Author | Lightnews

IPOPI @ipopi.bsky.social · 42m

🎥 You can now watch the full recording of our latest IPOPI Hard Talks on Clinical Application of Calculated Globulin Screening — featuring insights from Prof. Stephen Jolles and Dr. Cecilia Poli.

▶️ Watch now on YouTube: youtu.be/t43ldp0LsTU

Webinar supported by CSL.

IPOPI Hard Talks: Clinical Application of Calculated Globulin Screening

YouTube video by IPOPI

youtu.be

IPOPI @ipopi.bsky.social · 1h

🎉 IPOPI is thrilled to announce that the IPIC2025 Scientific Committee has approved a record-breaking 258 abstracts, showcasing cutting-edge research in the field of PIDs.

🏅 Three winners have been selected—curious who they are?

🔗 Visit our website ipic2025.com

#IPIC2025 #AbstractWinners

IPOPI @ipopi.bsky.social · 22h

✨ Free Public Transport in Prague!

IPIC2025 delegates get a complimentary pass for unlimited metro, tram & bus rides from Nov 5 to Nov 7.

Available only for delegates registered by 30 October.

➡️ Read More: lnkd.in/dBFM9gr4

#IPIC2025

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IPOPI @ipopi.bsky.social · 1d

The IPOPI Jose Drabwell Research Grant Programme is supporting 4 innovative projects with 2 years of funding to advance scientific and clinical research in Primary Immunodeficiencies (PID). 🧬

👏 We celebrate these brilliant minds driving hope and progress in the PID community!

IPOPI @ipopi.bsky.social · 2d

🚀 The final countdown begins! ⏳ Just 1 week until IPIC2025 Congress!

Are you ready for a week filled with innovation, insights, and inspiration?

👉 ipic2025.com

#IPOPI #IPIC2025

IPOPI @ipopi.bsky.social · 4d

🫱🏻‍🫲🏿 Martine Pergent, IPOPI President, participated in the TRANSFORM Alliance meeting, addressing access to Advanced Therapy Medicinal Products (ATMPs) for rare disease patients.

Martine’s intervention was a strong call for equitable and timely access to transformative therapies.

IPOPI @ipopi.bsky.social · 7d

📢 The IPOPI 2024 Annual Review Report is now live!

Explore the key moments, global events, and new initiatives that helped IPOPI grow stronger in supporting people with primary immunodeficiencies worldwide.

👉 Read the full review here: ipopi.org/2024-annual-...

#IPOPI #AnnualReview

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IPOPI @ipopi.bsky.social · 8d

🧬 IPOPI Hard Talks is next week!

Register here: app.livestorm.co/ipopi/ipopi-...

Join us for an insightful session on the Clinical Application of Calculated Globulin Screening, featuring Prof Stephen Jolles and Dr Cecilia Poli, both experts in primary and secondary immunodeficiency management.

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IPOPI @ipopi.bsky.social · 8d

🌍 IPIC2025 is almost here! Join healthcare professionals, researchers, and patient advocates in Prague for the leading international congress on Primary Immunodeficiencies.

👉 Register now: ipic2025.com

#IPIC2025 #Prague2025

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IPOPI @ipopi.bsky.social · 10d

🌍 IPOPI visited the Vall d'Hebron Maternity and Children Hospital in Barcelona.

It was a great opportunity to learn more about their work in PIDs and explore ways to continue strengthening collaboration in the field.

We thank Dr. Soler-Palacín and the Vall d’Hebron team for their warm welcome! 💙

IPOPI @ipopi.bsky.social · 11d

🍂 Your autumn update is here: the IPOPI Newsletter!

Stay informed this season: IPIC2025 is approaching, celebrate the Jose Drabwell Research Grant winners, hear WPIW’s global initiatives, tune into our new podcast and more.

📬 Don’t miss out: e-news.ipopi.org

#IPOPI #AutumnNewsletter

Reposted by IPOPI

Johan Prevot @johanprevot.bsky.social · 12d

It was great to join my colleague Dr Jacques Rivière at the EAPS Congress in Lisbon during a session on patient engagement in scientific research to talk about @ipopi.bsky.social extensive experience on this topic, highlighting challenges & opportunities!
#ESID #ERNRITA

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IPOPI @ipopi.bsky.social · 13d

💙 Day 2 of the Latin American PID Patients Meeting brought us closer together – patients, doctors, partners and advocates united in strengthening PID care and awareness.

Thanks to CSL and Grifols for the support.

#IPOPI #PID #LASID2025 #BuenosAires #PrimaryImmunodeficiency #PIDAdvocacy

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IPOPI @ipopi.bsky.social · 14d

📸 Day 1 at the Latin American PID Patients Meeting was full of energy and meaningful exchanges!

A great start full of knowledge, collaboration, and ideas to drive progress for people living with PIDs in Latin America! 💙

Made possible with the support of: CSL & Grifols

#IPOPI #PID #LASID2025

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IPOPI @ipopi.bsky.social · 14d

👏 We are proud to celebrate and announce that Professor Martin van Hagen, Vice-Chairman of IPOPI’s Medical Advisory Panel (MAP), has been appointed as Officer of the Order of Orange-Nassau by His Majesty the King of the Netherlands.

#IPOPI #RoyalHonor #ClinicalImmunology #HealthcarePioneer

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IPOPI @ipopi.bsky.social · 15d

🎉 IPOPI President @martinepergent.bsky.social took part in the Opening Ceremony of the @lasidofficial.bsky.social Meeting, marking the official start of this inspiring congress.

A wonderful moment of collaboration and shared purpose between patient leaders and medical experts!

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IPOPI @ipopi.bsky.social · 15d

🏥 Amazing visit to Hospital de Pediatría Garrahan!

We were glad to share this visit with the Garrahan team, AAPIDP representatives from Argentina, and Dr Jenniffer Martinez from the Dominican Republic, completing her PIDetect training.

Special thanks to Dr Matias Oleastro for his support!

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IPOPI @ipopi.bsky.social · 18d

💙 We are thrilled to share the exciting news of welcoming one fantastic addition to the #IPOPI family: Kuwait Pids Group in #Kuwait!

We are eager to collaborate with you to enhance diagnosis and care for patients with primary immunodeficiencies.

#IPOPI #Immunodeficiency #TogetherWeAreStronger

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IPOPI @ipopi.bsky.social · 20d

IPOPI was at the CPIG 10th Anniversary Symposium – “Transforming Diagnostics and Care for Patients with Inborn Errors of Immunity” held on 9 October 2025 in Ghent.

Represented by Nizar Mahlaoui, Chairman of the IPOPI's Medical Advisory Panel and Lúcia Mamede, Medical Affairs Project Manager.

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IPOPI @ipopi.bsky.social · 21d

🌍 10 October – World Mental Health Day

For people living with PIDs, mental well-being is a vital part of overall health. Living with a chronic condition can bring emotional challenges such as anxiety, isolation, or uncertainty — but with the right care, mental resilience can flourish.

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IPOPI @ipopi.bsky.social · 23d

🎥 What makes the Latin American PID Patients Meeting so special?

Let’s hear it from the people who joined us on the last edition – participants and advocates who are shaping the future of PID care in the region. 💙

👉 This year we meet again in Buenos Aires!

#IPOPI #PID #LASID2025 #BuenosAires

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IPOPI @ipopi.bsky.social · 23d

Bridging Gaps in PID Diagnosis and Access to Care in Egypt 🇪🇬
IPOPI’s delegation — Johan Prevot, Bruce Lim, Dr Nizar Mahlaoui & Dr Silvia Sanchez-Ramon — joined a scientific symposium in Cairo on 6 Oct 2025, organised with Grifols Egypt for Plasma Derivatives.

#RareDiseases #GlobalHealth #Egypt

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IPOPI @ipopi.bsky.social · 24d

🌍 It’s #IPAW2025!

Watch our short documentary: www.youtube.com/watch?v=j2nb...

💛 Join us in raising awareness of the vital role plasma donors play in global health. Together, we can create a world of opportunities for those who depend on these unique therapies.

PART 1 💉 MINI-DOC - «Turning plasma into life-saving treatments»

YouTube video by IPOPI

www.youtube.com

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IPOPI @ipopi.bsky.social · 24d

🌍 Celebrate International Plasma Awareness Week!

Wherever you are, join us in celebrating and spreading awareness!

💉 Your plasma donation might take just a moment of your day, but it’s a lifetime of impact for someone else.

#IPAW2025 #PlasmaAwareness #PlasmaDonors #ThankYouDonors #IPOPI

IPOPI @ipopi.bsky.social · 25d

🎙️ New episode of Immunity Pulse!

What’s it like to join a clinical trial when you have an ultra-rare disease with few treatment options?

🎧 Listen now on Spotify: open.spotify.com/episode/5p1y...

#ImmunityPulse #Podcast #aPAP #ClinicalTrials #RareDiseases #PatientStories