the full newsletter here: e-news.ipopi.org
#IPOPI #SeasonalNewsletter
We shared an important milestone in neonatal screening — a major step forward for early diagnosis and improved patient care.
🔗 Missed it? Catch up on the full newsletter here: e-news.ipopi.org
#IPOPI #SeasonalNewsletter
November 21, 2025 at 3:14 PM
Have you read our Autumn Newsletter? 🍂📰
We shared an important milestone in neonatal screening — a major step forward for early diagnosis and improved patient care.
🔗 Missed it? Catch up on the full newsletter here: e-news.ipopi.org
#IPOPI #SeasonalNewsletter
We shared an important milestone in neonatal screening — a major step forward for early diagnosis and improved patient care.
🔗 Missed it? Catch up on the full newsletter here: e-news.ipopi.org
#IPOPI #SeasonalNewsletter
AMR is a growing threat — and especially serious for people with PIDs, who depend on effective antibiotics.
As ENIPAR members, we call for stronger national action, better training and fair access to diagnostics.
📄 Call to Action: ehma.org/app/uploads/...
#AMR #PID #WAW
As ENIPAR members, we call for stronger national action, better training and fair access to diagnostics.
📄 Call to Action: ehma.org/app/uploads/...
#AMR #PID #WAW
November 21, 2025 at 2:56 PM
AMR is a growing threat — and especially serious for people with PIDs, who depend on effective antibiotics.
As ENIPAR members, we call for stronger national action, better training and fair access to diagnostics.
📄 Call to Action: ehma.org/app/uploads/...
#AMR #PID #WAW
As ENIPAR members, we call for stronger national action, better training and fair access to diagnostics.
📄 Call to Action: ehma.org/app/uploads/...
#AMR #PID #WAW
🌍 World Children’s Day
Today we celebrate the voices, rights, and dreams of children everywhere.
A reminder that children are our future — and they deserve safety, health, education, and the chance to thrive. 💛
Together, we can build a world where every child grows, learns, and shines: healthy! ✨
Today we celebrate the voices, rights, and dreams of children everywhere.
A reminder that children are our future — and they deserve safety, health, education, and the chance to thrive. 💛
Together, we can build a world where every child grows, learns, and shines: healthy! ✨
November 20, 2025 at 1:12 PM
🌍 World Children’s Day
Today we celebrate the voices, rights, and dreams of children everywhere.
A reminder that children are our future — and they deserve safety, health, education, and the chance to thrive. 💛
Together, we can build a world where every child grows, learns, and shines: healthy! ✨
Today we celebrate the voices, rights, and dreams of children everywhere.
A reminder that children are our future — and they deserve safety, health, education, and the chance to thrive. 💛
Together, we can build a world where every child grows, learns, and shines: healthy! ✨
💙 We are thrilled to share the exciting news of welcoming two fantastic additions to the #IPOPI family: GhanaPOPI and ASOGEIDI [Guatemala]!
We are eager to collaborate with you to enhance diagnosis and care for patients with primary immunodeficiencies.
#IPOPI #Immunodeficiency
We are eager to collaborate with you to enhance diagnosis and care for patients with primary immunodeficiencies.
#IPOPI #Immunodeficiency
November 19, 2025 at 3:00 PM
💙 We are thrilled to share the exciting news of welcoming two fantastic additions to the #IPOPI family: GhanaPOPI and ASOGEIDI [Guatemala]!
We are eager to collaborate with you to enhance diagnosis and care for patients with primary immunodeficiencies.
#IPOPI #Immunodeficiency
We are eager to collaborate with you to enhance diagnosis and care for patients with primary immunodeficiencies.
#IPOPI #Immunodeficiency
🌍 On 18-19 November 2025, the European Medicines Agency held a meeting with patient, consumer and healthcare professional organisations. The meeting was to discuss different projects to optimise clinical trials, availability and supply of medicines or the international activities the EMA develops.
November 19, 2025 at 9:10 AM
🌍 On 18-19 November 2025, the European Medicines Agency held a meeting with patient, consumer and healthcare professional organisations. The meeting was to discuss different projects to optimise clinical trials, availability and supply of medicines or the international activities the EMA develops.
This #AMRWeek, IPOPI highlights the urgent need for collaboration across healthcare providers, researchers, and policymakers to ensure that people with PIDs are not left behind in the global fight against antimicrobial resistance.
November 18, 2025 at 9:35 AM
This #AMRWeek, IPOPI highlights the urgent need for collaboration across healthcare providers, researchers, and policymakers to ensure that people with PIDs are not left behind in the global fight against antimicrobial resistance.
💙 The #IPIC2025 Congress Dinner brought together our global PID community for an evening filled with laughter, friendship, and celebration.
Thank you to everyone who joined us — your energy and smiles made this night truly special! 🌍
Find all the pictures here: web.facebook.com/media/set/?v...
Thank you to everyone who joined us — your energy and smiles made this night truly special! 🌍
Find all the pictures here: web.facebook.com/media/set/?v...
November 13, 2025 at 1:40 PM
💙 The #IPIC2025 Congress Dinner brought together our global PID community for an evening filled with laughter, friendship, and celebration.
Thank you to everyone who joined us — your energy and smiles made this night truly special! 🌍
Find all the pictures here: web.facebook.com/media/set/?v...
Thank you to everyone who joined us — your energy and smiles made this night truly special! 🌍
Find all the pictures here: web.facebook.com/media/set/?v...
🧬 Join @martinepergent.bsky.social in a heartfelt conversation with Joshua Williams about his long and challenging journey with secondary immunodeficiencies (SIDs). Dr. Stephen Jolles brings the medical perspective!
🎧 Listen now: open.spotify.com/episode/2IGi...
#PIDAwareness #IPOPI
🎧 Listen now: open.spotify.com/episode/2IGi...
#PIDAwareness #IPOPI
November 10, 2025 at 4:18 PM
🧬 Join @martinepergent.bsky.social in a heartfelt conversation with Joshua Williams about his long and challenging journey with secondary immunodeficiencies (SIDs). Dr. Stephen Jolles brings the medical perspective!
🎧 Listen now: open.spotify.com/episode/2IGi...
#PIDAwareness #IPOPI
🎧 Listen now: open.spotify.com/episode/2IGi...
#PIDAwareness #IPOPI
👋 That’s a wrap on #IPIC2025!
Patricia and the IPOPI team just wanted to say a big thank you and goodbye to everyone who joined us in Prague! 💙
See you next time! ✨
#IPIC2025 #Immunology #RareDiseases #PrimaryImmunodeficiencies #TeamIPOPI
Patricia and the IPOPI team just wanted to say a big thank you and goodbye to everyone who joined us in Prague! 💙
See you next time! ✨
#IPIC2025 #Immunology #RareDiseases #PrimaryImmunodeficiencies #TeamIPOPI
November 7, 2025 at 5:05 PM
👋 That’s a wrap on #IPIC2025!
Patricia and the IPOPI team just wanted to say a big thank you and goodbye to everyone who joined us in Prague! 💙
See you next time! ✨
#IPIC2025 #Immunology #RareDiseases #PrimaryImmunodeficiencies #TeamIPOPI
Patricia and the IPOPI team just wanted to say a big thank you and goodbye to everyone who joined us in Prague! 💙
See you next time! ✨
#IPIC2025 #Immunology #RareDiseases #PrimaryImmunodeficiencies #TeamIPOPI
🌟 Final day at #IPIC2025!
What an inspiring wrap-up to three days of science, collaboration, and innovation! From gene therapy and genomics to liver health and young investigator achievements — today had it all
A huge thank you to everyone who joined us and made this congress so special!
What an inspiring wrap-up to three days of science, collaboration, and innovation! From gene therapy and genomics to liver health and young investigator achievements — today had it all
A huge thank you to everyone who joined us and made this congress so special!
November 7, 2025 at 5:04 PM
🌟 Final day at #IPIC2025!
What an inspiring wrap-up to three days of science, collaboration, and innovation! From gene therapy and genomics to liver health and young investigator achievements — today had it all
A huge thank you to everyone who joined us and made this congress so special!
What an inspiring wrap-up to three days of science, collaboration, and innovation! From gene therapy and genomics to liver health and young investigator achievements — today had it all
A huge thank you to everyone who joined us and made this congress so special!
✨ Another fantastic day at #IPIC2025!
From complex infections to cutting-edge global updates, today’s sessions brought powerful insights, inspiring discussions, and incredible learning moments from experts around the world 🌍
The spirit of collaboration and innovation was truly on display!
From complex infections to cutting-edge global updates, today’s sessions brought powerful insights, inspiring discussions, and incredible learning moments from experts around the world 🌍
The spirit of collaboration and innovation was truly on display!
November 6, 2025 at 5:02 PM
✨ Another fantastic day at #IPIC2025!
From complex infections to cutting-edge global updates, today’s sessions brought powerful insights, inspiring discussions, and incredible learning moments from experts around the world 🌍
The spirit of collaboration and innovation was truly on display!
From complex infections to cutting-edge global updates, today’s sessions brought powerful insights, inspiring discussions, and incredible learning moments from experts around the world 🌍
The spirit of collaboration and innovation was truly on display!
🎓 Don’t let your CME credits play hide and seek!
Scan your badge at the auditorium entrance 👀 and head to the registration area to claim them.
#IPIC2025 #Prague #cmecredits
Scan your badge at the auditorium entrance 👀 and head to the registration area to claim them.
#IPIC2025 #Prague #cmecredits
November 6, 2025 at 3:52 PM
🎓 Don’t let your CME credits play hide and seek!
Scan your badge at the auditorium entrance 👀 and head to the registration area to claim them.
#IPIC2025 #Prague #cmecredits
Scan your badge at the auditorium entrance 👀 and head to the registration area to claim them.
#IPIC2025 #Prague #cmecredits
🌞 Good morning from #IPIC2025!
Day 2 kicks off with AI-powered poster walks, and inspiring talks on targeted therapies and secondary immunodeficiencies 💡
Coffee’s ready ☕, minds are sharp 🧠 — let’s dive into another day of science, collaboration, and patient-centered innovation! 💙
Day 2 kicks off with AI-powered poster walks, and inspiring talks on targeted therapies and secondary immunodeficiencies 💡
Coffee’s ready ☕, minds are sharp 🧠 — let’s dive into another day of science, collaboration, and patient-centered innovation! 💙
November 6, 2025 at 11:20 AM
🌞 Good morning from #IPIC2025!
Day 2 kicks off with AI-powered poster walks, and inspiring talks on targeted therapies and secondary immunodeficiencies 💡
Coffee’s ready ☕, minds are sharp 🧠 — let’s dive into another day of science, collaboration, and patient-centered innovation! 💙
Day 2 kicks off with AI-powered poster walks, and inspiring talks on targeted therapies and secondary immunodeficiencies 💡
Coffee’s ready ☕, minds are sharp 🧠 — let’s dive into another day of science, collaboration, and patient-centered innovation! 💙
#IPIC2025 kicked off with great energy! 🙌
From check-in to the first sessions, the enthusiasm was contagious.
Here are some of our favourite shots from Day 1 📸
From check-in to the first sessions, the enthusiasm was contagious.
Here are some of our favourite shots from Day 1 📸
November 5, 2025 at 11:32 PM
#IPIC2025 kicked off with great energy! 🙌
From check-in to the first sessions, the enthusiasm was contagious.
Here are some of our favourite shots from Day 1 📸
From check-in to the first sessions, the enthusiasm was contagious.
Here are some of our favourite shots from Day 1 📸
🚀 Only 1 day left! What are you looking forward to the most at #IPIC2025?
#IPIC2025 #1DayToGo #CountdownToIPIC
#IPIC2025 #1DayToGo #CountdownToIPIC
November 4, 2025 at 10:51 AM
🚀 Only 1 day left! What are you looking forward to the most at #IPIC2025?
#IPIC2025 #1DayToGo #CountdownToIPIC
#IPIC2025 #1DayToGo #CountdownToIPIC
At IPIC2025, we are honoured to have Dr Martin Zach as our opening session keynote speaker. Join us as he delves into "Boundaries of immunity and where to find them". Mark your calendar for this enlightening start to the congress! 📅
🔗 www.ipic2025.com
#IPIC2025 #ScientificProgramme #KeynoteSpeaker
🔗 www.ipic2025.com
#IPIC2025 #ScientificProgramme #KeynoteSpeaker
November 3, 2025 at 2:43 PM
At IPIC2025, we are honoured to have Dr Martin Zach as our opening session keynote speaker. Join us as he delves into "Boundaries of immunity and where to find them". Mark your calendar for this enlightening start to the congress! 📅
🔗 www.ipic2025.com
#IPIC2025 #ScientificProgramme #KeynoteSpeaker
🔗 www.ipic2025.com
#IPIC2025 #ScientificProgramme #KeynoteSpeaker
🚀 Get ready for IPIC2025! Download the congress app for easy access to the scientific programme, speaker info, floor plans, and more.
Search for IPIC2025 on the App Store and Google Play! 📲
Search for IPIC2025 on the App Store and Google Play! 📲
November 1, 2025 at 2:58 PM
🚀 Get ready for IPIC2025! Download the congress app for easy access to the scientific programme, speaker info, floor plans, and more.
Search for IPIC2025 on the App Store and Google Play! 📲
Search for IPIC2025 on the App Store and Google Play! 📲
🎧 Have you listened yet?
If you missed it when it first came out, now’s the perfect time to catch up!
🎙️ Listen and follow our podcast: open.spotify.com/episode/2Mxk...
If you missed it when it first came out, now’s the perfect time to catch up!
🎙️ Listen and follow our podcast: open.spotify.com/episode/2Mxk...
October 31, 2025 at 4:44 PM
🎧 Have you listened yet?
If you missed it when it first came out, now’s the perfect time to catch up!
🎙️ Listen and follow our podcast: open.spotify.com/episode/2Mxk...
If you missed it when it first came out, now’s the perfect time to catch up!
🎙️ Listen and follow our podcast: open.spotify.com/episode/2Mxk...
🎉 IPOPI is thrilled to announce that the IPIC2025 Scientific Committee has approved a record-breaking 258 abstracts, showcasing cutting-edge research in the field of PIDs.
🏅 Three winners have been selected—curious who they are?
🔗 Visit our website ipic2025.com
#IPIC2025 #AbstractWinners
🏅 Three winners have been selected—curious who they are?
🔗 Visit our website ipic2025.com
#IPIC2025 #AbstractWinners
October 31, 2025 at 2:01 PM
🎉 IPOPI is thrilled to announce that the IPIC2025 Scientific Committee has approved a record-breaking 258 abstracts, showcasing cutting-edge research in the field of PIDs.
🏅 Three winners have been selected—curious who they are?
🔗 Visit our website ipic2025.com
#IPIC2025 #AbstractWinners
🏅 Three winners have been selected—curious who they are?
🔗 Visit our website ipic2025.com
#IPIC2025 #AbstractWinners
✨ Free Public Transport in Prague!
IPIC2025 delegates get a complimentary pass for unlimited metro, tram & bus rides from Nov 5 to Nov 7.
Available only for delegates registered by 30 October.
➡️ Read More: lnkd.in/dBFM9gr4
#IPIC2025
IPIC2025 delegates get a complimentary pass for unlimited metro, tram & bus rides from Nov 5 to Nov 7.
Available only for delegates registered by 30 October.
➡️ Read More: lnkd.in/dBFM9gr4
#IPIC2025
October 30, 2025 at 5:25 PM
✨ Free Public Transport in Prague!
IPIC2025 delegates get a complimentary pass for unlimited metro, tram & bus rides from Nov 5 to Nov 7.
Available only for delegates registered by 30 October.
➡️ Read More: lnkd.in/dBFM9gr4
#IPIC2025
IPIC2025 delegates get a complimentary pass for unlimited metro, tram & bus rides from Nov 5 to Nov 7.
Available only for delegates registered by 30 October.
➡️ Read More: lnkd.in/dBFM9gr4
#IPIC2025
The IPOPI Jose Drabwell Research Grant Programme is supporting 4 innovative projects with 2 years of funding to advance scientific and clinical research in Primary Immunodeficiencies (PID). 🧬
👏 We celebrate these brilliant minds driving hope and progress in the PID community!
👏 We celebrate these brilliant minds driving hope and progress in the PID community!
October 30, 2025 at 11:03 AM
The IPOPI Jose Drabwell Research Grant Programme is supporting 4 innovative projects with 2 years of funding to advance scientific and clinical research in Primary Immunodeficiencies (PID). 🧬
👏 We celebrate these brilliant minds driving hope and progress in the PID community!
👏 We celebrate these brilliant minds driving hope and progress in the PID community!
🚀 The final countdown begins! ⏳ Just 1 week until IPIC2025 Congress!
Are you ready for a week filled with innovation, insights, and inspiration?
👉 ipic2025.com
#IPOPI #IPIC2025
Are you ready for a week filled with innovation, insights, and inspiration?
👉 ipic2025.com
#IPOPI #IPIC2025
October 29, 2025 at 3:28 PM
🚀 The final countdown begins! ⏳ Just 1 week until IPIC2025 Congress!
Are you ready for a week filled with innovation, insights, and inspiration?
👉 ipic2025.com
#IPOPI #IPIC2025
Are you ready for a week filled with innovation, insights, and inspiration?
👉 ipic2025.com
#IPOPI #IPIC2025